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    • VinnieVan
      Thank you for your response, Trents. I was only 10mo old at the time, so I don’t know anything about the doctor other than he was in Portland, Oregon. I assume, given it was 1954, that he was white, but I can’t be sure. We didn’t live in Oregon. Having this “issue” was never a big deal as I remember. As an older child, teen and young adult, I ate some breads - rye, sourdough, spelt. No pasta, baked goods, pizza or breaded meats. That said, I was extraordinarily thin. Since my 20’s I’ve been totally gluten free, so nearly 50 years. I am very cautious and eat really well. Are you a celiac? How has it been for you?  Again, thank you for responding. 
    • trents
      Welcome to the forum, @VinnieVan! No, never heard it called that. What was the physician's racial/ethnic profile? IIRC, The connection between gluten and celiac disease was made during the WW2 era in Holland when the Germans blockaded a region along the Rhine River and the local populace did not have access to wheat flour. A local physician began to notice that some of his patients who had always been unexplainably sickly began to thrive. That's a pretty "white" area. Also, for many years, it was thought that celiac disease was largely confined to those of European descent but we know better now. That likely was a product of what people groups had access to healthcare rather...
    • VinnieVan
      Hi, brand new here! When I was a baby, I was nursed exclusively until I was 10mo old. My mother introduced a few foods, some of which had gluten. I became very ill and she had no idea why. The doctor she took me to told her I had “Anglo Saxon disease and could not eat any gluten.” He also told her I would likely never walk and not develop normally. I’m 71, very healthy and I walk!! Has anyone ever heard celiac called that? I never eat gluten. If some slips by me, I know within a few minutes. It’s horrible, as all of you know! Anyway, thank you for letting me be here! Let me know if anyone else has ever heard celiac disease called Anglo Saxon disease! 
    • Katya773
      Hello:). This a lengthy post. Just looking for some advice. I had the capsule study back in 2019  I tried the gluten challenge but got so horribly distended and could finish it, I had been gluten-free since 2016 except for occasional accidental ingestion. However In 2019 I saw a gastroenterologist due to nonstop diarrhea and bloating. No diagnosis of Crohns or ulcerative colitis. After my biopsy I went to see the doctor and he said I could eat gluten bc my risk wasn’t high. However his nurse practitioner called me later and said I had Celiac?! What the heck??? So I stayed gluten-free.  How confusing! These are partial-biopsy results from 2019. *Signifi retained food stomach/SB. Mult...
    • trents
      Bone demineralization would not be detectable via bloodwork. It would require a DEXA scan. The body keeps calcium levels pretty constant in the blood and will rob it from the bones if necessary because it is such an important mineral for many metabolic processes. 
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