Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hospital Food?


taweavmo3

Recommended Posts

taweavmo3 Enthusiast

Hi all! I'm 20 weeks preggo right now, with baby #4. I haven't been diagnosed with celiac, but my daughter has it. I went gluten free for a while to see how I felt, and I felt much better. I stupidly ate regular pasta, and had a major reaction, and have stayed gluten free since. So, I haven't messed with testing at all. I have no actual paper proof that I have it. Now I'm scared about getting glutened while in hospital after I have the baby. I'll be having a c-section, so it'll be a 5 day stay. I'm wondering how accomodating the hospital cafeteria will actually be, and if I'll need my OB to actually write for a gluten free diet???? Has anyone dealt with this yet? Thanks in advance, I do plan on calling the hospital to chat about this, and asking my doctor. The last thing I need when recovering from surgery is to have another reaction!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lovegrov Collaborator

Definitely talk to the dietary folks ahead of time -- BUT, have a stock of your own food and have your husband bring food. Some hospitals do great but many are clueless. For my first "gluten-free" meal I got chicken smothered in a thick mystery sauce on top of noodles and Boston cream pie. I was sick as a dog and new at it and still knew that wasn't gluten-free. When my doctor (who was my brother in law) complained they told him to have me take the chicken off the noodles. And this was at the same hospital where my wife was a nurse.

richard

Guest Viola

Yes! Do have your own foods and have someone bringing you fresh stuff. Hospitals, even if you talk to the dietician have a problem with the diet. One nurse brought me a sandwhich with gluten free bread, it had egg salad filling and they had no idea what was in the salad dressing they used. The problem is that they fix so many meals and they understand salt free, and liquid diet, but with gluten free the understanding seems to stop at the bread.

angielackner Contributor

i am 34 weeks pregnant, and in a similar boat...i know our hospital's dietary dept understands something of the gluten free diet as when i called to ask about eating a hamburger there (my mom works at the hospital and i sometimes lunch with her), they said the hamburger was gluten free and they even had rice buns if i asked for one! it was delicious...but anyhow, i am still going to speak with dietary ahead of time, and bring lots of my own food...plus my hubby or mom can run out to one of the area restaurants and get me something too...i just wish i could take a toaster oven...i just dont like the whole foods sandwich bread all that much unless its toasted...but i'll work with it.

so definitely talk to dietary as you get closer...and bring plenty of your own foods :) and scope out what places are around the hospital that you can send people to to get you food :)

good luck!

angie

cgilsing Enthusiast

I'm 27 weeks right now and have just decided that I'm not going to trust the hospital with that task! THe last thing that I want is to be sick for the week after the baby is born so I'm not going to leave anything to chance. I'm going to fix a couple meals beforehand and freeze them so that my husband can just come home, heat them up and bring them too me. If I have any problems and need to stay longer I'm going to have my mom come to my house and cook for me. (Thank god for Mom! She is the only other person that I can trust to cook gluten-free.....except for my husband, but he isn't much of a cook :lol: )

KayJay Enthusiast

I had the worst time getting food while in the hospital. I had a c-section too!

My doctor wrote on my chart gluten-free and the nurses knew this. But when they brought me breakfast they would put a roll on the plate or bring me cereal. I would say I can't eat this could I just have eggs and fruit it took them 2 hours to bring me a plate of food. The second time they brought me the same food that I still couldn't eat. I would get so frustrated because I was really hungry. Then at lunch the same thing happened. Finally the kitchen called and my dh said do you have any meats or anything that does not have gravy on it! They said No not today! It took them another 2 hours for lunch and I ended up with sandwich meat and cheese. :angry: So they asked me then what I wanted for dinner and I got plain chicken and a potato. It was crazy and I was so hungry by the time that I got to go home. That time I got my chicken and potato I was just about to leave to go home. I only had to stay 2 days and I was glad because I really needed to get a meal. You would think they could have gotten better before I had to go home.

Next time I will bring my own food and not even worry about the hospital food. It was really bad.

Roxyk Newbie

I have been in close contact with our hospital. I started with the head labor/delivery nurse, the anethesoligist (I can NOT spell that word), the pharmacist & the dietian. All have come up with plans for me. START EARLY talking to them. I was all set to go at 36 weeks. It is worth it to put in many phone calls to make sure they understand everything.

I'm due on the 13th, so I'll let you know how it goes.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KimmyK Newbie

I had my daughter (now 21 months old) in May of last year in Clark County KY. I was induced and knew that I had Celiac. My symptoms and diagnoses came with my first daughter born in 2001. When I filled out the paperwork for my hospital admission, I put on my chart (under the allergy section) that I was Celiac and could have ABSOLUTELY NO wheat, rye, barley, oats, or products that were associated with or contained any product or byproducts of these ingredients. I delivered my daughter at 12:20 and the director of the cafeteria for our hospital was in my room at 12:30 asking specifically what I wanted for lunch, dinner and breakfast during the rest of my stay. I was able to ask for chicken, salad (brought my own dressing from home), fresh vegetables, steak, etc. and had NO problems while I was there. You may ask to speak specifcally to the head of the cafeteria to take care of the problem... Hope this was helpful...

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      3

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

    4. - trents replied to Matthias's topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    5. - Matthias posted a topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,327
    • Most Online (within 30 mins)
      7,748

    PattyPagnanelli
    Newest Member
    PattyPagnanelli
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to celiac.com, @Jane02! Have you had your serum D levels checked for deficiency/sufficiency? What about cod liver oil? Egg yolks can also be a good source of vitamin D.
    • Jane02
      Hello, I'm very discouraged. I've been trying to find a safe vitamin mineral supplement brand for months and am tired of testing one after the other and experiencing my typical 'glutening' reactions. I'm really feeling the nutritional deficiencies set in. I'm doing the best I can to get these nutrients from my food, although it's impossible for me to intake enough vitamin D as I can't have dairy and have insufficient sun exposure in the northern hemisphere. I've tried B Complex from Country Life (certified gluten-free) - horrible reaction. I've tried Metagenics vitamin D tab (certified glute-free) - bad reaction. I've tried liquid vitamin D Thorne and D Drops - reactions were mild since I tried a drop of a drop. I understand there could be other things I'm reacting to in my diet, although my diet/intake is pretty consistent with minimal variables so I do think it's something in these supplements. I understand I could be reacting to the active ingredient vitamin/mineral itself or even the filler ingredients. I tried the vitamin D drops since the only filler ingredient is coconut oil, in some brands, which I know I can tolerate really well on its own - I cook with coconut oil frequently and have no 'glutening' reactions at all. Perhaps I'm reacting to the vitamin D itself, although I eat fatty fish every few days, an entire fillet with no 'glutening' reactions, which contains anywhere between 400-600 IU per fillet so I shouldn't be sensitive to vitamin D. All this to say, I'm desperately looking for at least a safe vitamin D supplement. Does anyone know of a safe vitamin D supplement brand? I'd love to know if there are any supplement brands that have absolutely no gluten (especially in flour form) in their facilities. I've heard of Kirkman having no grains in their facility - I may try this brand. Has anyone reacted to this brand?   
    • trents
      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.