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just found out i have gluten allergy

DJFL77I
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DJFL77I Experienced
DJFL77I
Posted

I was recently diagnosed with Gastritis... and in the Biopsy they found Gluten allergy...  not sure if its celiac disease yet or just an allergy?  there's a difference right? going to Doc in a few days..

anyway, I woke up one morning on FEB 9'th... and started having upset stomach issues.. went to Gastro Dr.. sent me for a CT scan of my entire abdomen..... then this month finally had an Endoscopy.. Dr found mild Gastritis and the biopsy shows Gluten allergy.. I also have been feeling tension in front of my head and a bit dizzy / off balance feeling.. I believe that's also a symptom of Gluten Allergy?   

 I'm cutting gluten completely now...

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Scott Adams Grand Master
Scott Adams
Posted

A biopsy is how celiac disease is diagnosed, rather than an allergy. It’s also possible they diagnosed you with gluten sensitivity, but you should find out for sure and let us know.

You may want to discuss your results with your doctor before going gluten-free to be sure that all the tests they want done are completed, as you could get false negative results if you go gluten-free too soon.

DJFL77I Experienced
DJFL77I
Posted
  • Author

ok

DJFL77I Experienced
DJFL77I
Posted
  • Author

she said "Gluten Allergy"...   

DJFL77I Experienced
DJFL77I
Posted
  • Author

Definition of Gluten Allergy - Gluten Intolerance

Gluten allergy is a widely used term referring to Gluten sensitivity (the inability to fully digest gluten). A few Gluten sensitive people test positive for the Celiac Disease biopsy, and so are called Celiacs (~0.5% of the population).

But most Gluten sensitive people return negative or inconclusive results from a Celiac biopsy test. A more appropriate term for these people is Non-Celiac Gluten Sensitive (NCGS)

Scott Adams Grand Master
Scott Adams
Posted

So a gluten allergy would not be diagnosed with a biopsy, but celiac disease can be. I would ask your doctor to send you your test results. 

DJFL77I Experienced
DJFL77I
Posted
  • Author

ok I'll wait and see... but i find it odd that they wouldn't have just said celiac disease rather than gluten allergy...

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DJFL77I Experienced
DJFL77I
Posted
  • Author

I also read that Celiac disease is hereditary, meaning that it runs in families....  But I've never had anyone in my family that has had it.

Celiac disease tends to cluster in families. Parents, siblings, or children (first-degree relatives) of people with celiac disease have between a 4 and 15 percent chance of developing the disorder. 

cyclinglady Grand Master
cyclinglady
Posted
16 minutes ago, DJFL77I said:

I also read that Celiac disease is hereditary, meaning that it runs in families....  But I've never had anyone in my family that has had it.

Celiac disease tends to cluster in families. Parents, siblings, or children (first-degree relatives) of people with celiac disease have between a 4 and 15 percent chance of developing the disorder. 

I am the first person who has been diagnosed with celiac disease.  Hereditary means that there are specific genes associated with celiac disease.  Many people have the genes, but only a few actually develop celiac disease.  Because researchers know about these genes, they have determined that only 20% of celiacs are actually diagnosed.  Like I know that I have family members who have it, but the thought of giving up bread is just to horrible for them to contemplate. 
 

Mayo Clinic recently came up with a much higher number than 4 to 14%.  They say it is 44%!  Know that some celiacs display no symptoms at all.  So you just never know.  
 

https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-study-calls-for-screening-of-family-members-of-celiac-disease-patients/

 

DJFL77I Experienced
DJFL77I
Posted
  • Author

so got back from Dr...  confirmed celiac ..  because damage to the little things in Biopsy...   dr said they heal up in a few weeks when off gluten 100%... but I'd probably think a few months...

going to a referred Dietitian next week..

also said to start taking a men's multi vitamin...

taking bloodwork to see about vB12 and Iron...

Scott Adams Grand Master
Scott Adams
Posted

Welcome to the club! 😉

For some people villi recovery can take up to two years, but as you know the important thing is that your diet is 100% gluten-free from now on, otherwise you will have setbacks and it could take longer.

 

DJFL77I Experienced
DJFL77I
Posted
  • Author

thanks you have a pretty crappy club

Scott Adams Grand Master
Scott Adams
Posted

Given some of the horror stories I've seen over the years, it's far better that you know about this and treat it than continue eating gluten and not know about it. Here are some things that will be helpful:

 

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    • trents
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      By trents · Posted

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    • Jack Common
      What should I do with these test results?

      By Jack Common · Posted

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    • trents
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    • cvernon
      Global Food Gluten Free Certification

      By cvernon · Posted

      Agreed, I am disappointed in the recent GFCO findings as well and definitely don't hold them in as high of a regard as I used to. I did find on the Global Foods website after posting that their required ppm limit is 20ppm, which isn't as low as I had hoped. I'll email and report back. Thx.
    • trents
      Global Food Gluten Free Certification

      By trents · Posted

      Never heard of them. They give an email address so if I were you I would contact them and ask those questions. It would be wonderful if they had tighter requirements than GFCO in the sense of more frequent batch testing and even random testing. Recent news articles on this forum from back in this summer have revealed that GFCO is letting us down.
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