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Scarlet Fever


skurtz

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skurtz Explorer

How many people have had scarlet fever?


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sillymomx3 Newbie

My 7 year old, who has celiac, had it about a month ago. One minute he was fine, the next minute one very sick little boy.

Christi

skurtz Explorer

Im guessing you knew he was celiac before the scarlet fever? So is ist true that sickness & stress can trigger the outcome of celiac? Was your son colicky when he was a baby?

jaten Enthusiast
How many people have had scarlet fever?

I had a severe case of Scarlet Fever as a young child in the mid-60's. GI problems most of my life. Celiac dx Dec. '05. Not sure there would be a correlation, but guess anything is possible.

ianm Apprentice

I had it when I was 3 or 4.

jenvan Collaborator

I had it when I was a baby.

sillymomx3 Newbie
Im guessing you knew he was celiac before the scarlet fever? So is ist true that sickness & stress can trigger the outcome of celiac? Was your son colicky when he was a baby?

Yes, I knew. He was dx in Nov. of 04. He was very colicky as a baby! He had RSV at 13 months which is a real health set back for any baby. Then he was hospitalized again at 18 months and at about 2 1/2. He's just never been much at fighting infection. He also has asthma and chronic ear trouble (including, ear infections and tumors). He started in with tummy aches and diarrhea not long after he had surgery to make a new ear drum, his had been completely destroyed from all the infections. It was a pretty traumatic surgery for a four year old. He has had a total of 5 surgeries.

I had health woes all my life but mine "triggered" after having my youngest child. I had an emergency c-section and a week later was back in the hospital with a septic infection. Then we knew something might be going on with the baby which was confirmed at his 2 month check up. So surgery, illness and stress, not sure which was my breaking point. I lost 17 pounds in 7 months & lived in fear of being too far from a bathroom. I didn't go to the Dr. right away because I thought it was nerves & didn't want to take meds (nursing). When I finally did go I remember telling the Dr. "even toast makes me sick" HA HA! My dx was in Oct. of 04. Both my other children have the genetic markers.


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  • 2 weeks later...
Neicee Newbie
How many people have had scarlet fever?

I had scarlet fever when I was 6 years old. I am now 38 years old and have lupus, relapsing polychondritis and was DX with celiac disease in feb of 2006. I am finding it hard to do this diet. I do really well most of the day and then I sneak a fig newton or a cookie and that means I ruined my whole good part of the day. How did you get your mind set to this new change of diet?

Neicee

kristing Newbie
I had scarlet fever when I was 6 years old. I am now 38 years old and have lupus, relapsing polychondritis and was DX with celiac disease in feb of 2006. I am finding it hard to do this diet. I do really well most of the day and then I sneak a fig newton or a cookie and that means I ruined my whole good part of the day. How did you get your mind set to this new change of diet?

Neicee

go NOW and buy "The Gluten-Free Bible" by Jax Peters Lowell. you'll find lots of enouragement, tips, etc. i don't know where i'd be without this book.

i know it's hard to stick to this diet, but you need to know that it's not a choice. you already have serious illnesses, why would you want to hurt your health now? you WILL NOT HEAL if you keep cheating. even a little bit here and there will hurt you. you said it yourself, it ruins your day. think about that the next time you want something as small as a fig newton. does it mean that much to you? it doesn't to me. that's how i got my mind set to a huge lifestyle change. like i said, i know it's hard, but unless you want serious complications, you can do this. besides, there are lots of gluten-free products out there that are just as good if not better than the real thing. checked out your local health food store or organic section of your grocery store? you'll be surprised at what you find. this is a disease that takes a lot of self-education and restraint. but like i said, YOU CAN DO THIS!

Guest jhmom
I am finding it hard to do this diet. I do really well most of the day and then I sneak a fig newton or a cookie and that means I ruined my whole good part of the day. How did you get your mind set to this new change of diet?

Hi Neicee,

It wasn't hard for me to change my eating habits after being dx with Celiac because I didn't want to get cancer, be chained to the toliet or be in pain for the rest of my life. After 3 days of being gluten-free the abdominal pain I had every single day for over a year, WAS GONE! I knew this HAD to be done if I wanted to have a productive life. Now I am not saying that certain foods don't tempt me because they do but I am SO scared of what would happen that I don't cheat AT ALL! I also have a 10 year old daughter that has Celiac and I don't want her to think "cheating" is ok, because it's not. You increase your chances of possibly getting cancer and other autoimmune diseases.

I also have Lupus and only wished there was a diet I could abide by that would make my symptoms disappear! Don't get me wrong Celiac is terrible but it is manageable with just a change in diet, no pills, no shots, NO ER visits, no regular visits to the doctor, etc.

There are a lot gluten-free foods that are out there to replace donuts, cookies, brownies, etc all you have to do it look for them. If you can't find them in the stores you may be able to buy them online. There are only certain brands that I like and they are "the gluten free pantry, Mi-Del, Enviro-kids, Kinnikinnick, Mrs. Leapers, etc

I don't mean to sound harsh, I do wish you luck and hope you find some "gluten-free sweets" to replace the poisonious ones you are eating.

Take care :rolleyes:

tiredofdoctors Enthusiast

I think I had scarlet fever when I was a really little kid. . . .

I agree with Stacie -- there are a LOT of good gluten-free treats out there! My husband and I like to go on shopping expeditions to see what we can find. He is much better than me at finding the good stuff! Once you get used to that kind of shopping (and that kind of price), gluten-free is pretty easy. Also, when the MD says go gluten-free or die, you pretty much decide that gluten-free sounds MUCH better!!!!

I also have additional autoimmune diseases (Hashimoto's -- but had my thyroid removed because of it -- Sjogren's, Psoriatic Arthritis) -- if a diet changed those, I'd do that, too! I read a thread ovamed.com -- they're using lab harvested, then cleaned and sterilized 10x pig whipworm eggs to treat celiac - and evidently having some success. Now they're starting it for gluten ataxia - and possible other autoimmune diseases -- I told my sister that if taking pig whipworm eggs (you don't get the worms) would get rid of all this, I'd take those suckers! :o

jenvan Collaborator
go NOW and buy "The Gluten-Free Bible" by Jax Peters Lowell. you'll find lots of enouragement, tips, etc. i don't know where i'd be without this book.

Neicee-

Be careful! Eating even a minute amount gluten occasionally will keep you from healing and keep your rate of cancers, autoimmune diseases and premature death at a very high level. The only way to do the gluten-free diet as a Celiac is zero gluten. Get all the gluten out of your house, out of your desk as work, wherever it may lurk. And as jhmom mentioned, finding some good gluten-free treats can help you make the transition. Have you found any yet? I'm sure we could name a bunch for you.

Also, I want to challenge the recommendation on the Gluten-Free Bible. There has been much discussion around here on the book and the general conscensus with most is that the book can give out incorrect information, and may not be the best book for beginners. IMO, the best book on lifestyle, support, gluten-free diet etc. is Wheat Free Worry Free by Danna Korn. Very good...

tiredofdoctors Enthusiast

I agree with Jen. I bought the Gluten-Free Bible, and I have found numerous errors throughout. I'm wondering if it is because it hasn't been revised, and new information has been coming down the pike through research much more than it was when the book was originally published. Wouldn't recommend it for someone new at this stuff, either. I learned (the hard way) most of what I know NOW about gluten-free lifestyle and things to be cautious about, etc., from this site (Particularly, Jen, Karen, Claire, Shirley, Beverly . . . . . ) :P I think I have asked more rediculous questions that they have answered, but they have done it with kindness, empathy and patience!

  • 13 years later...
Awol cast iron stomach Experienced

Old thread , but scarletina as a kid.  Check.

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    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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