Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Amazing


BamBam

Recommended Posts

BamBam Community Regular

When I joined this board in June of 04, I was #2166 - and if you look today, there is over 7,800 members on this board. I bet by the end of the year we will be 10,000 strong! I know that is a small number when you look at the whole world, but still, having 10,000 people to visit with about our disease/problems is just amazing!

BamBam


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



DingoGirl Enthusiast
When I joined this board in June of 04, I was #2166 - and if you look today, there is over 7,800 members on this board. I bet by the end of the year we will be 10,000 strong! I know that is a small number when you look at the whole world, but still, having 10,000 people to visit with about our disease/problems is just amazing!

BamBam

And you know what, it is SO awesome to have this board, since no one in my world understands this like you guys do!! :)

jenvan Collaborator

It is amazing! Well, I guess the more people in here, the more people who will know out there!

Guest Viola

And just think, this isn't the only Celiac board on the internet! I think a few doctors would have their eyes opened up if they checked these sites out once in awhile. They have no idea how many there are of us!

chrissy Collaborator

i can't imagine how hard it would have been if my kids had been diagnosed before we had the internet-----i get so much info from the people on this board.

christine

Guest Viola

Christine, you are right! It was really difficult before I had internet. We've only had internet in the Valley for almost 9 years. Before that we had party lines, and you can't have internet on party lines :lol: Now, does that tell you that we are living out in the sticks or what? :rolleyes:

I was all alone for 8 years with Celiac. At the time they thought it was extremely rare .. 1 out of every 10,000, now of course we know different and there are lots of Celiacs to talk to. It's so much easier and much more food than the bare meat, veggies and rice. And of course fresh fruit as there was no way for me to check on manufactures. Come to think of it, it never occured to me to even phone them ... guess I was a little dense in those days :lol:

Anyway ... I for one really appreciate all of you out here in cyber land!!!

i canary Rookie

This site has been a wonderful blessing for me. People who know what I'm going thru without me having to spend (make that waste) time explaining why certain things are a problem. It's helped my mental health so much - I don't feel like a alien being who got left on the wrong planet at birth. (Surely there is a planet out there that is completely gluten free - or am I thinking of paradise?) :P:P:P


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



flagbabyds Collaborator

There are so many, I remen=mber when the website was completely different. Like really weird and old, and now it is all high-techie. I am member number like 20 or something!

chrissy Collaborator

shirley, where are you???? i thought party lines were done away with YEARS ago!!!!!--------and i was thinking that here in southern idaho we are way behind the times. (maybe it is just me??)

christine

kevsmom Contributor

You guys are my life! :)

Guest Viola

Christine, we are in British Columbia, just the province north of you :D But we live on an acreage 35 miles from the nearest town. However there are a few villages in the valley. We are actually supposed to get broadband service out here by the end of the year, but I'm not holding my breath. :lol: So we are still on slow dial up internet service. But I'm not complaining ... we have internet, which means we have all of you out there! :P

debmidge Rising Star

I always include this site when I speak to non celiacs or people who are interesting in knowing more. I tell them to visit Celiac.com and also to read the message board to see what those with Celiac are doing/thinking/living.

Also, I noticed that very often there are annon. or Guests viewing the pages.

jerseyangel Proficient

We just always had the internet for the boys. I never used the computer much at all. Everything changed when I happened onto this site while looking up an ingredient. At first, I wasen't sure how to even post! I had to ask my son about a bunch of things. But I was so "hungry" for information and the ability to talk to others living with this, that I learned fast! Now, it's a regular part of my day to check in here. You guys are the best! (It's a little frightening, actually, to think of what the past 9 months would have been like without you) ;)

plantime Contributor

I'm glad this site is here. I would not have known about barley and rye without it, and I would still be sick. I just hope that visitors are able to find the answers to their questions here!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,706
    • Most Online (within 30 mins)
      7,748

    Tysonlou
    Newest Member
    Tysonlou
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • RMJ
      I’d say celiac is likely.  Please continue to eat plenty of gluten until your endoscopy to be sure that any gluten-related damage can be seen.  Plus it gives you one last chance to enjoy your favorite gluten-containing foods. I hope the endoscopy/biopsies give you a definitive answer. 
    • TexasCeliacNewbie
      I do also have the bloating, gas, constipation, hair loss, an auto-splenectomy that no one can see any reason for and some elevated liver enzymes that don't seem to have a cause, I also have joint pain and some spinal compression fractures that have no explanation.  I am only 42 so haven't had a bone density test yet.  My calcium was normal, but my D was a little low.  They haven't checked for any other vitamin deficiencies yet.  My blood test for an autoimmue disorder was quite high but my Thyroid was all normal.
    • TexasCeliacNewbie
      Hi, I have been having a lot of back pain and gut issues for 8 weeks or so.  I saw the GI on Monday and my results just came in from the lab.  Some of these number are high and off the little chart from the lab.  I am reading this correctly that I most likely have Celiac, right???  It would explain a lot of things for me.  She does have me scheduled for a colonoscopy and endoscopy in  2 weeks to do the biopsy.  I posted this prior, but forgot to put the range assuming they were all the same.  Someone advised me to repost with the ranges for some insight in the meantime. Immunoglobulin A, Qn, Serum 140 (normal) - Normal is 87-352 Deamidated Gliadin Abs, IgA 256 (High) - Moderate to strong positive at or above 30 Deamidated Gliadin Abs, IgG 65 (High) - Moderate to strong positive at or above 30 t-Transglutaminase (tTG) IgA 31 (High) - Moderate to strong positive above 10 t-Transglutaminase (tTG) IgG 10 (High) - Positive is at or above 10
    • trents
      Usually, the blood testing is done first and the endoscopy/biopsy follows for confirmation if there are positive antibody test scores. Historically, the endoscopy with biopsy has been considered to be the gold standard for diagnosing celiac disease. If the tTG-IGA scores are very high (5x-10x normal), some doctors will forego the endoscpoy/biopsy and grant a celiac disease diagnosis without it. So, if you are starting with the endoscopy/biopsy that may be all you need to arrive at a diagnosis. Another possibility would be for the GI doc to do a blood draw for antibody testing on the same day you come in for the endoscopy/biopsy.
    • AuntieAutoimmune
      Thanks,Scott. Yes, I had already seen those 
×
×
  • Create New...