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Do Your Kidneys Seem To Hurt?

penguin

By penguin
in Coping with Celiac Disease

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penguin Community Regular
penguin
Posted

Hi all,

Yet another strange thing that can happen as a result of celiac :rolleyes:

I've been glutened, and my kidneys hurt, or at least my back hurts suspiciously where the kidneys are. Ow. I've been drinking a lot of water and while they hurt the first week I went gluten-free, they don't usually anymore.

Oh, and I always drink a lot of water, so that's not different.

Could this be related to the glutening?

(no more scientific experiements for me :rolleyes: )

Thanks! :D

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jams Explorer
jams
Posted

I have a cronic pain where my right kidney would be. I saw the dr for it and they took out my gallbladder. It is still happening now though. I don't think it was my gallbladder!! I don't know what's going on. My dr doesn't seem to be too worried about it. It is a dull pain, not sharp pain.

GlutenFreeAl Contributor
GlutenFreeAl
Posted

I have the same pain.

I don't have any insight except that maybe it's not our kidneys but our intestines? They wrap around all over the place, so maybe it's that?

But I can sympathize. The right side of my back pretty much always aches...

PghBOB Newbie
PghBOB
Posted
Hi all,

Yet another strange thing that can happen as a result of celiac :rolleyes:

I've been glutened, and my kidneys hurt, or at least my back hurts suspiciously where the kidneys are. Ow. I've been drinking a lot of water and while they hurt the first week I went gluten-free, they don't usually anymore.

Oh, and I always drink a lot of water, so that's not different.

Could this be related to the glutening?

(no more scientific experiements for me :rolleyes: )

Thanks! :D

I GET PAINS IN MY LOWER BACK ,RIGHT OR LEFT NEVER BOTH AT SAME TIME. I BELEIVE IT TO BE KIDNEYS ALSO. I WAS TOLD BY A DOCTOR AND A NURSE BACK PAIN IS COMMON WITH GI PROBLEMS

jerseyangel Proficient
jerseyangel
Posted

When I get a gluten reaction, I get an achy pain in my back (where you describe) and also in my upper arms and thighs. The type of aches you might get with the flu. This lasts only a day or two.

penguin Community Regular
penguin
Posted
  • Author
When I get a gluten reaction, I get an achy pain in my back (where you describe) and also in my upper arms and thighs. The type of aches you might get with the flu. This lasts only a day or two.

That's what I get exactly, only in the neck and shoulders (and the back). I always thought I was getting the flu and I never did get it (knock on wood that I won't). Glad to know I'm not the only one. :)

cgilsing Enthusiast
cgilsing
Posted

I never really thought about it, but yes! Not so much if I have one accident, but before I went on the gluten-free diet I had kidney infections all the time. I'm sure my mom has celiac disease (although she is not gluten-free and has not been diagnosed with celiac disease) and she has always been prone to kidney infections too. She was actually hospitalized for several weeks with a bad infection once. However, in the 1.5 years that I've been gluten-free I haven't had one single kidney infection!

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DonnaD Apprentice
DonnaD
Posted

My daughter gets kidney pain when gluted. We have had a neuclear scan of her kidneys today to make sure there is no scarring. It seems to be linked to bladder problems.

Guest cassidy
Guest cassidy
Posted

I am 28 and I have kidney stones. Last time they checked I had 5 left, some in each kidney. Sometimes my kidneys start to hurt and I'm afraid it is going to turn into bad pain like one of the stones is on the move, but it never gets worse than an ache. I've never thought to compare that achy feeling with when I'm glutened. I wonder if kidney stones have to do with Celiac, every other problem I have has gotten better since going gluten-free. Usually older white men have kidney stones. My mom also has kidney stones and Celiac, guess I got both from her.

Guest Robbin
Guest Robbin
Posted

I have the same thing and also, does anyone have really bad smelling urine when they get this pain? It seems when I get glutened I get this too. ?? I don't have pain when urinating, just the dull ache in the back. :blink:

CMCM Rising Star
CMCM
Posted
Hi all,

Yet another strange thing that can happen as a result of celiac :rolleyes:

I've been glutened, and my kidneys hurt, or at least my back hurts suspiciously where the kidneys are. Ow. I've been drinking a lot of water and while they hurt the first week I went gluten-free, they don't usually anymore.

Oh, and I always drink a lot of water, so that's not different.

Could this be related to the glutening?

(no more scientific experiements for me :rolleyes: )

Thanks! :D

I deliberately ate some coffee cake on Saturday, I think it was (very bad decision!). About an hour later the first reaction I got was an aching neck and lower back, arms too, and that was followed by pain and burning in my stomach. This lasted maybe 12 hours. I never used to connect my aches/pains with gluten...but I've spend a fair amount of time going to bed early with a hot water bottle for the aches. Weird how gluten can cause this, I just never connected the two things. :o

ravenwoodglass Mentor
ravenwoodglass
Posted
Hi all,

Yet another strange thing that can happen as a result of celiac :rolleyes:

I've been glutened, and my kidneys hurt, or at least my back hurts suspiciously where the kidneys are. Ow. I've been drinking a lot of water and while they hurt the first week I went gluten-free, they don't usually anymore.

Oh, and I always drink a lot of water, so that's not different.

Could this be related to the glutening?

(no more scientific experiements for me :rolleyes: )

Thanks! :D

I do think this is gluten related. I get this also and also tend to throw microscopic blood in my urine when it happens. My Mom was an undiagnosed celiac and died of bladder cancer. Makes me wonder if there is a connection.

hungryforlife Apprentice
hungryforlife
Posted

A few weeks ago I went gluten free for one week. Felt fabulous. Then decided that I wanted to get tested so started eating gluten again. Then next morning when I woke up my back (where my kidneys would be) was in terrible pain. Not stabbing pain, but just very noticable. I have always had this feeling, and while I get very frequent UTI's I have never had a kidney infection. Also during the week I was gluten free I was on antibiotics for a UTI and stopped two days after consuming gluten again. So was actually on the antibiotics when the pain came back?

In the past I always assumed that it was female related ( In my mind, it doesnt matter what time of the month it is, I would just assume the monthly cycle was getting shorter/longer instead of four/three/two/ I was down to one good week?) They have tried to diagnose me with endometriosis (sp), but I now wonder if it is just not a reaction to gluten as well.

Susan123 Rookie
Susan123
Posted

I get pain in my kidney area from inflammation in urinary tract. My doctor says it isn't my kidneys but muscle spasms from the inflamation below. Maybe the intestines?

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      Terrible Neurological Symptoms

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      This sounds very similar to the neuropathic pain I experienced with type two diabetes.  Gloves and boots pattern of neuropathy is common with deficiencies in Cobalamine B12 (especially the pain in the big toe), Niacin B3, and Pyridoxine B6.  These are vitamins frequently found to be low in people with pre-diabetes and diabetes.  Remember that blood tests for vitamin levels is terribly inaccurate.  You can have vitamin deficiencies before there are any changes in blood levels.  You can have "normal" serum levels, but be deficient inside organs and tissues where the vitamins are actually utilized.  The blood is a transportation system, moving vitamins absorbed in the intestines to organs and tissues.  Just because there's trucks on the highway doesn't mean that the warehouses are full.  The body will drain organs and tissues of their stored vitamins and send them via the bloodstream to important organs like the brain and heart.  Meanwhile, the organs and tissues are depleted and function less well.   Eating a diet high in simple carbohydrates can spike blood sugar after meals.  Eating a diet high in carbohydrates consistently over time can cause worsening of symptoms.  Thiamine and other B vitamins like Niacin B3 and Pyridoxine B6, (which I noticed you are not supplementing), are needed to turn carbs, proteins and fats into energy for the body to use.  Alcohol consumption can lower blood sugar levels, and hence, alleviate the neuropathic pain.  Alcohol destroys many B vitamins, especially Pyridoxine, Thiamine and Niacin.  With alcohol consumption, blood glucose is turned into fat, stored in the liver or abdomen, then burned for fuel, thus lowering blood glucose levels.  With the cessation of alcohol and continued high carb diet, the blood glucose levels rise again over time, resulting in worsening neuropathy.   Heavy exercise can also further delete B vitamins.  Thiamine and Niacin work in balance with each other.  Sort of like a teeter-totter, thiamine is used to produce energy and Niacin is then used to reset the cycle for thiamine one used again to produce energy.  If there's no Niacin, then the energy production cycle can't reset.  Niacin is important in regulating electrolytes for nerve impulse conduction.  Electrolyte imbalance can cause neuropathic pain.   Talk to your doctors about testing for Type Two diabetes or pre-diabetes beyond an A1C test since alcohol consumption can lower A1C giving inaccurate results. Talk to your doctors about supplementing with ALL eight B vitamins, and correcting deficiencies in Pyridoxine, Niacin, and B12.  Hope this helps! Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ P. S.  Get checked for Vitamin C deficiency, aka Scurvy.  People with Diabetes and those who consume alcohol are often low in Vitamin C which can contribute to peripheral neuropathy.
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