Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone Doing Scd?


Rachel--24

Recommended Posts

dlp252 Apprentice

Corinne, that's interesting because I was following a rotation diet and their theory was that it takes about 3-4 days for most food to go through our systems.

Adding to the weight issue...I did a low carb diet for a few years...I ate lots of nuts and nut butters, meats and veggies and a little bit of fruit here and there. I actually ate quite a bit of food and I still lost weight. I have gained 10 pounds since January (gorging on gluten-free products though)...so I don't need to gain any more, lol.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 201
  • Created
  • Last Reply
danikali Enthusiast

Okay, so I'm on the intro. diet, and maybe a little bit better, but my stomach is def. not where it should be. I'm still really bloated and yesterday I had 'D' but today I haven't gone at all! Also, my lower back hurts, I guess from being so tight and bloated. Anyway, this is my second day on it. We are supposed to stay on the intro. diet for 3-5 days, right? What if I'm still not feeling like myself in 5 days? Should I wait longer to try other foods? Or is this diet not for me?

Rachel--24 Collaborator
Okay, so I'm on the intro. diet, and maybe a little bit better, but my stomach is def. not where it should be. I'm still really bloated and yesterday I had 'D' but today I haven't gone at all! Also, my lower back hurts, I guess from being so tight and bloated. Anyway, this is my second day on it. We are supposed to stay on the intro. diet for 3-5 days, right? What if I'm still not feeling like myself in 5 days? Should I wait longer to try other foods? Or is this diet not for me?

Well you've only been on the diet for a day so you're definately not gonna get relief of all symptoms so soon. You're not going to be "perfect" in 5 days either. These things take time and patience. Didnt you say you've had symptoms your whole life? Well...they're not going to all go away in 1 week. You're trying to "help" your body heal on this diet. Its not going to happen overnight.

As far as people staying on the diet for life...some people may choose to do that. Especially those with Crohn's Disease. If they're choosing to stay on the diet they must like the way they feel on it. Maybe some of them have gluten intolerance and dont know it so go back to normal foods (gluten) and feel sick again. In the book she recommends staying on the diet for 1 year and then you can add food in slowly if you are having no symptoms.

I read one letter where the woman said she felt great after being on the diet several months but then ate cookies and it took 7 weeks to get back to feeling good again. I had to wonder if shes Celiac or gluten intolerant and doesnt know it.

danikali Enthusiast
Well you've only been on the diet for a day so you're definately not gonna get relief of all symptoms so soon. You're not going to be "perfect" in 5 days either. These things take time and patience. Didnt you say you've had symptoms your whole life? Well...they're not going to all go away in 1 week. You're trying to "help" your body heal on this diet. Its not going to happen overnight.

As far as people staying on the diet for life...some people may choose to do that. Especially those with Crohn's Disease. If they're choosing to stay on the diet they must like the way they feel on it. Maybe some of them have gluten intolerance and dont know it so go back to normal foods (gluten) and feel sick again. In the book she recommends staying on the diet for 1 year and then you can add food in slowly if you are having no symptoms.

I read one letter where the woman said she felt great after being on the diet several months but then ate cookies and it took 7 weeks to get back to feeling good again. I had to wonder if shes Celiac or gluten intolerant and doesnt know it.

Haha, I know Rachel...I am getting better actually. My stomach doesn't hurt at all this morning! That's a huge thing right now! Of course, I'm not expecting to feel 100% better right away, but I just know that when I took gluten out, within 24 hours, I felt an automatic change for the better. I guess I expected that. But obviously, gluten wasn't my whole answer, and this may be, so it's common sense it will move at a slower pace.

You make a good point about those people with Crohn's who may have Celiac Disease and not know it. I'm thinking, they're all at least gluten sensitive, and anyone with digestive problems should never eat gluten.

Anyway, I'm going away this weekend, have a good one everyone. I'll talk to you on Monday!

Nancym Enthusiast

I'm pretty sure I have something else going on with the food intolerances. I'm hoping the meds my rhuemy puts me on will help with that. They're for RA, Crohn's and Ulcerative colitis and AS.

Anyway, I am pushing the envelope of the diet a bit and probably getting ahead of schedule in introducing foods, but I just made coconut flour pancakes (almond flour is a bit iffy with me). Basically I cracked four eggs into a bowl added baking soda and coconut flour and a bit of sweetener and lemon juice and stirred until it resembled pancake batter consistency. Then I topped it wtih slightly sweetened frozen berries. It was SO good!

CMCM Rising Star
I'm pretty sure I have something else going on with the food intolerances. I'm hoping the meds my rhuemy puts me on will help with that. They're for RA, Crohn's and Ulcerative colitis and AS.

Anyway, I am pushing the envelope of the diet a bit and probably getting ahead of schedule in introducing foods, but I just made coconut flour pancakes (almond flour is a bit iffy with me). Basically I cracked four eggs into a bowl added baking soda and coconut flour and a bit of sweetener and lemon juice and stirred until it resembled pancake batter consistency. Then I topped it wtih slightly sweetened frozen berries. It was SO good!

Coconut flour??? Where did you get that...I've never seen or heard of it!

What have you read about coconut? I know a lot of people say it's very good...omega 3's, and some compound which is very good for you (I forgot the name of it). I got some coconut oil to cook with (the solid stuff) which I use instead of butter for doing eggs, etc. And I'm using the coconut milk for yogurt. I wonder if you can over-do it? I know it's high fat, even though it's thought to be a "good" fat.

Nancym Enthusiast

I think I got it at simplycoconut.com, its the defatted coconut flour, which I wanted because it is lower in calories. There are several sources of it online.

I think most fats are good for people, I don't believe the cholesterol theory. Coconut oil has a lot of hype about it right now. I'm not sure I believe it all, but my intestines seem pretty happy with coconut products, and they're running the show right now. :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dlp252 Apprentice

So I bought 3 big bags of carrots today, lol. Also bought two huge packages of organic ground beef. I should be able to start this by Monday at the latest. :D

CMCM Rising Star
I think I got it at simplycoconut.com, its the defatted coconut flour, which I wanted because it is lower in calories. There are several sources of it online.

I think most fats are good for people, I don't believe the cholesterol theory. Coconut oil has a lot of hype about it right now. I'm not sure I believe it all, but my intestines seem pretty happy with coconut products, and they're running the show right now. :D

Isn't that the truth (intestines running the show!). I seem to be doing well with the coconut stuff so far, too. I'm making my second batch of yogurt tonight. I'm happy with the low fat milk so I'm sticking with that. I put a bit more honey in tonight and most, but not all, of the gelatin. The last batch was a bit soupy, although I didn't really mind so much. Lucky for me I love coconut and its flavor. :lol:

Nancym Enthusiast

This is going to sound funny but... I was thinking, wouldn't it be possible to make flour out of vegetables? I suppose you'd have to cook the heck out of them, then pulverize them, spread the mash out to dry then, once it was totally dry, mill it or else process the heck out of it.

jerseyangel Proficient

When you think about it, they do make potato flour. I would imagine that with harder veggies like carrots, it would be possible. That would be great!

Nancym Enthusiast
When you think about it, they do make potato flour. I would imagine that with harder veggies like carrots, it would be possible. That would be great!

Everything would be orange! Hey, it'd give a new meaning to carrot cake though. :D

dlp252 Apprentice

Ha! I could go for some carrot cake right now, lol. Well, I started the SCD today. My breakfast wasn't legal, but after that, my testing was done, so I decided I would just finish the day out. I'm about to go make my second ground beef/carrot dinner, lol. I am not fond of cooked carrots so this should be interesting. I may actually try to put a bit of honey on them to make them like glazed carrots which I do like. I love beef, so no problem there!

lorka150 Collaborator

is anyone here a vegetarian, or knows of a vegetarian doing the scd?

Nancym Enthusiast

I just made myself some candy bars. I got some raw cashews, sunflower seeds and pumpkin seeds. Roasted them. Chopped finely. Mixed with an assortment of dried fruit (also chopped) including wild blueberries. Mixed with honey and coconut oil (glue) and coconut threads (unsweetened) and plenty of salt. Combined and pressed into a pan lined with wax paper and froze. Cut into smallish chunks and wrapped and stuck in the freezer. Tastes insanely good to me! I was getting pretty antsy after eating only meat, eggs and veggies for 2 months. Sweet, salty and crunchy. I had been missing all three of those!

CMCM Rising Star
I just made myself some candy bars. I got some raw cashews, sunflower seeds and pumpkin seeds. Roasted them. Chopped finely. Mixed with an assortment of dried fruit (also chopped) including wild blueberries. Mixed with honey and coconut oil (glue) and coconut threads (unsweetened) and plenty of salt. Combined and pressed into a pan lined with wax paper and froze. Cut into smallish chunks and wrapped and stuck in the freezer. Tastes insanely good to me! I was getting pretty antsy after eating only meat, eggs and veggies for 2 months. Sweet, salty and crunchy. I had been missing all three of those!

Your candy bars sound a bit like the Lara bars, which I really love! I just wish they had more protein.

jerseyangel Proficient

I thought the same thing about the Lara bars! Nancy--your version sounds yummy :D

danikali Enthusiast

I have a question. (What else is new, right? )

Well, I got the book yesterday, finally, so today I am adding apples in, cooked only because I tried a raw one first and it made my chest hurt and feel really tight. Anyway, she doesn't really expalin how this adding in of foods should go. Someone else on here posted and said they add one on Monday and one on Thursday, but let's say a food bothers you. Well, doesn't it take at least 3 days to get out of your system and stop bothering you? So if you add a new food in right away, even if you took the other one out, couldn't you still be getting the effect of the first food that didn't work well with you? How is everyone else doing it? I see that you guys are already using the recipes with lots of different ingrediants. But I'm afraid to do that. I wish I could, but I know I can't.

Also, just a question about juice because I'm just naive. I bought grape juice on Friday at work and had a little bit and put it in my desk drawer. Well, it stayed there over the weekend, of course. Is it bad now? Do I have to throw it out? Hhaha, I know, dumb question. :lol: But I really don't know! :P

Oh, and did anyone get a bad headache in the beginning? My stomach problems have cleared up (although I haven't gone #2 in a few days) but I've had a headache almost everyday. Is this a withdrawl symptom of all of the starchy stuff?

How is everyone feeling?

dlp252 Apprentice

Lorka - I'm not sure if there are any vegetarians currently doing SCD...sorry.

Dani - From what I've heard it really can take 3 days for that food to work its way entirely through...I can sometime react right away to something but other times I don't. I don't think I'd drink the grape juice...it may be "good" but there may also be a bit of bacteria in there. I was thinking the same thing as you about the book really not specifying which foods to add when. Rachel posted a link somewhere to pecanbread.com which I think has something like that...I'm going to go look as soon as I catch up on the new posts.

Well, all I survived my first half day, lol. I figured out a way to eat my carrots that I think is legal since I'm not currently having D. I grated 3 carrots and added them to a saute pan, put in a touch of apple cider and added just a few pieces of dried cranberries. It let it cook for a while to soften the carrots and the cranberries...It tasted like a warm carrot salad, lol. I can live with that! I'm going to get some pineapple juice next week and use that instead of the cider.

dlp252 Apprentice
Rachel posted a link somewhere to pecanbread.com which I think has something like that...I'm going to go look as soon as I catch up on the new posts.

Here's the link to the page where it describes adding food back:

Open Original Shared Link

lorka150 Collaborator

dlp - thanks for the reply.

danikali - i wouldn't drink the juice... especially when you are trying to be as risk free as possible right now.

danikali Enthusiast
dlp - thanks for the reply.

danikali - i wouldn't drink the juice... especially when you are trying to be as risk free as possible right now.

haha, true, thanks. I already threw it out. :rolleyes:

Nancym Enthusiast

The carrot cranberry salad sounds wonderful!

Oh, and did anyone get a bad headache in the beginning? My stomach problems have cleared up (although I haven't gone #2 in a few days) but I've had a headache almost everyday. Is this a withdrawl symptom of all of the starchy stuff?

Sounds like carb-flu to me! Withdrawing from a diet high in starches and sugars can make you feel like pooh for a bit.

danikali Enthusiast
The carrot cranberry salad sounds wonderful!

Sounds like carb-flu to me! Withdrawing from a diet high in starches and sugars can make you feel like pooh for a bit.

That's what I was thinking because I used to literally live on rice cakes. Like have 1 and a half bags everyday, let alone rice cereal, potatoes, etc. etc. Everything I ate was with rice. Rice milk. So, I've been on the diet since Thursday. Hopefully it goes away soon! But at least my stomach feels better!!!

danikali Enthusiast

Another question. I'm making the chicken soup today in a crockpot, but where do I get the broth from? Is it naturally made from the carrots and chicken and water? I don't understand though because it says 'strain the soup....puree the carrots........return to broth' If I'm straining the soup, where is the broth?

I've never cooked anything before all of this, and even when I first new for sure I had Celiac, I stuck with the easiest things possible to make. So I'm very unexperienced with all of this.

Thanks!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,090
    • Most Online (within 30 mins)
      7,748

    Kerischultz
    Newest Member
    Kerischultz
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.6k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Thanks for following up with us on the results. This might be helpful to you now:  
    • Kiwifruit
      Hi I just wanted to update you all and let you know that I finally have my diagnosis. 2 weeks ago I had my third gastroscopy and the biopsy confirmed the damage. Thank you for giving me the information I needed to advocate for myself when I a was a feeling so lost!
    • Scott Adams
      I agree that the gastritis may go away after you've been on a gluten-free diet for a while. If you are concerned, it might make sense for you to do a follow up biopsy after  a year or so on a gluten-free diet. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • Scott Adams
      Getting tested for celiac disease is a valid concern, especially given your history of microscopic colitis and the potential risks associated with undiagnosed celiac disease, such as cross-contamination, nutrient malabsorption, and increased cancer risk. Since you’ve been gluten-free for years, reintroducing gluten for the standard celiac blood tests or endoscopy would be challenging, as it requires consuming gluten for several weeks to months, which could worsen your symptoms and disrupt your daily life. Gene testing (HLA-DQ2 and HLA-DQ8) through a lab like EnteroLab could be a helpful first step. While these genes are present in nearly all celiac patients, having them doesn’t confirm celiac disease—it only indicates genetic susceptibility. If you don’t have these genes, celiac disease is highly unlikely, which could provide some peace of mind. However, if you do have the genes, it doesn’t confirm celiac disease but suggests further testing might be warranted if you’re willing to undergo a gluten challenge. Another option is to discuss with your doctor whether a follow-up endoscopy or other non-invasive tests (like stool tests for gluten antibodies) could provide insights without requiring a gluten challenge. While a formal celiac diagnosis can be important for ensuring strict dietary adherence, access to gluten-free options in hospitals, and monitoring for complications, it’s also worth weighing the risks and benefits of reintroducing gluten. If you’re already strictly gluten-free and managing your symptoms well, the urgency of a formal diagnosis may depend on your personal health goals and concerns. Consulting a gastroenterologist familiar with celiac disease and Microscopic Colitis can help guide your decision.
    • Scott Adams
      Steatorrhea (oily or fatty stools) can indeed be a symptom of malabsorption, which is often linked to gluten exposure in individuals with celiac disease. While it’s possible that a single glutening event, like cross-contamination at a restaurant, could trigger temporary steatorrhea, it’s also worth considering whether there’s a more chronic source of gluten exposure, such as in medications or ongoing dietary mistakes. Since you’ve been less careful recently and experienced this symptom after eating out, it’s plausible that the fries or other cross-contaminated foods could be the culprit. However, if the steatorrhea persists, it might indicate ongoing gluten exposure or another underlying issue, such as pancreatic insufficiency or bile acid malabsorption. Until you can see a GI doctor, it might help to strictly avoid any potential sources of gluten, including cross-contamination, and monitor your symptoms. If the issue continues, it’s important to investigate further, as persistent steatorrhea can lead to nutrient deficiencies. In the meantime, keeping a detailed food and symptom diary could help identify patterns or triggers. Good luck finding a new GI doctor—hopefully, they can provide clarity soon!  
×
×
  • Create New...