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Do Your Kidneys Seem To Hurt?

penguin

By penguin
in Coping with Celiac Disease

Recommended Posts

penguin Community Regular
penguin
Posted

Hi all,

Yet another strange thing that can happen as a result of celiac :rolleyes:

I've been glutened, and my kidneys hurt, or at least my back hurts suspiciously where the kidneys are. Ow. I've been drinking a lot of water and while they hurt the first week I went gluten-free, they don't usually anymore.

Oh, and I always drink a lot of water, so that's not different.

Could this be related to the glutening?

(no more scientific experiements for me :rolleyes: )

Thanks! :D

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jams Explorer
jams
Posted

I have a cronic pain where my right kidney would be. I saw the dr for it and they took out my gallbladder. It is still happening now though. I don't think it was my gallbladder!! I don't know what's going on. My dr doesn't seem to be too worried about it. It is a dull pain, not sharp pain.

GlutenFreeAl Contributor
GlutenFreeAl
Posted

I have the same pain.

I don't have any insight except that maybe it's not our kidneys but our intestines? They wrap around all over the place, so maybe it's that?

But I can sympathize. The right side of my back pretty much always aches...

PghBOB Newbie
PghBOB
Posted
Hi all,

Yet another strange thing that can happen as a result of celiac :rolleyes:

I've been glutened, and my kidneys hurt, or at least my back hurts suspiciously where the kidneys are. Ow. I've been drinking a lot of water and while they hurt the first week I went gluten-free, they don't usually anymore.

Oh, and I always drink a lot of water, so that's not different.

Could this be related to the glutening?

(no more scientific experiements for me :rolleyes: )

Thanks! :D

I GET PAINS IN MY LOWER BACK ,RIGHT OR LEFT NEVER BOTH AT SAME TIME. I BELEIVE IT TO BE KIDNEYS ALSO. I WAS TOLD BY A DOCTOR AND A NURSE BACK PAIN IS COMMON WITH GI PROBLEMS

jerseyangel Proficient
jerseyangel
Posted

When I get a gluten reaction, I get an achy pain in my back (where you describe) and also in my upper arms and thighs. The type of aches you might get with the flu. This lasts only a day or two.

penguin Community Regular
penguin
Posted
  • Author
When I get a gluten reaction, I get an achy pain in my back (where you describe) and also in my upper arms and thighs. The type of aches you might get with the flu. This lasts only a day or two.

That's what I get exactly, only in the neck and shoulders (and the back). I always thought I was getting the flu and I never did get it (knock on wood that I won't). Glad to know I'm not the only one. :)

cgilsing Enthusiast
cgilsing
Posted

I never really thought about it, but yes! Not so much if I have one accident, but before I went on the gluten-free diet I had kidney infections all the time. I'm sure my mom has celiac disease (although she is not gluten-free and has not been diagnosed with celiac disease) and she has always been prone to kidney infections too. She was actually hospitalized for several weeks with a bad infection once. However, in the 1.5 years that I've been gluten-free I haven't had one single kidney infection!

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DonnaD Apprentice
DonnaD
Posted

My daughter gets kidney pain when gluted. We have had a neuclear scan of her kidneys today to make sure there is no scarring. It seems to be linked to bladder problems.

Guest cassidy
Guest cassidy
Posted

I am 28 and I have kidney stones. Last time they checked I had 5 left, some in each kidney. Sometimes my kidneys start to hurt and I'm afraid it is going to turn into bad pain like one of the stones is on the move, but it never gets worse than an ache. I've never thought to compare that achy feeling with when I'm glutened. I wonder if kidney stones have to do with Celiac, every other problem I have has gotten better since going gluten-free. Usually older white men have kidney stones. My mom also has kidney stones and Celiac, guess I got both from her.

Guest Robbin
Guest Robbin
Posted

I have the same thing and also, does anyone have really bad smelling urine when they get this pain? It seems when I get glutened I get this too. ?? I don't have pain when urinating, just the dull ache in the back. :blink:

CMCM Rising Star
CMCM
Posted
Hi all,

Yet another strange thing that can happen as a result of celiac :rolleyes:

I've been glutened, and my kidneys hurt, or at least my back hurts suspiciously where the kidneys are. Ow. I've been drinking a lot of water and while they hurt the first week I went gluten-free, they don't usually anymore.

Oh, and I always drink a lot of water, so that's not different.

Could this be related to the glutening?

(no more scientific experiements for me :rolleyes: )

Thanks! :D

I deliberately ate some coffee cake on Saturday, I think it was (very bad decision!). About an hour later the first reaction I got was an aching neck and lower back, arms too, and that was followed by pain and burning in my stomach. This lasted maybe 12 hours. I never used to connect my aches/pains with gluten...but I've spend a fair amount of time going to bed early with a hot water bottle for the aches. Weird how gluten can cause this, I just never connected the two things. :o

ravenwoodglass Mentor
ravenwoodglass
Posted
Hi all,

Yet another strange thing that can happen as a result of celiac :rolleyes:

I've been glutened, and my kidneys hurt, or at least my back hurts suspiciously where the kidneys are. Ow. I've been drinking a lot of water and while they hurt the first week I went gluten-free, they don't usually anymore.

Oh, and I always drink a lot of water, so that's not different.

Could this be related to the glutening?

(no more scientific experiements for me :rolleyes: )

Thanks! :D

I do think this is gluten related. I get this also and also tend to throw microscopic blood in my urine when it happens. My Mom was an undiagnosed celiac and died of bladder cancer. Makes me wonder if there is a connection.

hungryforlife Apprentice
hungryforlife
Posted

A few weeks ago I went gluten free for one week. Felt fabulous. Then decided that I wanted to get tested so started eating gluten again. Then next morning when I woke up my back (where my kidneys would be) was in terrible pain. Not stabbing pain, but just very noticable. I have always had this feeling, and while I get very frequent UTI's I have never had a kidney infection. Also during the week I was gluten free I was on antibiotics for a UTI and stopped two days after consuming gluten again. So was actually on the antibiotics when the pain came back?

In the past I always assumed that it was female related ( In my mind, it doesnt matter what time of the month it is, I would just assume the monthly cycle was getting shorter/longer instead of four/three/two/ I was down to one good week?) They have tried to diagnose me with endometriosis (sp), but I now wonder if it is just not a reaction to gluten as well.

Susan123 Rookie
Susan123
Posted

I get pain in my kidney area from inflammation in urinary tract. My doctor says it isn't my kidneys but muscle spasms from the inflamation below. Maybe the intestines?

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      Good evening @EssexMum You are quite right to be concerned about this situation.  Once diagnosed as coeliac, always a coeliac, and the way to heal  is through adopting and sticking to a strict gluten diet. That said... I have travelled twice to France since my diagnosis, firstly in May 2013 and again in August 2019.   My spoken French isn't bad, and whilst there I tried my best to explain my needs to chefs and catering staff, and I read labels very carefully when shopping in supermarkets, but both times I came away with worsening gastric symptoms and pain. Interestingly,  after the second holiday, my annual coeliac review took place the following month and although I'd been very careful to avoid gluten all year, thanks to that August holiday my coeliac antibodies were elevated,  Clearly I hadn't been imagining these symptoms and they must have been caused by gluten sneaking in somehow. When I spoke to my gastroenterologist on my return, who is an excellent doctor, he told me with a smile that this was a very common experience in France among his patients, and not to worry too much about it! In fact, before we went away in May 2013, which was just after I had been formally diagnosed, he told me not to even bother trying to adopt a gluten free diet until I returned, knowing what France was like, but I was feeling so awful at that time I ignored his advice and at least tried to make a start with it. (I ought to say - both these visits were some time ago, so perhaps things are a lot better there now.) So what to do?  I would say at least try to explain to catering staff the situation - they should be able to rustle up a plate of cheese, boiled eggs, tuna, salad and fruit, and if things like crackers and gluten-free pot noodle or oats can be packed in the UK, those can be produced at mealtimes.    Of course, most larger supermarkets in France do now cater for coeliacs, but when I was last there the the choice wasn't as wide a range as we have in the UK but I think that is partly because the French like to cook from scratch, whereas our gluten-free aisles have quite a lot of dried or pre-baked goods in them/convenience foods, because I think we as a nation tend to use them more. I would be worth doing a bit of research on the internet before the trip, - the words you want are 'sans gluten'.  I've just googled 'sans gluten Disney Paris" and this came up.  I do hope at least some of this is of help. https://www.tripadvisor.co.uk/Restaurants-g2079053-zfz10992-Disneyland_Paris_Ile_de_France.html  Whatever befalls in France, at least your stepdaughter can resume her usual diet on her return. On a related tack, would you be happy to post any positive findings/tips upon her return - it might be of use to others travelling to Disneyland Paris with children in future? Cristiana
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