Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Old

flagbabyds

By flagbabyds
in Meet Up Room

When were you diagnosed?  

79 members have voted

You do not have permission to vote in this poll, or see the poll results. Please sign in or register to vote in this poll.

Recommended Posts

flagbabyds Collaborator
flagbabyds
Posted

I was just wondering when everyone was diagnosed.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


flagbabyds Collaborator
flagbabyds
Posted
  • Author

i think it is interesting because everyone is diagnosed at different times and when i did my science fair most people were diagnosed inbetween 20-40 and i want to know when everyone else was dx

Guest jhmom
Guest jhmom
Posted

I answered for me but also wanted to let you know that my daughter was dx when she was 8 (it wouldn't let me vote twice).

byuiemily Newbie
byuiemily
Posted

Hi, I'm new to the forum. My name is Emily, and I'm almost a sophmore in college. I'm from Kansas, but am going to school in Rexburg, Idaho. I was diagnosed a week or two into my senior year of high school, so I was 17. I turn 19 in two days, so it's been almost 2 years since I found out I had Celiac.

plantime Contributor
plantime
Posted

Hi, Emily! I'm almost 40, just diagnosed, and living in Southeast Kansas. What part of Kansas are you from?

byuiemily Newbie
byuiemily
Posted

I'm from Topeka, born and raised there. Where in Kansas are you at?

plantime Contributor
plantime
Posted

Between Pittsburg and Columbus. I love this state!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest DawterAod
Guest DawterAod
Posted

I haven't actually been diagnosed with celiac..

But i was diagnosed with a gluten intolerance a year ago, so i would've been 16.

travelthomas Apprentice
travelthomas
Posted

I

  • 1 month later...
Guest ecko_gurl18
Guest ecko_gurl18
Posted

Hi, my name is Sarah and i live in Toronto, Canada.I'm turning 18 next week and i was diagnosed with celiac disease when i was 18 months old. I don't even remember ever eating wheat, but sometimes i wish i could.

flagbabyds Collaborator
flagbabyds
Posted
  • Author

Same with me :) Except I was diagnosed @ 20 months, I don't remember wheat, barley, rye at all

  • 1 year later...
petlover Newbie
petlover
Posted

i was elevan and i dont have celiac disease but i am very senitive to gluten, barly, and malt

Asia :lol:

  • 1 year later...
dietsoda Newbie
dietsoda
Posted

i were diagnosed when i was 2 yrs..

babygirl1234 Rookie
babygirl1234
Posted

ive been gluten-free since i was 16

Kassie Apprentice
Kassie
Posted

i was diagnosed when i was 14 and a half. i have only had celiac for a little over a year.

Byuemily- i was just wondering, your from kansas why did u come all the way to idaho for college not like its a bad thing, but idaho is just kinda a small not very well known state (i'm from idaho)

Chicklet Rookie
Chicklet
Posted

I found out last year so I was 42 (still am) but I wasn't officialy diagnosed. (Sorry didn't notice this was a teen only one, oops. )

zansu Rookie
zansu
Posted
I found out last year so I was 42 (still am) but I wasn't officialy diagnosed. (Sorry didn't notice this was a teen only one, oops. )

Hey, she gave me older than teen options so I took it! :rolleyes: I'm 44, back in college full-time (masters) :huh: ; diagnosed at 42. hindsight shows it's been active most of my life (enameless teeth!) :D

Carriefaith Enthusiast
Carriefaith
Posted

I was officially diagnosed around my 23rd birthday. I think it was several days before my birthday!

psawyer Proficient
psawyer
Posted

This is a really old thread, recently revived. I wasn't a teen even when it was started. My official diagnosis was given to me two days after my 46th birthday. I'm 52 now. So, at the moment: I am 15 with 37 years of experience. :lol: My first post here, in 2004, was also in response to a poll by Molly.

Viola 1 Rookie
Viola 1
Posted

I was 42 when diagnosed, I'm 60 now ... that's 15 with 45 years of experience :lol: I love that Peter.

Kaycee Collaborator
Kaycee
Posted

Me diagnosed at 48, and am now nearly 50

Cathy

quantumsugar Apprentice
quantumsugar
Posted

Ha, I'm a dork. Diagnosed at 20 (not 22)... I'm 22, which gives me two whole years experience (in a few more months).

jerseyangel Proficient
jerseyangel
Posted

Wow--this is an old thread! :D

I was diagnosed in June of 2005 at age 49. I had symptoms from about the age of 30.

Shirley and Peter--I'm not sure, what does that make me? :unsure:

Viola 1 Rookie
Viola 1
Posted
Wow--this is an old thread! :D

I was diagnosed in June of 2005 at age 49. I had symptoms from about the age of 30.

Shirley and Peter--I'm not sure, what does that make me? :unsure:

:o No one ever gets passed 49 :lol:

Now lets see ... that would be 15 with 35 years experience :rolleyes:

Phyllis28 Apprentice
Phyllis28
Posted

I was diagnosed in the spring of 1978 at 20.75 years. Yep, that's almost 29 years.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,209
    • Most Online (within 30 mins)
      7,748
    Sharon Camden
    Newest Member
    Sharon Camden
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.7k
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      For people with celiac disease and corn intolerance from it: Is salt still okay for most people?

      By trents · Posted

      There is dextrose in table salt?
    • trents
      Gluten Free Beer - The Enzymatic Hydrolyzation Process Problem

      By trents · Posted

      Jason, I have a bone to pick with your terminology. There is "gluten intolerance" which I believe is synonymous with celiac disease and then there is "gluten sensitivity" which comes from Non Celiac Gluten Sensitivity or NCGS for short. It is true, however, that there is still a lot of inconsistency in the use of these terms.
    • Liquid lunch
      Medicinal mushrooms 🍄

      By Liquid lunch · Posted

      I can’t say this will work for everyone but for me the difference is incredible so might be worth trying. I’ve never been diagnosed celiac but via an elimination diet I realised I can’t eat any lectins, gluten soy and oats are particularly problematic. If I eat them I’m in bed for a week, then heavy bleeding and extreme pain for another, followed by a third week of bleeding on and off. My skin was a mess and it snowed when I brushed my hair. Since taking reishi and cordyceps mushroom tincture I can’t believe the difference, I’ve had a lot of help from this site so I want to return the favour. I took the tincture for my guts but the most apparent effect is that I feel like my brain works again, I can’t begin to describe how wonderful it is to be able to achieve basic things, I’ve barely been able to organise getting out of bed for so long, it feels like I haven’t been hit over the head with a mallet for the first time in years. Then I glutened myself, not necessarily gluten as so many things wipe me out but definitely ate something I shouldn’t have, I took a treble dose of the tincture and almost immediately felt much better so continued with the increased dose and three days (not weeks) later was back to feeling great, no bleeding involved. My skin is better than I can remember it ever being, I feel great 😊. I spend £1.50 a day on these but it’s worth every penny, I hope this helps someone else out there reading this. I wish I’d known about them 20 years ago. best wishes everyone 🍄 
    • Scott Adams
      Endoscopy

      By Scott Adams · Posted

      Given your history of a high TTG (167) that decreased to 16 on a gluten-free diet, along with genetic confirmation of celiac disease, it’s likely the negative biopsy is a false negative due to not eating gluten before the endoscopy. Gluten is necessary to trigger the intestinal damage seen in celiac disease, and avoiding it can lead to healing and a normal biopsy despite ongoing immune activity (reflected in your still-elevated TTG). The inflammation observed during the endoscopy (“diffuse moderately erythematous mucosa”) could be residual damage, mild ongoing inflammation, or another condition like peptic duodenitis, but it’s consistent with celiac disease in context. Continued positive blood markers suggest ongoing gluten exposure, possibly from cross-contamination or hidden sources. Strict adherence to a gluten-free diet and follow-up testing are key to managing symptoms and reducing inflammation. Discuss these findings with your doctor to confirm the diagnosis and refine your dietary approach. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • Scott Adams
      Biopsy results after 1,5 gfd

      By Scott Adams · Posted

      Yes, it sounds like great progress, but what was the time frame between the two endoscopies? 
×
×
  • Create New...