Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hospital Food?


taweavmo3

Recommended Posts

taweavmo3 Enthusiast

Hi all! I'm 20 weeks preggo right now, with baby #4. I haven't been diagnosed with celiac, but my daughter has it. I went gluten free for a while to see how I felt, and I felt much better. I stupidly ate regular pasta, and had a major reaction, and have stayed gluten free since. So, I haven't messed with testing at all. I have no actual paper proof that I have it. Now I'm scared about getting glutened while in hospital after I have the baby. I'll be having a c-section, so it'll be a 5 day stay. I'm wondering how accomodating the hospital cafeteria will actually be, and if I'll need my OB to actually write for a gluten free diet???? Has anyone dealt with this yet? Thanks in advance, I do plan on calling the hospital to chat about this, and asking my doctor. The last thing I need when recovering from surgery is to have another reaction!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lovegrov Collaborator

Definitely talk to the dietary folks ahead of time -- BUT, have a stock of your own food and have your husband bring food. Some hospitals do great but many are clueless. For my first "gluten-free" meal I got chicken smothered in a thick mystery sauce on top of noodles and Boston cream pie. I was sick as a dog and new at it and still knew that wasn't gluten-free. When my doctor (who was my brother in law) complained they told him to have me take the chicken off the noodles. And this was at the same hospital where my wife was a nurse.

richard

Guest Viola

Yes! Do have your own foods and have someone bringing you fresh stuff. Hospitals, even if you talk to the dietician have a problem with the diet. One nurse brought me a sandwhich with gluten free bread, it had egg salad filling and they had no idea what was in the salad dressing they used. The problem is that they fix so many meals and they understand salt free, and liquid diet, but with gluten free the understanding seems to stop at the bread.

angielackner Contributor

i am 34 weeks pregnant, and in a similar boat...i know our hospital's dietary dept understands something of the gluten free diet as when i called to ask about eating a hamburger there (my mom works at the hospital and i sometimes lunch with her), they said the hamburger was gluten free and they even had rice buns if i asked for one! it was delicious...but anyhow, i am still going to speak with dietary ahead of time, and bring lots of my own food...plus my hubby or mom can run out to one of the area restaurants and get me something too...i just wish i could take a toaster oven...i just dont like the whole foods sandwich bread all that much unless its toasted...but i'll work with it.

so definitely talk to dietary as you get closer...and bring plenty of your own foods :) and scope out what places are around the hospital that you can send people to to get you food :)

good luck!

angie

cgilsing Enthusiast

I'm 27 weeks right now and have just decided that I'm not going to trust the hospital with that task! THe last thing that I want is to be sick for the week after the baby is born so I'm not going to leave anything to chance. I'm going to fix a couple meals beforehand and freeze them so that my husband can just come home, heat them up and bring them too me. If I have any problems and need to stay longer I'm going to have my mom come to my house and cook for me. (Thank god for Mom! She is the only other person that I can trust to cook gluten-free.....except for my husband, but he isn't much of a cook :lol: )

KayJay Enthusiast

I had the worst time getting food while in the hospital. I had a c-section too!

My doctor wrote on my chart gluten-free and the nurses knew this. But when they brought me breakfast they would put a roll on the plate or bring me cereal. I would say I can't eat this could I just have eggs and fruit it took them 2 hours to bring me a plate of food. The second time they brought me the same food that I still couldn't eat. I would get so frustrated because I was really hungry. Then at lunch the same thing happened. Finally the kitchen called and my dh said do you have any meats or anything that does not have gravy on it! They said No not today! It took them another 2 hours for lunch and I ended up with sandwich meat and cheese. :angry: So they asked me then what I wanted for dinner and I got plain chicken and a potato. It was crazy and I was so hungry by the time that I got to go home. That time I got my chicken and potato I was just about to leave to go home. I only had to stay 2 days and I was glad because I really needed to get a meal. You would think they could have gotten better before I had to go home.

Next time I will bring my own food and not even worry about the hospital food. It was really bad.

Roxyk Newbie

I have been in close contact with our hospital. I started with the head labor/delivery nurse, the anethesoligist (I can NOT spell that word), the pharmacist & the dietian. All have come up with plans for me. START EARLY talking to them. I was all set to go at 36 weeks. It is worth it to put in many phone calls to make sure they understand everything.

I'm due on the 13th, so I'll let you know how it goes.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KimmyK Newbie

I had my daughter (now 21 months old) in May of last year in Clark County KY. I was induced and knew that I had Celiac. My symptoms and diagnoses came with my first daughter born in 2001. When I filled out the paperwork for my hospital admission, I put on my chart (under the allergy section) that I was Celiac and could have ABSOLUTELY NO wheat, rye, barley, oats, or products that were associated with or contained any product or byproducts of these ingredients. I delivered my daughter at 12:20 and the director of the cafeteria for our hospital was in my room at 12:30 asking specifically what I wanted for lunch, dinner and breakfast during the rest of my stay. I was able to ask for chicken, salad (brought my own dressing from home), fresh vegetables, steak, etc. and had NO problems while I was there. You may ask to speak specifcally to the head of the cafeteria to take care of the problem... Hope this was helpful...

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Midwesteaglesfan replied to Midwesteaglesfan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      Going for upper endoscopy today

    2. - Scott Adams replied to Midwesteaglesfan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      Going for upper endoscopy today

    3. - Scott Adams replied to Cecile's topic in Related Issues & Disorders
      4

      Symptoms

    4. - Midwesteaglesfan replied to Midwesteaglesfan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      Going for upper endoscopy today

    5. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      My Journey Continues some notes

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,188
    • Most Online (within 30 mins)
      7,748

    TBH
    Newest Member
    TBH
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Midwesteaglesfan
      Her results only showed greater then 100 which over 10 is considered positive.  But American standards still recommend the endoscopy to confirm.  And the Dr explained to us both the European and American standards and asked us what we wanted to do.  We figured since it’s still recommended here, do the endoscopy so Insurance can’t argue anything in the future regarding it
    • Scott Adams
      My daughter also has it, and it's much better to discover it early. What was the positive level for her test? If she has over 10x that level, and you have celiac disease, I'm not sure if a biopsy is necessary to diagnose her. In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children!    
    • Scott Adams
      I forgot to mention that I also had to avoid eggs for a few years after initially going gluten-free, but could eat duck eggs without issues. Fresh duck eggs can often be found in Asian markets (be sure they are fresh eggs, because they sell various kinds of duck eggs that look the same like salted eggs, eggs with embryos inside, etc.), farmer's markets, and I was surprised to see Costco now selling fresh duck eggs.
    • Midwesteaglesfan
      UPDATE:  here I am a couple months past my full diagnosis and going gluten free.  I’ve been feeling a lot better.  More energy, joint pain has gone down a lot.  Haven’t really had the headaches and migraines I’ve had for years.   My daughter(age 17) has had some symptoms which we thought were something else, but with my diagnosis I said,  have the dr test her for celiacs.  Her antibodies came back as greater then 100.  So she is scheduled for her endoscopy and going to be joining me on this journey.
    • xxnonamexx
      I have increased my vitamin intake Vitamin B Complex plus 2 Thiamax, NeuroMag, Benfotiamine with breakfast. I continue reading and watching gluten free items that I eat. Breakfast is Bobs Redmill gluten-free oatmeal with Chobani zero sugar yogurt a banana and blueberries. Lunch since im at a deli gluten-free is hard to come by so I stick with turkey with gluten-free Promise bread. Dinner varies like gluten-free pasta, tacos, chicken, sausage, meat etc. rice or take out from gluten-free places. I have decided to stay away from gluten-free pizza as I feel I felt weird with it unless its store bought frozen. I am going to try to make my own gluten-free bread, Bagels. I have been good with baking gluten-free treats like cookies, muffins. Snacks if its not fruit, veggies I grab a protein bar or chocolate guilty pleasure reeses, hersheys, York PP. I am going to start to use my fitness pal app to track what I eat and note when I feel off to see if I can pinpoint if a trend of a certain gluten-free food is a culprit. I noticed once in a while I feel a little bloated, gassy that I think is from the pizza so I am going to avoid it and continue narrowing it down. I have been doing very well and I have learned even if you think you are doing everything 100% gluten-free eating it can sneak in without you knowing. This year is more traveling which im afraid of but have already looked into gluten-free places in Nashville which they have and back to Aruba I went last year and have the gluten-free places already selected. Most restaurants I have been to have been very helpful with what to stay away from to avoid CC. If a place states they don't have any gluten-free the I stick with a salad or when I took my kids to breakfast as much as I miss the breakfast this place serves I played it safe with yogurt and a fruit bowl so at least my kids were happy to go there again. Local farmers market has great gluten-free items that I treat myself to like different types of breads, baked goods. My journey continues...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.