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Egd / How Many Have Been Diag With Candida Besides Celiac Or Gluten Intolerance

skurtz

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skurtz Explorer
skurtz
Posted

Son had egd done today would like to know how many people have celiac or gluten intol & Candida??

Actual Candida found by a EDG ?

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  • Replies 51
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Rachel--24 Collaborator
Rachel--24
Posted

The 3 things I've been diagnosed with so far are gluten intolerance, candida, and c-diff infection. Candida is often seen with gluten intolerance. In my case I've been gluten free for several months so candida is more likely due to the bacteria infection and the unhealthy state of my digestive tract. My candida was found in a stool test.

skurtz Explorer
skurtz
Posted
  • Author

son had egd done today along with blood work, Dr. came out explained everything that was don said they took 5 biopsy he also brought pictures out & explained what was on them. He said he saw about 6 patches & beleives they are candida but wont know for sure until test results are in. He asked if hes been on any antibiotics recently , i told him no its been prob a couple of years. Anyhow Rachel I thought you had celiac?

Tommorrow my son is going right back on gluten free & hes looking forward to it. He's 11 yrs old 2 years ago we did the yeast free diet because I suspected candida because of this rash he would get. His Peditrician wouldnt test him he would just give him steroid creme & tell me not to feed him it. I used the creme maybe 2 times because it would come bk as soon as you stopped the cream. I didnt notice much difference in him or myself on the yeast free diet he said he feels way better on the gluten free I myself feel way better on the gluten free. My son also has Aspergers. go figure Dr always said he had add & every year I would take him in for yearly check up he would ask if i was ready for ritalin? When asperger diagnosis came bk & Specialist ruled out ADD Dr said it was a wrong diag. I do agree that there are some drs that shouldnt be drs but there are def some good ones. thanks for letting me vent.

chrissy Collaborator
chrissy
Posted

my daughter was diagnosed with a fungal infection in her esophagus when she had an EDG----but this was before we suspected she had celiac. you could see little white patches all over in the picture he brought me.

christine

Rachel--24 Collaborator
Rachel--24
Posted
Anyhow Rachel I thought you had celiac?

I never got diagnosed with Celiac. I went on the diet before taking my bloodtests because I didnt know any better and the doctor told me it wouldnt affect tests. He didnt know much about Celiac or testing. I was negative so went back to normal diet and a few months later I had lost 25 lbs. and was very sick. I thought I was dying so I put myself back on a restricted diet and started to get better. I had a biopsy 6 months later. I wasnt expecting the biopsy to show anything after 6 months on the diet and it didnt. I wanted an answer so did stool testing through Enterolab because I didnt have to go back on gluten for that test. It came back positive but the test cant diagnose Celiac it can only tell if I have immune response to gluten. So I'll never know if its Celiac or Gluten Intolerance...doctors just told me to stay on the diet regardless because that is the only treatment for both.

If your son is having a problem with Candida he should avoid sugar. Sugar feeds candida. Also probiotics of some kind may help. Plain yogurt may help if he can have dairy.

slpinsd Contributor
slpinsd
Posted

I'm in for the candida, as well. Don't know if it's due to Gluten Intol (not diagnosed Celiac, either), or H. Pylori. however, h pylori treatment is done and i'm still symptomatic.

rachel- i have a ques. enterolab gives you antitransglutaminase antibodies, right? i know in blood tests, these the antibodies that are more indicative to celiac tissue damage anyway, so you could assume that it IS more indicative of celiac, if yours were positive? (even though a biopsy is supposedly still the gold standard)

munchkinette Collaborator
munchkinette
Posted

What is candida? You don't mean the yeast, do you? In the GI tract? I keep reading about probiotics, but I'm wondering how good they are. I started taking the Trader Joe's acidophilus pills because I'm on antibiotics, but I'm not sure how useful they are.

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penguin Community Regular
penguin
Posted

yogurt is one of the things that my mom has always shoved down my throat when I had a stomach problem to replace the good bacteria. Now grown, I see that my body likes the good bacteria and I like to give them a home in my war torn digestive tract :D

That's the only thing I do, probiotically, because I'm afraid of any vitamin like pills :blink:

Rachel--24 Collaborator
Rachel--24
Posted
rachel- i have a ques. enterolab gives you antitransglutaminase antibodies, right? i know in blood tests, these the antibodies that are more indicative to celiac tissue damage anyway, so you could assume that it IS more indicative of celiac, if yours were positive? (even though a biopsy is supposedly still the gold standard)

Yes...I had positive tTG...BUT I do not carry either of the main celiac genes. I have genes which cause gluten sensitivity. The doctors say genes do not tell the whole story because a small amount of biopsy proven Celiacs do not carry the main genes. They have not yet determined all genes involved. I'm kind of on the fence. Most days I believe I'm gluten intolerant w/out Celiac. Its not something I think about that much anymore because I need to be on the diet regardless so I guess it doesnt matter. In the beginning I wanted more answers but I've put that to rest. The tTG may be indicative of tissue damage but maybe it doesnt necessarily mean flattened villi. Maybe w/out Celiac genes the villi dont get flattened...therefore technically not Celiac. I dunno...I was always confused about that. :unsure:

skurtz Explorer
skurtz
Posted
  • Author

My son & I both followed the yeast free diet 2 yrs ago I really didnt see much difference but

when on the gluten free diet in jan for 2 wks noticed a huge difference. We were still having sugar so I guess we will have to wait till the results come bk. I just wanted to know if its poss to have both celiac & candida? I think you can but im not sure

Rachel--24 Collaborator
Rachel--24
Posted

Yes, its very possible to have candida alongside any disease that weakens the immune system. Its especially common in Celiac because celiac damages the intestines.

danikali Enthusiast
danikali
Posted

Actually, it's perfect that this thread is up. I'm actually having problems with what I believe is a yeast infection, but it's not like it normally is.

Okay, this is going to get gross.

Well, I know if you have a yeast infection, you can get discharge that is thick and white like cottage cheese or something. Well, I have this, except it is also pink, bloody like. Sometimes, it is brown, but mostly pink. Last week, I had a lot of sugar, A LOT. And that's when it started up again. I'm also very bloated and it won't go away. I'm off of all sugar now, along with all of the other food intolerances I'm dealing with. Since Sunday, all I am eating is fruit, veggies, fish and meat. But this discharge and bloating won't go away. Does anyone know what this could be? I made an apt. with the gyno. for Thursday, but I'm thinking they are just going to give me antibiotics and I feel kind of iffy on that because my immune system is already obviously so weak. I take acidopholis every day though.

Anyway, have any of you ever experienced this kind of discharge? I had it before, but it went away in 2 days. Now I've had this again since Saturday. Could this be a yeast thing, or something more serious?

skurtz Explorer
skurtz
Posted
  • Author

I have never exper anything like that. You should prob call the Dr.

If anybody is interested there is a product called THREELAC its all natural its listed on one of the autism websites, its for candia problems.

danikali Enthusiast
danikali
Posted
I have never exper anything like that. You should prob call the Dr.

If anybody is interested there is a product called THREELAC its all natural its listed on one of the autism websites, its for candia problems.

I actually just started taking it on Sunday. I hope it works. Have you tried it?

skurtz Explorer
skurtz
Posted
  • Author

Yes my son & i took it last year it seemed to help me, but it was to big a fight to get him to take it, so I just cut off all breads, cookies anything yeasty. I finally got rid of the rash in the private area on him by soaking

his feet in tea bags about15 of the in hot water then when it cooled a little,he soaked his feet for 20 min.

he had the rash for a good 3 years but all the drs would give me were cremes with steroids in them. DUH

as soon as you stop them it would come back. Anyhow I really like the taste of the threelac I was like hooked on them. to me they taste like pixie sticks??? I purchased the 1st box for like 48.00 the 2nd box for 37.00 on line of course asked around at a couple of health stores & they never heard of it. I read somewhere you shouldnt take asadouphlis (spelled wrong) becasue your putting to much yeast back in your system?? dont know how true that is but I think the threelac works much better. Also you still have to stay more less on a yeast free diet or it comes bk.. let me know what you think if you want to : my email is 110sad@earthlink.net

penguin Community Regular
penguin
Posted

I've had that before, but it was just a wierd period, the gyno told me to do a pregnancy test. It was wierd because of a new brand of pills.

If it's a yeast infection, it's a fungal overgrowth and they're not going to give you antibiotics because antibiotics cause yeast infections because the good bacteria that normally keeps the fungal stuff under control gets killed.

Either use monistat or get an rx for diflucan if it's a yeast infection. The gyno will be able to tell you within like, 3 seconds of seeing it if it is yeast or not.

Yogurt (or anything with live cultures in it) helps a lot because it replaces good bacteria in your system. If you're on a no dairy thing, Silk has this new Silk live stuff that is soy yogurt. Acidophilus is one of the cultures that is good for you, and you can get that as a pill I think, but most yogurt has 6-8 live cultures, including the acidophilus.

Oh, and don't have sex! It'll make it worse and your FI can get it too. He probably won't have symptoms, but he'll keep passing it back to you!

danikali Enthusiast
danikali
Posted

Well thanks for the good information! I knew that you shouldn't have sex because it could make your infection worse, but I didn't know I could pass it onto him with no symptoms only to get it back again!

So more questions I have are:

1. Can a yeast infection give you pink discharge. Its the same texture as a regular yeast infection, it's just pink.

2. Can a yeast infection give you back pain?

2. About threelac: are there any side effects of it? And is it like a normal yeast medication (when it comes to a vaginal yeast infection). Like Monistat 3 will make you have even more discharge for the next one to two days and then it is gone.

3. Are there foods to stay away from besides the obvious: dairy, gluten, sugar, alcohol and caffeine?

Any help I would love! Thanks!

skurtz Explorer
skurtz
Posted
  • Author

as far as i know there arent any side affects at least we didnt have any.Im not sure if you asked but you take by mouth you put it on your tounge let it sit for awhile & then drink a glass of water.

Rachel--24 Collaborator
Rachel--24
Posted

Dani,

Check out this link.

Open Original Shared Link

If you have time listen to the show about gluten intolerance and then listen to the show about candida. Very, very, informative. I go to a Biohealth clinic and my doctor is awesome. Well...so far they've been like a huge gift after everything I've gone through with past doctors....but since this isnt the "rant about doctors thread" I wont get into that. :P

My doctor is just like the doctor speaking in these shows. Very knowledgeable and alot of whats being discussed in these programs has alot to do with questions in this thread. Also in my case I'm already diagnosed with gluten intolerance since last year. Now after finding good doctors and getting proper testing I'm diagnosed with Clostridium Difficile and candida. These programs describe how all this takes place just because of a gluten intolerance. You *may* have underlying cause for your symptoms (aside from gluten intolerance)....I would be least worried about candida although you may have that as well. Definately dont eat lots of sugar as that will aggravate the situation.

skurtz Explorer
skurtz
Posted
  • Author

I would think the blood tests & biopsies that my son had yesterday will show any underlying problems at least i hope so.

Rachel--24 Collaborator
Rachel--24
Posted
I would think the blood tests & biopsies that my son had yesterday will show any underlying problems at least i hope so.

Sorry Skurtz,

I was replying to Danikali's post but you're right. If you're son has Celiac as an underlying cause for his candida hopefully that will show up in the tests. :)

Rachel--24 Collaborator
Rachel--24
Posted
3. Are there foods to stay away from besides the obvious: dairy, gluten, sugar, alcohol and caffeine?

Carbs...like potatoes, white rice. Those turn to sugar pretty quickly.

Anyways I did the whole Candida thing for 4 months last year before I found out I had gluten intolerance. I followed the candida diet perfectly and I felt better but after 4 months I started to figure theres more to it....I mean you cant stay on that type of diet forever. I was living on meat, fish and a few vegetables. Since then I'm a FIRM believer that if you've got candida....theres a reason behind it.

i canary Rookie
i canary
Posted

I was diagnosed with candidia and celiac on the same day. I followed the candidia diet for 2 years and I am finally free of it. Dr. William Crook has a book "The Yeast Connection" that tells you what to eat and not to eat. Basically - don't eat: yeast, sugar, cheese, baking powder, vinegar, fruit juice and put your leftovers in the freezer not the refrigerator.

skurtz Explorer
skurtz
Posted
  • Author

I read the yeast connection & a few others like sugar buster I dont mean to sound like a broken record I just know that we son & I did way better in just 2 weeks on the gluten free & its more or less sugar free becuaese you have eliminated all of sugar the only thing he had was a koolaid here or there iin is lunch

it some candy here & there His rash never reappeared the one that I know is caused by yeast ( in Privates)

I say I would have to agree with Rachel-24 when looking bk over everything there must be an underlying problem that Im sure we will find out on mon when his test results are bk in. I mean hes either celiac or gluten free intolher either way hes bk on diet.

danikali Enthusiast
danikali
Posted

Good information!

Well, I am sure my underlying problem is Celiac disease, (possibly casein intolerance?) and I am sure that I have a problem with Candida. I know that when I have sugar (like candy) or any kind of processed foods, I get really bad stomach problems. Then I go back to eating plain whole foods, and I get better. So, I am positive that I've got the leaky gut, etc. So my question is, should I really not have potatos and rice anymore either? And any kind of fruit? I read online about this and some doctors recommended no fruit for the first 3 months and some doctors said it was okay. I had an apple this morning and some celery and carrots about 2 hours later. Neither hurt my stomach at all. I had rice cakes last night, and I didn't think about it, but I blew up like crazy after that and had foul gas again. I also had a potato for lunch yesterday and had problems again. Soooo, I'm thinking (and hoping) that fruit is okay, right? I haven't noticed any problems with it so far........

And how long is the typical time period that I must stay on this diet? A year? Does that mean I shouldn't have potatos or rice either for a whole year?

Also, whatelse could be my underlying problem besides the gluten intolerance thing?

I'm getting hungry thinking about all of the foods that I can't eat right now.........

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    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      So, essentially all of the nutrition in the food we eat is absorbed through the villous lining of the small bowel. This is the section of the intestinal track that is damaged by celiac disease. This villous lining is composed of billions of finger-like projections that create a huge amount of surface area for absorbing nutrients. For the celiac person, when gluten is consumed, it triggers an autoimmune reaction in this area which, of course, generates inflammation. The antibodies connected with this inflammation is what the celiac blood tests are designed to detect but this inflammation, over time, wears down the finger-like projections of the villous lining. Of course, when this proceeds for an extended period of time, greatly reduces the absorption efficiency of the villous lining and often results in many and various nutrient deficiency-related health issues. Classic examples would be osteoporosis and iron deficiency. But there are many more. Low D3 levels is a well-known celiac-caused nutritional deficiency. So is low B12. All the B vitamins in fact. Magnesium, zinc, etc.  Celiac disease can also cause liver inflammation. You mention elevated ALP levels. Elevated liver enzymes over a period of 13 years was what led to my celiac diagnosis. Within three months of going gluten free my liver enzymes normalized. I had elevated AST and ALT. The development of sensitivities to other food proteins is very common in the celiac population. Most common cross reactive foods are dairy and oats but eggs, soy and corn are also relatively common offenders. Lactose intolerance is also common in the celiac population because of damage to the SB lining.  Eggs when they are scrambled or fried give me a gut ache. But when I poach them, they do not. The steam and heat of poaching causes a hydrolysis process that alters the protein in the egg. They don't bother me in baked goods either so I assume the same process is at work. I bought a plastic poacher on Amazon to make poaching very easy. All this to say that many of the issues you describe could be caused by celiac disease. 
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      thank you so much for your detailed and extremely helpful reply!! I can say with absolute certainty that the less gluten containing products I've eaten over the past several years, the better I've felt.   I wasn't avoiding gluten, I was avoiding refined grains (and most processed foods) as well as anything that made me feel bad when I ate it. It's the same reason I gave up dairy and eggs- they make me feel ill.  I do have a bit of a sugar addiction lol so a lot of times I wasn't sure if it was the refined grains that I was eating - or the sugar. So from time to time I might have a cookie or something but I've learned how to make wonderful cookies and golden brownies with BEANS!! and no refined sugar - I use date paste instead. Pizza made me so ill- but I thought it was probably the cheese. I gave up pizza and haven't missed it. the one time I tried a slice I felt so bad I knew I'd never touch it again. I stopped eating wheat pasta at least 3 yrs ago- just didn't feel well after eating it. I tried chick pea pasta and a few others and discovered I like the brown rice pasta. I still don't eat a lot of pasta but it's nice for a change when I want something easy. TBH over the years I've wondered sometimes if I might be gluten intolerant but really believed it was not possible for me to have celiac disease. NOW I need to know for sure- because I'm in the middle of a long process of trying to find out why I have a high parathyroid level (NOT the thyroid- but rather the 4 glands that control the calcium balance in your body) I have had a hard time getting my vit D level up, my serum calcium has run on the low side of normal for many years... and now I am losing calcium from my bones and excreting it in my urine (some sort of renal calcium leak) Also have a high ALP since 2014. And now rapidly worsening bone density.  I still do not have a firm diagnosis. Could be secondary HPT (but secondary to what? we need to know) It could be early primary HPT. I am spilling calcium in my urine but is that caused by the high parathyroid hormone or is it the reason my PTH is high>? there are multiple feedback loops for this condition.    so I will keep eating the bread and some wheat germ that does not seem to bother me too much (it hasn't got enough gluten to use just wheat germ)    but I'm curious- if you don't have a strong reaction to a product- like me and wheat germ- does that mean it's ok to eat or is it still causing harm even if you don't have any obvious symptoms? I guess what you are saying about silent celiac makes it likely that you can have no symptoms and still have the harm... but geez! you'd think they'd come up with a way to test for this that didn't require you to consume something that makes you sick! I worry about the complications I've been reading about- different kinds of cancers etc. also wondering- are there degrees of celiac disease?  is there any correlation between symptoms and the amnt of damage to your intestines? I also need a firm diagnosis because I have an identical twin sister ... so if I have celiac, she has it too- or at least the genetic make up for having it. I did have a VERY major stress to my body in 2014-2016 time frame .. lost 50lbs in a short period of time and had severe symptoms from acute protracted withdrawal off an SSRI drug (that I'd been given an unethically high dose of, by a dr who has since lost his license)  Going off the drug was a good thing and in many ways my health improved dramatically- just losing 50lbs was helpful but I also went  off almost a dozen different medications, totally changed my diet and have been doing pretty well except for the past 3-4 yrs when the symptoms related to the parathyroid issue cropped up. It is likely that I had low vit D for some time and that caused me a lot of symptoms. The endo now tells me that low vit D can be caused by celiac disease so I need to know for sure! thank you for all that great and useful information!!! 
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      Welcome, @catnapt! The most recent guidelines are the daily consumption of a minimum of 10g of gluten (about the amount found in 4-6 slices of wheat bread) for a minimum of two weeks. But if possible stretching that out even more would enhance the chances of getting valid test results. These guidelines are for those who have been eating gluten free for a significant amount of time. It's called the "gluten challenge".  Yes, you can develop celiac disease at any stage of life. There is a genetic component but also a stress trigger that is needed to activate the celiac genes. About 30-40% of the general population possesses the genetic potential to develop celiac disease but only about 1% of the general population actually develop celiac disease. For most with the potential, the triggering stress event doesn't happen. It can be many things but often it is a viral infection. Having said that, it is also the case that many, many people who eventually are diagnosed with celiac disease probably experienced the actual onset years before. Many celiacs are of the "silent" type, meaning that symptoms are largely missing or very minor and get overlooked until damage to the small bowel lining becomes advanced or they develop iron deficiency anemia or some other medical problem associated with celiac disease. Many, many are never diagnosed or are diagnosed later in life because they did not experience classic symptoms. And many physicians are only looking for classic symptoms. We now know that there are over 200 symptoms/medical problems associated with celiac disease but many docs are only looking for things like boating, gas, diarrhea. I certainly understand your concerns about not wanting to damage your body by taking on a gluten challenge. Your other option is to totally commit to gluten free eating and see if your symptoms improve. It can take two years or more for complete healing of the small bowel lining once going gluten free but usually people experience significant improvement well before then. If their is significant improvement in your symptoms when going seriously gluten free, then you likely have your answer. You would either have celiac disease or NCGS (Non Celiac Gluten Sensitivity).
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      after several years of issues with a para-gland issue, my endo has decided it's a good idea for me to be tested for celiac disease. I am 70 yrs old and stunned to learn that you can get celiac this late in life. I have just gradually stopped eating most foods that contain gluten over the past several years- they just make me feel ill- although I attributed it to other things like bread spiking blood sugar- or to the things I ate *with* the bread or crackers etc   I went to a party in Nov and ate a LOT of a vegan roast made with vital wheat gluten- as well as stuffing, rolls and pie crust... and OMG I was so sick! the pain, the bloating, the gas, the nausea... I didn't think it would ever end (but it did) and I was ready to go the ER but it finally subsided.   I mentioned this to my endo and now she wants me to be tested for celiac after 2 weeks of being on gluten foods. She has kind of flip flopped on how much gluten I should eat, telling me that if the symptoms are severe I can stop. I am eating 2-3 thin slices of bread per day (or english muffins) and wow- it does make me feel awful. But not as bad as when I ate that massive amnt of vital wheat gluten. so I will continue on if I have to... but what bothers me is - if it IS celiac, it seems stupid for lack of a better word, to intentionally cause more damage to my body... but I am also worried, on the other hand, that this is not a long enough challenge to make the blood work results valid.   can you give me any insight into this please?   thank you
    • trents
      Accuracy of testing concerns

      By trents · Posted

      The biopsy looks for damage to the mucosal lining of the small bowel from the inflammation caused by celiac disease when gluten is ingested. Once you remove gluten from the diet, inflammation subsides and the mucosal lining begins to heal. 
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