Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):
    GliadinX



    Celiac.com Sponsor (A1-M):
    GliadinX


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Reintroduced to gluten


daisyb00

Recommended Posts

daisyb00 Rookie

Hi folks,

I am curious about what to expect when eating gluten for the first time after following a non-gluten diet (accidental or purposeful). 
I am currently waiting for an endoscopy (was due to have one early March but got cancelled due to COVID). Since then I’ve been having really bad stomach pains and awful fatigue, amongst other complications. I spoke to my GP and they advised to avoid gluten until I get my letter about my endoscopy date and then reintroduce gluten to my diet. I know this isn’t normal procedure but they said due to the likelihood of me being celiac (blood test and family history) it’s best to ease the symptoms for now as it was seriously affecting me. After all these aren’t really normal times. 

I’m mainly wondering now what to expect when I start eating gluten again (it could be a few weeks or few months until this happens). Just wondering if anyone has had similar experiences or just can advise on how best to prepare myself with what to expect pain/ sickness wise. 
Many thanks 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):
Authentic Foods
NutHouse! Granola Co.



Celiac.com Sponsor (A8-M):
Little Northern Bakehouse


cyclinglady Grand Master

Hi!  

It is hard to say how you will react when you start consuming gluten about two weeks from the date of your endoscopy (or what the GI instructs).  This is called a gluten challenge.  Celiac disease is like a chameleon.  Symptoms can and do change.  I am sure you will be instructed by your GI as to what to expect and what to do if your challenge becomes difficult.  

I have no experience doing this, but I suspect that avoiding foods that you already have intolerances to (e.g. dairy, soy or corn are common) could be avoided.  I have also heard that by consuming gluten before bedtime could be helpful.  

Let’s hope others chime in!  

daisyb00 Rookie
  On 6/1/2020 at 4:00 AM, cyclinglady said:

Hi!  

It is hard to say how you will react when you start consuming gluten about two weeks from the date of your endoscopy (or what the GI instructs).  This is called a gluten challenge.  Celiac disease is like a chameleon.  Symptoms can and do change.  I am sure you will be instructed by your GI as to what to expect and what to do if your challenge becomes difficult.  

I have no experience doing this, but I suspect that avoiding foods that you already have intolerances to (e.g. dairy, soy or corn are common) could be avoided.  I have also heard that by consuming gluten before bedtime could be helpful.  

Let’s hope others chime in!  

Expand Quote  

That’s great thank you, that’s what I’ve been thinking just eating it before I sleep so I (hopefully) minimise the discomfort. 
 

Hopefully they do!!

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):
    Food for Life



  • Member Statistics

    • Total Members
      127,214
    • Most Online (within 30 mins)
      7,748

    Kelly A Demers
    Newest Member
    Kelly A Demers
    Joined

  • Celiac.com Sponsor (A20):
    GliadinX


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70k

  • Celiac.com Sponsor (A22):
    GliadinX




  • Celiac.com Sponsor (A21):
    Little Northern Bakehouse



  • Upcoming Events

  • Posts

    • trents
      knitty kitty makes a good point. Avocados are high in histamines. So are bananas. Both also trigger histamine production in the body when consumed so there's a double whammy with those two foods for those struggling with histamine intolerance/MCAS
    • knitty kitty
      @Sharke, The updated guidelines for a gluten challenge are to eat ten grams of gluten per day for two weeks minimum.  Lesser amounts of gluten (3 grams) don't provoke an immune response strong enough that the antibodies leave the gastrointestinal tract and get into the blood where they can be measured in tTg blood tests.   Have no doubt that the antibodies made in the small intestine are doing damage there, even if you don't suffer severe symptoms, yet. Did you react to barley prior to going gluten free? Have you been checked for chronic autoimmune gastritis which is another autoimmune disease that sometimes occurs with Celiac Disease? Have you been checked...
    • knitty kitty
      @sillyyak52, Count another one in the same boat!  My family has always been in denial.  They said my tummy aches were a ploy to miss school.  My parents passed from health problems associated with uncontrolled Celiac Disease (Abdominal Aortic Aneurysm and Glioblastoma brain tumor).  My sister still has her head buried in the sand.   I agree with @Rogol72, try the consequences of untreated celiac disease shock treatment.  Sometimes people are just scared of having to change their comfortable lifestyle.
    • Lotte18
      I have never been tested for tTg 6 antibodies but I will certainly do that next time I'm at the doc's.  Maybe there's a home test kit for that?  I drink lactose free milk and seem to be ok so I'm probably not a casein case but...who knows?!
    • knitty kitty
      I take Life Extension brand Mega Benfotiamine, (250 mg with each of two meals) and Maxlife Natural TTFD-B1 Max Thiamine (100 mg).   I try to take my Benfotiamine and TTFD before four pm, otherwise I have so much energy, it can be hard to fall asleep.    
×
×
  • Create New...