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Having Some Stomach Problems Of My Own...


e&j0304

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e&j0304 Enthusiast

I usually post here because my little girl is gluten intolerant and we have gotten much needed advice and support from such wonderful people on here.

My question today is about myself. I have been suffering for the last week from terrible stomach pains that are basically like severe menstrual cramps at times that go from my back around to my stomach. They are usually low, but sometimes higher. They seem to come and go and are worse after eating. I had a urine test done as well as a blood test and everything was ok. I had to go to the ER last night because the pain was so intense and I couln't take it anymore. I was given morphine and that made the pain go away. I was also given a prescription for another narcotic pain medication.

When this pain comes, it is so intense that I am doubled over in pain. They don't think it is my appendix and they ruled out a tubal pregnancy. I also had a pelvic ultrasound done and everything looked ok although they said I had a large amount of bowl gas. I know that gas pains can hurt, but not like this.

So, does this sound like a stomach or intestional problem? I may have to go see a GI about it if it doesn't get better. This doesn't seem gluten related to me, but I know that so many of you have had other GI things going on in addition to celiac and I was just hoping someone would see this and shed some light on it for me because it's so frustrating to have neg. test results and be in such pain.

Thank you for any advice!

Shannon


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penguin Community Regular

I have the same kind of really intense pains, though mine are normally higher up, actually in my stomach. My dr called it pyloric spasm, and generally I've had to go to the er for it. I get these pains periodically and have for the last 3 years. They test for h. pylori and poke my stomach and I say ouch and then they throw narcotics at me and tell me to go home. :huh:

None of my doctors have been able to figure out what causes it. :rolleyes:

I have the lower cramping that is hugely painful too, though I take anti-spasmodics also so it doesn't bother me as much. I actually woke up in the middle of the night last night with the pains in the lower part of the bowel, hurt like a sonofabeast! It was pretty much just gas. Your bowels just might be cramping up on their own. Since nobody has been able to help me, I'm not much help to you, sorry... :(

All I can tell you is to lay flat on your back and use a heating pad, kind of like you have bad menstrual cramps, it helps.

e&j0304 Enthusiast

thank you for your response. I am still having quite a bit of pain and had a really bad night last night, so I called my dr. this morning and they got me in with a GI today! I love my family dr. They are so quick about getting appointments set.

The GI said that he thinks I have IBS or a spastic colon. He gave me some medication (anti-spasmodics) and is going to do a colonoscopy next week. Hopefully I can tolerate the pain of this for the next week. If I have IBS, what in the heck can I do for that anyway? He suggested drinking more water and eating lots of fruits and vegetables.

Anyway, just wanted to say thanks for your insight and hopefully I'll get this figured out because it is hard for me to tolerate this pain.

francelajoie Explorer

Had those pains once. It hurt so much I couldn't even lay on my back. They took Xrays and found bruises on the outside of my stomach. He gave me a diet to follow...just like you would if you had ulcers. He also gave me acid reflux medicine. Felt alot better in a matter of hours.

CMCM Rising Star

Keep in mind that you have a daughter who was diagnosed positive; she got her gene from one of her parents, and it could have been from YOU! So you are right to be suspicious about your own symptoms. It might be useful to test yourself to see if anything is going on.

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    • trents
      Yes, I'd like to know also if a "total IGA" test was ever ordered. It checks for IGA deficiency. If you are IGA deficient, it will likely render the individual celiac IGA antibody tests invalid. Total IGA goes by other names as well:  Immunoglobulin A (IgA) Test Serum IgA Test IgA Serum Levels Test IgA Blood Test IgA Quantitative Test IgA Antibody Test IgA Immunodeficiency Test People who are IGA deficient should have IGG tests run as well. Check this out:    I am also wondering if your on again/off again gluten free experimentation has sabotaged your testing. For celiac disease testing to be valid, one must be eating generous amounts of gluten for weeks/months leading up to the test.
    • Scott Adams
      I’m so sorry you’re going through this—it sounds like you’ve been on a really challenging journey with your health. Your symptoms (stomach pains, bloating, low iron, joint pain, brain fog, etc.) do sound like they could be related to gluten sensitivity or another condition like non-celiac gluten sensitivity (NCGS). It’s interesting that your bloodwork hasn’t shown celiac markers, but the lymphocytosis in your duodenum could still point to some kind of immune response or irritation, even if it’s not classic celiac disease. The fact that your symptoms improved when you went gluten-free but returned when you reintroduced gluten (especially with the donut incident) is a pretty strong clue that gluten might be a trigger for you. It’s also worth noting that symptoms can be inconsistent, especially if your body is still healing or if there are other factors at play, like stress, cross-contamination, or other food intolerances. Do you have more info about your blood test results? Did they do a total IGA test as well? 
    • KDeL
      For years, I have dealt with various gluten related symptoms like stomach pains, bloating, IBS-C "ish" digestive issues, low iron, low Vit D, joint pains, brain fog, and more. I finally got a double scope and stomach looks clear, but I have some lymphocytosis of the duodenum. I am wondering if this sounds familiar to anyone, where I have not shown celiac red flags in bloodwork IGA tests. WIll be following up soon with GI Dr, but so far, my symptoms are intermittent. I go back and forth with gluten-free diet (especially this past year.... did two tests where the stomach pains I had went away without gluten in diet. HOWEVER, I added it back a third time and I didn't get the pains)   Anyway, I am so confused and scared to eat anything now because I recently had a few bites of a yeasty donut and I immediately got so sick. Any thoughts??
    • Peggy M
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