Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Soy

BrenLou
 Share

Recommended Posts

BrenLou Rookie
BrenLou
Posted

I understand that most soy sauces have gluten, however I don't know if that means I have to totally cut all soy from my diet.  Forexample, some products have soy lecithin so is that okay or not okay.

Also, I have only very recently found out I have Celiac disease and although I think I've done fairly well so far, I admit I am somewhat afraid of whatever I eat! How do I do this without that fear?

 

Thank you!

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted

You can have soy!  Just make sure the soy sauce is marked gluten free!  

When newly diagnosed, besides reacting to gluten which sets off an autoimmune response, many celiacs have concurrent intolerances or allergies to other foods.  This has been attributed to a damaged, leaky gut.  Every celiac is unique.  But the most common intolerances often include the top 8 allergens (soy is on this list).  

How to know what additional intolerances you might have?    (Remember, those can cause discomfort but are not necessarily setting off an autoimmune response like gluten does.  Experiment. Keep a food and symptom journal.  

Personally, I can not consume Xanthan Gum, onions, garlic, mushroom and nuts.  Even after healing from celiac disease these foods do not like me!  

Your fear will reduce, once you have mastered the diet.  Know that it takes time.  Be patient.  

Congratulations on doing a good job.  I am happy for you!  

Link to comment
Share on other sites
mbrookes Community Regular
mbrookes
Posted

No one wants to have Celiac, but isn't it good to know what the problem is and what to so about it! La Choy soy sauce is gluten free, as is Tamari. I promise, it will get easier with time. You will find out what you can and can't tolerate and life will be wonderful again. You will always have to be careful what you eat, but no more surprise nausea and diarrhea. brain fog , wildly fluctuating moods. I have been happier since my diagnosis than I was for the 5-6 years that I was sick before diagnosis.

Link to comment
Share on other sites
  • 2 weeks later...
BrenLou Rookie
BrenLou
  • Author
Posted

Thank you for taking time to answer me! 

Link to comment
Share on other sites
mbrookes Community Regular
mbrookes
Posted

You have come to the right place. Many of the people on this site are new to the Celiac life, but many of us have been at it for a while. I was diagnosed 15 years ago when there was about nothing gluten free available. Now there are cookies, snacks, frozen dinners, all sorts of things. Wheeeeeee. There will always be problems, eating out is a crap shoot, going to parties (especially dinner parties) will be tough, office get-togethers are a bit strained, conference banquets are awful, but......you don't have to know where a bathroom is everywhere you go. You are not totally wiped out as soon as you get up, You are not killing tourself with a fork. Good luck. You will do great.

Link to comment
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      125,779
    • Most Online (within 30 mins)
      7,748
    Cathy Roth
    Newest Member
    Cathy Roth
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.8k
    • Total Posts
      68.9k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Wheatwacked
      Confused with test results

      By Wheatwacked · Posted

      There is plenty of gluten food that is unplatable also. The trouble in restaurants is that wheat,  like the Frank's Hot Sauce commercial; "They throw that bleep on everything." In my opinion, the underlying problem is compromised immune system due to vitamin D deficiency and Green Revolution modern wheat.  50% of the industrialized world are vitamin D deficient and we are urged to avoid sun and limit oral vitamin D intake to the minimum.   Non Celiac Gluten Sensitivity became an official diagnosis only 10 years after modern wheat was marketed.
    • trents
      Does Hashimoto’s Hypothyroidism elevate Ttg levels ? I have had 3 blood test results where ttg levels are around 39-43 (range 0-19). The first test was in 2021 before I was diagnosed with autoimmune thyroid disease. I had an endos

      By trents · Posted

      I understand from one of our forum moderators who is UK-based that the benefits of having an official celiac diagnosis varies depending on your postal code. So then, it must be a benefit tied to local government rather than national government.
    • Elliebee
      Does Hashimoto’s Hypothyroidism elevate Ttg levels ? I have had 3 blood test results where ttg levels are around 39-43 (range 0-19). The first test was in 2021 before I was diagnosed with autoimmune thyroid disease. I had an endos

      By Elliebee · Posted

      I think if I gave up gluten and got a negative blood result and stick with it rather than do the gluten challenge (even though I’ve got no symptoms.. yet).  think if I gave up gluten and got a negative blood result and stick with it rather than do the gluten challenge (even though I’ve got no symptoms.. yet). 
    • Scott Adams
      Does Hashimoto’s Hypothyroidism elevate Ttg levels ? I have had 3 blood test results where ttg levels are around 39-43 (range 0-19). The first test was in 2021 before I was diagnosed with autoimmune thyroid disease. I had an endos

      By Scott Adams · Posted

      For anyone interested in research summaries on this topic we have this category: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/thyroid-pancreatic-disorders-and-celiac-disease/ 
    • trents
      Does Hashimoto’s Hypothyroidism elevate Ttg levels ? I have had 3 blood test results where ttg levels are around 39-43 (range 0-19). The first test was in 2021 before I was diagnosed with autoimmune thyroid disease. I had an endos

      By trents · Posted

      Obviously, you have looked at all this from various angles and I respect that. But consider this, you could trial the gluten-free diet for six months to see if it results in lower ttg-iga scores. If so, it is another piece of evidence pointing to celiac disease. You could then go off the gluten fast and return to a gluten loaded diet for weeks or months and repeat the colonoscopy/endoscopy. My point is that trialing a gluten-free diet does not eliminate the possibility of getting valid celiac retesting at a late date if you are willing to engage with the gluten challenge.
×
×
  • Create New...