Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Might be celiac? (17 y.o.)


JJP

Recommended Posts

JJP Newbie

First off, I have a cousin who is celiac and 2 uncles and a grandmother with diabetes, which is a mild risk factor I think? I've been somewhat gluten-free for about 10 months, but I break it sometimes. Before I adopted the diet, I was 138 lbs (62 kg), while being 6'0 (1.82 m), which is pretty underweight. After cutting it out, I've gained back weight. I was 154 (70kg) at my heaviest, now about 150 (68 kg). I was also shitting myself constantly, and in pain a lot. I had crazy gas too, like one time I farted and emptied a whole train car (but that was kind of fun). I thought it was just gluten intolerance. But now, when I break the diet, I get mild muscle aches and light-headed, almost like I'm gonna pass out. My s$#& has been green on and off??? I can't handle dairy anymore, and I have diarrhea occasionally. I don't know if all these symptoms are connected, it could be an extreme lactose intolerance or perhaps even early-onset diabetes given my family. IDK, you guys are probably the experts. And if it does seem like celiac, is it worth getting tested? I've heard the tests are rough, and maybe not even worth it; I could just be a lot more strict with my diet. Your help is greatly appreciated...I haven't felt really "healthy" in months.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFinDC Veteran

If you want to get tested for celiac disease you need to eat gluten daily for 12 weeks.  The tests check levels of antibodies to gliaden a protein in wheat.  If you aren't eating gluten regularly the antibody levels won't be consistent in the bloodstream for accurate testing.  The usual destination for the antibodies is the gut where they do their "work" (destroying the villi).

The villi lining of the small intestine is how we absorb nutrients.  The villi also make an enzyme that digests dairy sugar (lactase). No villi, no lactase, no dairy fun, i.e. lactose intolerance, and an empty train car. :)

The green stool could be related to gallbladder function.  Our gallbladder stores and releases bile which neutralizes stomach acid that enter the small intestine.  The small intestine calls for bile when needed through chemical signaling.  Which is broken/impaired by a celiac damaged gut.  So people with celiac can get gallbladder symptoms and damage.

It sounds to me like your weight improved significantly on going mostly gluten-free.  That's a good enough test IMHO.  You probably do have celiac disease IMHO but I am not an doctor.

What you may not know is that celiac is an AI (auto-immune) condition. There is a genetic tie-in.  The immune system is pretty insistent about always attacking invaders/enemies of our body.  And once it gets spun up it goes on attacking for weeks to months.  That's why you read about flare-ups in AI conditions.

Welcome to the forum and feel free to ask questions. :)

 

Awol cast iron stomach Experienced

Yikes lightheaded on the verge of passing out. I spent all of 2008 like that !!!!. I was told take a good vitamin when that didn't work, I was told all in my head.( I had gi issues my whole life. Misdiagnosed in my early 20's etc.) 

In 2008 I I went to general Dr, asked about thyroid etc, then ob/gyn, immunologist/allergist, and  dermatologist. Bad times. 

I was not diagnosed officially until 2016. When a new team with an immunologist/allergist and including a gi were willing to test me for celiac. 

 I do experience vasovagal issues and since I'm on my feet many hours at work water and compression socks are a part of my life now. It gets worse if cc event occurs.

If a Dr is willing to test you this may help you determine if gluten is an issue. 

May you find relief or some answers to help you manage symptoms of whatever you are dealing with.

 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,984
    • Most Online (within 30 mins)
      7,748

    henrygreen
    Newest Member
    henrygreen
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.5k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Okay, it does make sense to continue the gluten challenge as long as you are already in the middle of it. But what will change if you rule it out? I mean, you have concluded that whatever label you want to give the condition, many of your symptoms improved when you went gluten free. Am I correct in that? According to how I understand your posting, the only symptom that hasn't responded to gluten free eating is the bone demineralization. Did I misunderstand? And if you do test positive, what will you do different than you are doing now? You have already been doing for years the main thing you should be doing and that is eating gluten free. Concerning how long you should stay on the gluten challenge, how many weeks are you into it already?
    • WildFlower1
      I mean that I will be re-taking the celiac blood test again while I am currently on the gluten challenge right now, but not sure how many weeks more to keep going, to ensure a false negative does not happen. Thank you.
    • WildFlower1
      Thank you for your help, I am currently in the middle of the gluten challenge. A bit over 6 weeks in. At 4 weeks I got the celiac blood tests and that is when they were negative. So to rule out the false negative, since I’m in the middle of the gluten challenge right now and will never do this again, I wanted to continue consuming gluten to the point to make sure the blood tests are not a false negative - which I did not receive a firm answer for how many weeks total.    My issue is, with these blood tests the doctors say “you are not celiac” and rule it out completely as a potential cause of my issues, when the symptoms scream of it. I want to rule out this 30 year mystery for my own health since I’m in the middle of it right now. Thank you!
    • trents
      I am a male and had developed osteopenia by age 50 which is when I finally got dx with celiac disease. I am sure I had it for at least 13 years before that because it was then I developed idiopathic elevated liver enzymes. I now have a little scoliosis and pronounced kyphosis (upper spine curvature).  All of your symptoms scream of celiac disease, even if the testing you have had done does not. You may be an atypical celiac, meaning the disease is not manifesting itself in your gut but is attacking other body systems. There is such a thing as sero negative celiac disease. But you still have not given me a satisfactory answer to my question of why do you need a differential dx between celiac disease and NCGS when either one would call for complete abstinence from gluten, which you have already been practicing except for short periods when you were undergoing a gluten challenge. Why do you want to put a toxic substance into your body for weeks when, even if it did produce a positive test result for celiac disease, neither you or your doctors would do anything different? Regardless of what doctors are recommending to you, it is your body it is affecting not theirs and they don't seem to have given you any good justification for starting another gluten challenge. Where you live, are doctors kings or something?
    • WildFlower1
      Sorry to put it clearly, at 15, infertility started (tried to word it nicely) meaning menstruation stopped. Which is in correlation to celiac I mean. Thank you. 
×
×
  • Create New...