Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten-free Newbie


Linda352

Recommended Posts

Linda352 Rookie

Hi! I just discovered this site and am hoping to learn a lot from all of you. Although I haven't been tested for gluten Intolerance I am discovering on my own that I am better off physically if I stay away from these particular foods. I am 54yrs of age and have been suffering with degenerative disc disease in my upper spine (neck/shoulder) for many years. I've been in chronic pain until last summer when I began the South Beach Diet. During the 2 weeks that I did Phase 1 of the diet I suddenly was no longer in any pain! I was amazed! Then when I started Phase 2, which obviously, was adding back some gluten contained foods, my pain began once again. Up until recently it's been difficult for me to figure out what contained gluten and what didn't. I have no plan to get tested as I have lost faith in the medical profession and figure I am better off just taking my problem into my own hands and doing what I feel works rather than taking a bunch of prescription pain meds which don't work well to begin with. I've recently been to my local library where I found some useful information along with some interesting cookbooks. If any of you have a good gluten-free cookbook that you really like I would appreciate knowing about it. Looking forward to chatting here with you all :)

Linda from NJ


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

Welcome to the board. I'm glad you've found something that makes you feel better. You'll find a lot of useful advice - and recipes ;-) - on the board.

  • 2 weeks later...
mamaw Community Regular

Hi Linda

welcome to the group. You will find and learn probably more than you ever wanted to know from this group.I am ever so grateful to find this group as I have learned tons of info. Smart group --- brighter than most doctors regarding celiacs!!!

I'm from Pa and just a tad older than you!!!!!

good luck

mamaw

hungryforlife Apprentice

Hi Linda,

Welcome. I just joined recently too, after finding out my brother had celiac's and discussing similarities in our symtoms, I went searching for answers my doctor wasn't able to provide, that is how I found this forum. I am in the process of being tested, and will then have my son tested as well. After that, we will all go gluten free as well, regardless. (I went gluten free for a week and started to feel a world of difference - I suffer from arthritis in my back as well, two lumbar vertibrea have already calcified - and I am only 41 :o )

You will find lots and lots of encouragement here, as well as a whole group of people who know exactly how you feel!

Linda352 Rookie

:DThank you all for your kind words and gracious welcome. It's so great to be able to correspond with others who have similar problems and have been gluten free for a while. Hopefully through these forums I may be able to keep a positive outlook on life :unsure:

Thanks again............Linda/NJ

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,254
    • Most Online (within 30 mins)
      7,748

    lsky
    Newest Member
    lsky
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.3k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • lsky
      I have had celiac disease since i was 7 and i've recently had worsening symptoms, I live in canada and the doctors right now are horrible so my general doctor never puts in my referrals or she does it wrong and i have to wait months-years for an answer. I was wondering I already have a Gastroenterologist, could i just contact him and ask to book an upcoming appointment? i'm not sure if it's different in canada or not.
    • trents
      Welcome to the forum @Juliana82! Bleeding where? Thanks for the articles on seronegative celiac disease. As I recall, one of our moderators is seronegative and has been faithful to draw our attention to this phenomenon at different times. The heterozygous factor seronegative celiac disease is an important factoid I believe.
    • Wrensmith
      With such a weak positive, his got may or may not be cleared in three months. My daughter when diagnosed at the age of seven had a TTG score of 388. It was 18 months on a gluten-free diet before her levels returned to normal. it seems to me that when you started something that allows your son to gain weight, as he clearly needs to do, you may want to keep doing it.  Sometimes you just need to figure out the science of it as you go along. Have you been tested?  That’s how I found out I had celiac disease, was after my daughter was diagnosed, and the recommendation given to me was that all of her first-degree relations should be tested as well. I came back with a weak positive when I was on a largely, though not entirely, gluten-free diet (cooking for my newly diagnosed child). good luck with everything.
    • Juliana82
      Does anyone have bleeding after eating gluten? You can still have celiac disease with negative blood test results, although it's not very common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/   
    • Wheatwacked
      vitamin D levels in obsessive-compulsive disorder "The number of participants with vitamin D insufficient ... and vitamin D deficiency ... in the OCD group was statistically significantly higher than the control group... and also the number of participants whose vitamin D levels were in the normal range ... in the OCD group was statistically significantly lower than the control group." Low vitamin D iscommon in Celiac Disease patients. Also no lithium in drinking water (bottled water) or in areas with low ground water Lithium contributes to anxiety. Association between naturally occurring lithium in drinking water and suicide rates The EPA calculated a provisional oral reference dose (p-RfD) of 2 μg/kg-day using the Provisional Peer-Reviewed Toxicity Value   https://www.epa.gov/system/files/documents/2023-11/ucmr5-technical-fact-sheet-lithium-in-drinking-water.pdf Should we all take a bit of lithium?! Raising my vitamin D to 80 ng/ml and taking 5 mg a day of Lithium Orotate for a few month helped me.
×
×
  • Create New...