Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do Your Kidneys Seem To Hurt?

penguin

By penguin
in Coping with Celiac Disease

Recommended Posts

penguin Community Regular
penguin
Posted

Hi all,

Yet another strange thing that can happen as a result of celiac :rolleyes:

I've been glutened, and my kidneys hurt, or at least my back hurts suspiciously where the kidneys are. Ow. I've been drinking a lot of water and while they hurt the first week I went gluten-free, they don't usually anymore.

Oh, and I always drink a lot of water, so that's not different.

Could this be related to the glutening?

(no more scientific experiements for me :rolleyes: )

Thanks! :D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jams Explorer
jams
Posted

I have a cronic pain where my right kidney would be. I saw the dr for it and they took out my gallbladder. It is still happening now though. I don't think it was my gallbladder!! I don't know what's going on. My dr doesn't seem to be too worried about it. It is a dull pain, not sharp pain.

GlutenFreeAl Contributor
GlutenFreeAl
Posted

I have the same pain.

I don't have any insight except that maybe it's not our kidneys but our intestines? They wrap around all over the place, so maybe it's that?

But I can sympathize. The right side of my back pretty much always aches...

PghBOB Newbie
PghBOB
Posted
Hi all,

Yet another strange thing that can happen as a result of celiac :rolleyes:

I've been glutened, and my kidneys hurt, or at least my back hurts suspiciously where the kidneys are. Ow. I've been drinking a lot of water and while they hurt the first week I went gluten-free, they don't usually anymore.

Oh, and I always drink a lot of water, so that's not different.

Could this be related to the glutening?

(no more scientific experiements for me :rolleyes: )

Thanks! :D

I GET PAINS IN MY LOWER BACK ,RIGHT OR LEFT NEVER BOTH AT SAME TIME. I BELEIVE IT TO BE KIDNEYS ALSO. I WAS TOLD BY A DOCTOR AND A NURSE BACK PAIN IS COMMON WITH GI PROBLEMS

jerseyangel Proficient
jerseyangel
Posted

When I get a gluten reaction, I get an achy pain in my back (where you describe) and also in my upper arms and thighs. The type of aches you might get with the flu. This lasts only a day or two.

penguin Community Regular
penguin
Posted
  • Author
When I get a gluten reaction, I get an achy pain in my back (where you describe) and also in my upper arms and thighs. The type of aches you might get with the flu. This lasts only a day or two.

That's what I get exactly, only in the neck and shoulders (and the back). I always thought I was getting the flu and I never did get it (knock on wood that I won't). Glad to know I'm not the only one. :)

cgilsing Enthusiast
cgilsing
Posted

I never really thought about it, but yes! Not so much if I have one accident, but before I went on the gluten-free diet I had kidney infections all the time. I'm sure my mom has celiac disease (although she is not gluten-free and has not been diagnosed with celiac disease) and she has always been prone to kidney infections too. She was actually hospitalized for several weeks with a bad infection once. However, in the 1.5 years that I've been gluten-free I haven't had one single kidney infection!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


DonnaD Apprentice
DonnaD
Posted

My daughter gets kidney pain when gluted. We have had a neuclear scan of her kidneys today to make sure there is no scarring. It seems to be linked to bladder problems.

Guest cassidy
Guest cassidy
Posted

I am 28 and I have kidney stones. Last time they checked I had 5 left, some in each kidney. Sometimes my kidneys start to hurt and I'm afraid it is going to turn into bad pain like one of the stones is on the move, but it never gets worse than an ache. I've never thought to compare that achy feeling with when I'm glutened. I wonder if kidney stones have to do with Celiac, every other problem I have has gotten better since going gluten-free. Usually older white men have kidney stones. My mom also has kidney stones and Celiac, guess I got both from her.

Guest Robbin
Guest Robbin
Posted

I have the same thing and also, does anyone have really bad smelling urine when they get this pain? It seems when I get glutened I get this too. ?? I don't have pain when urinating, just the dull ache in the back. :blink:

CMCM Rising Star
CMCM
Posted
Hi all,

Yet another strange thing that can happen as a result of celiac :rolleyes:

I've been glutened, and my kidneys hurt, or at least my back hurts suspiciously where the kidneys are. Ow. I've been drinking a lot of water and while they hurt the first week I went gluten-free, they don't usually anymore.

Oh, and I always drink a lot of water, so that's not different.

Could this be related to the glutening?

(no more scientific experiements for me :rolleyes: )

Thanks! :D

I deliberately ate some coffee cake on Saturday, I think it was (very bad decision!). About an hour later the first reaction I got was an aching neck and lower back, arms too, and that was followed by pain and burning in my stomach. This lasted maybe 12 hours. I never used to connect my aches/pains with gluten...but I've spend a fair amount of time going to bed early with a hot water bottle for the aches. Weird how gluten can cause this, I just never connected the two things. :o

ravenwoodglass Mentor
ravenwoodglass
Posted
Hi all,

Yet another strange thing that can happen as a result of celiac :rolleyes:

I've been glutened, and my kidneys hurt, or at least my back hurts suspiciously where the kidneys are. Ow. I've been drinking a lot of water and while they hurt the first week I went gluten-free, they don't usually anymore.

Oh, and I always drink a lot of water, so that's not different.

Could this be related to the glutening?

(no more scientific experiements for me :rolleyes: )

Thanks! :D

I do think this is gluten related. I get this also and also tend to throw microscopic blood in my urine when it happens. My Mom was an undiagnosed celiac and died of bladder cancer. Makes me wonder if there is a connection.

hungryforlife Apprentice
hungryforlife
Posted

A few weeks ago I went gluten free for one week. Felt fabulous. Then decided that I wanted to get tested so started eating gluten again. Then next morning when I woke up my back (where my kidneys would be) was in terrible pain. Not stabbing pain, but just very noticable. I have always had this feeling, and while I get very frequent UTI's I have never had a kidney infection. Also during the week I was gluten free I was on antibiotics for a UTI and stopped two days after consuming gluten again. So was actually on the antibiotics when the pain came back?

In the past I always assumed that it was female related ( In my mind, it doesnt matter what time of the month it is, I would just assume the monthly cycle was getting shorter/longer instead of four/three/two/ I was down to one good week?) They have tried to diagnose me with endometriosis (sp), but I now wonder if it is just not a reaction to gluten as well.

Susan123 Rookie
Susan123
Posted

I get pain in my kidney area from inflammation in urinary tract. My doctor says it isn't my kidneys but muscle spasms from the inflamation below. Maybe the intestines?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. catnapt
      - catnapt posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      how long does it take for the genetic blood test for celiac to come back?

      how long does it take for the genetic blood test for celiac to come back? I saw the GI today, she was great. She says I def have an issue with gluten and that my symptoms align more with celiac disease than NCGS, so she's doing the genetic testing, Ordered a test for SIBO but said that's just to cover all bases, she doesn't think I have that. If the blood...
    2. DebD5
      - DebD5 commented on Scott Adams's article in Spring 2026 Issue
      3

      The Dark Side of Gluten-Free: Counterfeit Labels and Global Food Safety Failures

      Interestingly enough, while I hear you. I completely disagree. Gluten has not been 100% removed. There’s still trace amounts under the regulated amount per millions allowed. I gave only figured out in the last year, while reading chats on this site, of other celiacs still having issues and how they figured it out. If enough companies allow slight amounts o...
    3. Scott Adams
      - Scott Adams commented on Scott Adams's article in Spring 2026 Issue
      3

      The Dark Side of Gluten-Free: Counterfeit Labels and Global Food Safety Failures

      I understand why that feels frustrating, because the labeling can definitely seem confusing. In the case of products like King Arthur’s gluten-free bread flour that contain gluten-free wheat starch, the wheat starch has been specially processed to remove the gluten proteins that trigger celiac disease. Because it originates from wheat, U.S. labeling laws s...
    4. Scott Adams
      - Scott Adams replied to Jmartes71's topic in Doctors
      7

      Second chance

      I'm not sure why "colonoscopy" keeps coming up for you, again it would be an endoscopy to diagnose celiac disease, but it seems that Kaiser should still have your records. If you were diagnosed by them in the 1990's using a blood test and endoscopy, then you definitely have celiac disease, and hopefully you've been gluten-free since that time. You should...
    5. Russ H
      - Russ H replied to EssexMum's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Concerning GP advice

      This sounds like a GP who is ignorant regarding coeliac disease. The risk with consuming gluten for several days is that it triggers the coeliac immune response, leading to raised auto-antibodies and active disease for several months. People may not even be aware of symptoms during this process, but it is causing damage to the body. As trents has said, the...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,649
    • Most Online (within 30 mins)
      7,748
    jhdcps
    Newest Member
    jhdcps
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • catnapt
      how long does it take for the genetic blood test for celiac to come back?

      By catnapt · Posted

      how long does it take for the genetic blood test for celiac to come back? I saw the GI today, she was great. She says I def have an issue with gluten and that my symptoms align more with celiac disease than NCGS, so she's doing the genetic testing, Ordered a test for SIBO but said that's just to cover all bases, she doesn't think I have that. If the blood work comes back negative for the genes, then I will cancel the endoscopy. If positive, I will try the 2 week gluten challenge and get the endoscopy done. If I can't manage the gluten challenge (I had HORRIBLE symptoms last time and quit after 12 days) then we'll just assume it's celiac disease and go from there. She says she does a full nutrient panel on all her pts every year, that was nice to hear.I'm on so many supplements it would be nice to only have to get the ones I truly need! so yeh, really anxious about the test results for the genes!! I have an identical twin sister so I'd need to tell her if it's positive, she'd prob want to get tested too. *interesting note: when I said if the blood work comes back that I don't have the genes, then I'm in the clear - she said, well,,,,,,not necessarily. But she didn't want to go into as we had a lot to go over. I did make a  mental note of that comment and will ask her when I see her next time.   she was very thorough! I was impressed! she even checked- up on some lab work I had done that my Endo ordered. I like her, I am looking forward to seeing her again. I think I'll get some good advice and info from her she also complimented me on my diet.   said it was a very gut friendly and healthy diet 
    • Scott Adams
      Second chance

      By Scott Adams · Posted

      I'm not sure why "colonoscopy" keeps coming up for you, again it would be an endoscopy to diagnose celiac disease, but it seems that Kaiser should still have your records. If you were diagnosed by them in the 1990's using a blood test and endoscopy, then you definitely have celiac disease, and hopefully you've been gluten-free since that time. You should be able to contact Kaiser for those records.
    • Russ H
      Concerning GP advice

      By Russ H · Posted

      This sounds like a GP who is ignorant regarding coeliac disease. The risk with consuming gluten for several days is that it triggers the coeliac immune response, leading to raised auto-antibodies and active disease for several months. People may not even be aware of symptoms during this process, but it is causing damage to the body. As trents has said, the gut lining normally recovers on a strict gluten-free diet, and this happens much faster in children than in adults.
    • Jmartes71
      Second chance

      By Jmartes71 · Posted

      Thats the thing, diagnosed in 1994 before foods eliminated celiac by biopsy colonoscopy at Kaiser in Santa Clara  now condo's but it has to be somewhere in medical land.1999 got married, moved, changed doctor's was with former for 25 years told him I waz celiac and that.Fast forward to last year.i googled celiac specialist and what popped up was a former well known heard of hospital. I thought I would get answers to be put through unnecessary colonoscopy KNOWING im glutenfree and she wasn't listening to me for help rather than screening me for celiac! Im already diagnosed seeking medical help.I did all the appointments ask from her and when I wanted my records se t to my pcp, thats when the with holding my records when I repeatedly messaged, it was down played the seriousness and I was labeled unruly when I asked why am I going through all this when its the celiac name that IS what my issue and All my ailments surrounding it related. I am dea6eoth the autoimmune part though my blood work is supposedly fabulous. Im sibo positive,HLA-DQ2 positive, dealing with skin, eye and now ms.I was employed as a bus driver making good money, I loved it for the few years my body let me do until I was yet again fired.i went to seek medical help because my body isn't well just to be made a disability chaser. Im exhausted,glutenfree, no lawyer will help and disability is in limbo thanks to the lax on my health from the fabulous none celiac Google bay area dr snd team. Its not right.
    • trents
      Concerning GP advice

      By trents · Posted

      Welcome to the celiac.com community @EssexMum! First, let me correct some misinformation you have been given. Except in the case of what is known as "refractory" celiac disease, which is very rare, it is not true that the "fingers" will not grow back once a consistently gluten free diet is adopted. Celiac disease is an autoimmune condition whereby the ingestion of gluten triggers an inflammatory process that damages the millions of tiny finger-like projections that make up the lining of the small bowel. We call this the "villous lining". Over time, continued ingestion of gluten on a regular basis results in the wearing down of these fingers which greatly reduces the surface area of this very important membrane. It is where essentially all the nutrition from what we eat is absorbed. So, losing this surface area results in inefficiency in nutrient absorption and often to medical problems related to nutrient deficiencies. Again, if a gluten-free diet is consistently observed, the villous lining of the small bowel should rebound. "We was informed that her body absorbs the gluten rather then rejecting it and that is why she doesn't react to the gluten straight away, it will be a build up and then the pains start. " That sounds like unscientific BS to me. But it does sound like your stepdaughter may have a type of celiac disease we know as "silent" celiac disease, meaning, she is asymptomatic or at least the symptoms are not intense enough to usually notice. She is not completely asymptomatic, however, because you stated was experiencing tummy aches off and on. Cristiana gives some good suggestions about ordering "safe" food for your stepdaughter from restaurant menus in Europe. You must realize that as the step parent who only has her part of the time you have no real control over how cooperative her other set of parents are with regard to your stepdaughter's needs to eat gluten free. It sounds like they don't really understand the seriousness of the matter. This is very common in family settings where other members are ignorant about celiac disease and the damage it can do to body systems. So, they don't take it seriously. The best you can do is make suggestions. Perhaps print out some info about celiac disease from the Internet to send them. Being inconsistent with the gluten free diet keeps the inflammation smoldering and delays or inhibits healing of the villous lining. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.