Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do Your Kidneys Seem To Hurt?

penguin

By penguin
in Coping with Celiac Disease

Recommended Posts

penguin Community Regular
penguin
Posted

Hi all,

Yet another strange thing that can happen as a result of celiac :rolleyes:

I've been glutened, and my kidneys hurt, or at least my back hurts suspiciously where the kidneys are. Ow. I've been drinking a lot of water and while they hurt the first week I went gluten-free, they don't usually anymore.

Oh, and I always drink a lot of water, so that's not different.

Could this be related to the glutening?

(no more scientific experiements for me :rolleyes: )

Thanks! :D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jams Explorer
jams
Posted

I have a cronic pain where my right kidney would be. I saw the dr for it and they took out my gallbladder. It is still happening now though. I don't think it was my gallbladder!! I don't know what's going on. My dr doesn't seem to be too worried about it. It is a dull pain, not sharp pain.

GlutenFreeAl Contributor
GlutenFreeAl
Posted

I have the same pain.

I don't have any insight except that maybe it's not our kidneys but our intestines? They wrap around all over the place, so maybe it's that?

But I can sympathize. The right side of my back pretty much always aches...

PghBOB Newbie
PghBOB
Posted
Hi all,

Yet another strange thing that can happen as a result of celiac :rolleyes:

I've been glutened, and my kidneys hurt, or at least my back hurts suspiciously where the kidneys are. Ow. I've been drinking a lot of water and while they hurt the first week I went gluten-free, they don't usually anymore.

Oh, and I always drink a lot of water, so that's not different.

Could this be related to the glutening?

(no more scientific experiements for me :rolleyes: )

Thanks! :D

I GET PAINS IN MY LOWER BACK ,RIGHT OR LEFT NEVER BOTH AT SAME TIME. I BELEIVE IT TO BE KIDNEYS ALSO. I WAS TOLD BY A DOCTOR AND A NURSE BACK PAIN IS COMMON WITH GI PROBLEMS

jerseyangel Proficient
jerseyangel
Posted

When I get a gluten reaction, I get an achy pain in my back (where you describe) and also in my upper arms and thighs. The type of aches you might get with the flu. This lasts only a day or two.

penguin Community Regular
penguin
Posted
  • Author
When I get a gluten reaction, I get an achy pain in my back (where you describe) and also in my upper arms and thighs. The type of aches you might get with the flu. This lasts only a day or two.

That's what I get exactly, only in the neck and shoulders (and the back). I always thought I was getting the flu and I never did get it (knock on wood that I won't). Glad to know I'm not the only one. :)

cgilsing Enthusiast
cgilsing
Posted

I never really thought about it, but yes! Not so much if I have one accident, but before I went on the gluten-free diet I had kidney infections all the time. I'm sure my mom has celiac disease (although she is not gluten-free and has not been diagnosed with celiac disease) and she has always been prone to kidney infections too. She was actually hospitalized for several weeks with a bad infection once. However, in the 1.5 years that I've been gluten-free I haven't had one single kidney infection!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


DonnaD Apprentice
DonnaD
Posted

My daughter gets kidney pain when gluted. We have had a neuclear scan of her kidneys today to make sure there is no scarring. It seems to be linked to bladder problems.

Guest cassidy
Guest cassidy
Posted

I am 28 and I have kidney stones. Last time they checked I had 5 left, some in each kidney. Sometimes my kidneys start to hurt and I'm afraid it is going to turn into bad pain like one of the stones is on the move, but it never gets worse than an ache. I've never thought to compare that achy feeling with when I'm glutened. I wonder if kidney stones have to do with Celiac, every other problem I have has gotten better since going gluten-free. Usually older white men have kidney stones. My mom also has kidney stones and Celiac, guess I got both from her.

Guest Robbin
Guest Robbin
Posted

I have the same thing and also, does anyone have really bad smelling urine when they get this pain? It seems when I get glutened I get this too. ?? I don't have pain when urinating, just the dull ache in the back. :blink:

CMCM Rising Star
CMCM
Posted
Hi all,

Yet another strange thing that can happen as a result of celiac :rolleyes:

I've been glutened, and my kidneys hurt, or at least my back hurts suspiciously where the kidneys are. Ow. I've been drinking a lot of water and while they hurt the first week I went gluten-free, they don't usually anymore.

Oh, and I always drink a lot of water, so that's not different.

Could this be related to the glutening?

(no more scientific experiements for me :rolleyes: )

Thanks! :D

I deliberately ate some coffee cake on Saturday, I think it was (very bad decision!). About an hour later the first reaction I got was an aching neck and lower back, arms too, and that was followed by pain and burning in my stomach. This lasted maybe 12 hours. I never used to connect my aches/pains with gluten...but I've spend a fair amount of time going to bed early with a hot water bottle for the aches. Weird how gluten can cause this, I just never connected the two things. :o

ravenwoodglass Mentor
ravenwoodglass
Posted
Hi all,

Yet another strange thing that can happen as a result of celiac :rolleyes:

I've been glutened, and my kidneys hurt, or at least my back hurts suspiciously where the kidneys are. Ow. I've been drinking a lot of water and while they hurt the first week I went gluten-free, they don't usually anymore.

Oh, and I always drink a lot of water, so that's not different.

Could this be related to the glutening?

(no more scientific experiements for me :rolleyes: )

Thanks! :D

I do think this is gluten related. I get this also and also tend to throw microscopic blood in my urine when it happens. My Mom was an undiagnosed celiac and died of bladder cancer. Makes me wonder if there is a connection.

hungryforlife Apprentice
hungryforlife
Posted

A few weeks ago I went gluten free for one week. Felt fabulous. Then decided that I wanted to get tested so started eating gluten again. Then next morning when I woke up my back (where my kidneys would be) was in terrible pain. Not stabbing pain, but just very noticable. I have always had this feeling, and while I get very frequent UTI's I have never had a kidney infection. Also during the week I was gluten free I was on antibiotics for a UTI and stopped two days after consuming gluten again. So was actually on the antibiotics when the pain came back?

In the past I always assumed that it was female related ( In my mind, it doesnt matter what time of the month it is, I would just assume the monthly cycle was getting shorter/longer instead of four/three/two/ I was down to one good week?) They have tried to diagnose me with endometriosis (sp), but I now wonder if it is just not a reaction to gluten as well.

Susan123 Rookie
Susan123
Posted

I get pain in my kidney area from inflammation in urinary tract. My doctor says it isn't my kidneys but muscle spasms from the inflamation below. Maybe the intestines?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,156
    • Most Online (within 30 mins)
      7,748
    Jodie W
    Newest Member
    Jodie W
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Probably celiac but also confused

      By knitty kitty · Posted

      HypOthyrOidism is HashimOtO's thyrOiditis.  HypeRthyRoidism is GRaves disease.
    • mermaidluver22
      Some inflammation in ileum with celiac?

      By mermaidluver22 · Posted

      @Scott Adams Thank you so much for this thoughtful and encouraging reply 💛 It really helps me feel less alone navigating all of this! I’ve definitely been strict gluten-free, but I’ll admit — in the beginning, I honestly knew nothing about cross-contamination 😅 so it’s very possible my gut is still healing from that. I feel very abnormal because I am not a typical celiac or a typical Crohn's, so it makes me feel very stuck. 
    • nanny marley
      Help needed

      By nanny marley · Posted

      Hi still the same unfortunately, they had to cancel my colonoscopy due to my trapped nerve , I'm awaiting some kind of scan , it was the nurses who  told me to refuse and asked a docter , and I was told to cancel and go back to my consultant , I think because my sciatic nerve is compressed between my herniated discs , the prep was enough I could handle , but the colonoscopy itself , they advised me to seek something different ,due to the position I had to be in and the movements , so I will update Wen I know more , thankyou for asking appreciated 🤗
    • Scott Adams
      Some inflammation in ileum with celiac?

      By Scott Adams · Posted

      It sounds like you're navigating a complex situation with your celiac disease, and it’s understandable to feel confused by the GI world! While celiac disease typically affects the duodenum and proximal small intestine, it’s possible for inflammation to extend to the ileum, especially in cases of more severe or longstanding damage. Since your tTG-IgA remains elevated despite a strict gluten-free diet, this could indicate ongoing healing or subtle gluten exposure. The ileal inflammation might still be related to celiac, though it’s good your doctor is ruling out other conditions like Crohn’s, given the nonspecific biopsy findings. Some people with celiac do report ileal involvement, particularly if they have refractory disease or delayed healing. Keeping close follow-up with your GI and possibly revisiting your diet for hidden gluten sources could help. Hang in there—it’s a journey, and you’re doing great by staying proactive!
    • mermaidluver22
      Help needed

      By mermaidluver22 · Posted

      hi, how are u now? any answers?
×
×
  • Create New...