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cluseau


cluseau

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cluseau Newbie

This is my first post so forgive me if it is not correct.  I was recently diagnosed with Celiac's disease and I tried several gluten free beers.  I found out that I cannot tolerate sorghum.  I woke up twice screaming in pain after drinking these beers.  It felt like someone was stabbing me.  I am trying to find beers brewed with other grains, such as rice, millet or buckwheat that are OK for Celiac patients. 

The other problem is actually getting any beers that would be promising.  I live in Wisconsin so there are some west coast brews that are not available here.  Any help will be greatly appreciated.  Thanks...…...


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cyclinglady Grand Master

There are some pretty good Certified gluten free beers out there.  My fav is Ground Breaker brewed in Oregon.  My local liquor store (CA) carries it.  

https://www.groundbreakerbrewing.com/faq-gluten-free-beer

But.....you are just newly diagnosed.  Anything you eat can wreak havoc on your sore gut (intestines, liver, etc.). Can you wait a few more weeks before drinking?  If not, try some wine until you can find a good local gluten-free beer that has never been in contact with rye, barley or wheat.  

Little Joe Newbie

Being sensitive to sorghum rules out Redbridge.

I have tried and enjoy Omission beers.  I'm a cheap light beer in a can kind of guy, and my go to is Omission Ultimate Light Golden Ale I think it's called.  Omission does use regular beer ingredients and then does something to remove gluten during the brewing process.  Please read about them at their site: https://www.drinkomission.com/

While in Europe last year, I also enjoyed Peroni's gluten-free beer as well as Estrella Galacia's gluten-free beer.  Not sure if either are available in the US, however.

Back to Omission -- I think the jury is still out on whether or not Omission beer is safe for celiac patients to drink.  My experience is only anecdotal, to be sure.  I'm one of the people who have celiac disease but suffer no discomfort nor other noticeable symptoms if I ingest gluten.  I rely on blood work to determine how well I am adhering to a gluten-free diet -- and my blood work got better and better in the years following my diagnosis to the point where my antibody tests now come back negative, or very, very low.  While not definitive, my experience with Omission *seems* to be that it is safe for me.

Best to you as you navigate this new journey.  Learn everything you can, and keep notes if you need, you know "this good, that bad" kind of stuff.

GFinDC Veteran

Omission beer makes me sick.  But people have varying levels of sensitivity to gluten.  So it may be ok for you.

White Claw makes some flavored seltzer waters with alcohol that are gluten free.  Not like a beer but in a can at least.

Beverage Rising Star

I have no problems with Ghostfish gluten-free beer. I don't know if it contains sorghum, you can contact them and ask. Even my gluten eater friends were pleasantly surprised. They are certified gluten-free, dedicated gluten-free facility. They are always announcing distribution to more states. You can also mail order now. If you come to the Seattle area, they have the best gluten-free fish n chips.

https://ghostfishbrewing.com/

 

Beverage Rising Star

Just checked the fridge and found a can of Ghostfish Kick Step, one of my favs. No sorghum, it uses beet sugar.

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    • trents
      We are all different and our immune systems are unique. I will say, however, that I have not gotten the impression as a moderator and reading hundreds and hundreds of posts on this forum over the years that a dermatitis herpetiformis outbreak caused by grains other than wheat, barley and rye is common. But perhaps it is more common than we have realized and it could be why it it is seems to be common that those who suffer from dermatitis herpetiformis struggle to keep it under control. Perhaps there are qualities found in all cereal grains besides gluten that are contributing factors. Also, have you tried a low iodine diet to see if it helps with your dermatitis herpetiformis? Reportedly, reducing iodine helps some folks afflicted with dermatitis herpetiformis.
    • Richardo
      Ok thanks Trents. I had the lesions biopsied and confirmed dermatitis herpetiformis, so I guess dermatitis herpetiformis can be associated with other grains not typically gluten. I appreciate your comment and I'll give Dr Osborne the benefit of the doubt because without him I would never have known of my grain intolerance and would still be suffering today. I simply never read anyone explain how grains could worsen dermatitis herpetiformis and I feel that information should be made much more readily available. Hey if someone tries going grain free and there's no improvement, no loss, however it drastically changed my life for the better and could at least be offered as a suggestion to sufferers from dermatitis herpetiformis. The other option is Dapsome and I wouldn't want anyone taking that chemical if there was a more natural solution. thanks again 
    • trents
      Welcome to the forum, @Richardo! We sometimes run across terms like "rice gluten", "corn gluten", and "oat gluten" but they are used informally and, technically, it is incorrect to speak of grains other than wheat, barley and rye as having gluten. Gluten is a protein with a specific structure found only in wheat, barley and rye. Other cereal grains contain proteins that are more or less similar in structure to gluten in some ways but are not actually gluten. Having said that, the proteins found in these other cereal grains are similar enough to gluten to possibly cause cross reactivity in some celiacs. Cross reactivity also happens with non cereal grain foods as well that have a protein structure similar to gluten. A prime example is dairy (the protein "casein"). Another example may be soy. Other foods can also cause cross reactivity for different reasons, such as microbial transglutaminase (aka, "meat glue") used commonly in pressed meat products. Just so you'll know, Dr. Osborne's claims have not received wide acceptance in the celiac community and are looked upon with skepticism by the medical and scientific community. Although he is a board certified nutritionist, his doctorates are actually in chiropractic medicine and pastoral science: https://www.drpeterosborne.com/about/dr-peter-osborne/ I am not sure Osborne has the training and background to address the chemical structure that defines gluten. I would encourage you to do some research on what gluten actually is. I have done this for myself and came away convinced that only wheat, barely and rye actually contain the protein gluten. I do not doubt your claims that you have breakouts of dermatitis herpetiformis from consuming these other grains. I am just contending it is not actually from gluten.
    • Richardo
      I was diagnosed celiac about 15 years ago and followed the usual diet restriction on Wheat, barley and rye and did very well on those restrictions with no problems with dermatitis herpetiformis. 4 years ago I started getting bad rashes on my knees and calves, buttocks, around my waist and my elbows and forearms and hands. It seemed to last about 11/2 to 2 months then clear up for a month and come back  again. I never changed anything in my diet and a dermatologist told me I  must getting  cross contamination, which I knew I wasn't.  Finally after struggling with it all that time, I watched a video by Dr Osborne who sited a study done in England showing that ALL grains (rice, corn etc) contain gluten. I went on a totally grain free diet and have now been 100 percent free of dermatitis herpetiformis for over a year. I tried a test and ate corn flour and it started to come back so I'm off all grains again. Long story I know, but my question is, why is practically EVERY celiac site private or Govt only mentioning the BIG 3 and never mentions other grains as a possible means of contamination? I am free  from a horribly uncomfortable condition now and I know there are others who would be encouraged by this.
    • trents
      Your chest pain could be related to the Sarcoidosis. "When it affects the lungs, wheezing, coughing, shortness of breath, or chest pain may occur." https://en.wikipedia.org/wiki/Sarcoidosis   The bowel incontinence could be caused by surgical damage (or scar tissue) to the cauda equina nerve bundle in the lumbar area of the spine. Or, it could be related to unintentional gluten exposure.
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