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Anyone Doing Scd?


Rachel--24

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Nancym Enthusiast

Just wanted to mention a cookbook that would fit in really nicely with this diet. I just got mine yesterday. It is called "The Garden of Eating". The inspiration for the diet is the paleo type diet which means no grains or sugar or dairy. The only exception I see is there are some recipes that include potatoes and sweet potatoes, which wouldn't be allowed.

This book is just immense and packed with great recipes! I can't wait to try them. However, I am fasting for a few days, which is recommended for the autoimmune disease I have. Kind of torture to have this amazing new recipe book and I can't eat anything!

Open Original Shared Link


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dlp252 Apprentice
...

Anyway, do you, or anyone know if you can retain water in your legs? Because when I retain water, not only does my stomach pertrude out like 10ft. (haha, okay a little sarcasim), but I feel like my thighs are also very puffy. Maybe it's just in my head, but I just don't feel like myself when I'm bloated. Ugh.... :angry:

Oh and Donna, I told you about the pearl acidopholis pills. Don't get them. There is pectin in them, an additive that isn't allowed, and I didn't know until yesterday. I was taking them, so I could be having problems from that, too.

But yeah, this diet is hard when we don't have Elaine to call or write like people could do when she was 'around'. I wonder if someone took her place that we could write to.......?

I have retained water in my legs too from time to time. I hate that bloated feeling. Fortunately I don't get it a lot, but will definitely get it from too many carbs. The juice thing could have done it for you.

Glad you told me about the pearls, lol. After reading so many labels last Saturday I don't know that I would have this time, lol.

If I have time later I'll look more around to see if I can find someplace to ask questions.

teankerbell Apprentice

I am really sorry if this question has been addressed in previous posts on this topic, which is AWESOME. But I really didn't want to go through 126 of them!! :-)

I haven't received the book The Vicious cycle and I am on the intro diet, which has been going good. However, I need a good probiotic that is allowed on SCD.

The question is this:

What brand of Probiotic are you using that is allowed on SCD?

Thanks for your help!

dlp252 Apprentice
I am really sorry if this question has been addressed in previous posts on this topic, which is AWESOME. But I really didn't want to go through 126 of them!! :-)

I haven't received the book The Vicious cycle and I am on the intro diet, which has been going good. However, I need a good probiotic that is allowed on SCD.

The question is this:

What brand of Probiotic are you using that is allowed on SCD?

Thanks for your help!

I'm still looking, lol. The two I've been taking both have potato or rice starch I think, so those wouldn't be allowed.

***

On a different note...I'm having major D today, lol. I was so hungry yesterday again and it was one of those days where I was on the go from 4:00 a.m. to 9:30 p.m. I had some stuff which is legal, but I just don't think I should have had them yet. I had a Lara bar which has legal ingredients, but it's all raw, so probably wasn't a good idea...then I was so hungry when I got home at 9:15 that I had to have something before bed, so I had some almond butter... egads, lol. Think I'm paying for it now. I also put a little orange juice in my carrots last night and I think I've discovered that I just can't have orange juice.

teankerbell Apprentice
I'm still looking, lol. The two I've been taking both have potato or rice starch I think, so those wouldn't be allowed.

***

On a different note...I'm having major D today, lol. I was so hungry yesterday again and it was one of those days where I was on the go from 4:00 a.m. to 9:30 p.m. I had some stuff which is legal, but I just don't think I should have had them yet. I had a Lara bar which has legal ingredients, but it's all raw, so probably wasn't a good idea...then I was so hungry when I got home at 9:15 that I had to have something before bed, so I had some almond butter... egads, lol. Think I'm paying for it now. I also put a little orange juice in my carrots last night and I think I've discovered that I just can't have orange juice.

Ok, that is not good Donna! I hope you get better soon!

**

The other thing that comes to mind is how am I going to manage on this diet while we are traveling? My DH and I are going to take a long weekend in California.

The hotel has a mini fridge, but I think DH would like to get a real meal to enjoy with me. How do I manage the eating issues that are associated with this diet?

I have been a week on this diet, only eating boiled eggs, bacon, chicken, carrotts, green beans, almonds and raisins. I haven't added anything back in and without the book, I don't know what I should try to add back in. Another meat? A different Fruit or vegtable? Do I wait until I get back from California to try to add anything in?

I am kind of freaking out because I don't want to start getting sick again! :unsure:

dlp252 Apprentice

Laura, I know what you mean. Some friends wanted to go out to lunch last Sunday and at first I said no, but they convinced me. There wasn't much on the menu I could have, so I ended up having a big steak...nothing else, lol. I asked if they had carrots, but the waitress said no only broccoli, so I just had the steak.

I'm thinking the diet will get easier the longer we're on it, for a couple of reasons...first, we'll be used to it, lol, and second there will be more types of food available.

I think you'd be safe to add another meat. I'm trying buffalo today, lol. I should probably wait til the D goes away, but it may never go away, lol, and meats don't seem to give me problems.

You could ask for a plain unseasoned piece of chicken and well steamed veggies. I've been trying to follow the pecanbread "order" of adding back foods for no other reason than to just give me some idea of what to add first...I'll go get the link and post it.

Here's the link:

Open Original Shared Link

danikali Enthusiast

Hi guys.

Donna, I'm sorry you're sick again. But at least you know it's from going way too fast and adding things that you're not ready for.

Well, I was trying and trying to figure out what was making my stomach blow up so big, and I'm almost 100% positive as to what it was. On the other SCD post, Nancy said that food continues to digest in your body for 72 hours, so it has to be something that I've been doing all week, it couldn't be the raw foods that started it on Saturday night. I knew that it takes 3 days for you to feel better, but it didn't register until I read that from Nancy yesterday. So I looked at my journal and I've been having hamburger, for every meal! And I'm frying them, so they are very very greasy and (good, lol!) fatty and for someone with a sensitive stomach, that can't be good. So, today I'm taking that out of my diet to see what happens. It's got to be that because the juice I've been having since day one, including on those REALLY GOOD days, so it can't be that. And same with salt. Only the hamburger makes sense because before I was only eating fish and chicken, and a couple of turkey burgers, broiled. So that's it!!! (I'm pretty sure). Just like you Donna, I have to remember that just because it's on the 'safe' list doesn't mean that it's not going to agree with me RIGHT NOW. I have to take a step back again.

And Laura, did you read everything on the websites? Do your homework! hahaha!

Open Original Shared Link

Open Original Shared Link

Pecan bread is good because it gives you more direction than the other one. The exact site that Donna posted has a whole list of stages that you should probably stick to.

Also, why don't you make lots of food before you go, and put it in the fridge. Since you're only going for an extended weekend, you don't need a freezer. Also, when you guys go out to eat, just get meat like Donna did and ask if they have carrots as a side, or any other veggie that you're eating. Maybe even try a new one in the first stage. Don't forget to tell the waitor about the gluten thing, of course, but you know, it's funny because I'm not as worried about CC these days anyway because I now know it was probably just all of the other foods I was eating that I'm not close to being ready for!


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dlp252 Apprentice

Dani - you may be on to something with the grease. I was frying all my stuff before I started SCD, but decided to use my George Forman grill for SCD...I got lazy the other day and just threw the stuff in a frying pan, so that may have something to do with it. For you it may cause bloating, for me the big D, lol.

danikali Enthusiast
Dani - you may be on to something with the grease. I was frying all my stuff before I started SCD, but decided to use my George Forman grill for SCD...I got lazy the other day and just threw the stuff in a frying pan, so that may have something to do with it. For you it may cause bloating, for me the big D, lol.

I really think so, because grease is known to bother people WITHOUT stomach problems and here's us, hahaha, thinking that it won't affect us! My Mom ALWAYS gets D from greasy stuff......and she usually doesn't have stomach problems.

hahahah, you're not going to believe this. I'm yelling at Laura (my step-Mom, by the way) to do her homework. Look at this Donna! I just went to the site with the stages of the food on pecanbread.com

'The suggestion to avoid frying foods early in the diet was made due the difficulty

that kids on our list were having with deep fried foods.'

DUH!!!! Well, NOW WE KNOW!! :rolleyes::lol::P

dlp252 Apprentice

Oh Yikes! :D Okay, George Forman it is then. :P

teankerbell Apprentice
Hi guys.

Donna, I'm sorry you're sick again. But at least you know it's from going way too fast and adding things that you're not ready for.

Well, I was trying and trying to figure out what was making my stomach blow up so big, and I'm almost 100% positive as to what it was. On the other SCD post, Nancy said that food continues to digest in your body for 72 hours, so it has to be something that I've been doing all week, it couldn't be the raw foods that started it on Saturday night. I knew that it takes 3 days for you to feel better, but it didn't register until I read that from Nancy yesterday. So I looked at my journal and I've been having hamburger, for every meal! And I'm frying them, so they are very very greasy and (good, lol!) fatty and for someone with a sensitive stomach, that can't be good. So, today I'm taking that out of my diet to see what happens. It's got to be that because the juice I've been having since day one, including on those REALLY GOOD days, so it can't be that. And same with salt. Only the hamburger makes sense because before I was only eating fish and chicken, and a couple of turkey burgers, broiled. So that's it!!! (I'm pretty sure). Just like you Donna, I have to remember that just because it's on the 'safe' list doesn't mean that it's not going to agree with me RIGHT NOW. I have to take a step back again.

And Laura, did you read everything on the websites? Do your homework! hahaha!

Open Original Shared Link

Open Original Shared Link

Pecan bread is good because it gives you more direction than the other one. The exact site that Donna posted has a whole list of stages that you should probably stick to.

Also, why don't you make lots of food before you go, and put it in the fridge. Since you're only going for an extended weekend, you don't need a freezer. Also, when you guys go out to eat, just get meat like Donna did and ask if they have carrots as a side, or any other veggie that you're eating. Maybe even try a new one in the first stage. Don't forget to tell the waitor about the gluten thing, of course, but you know, it's funny because I'm not as worried about CC these days anyway because I now know it was probably just all of the other foods I was eating that I'm not close to being ready for!

Hey Danielle,

Yeah, I am trying to do my homework, I just havent had as much time as I would like to with working all the overtime this week! ;-)

We cooked a lot over the weekend and on Monday so there was plenty to eat through out the week. I didn't want to introduce anything until being a week on the diet. Your Dad has been doing very good on the gluten-free diet and Rosario has started going gluten-free (she wants to eat healthy and lose some weight so I suggested gluten-free)

Now with the Trip to California, I can't really bring prepared food with me since we will be flying there and I am going directly to the airport from work. But there is a Trader Joes about 10 minutes from our Hotel. There is also a micro in the room so I can eat some of my own stuff. I introduced green beans and bananas. I think bananas bother me right now - my stomach hurt a little while after I ate one. :-(

I will talk to you over the weekend!

teankerbell Apprentice
I really think so, because grease is known to bother people WITHOUT stomach problems and here's us, hahaha, thinking that it won't affect us! My Mom ALWAYS gets D from greasy stuff......and she usually doesn't have stomach problems.

hahahah, you're not going to believe this. I'm yelling at Laura (my step-Mom, by the way) to do her homework. Look at this Donna! I just went to the site with the stages of the food on pecanbread.com

'The suggestion to avoid frying foods early in the diet was made due the difficulty

that kids on our list were having with deep fried foods.'

DUH!!!! Well, NOW WE KNOW!! :rolleyes::lol::P

:lol::lol:

Yeah Danielle, you are a fine one to be yelling at me, when you aren't doing YOUR homework! hahahahahaha

  • 3 weeks later...
danikali Enthusiast

Well, I haven't been on the site for a while because I've been doing this SCDiet. I've been doing the mailing list for SCD and have found lots of nice people who've helped me and talked to me about what I need to do next on this diet. It's pretty cool because one of the ladies who was very close friends with Elaine herself was e-mailing me with TONS of people in my area (NYC) who are on the SCD and can help me, and TONS of people with Celiac that are doing the diet and can help me, and TONS AND TONS AND TONS of REAL LIGIT doctors in NYC who believe in the diet and suggest it. Not homeopaths or anything, ACTUAL MAINSTREAM MEDICAL DOCTORS WHO WORK WITH COLUMBIA, BETH ISRAEL, ETC. And guess what, since I found this all out, I FEEL GREAT!!!!!!!!!!!!!!!!!!!! BETTER THAN EVER EVER EVER!!!!! It's been almost 5 weeks now.........how is everyone else doing??????

dlp252 Apprentice
Well, I haven't been on the site for a while because I've been doing this SCDiet. I've been doing the mailing list for SCD and have found lots of nice people who've helped me and talked to me about what I need to do next on this diet. It's pretty cool because one of the ladies who was very close friends with Elaine herself was e-mailing me with TONS of people in my area (NYC) who are on the SCD and can help me, and TONS of people with Celiac that are doing the diet and can help me, and TONS AND TONS AND TONS of REAL LIGIT doctors in NYC who believe in the diet and suggest it. Not homeopaths or anything, ACTUAL MAINSTREAM MEDICAL DOCTORS WHO WORK WITH COLUMBIA, BETH ISRAEL, ETC. And guess what, since I found this all out, I FEEL GREAT!!!!!!!!!!!!!!!!!!!! BETTER THAN EVER EVER EVER!!!!! It's been almost 5 weeks now.........how is everyone else doing??????

Dani, that's fantastic!!!! What are you eating now? I've fallen off the wagon a bit since last week and need to get back on I think. I've had a rough couple of days, lol.

danikali Enthusiast

Hi Donna!

Well, I'm actually eating a lot. I can have asparagus, green beans, spinich, apples, pears, rasins, the homemade gelitan, carrots of course, coffee actually! (watered down a lot though, of course, and only black), still any kind of meat, fish, and I can tolerate almond butter! I'm so happy about that one because it is the only thing that really satisfys my cravings. I found out that peanuts are more of the lentil family.....did you know that? So they are like beans in a way, very acidic and gassy! Well, the cashew butter I bought I just didn't like very much and it was a little chunky, so I was scared that it would be too hard for me to digest, so I only had it for one day, and the almond butter I can have with no problem! Also, I'm not bloated anymore because I've noticed that I have to eat really really small meals every 2 hours or so. The 1-2lbs of carrots was killing me because my digestive tract is so slow. I haven't tried raw fruit yet, I don't think I will for a while because I know how it made me feel before. And I tried making the yogurt but messed it all up because my oven just wouldn't stay at the right temp. So I just bought a yogurt maker and should have that by the end of the week. I keep reading how essential it is to heal such a bad gut. Also, I'm sure I can have more fruits and veggies but I haven't had time to go shopping yet, so I'm just eating what I have in the house, and it's hard to find ripe bananas at the store, so I'm waiting for my batch to get those black spots on them.

So what happened? How did you fall off of the diet? How are you feeling? I'm really liking this diet now that I'm starting to get a handle on the portions I can and can't handle. It's really amazing because I don't have that HORRIBLE BACK HEART BURN, KNIFE PAINS at night anymore. And I even have my 'monthly friend' and I don't look like I'm pregnant! Okay, I need to stop before I jinx myself. I hope I already haven't!

dlp252 Apprentice
Hi Donna!

So what happened? How did you fall off of the diet? How are you feeling? I'm really liking this diet now that I'm starting to get a handle on the portions I can and can't handle. It's really amazing because I don't have that HORRIBLE BACK HEART BURN, KNIFE PAINS at night anymore. And I even have my 'monthly friend' and I don't look like I'm pregnant! Okay, I need to stop before I jinx myself. I hope I already haven't!

I had to have a colonoscopy and an endoscopy last Monday...besides the prep the day or two before, I started feeling sorry for myself, lol. After the scopes, the only thing I felt like eating was Thai Noodle bowls. I did have some of my legal chicken soup, but I think the Thai bowls opened up the old cravings thing. I then proceeded to buy one of my favorite gluten/casein free candy bars and eat that. That just started a snowball, lol. I do really need to start again because my whole system has been really messed up since the scopes. I had C for 3 days, then D for a couple, then C now D again...I had such a bad pain in my intestines yesterday all I wanted to do was lay down.

Up to that point I was doing very well, and was able to eat all of the items you mentioned plus some frozen fruits that were blended up with some diluted juice into a sorbet (most of the fruit I was using didn't have "skin", so I think that's why I got away with that).

I bought a yogurt maker too, and think I'll try to make some with coconut milk if I can ever find some without additives.

Green12 Enthusiast

I think I was meant to read this thread today! The universe works in myterious ways....

Count me in, I am very interested in this SCD, it sounds like the solution for all of my digestive and health problems and the key for me getting better.

I'm actually excited about getting started! I'll probably start slowly and at first just make sure I eat from the legal food list until I get the book and get myself familiar with the plan.

cornbread Explorer

Julie, you can read the intro diet instructions at the SCD web site:

Open Original Shared Link

That way you can get started before your book arrives. It's very important to do the intro diet for at least 2 days. I didn't think it was because I didn't have D, so I just looked at the legal food list. But the legal food list was basically what I was eating anyway. So I couldn't figure out why the diet worked, and presumed it wouldn't work for me. When I went back and carefully read the whole book (on my 4th time through right now), it started to make sense and I saw that the intro diet was important to the whole thing working, even if you don't have D. The intro diet basically 'preps' your body for the whole thing. Gets your GI system back to basics. That way, when you steadily start adding new foods, you can properly gauge which ones your system is ready for. All the while you are consuming a good nutricious diet that is feeding YOU whilst STARVING your gut bugs! It's genius in it's simplicity! :D

PM me if you want any info - I just started the diet on Friday so I'm All About SCD right now. :lol:

BTW, if you have C rather than D, here is Elaine's advice: Open Original Shared Link

I got by without the stewed prunes, thankfully!

dlp252 Apprentice

You all are doing great! I'm still off the wagon. I intend to go shopping tomorrow morning to get more stuff because I'm running low on legal stuff...but I have to have a second endoscope tomorrow so I'll probably just have some legal chicken soup and a little diluted juice when I get home tomorrow. That should be all I need, but at least if I do my grocery shopping tomorrow stuff will be here if I need more.

danikali Enthusiast

Hi guys.

I'm so glad everyone sees how GREAT this diet is too. I am really happy on it. Anyway, my doctor wants me to do a gastric emptying test tomorrow because if I eat too much at once, I get bloated and stay that way for a couple of days. I can only eat small meals, very small, very frequently in the day. Anyway, I believe it is because my digestive system is obviously not healed yet (I don't know why he doesn't think about that), and therefore, it is very slow right now and I'll just have to stick with the small frequent meal plan. It doesn't bother me and I feel perfect when I do this. I'm even going to the bathroom every other day or so. No heartburn, back burn, no bloating, no pains at night.........I feel like I'm really on my way. Annnnyway, I know that we aren't supposed to rule out the doctors suggestions, but I don't see the point of taking the test and getting meds. just so I can eat more at once to hide the fact that I don't have a normal digestive tract yet. I think my body is telling me that I need to eat less at a time, do you agree? I asked him if the test came back positive, what would that mean? Why does this happen? He said, we don't know, there could be a lot of reasons. All we would be able to do is figure out a med. that works best for you.' And I just don't want to go on meds if I don't have to! I'm extremely scared of them these days. Anyway, I called him to cancel and so that I could ask him a few questions. I'm waiting for him to call me back. (This is doctor Green by the way). When I asked him if I should try eating smaller meals more frequently, he said, 'it has nothing to do with that, I don't believe in over-indulging.' Then he gave me a heartburn perscription and another perscription for zelnorm, which I don't use anyway. Well, I disregarded his comment about that not being the cause, and here I am, pain free, bloat free, and I haven't even dropped off my perscriptions at the pharmacy. Anyway, what do you guys think? I would just like to know what you would do. My plan is to 'put the test off' to a later date, IF the problems come back regardless of my meal sizes. If it doesn't come back, I don't want to take the test at all!

Thanks!

Rachel--24 Collaborator

Dani,

I agree with what you're saying. Smaller meals are better for digestion...period. My whole life I've eaten huge meals and maybe it worked for me because I had a fast metabolism with the overactive thyroid but now I dont have a thyroid and the big meals are too much for my digestive system.

I was eating a ton of chicken and it was becoming obvious to me I was not digesting it well at all...I was gaining alot of fluid and very constipated from trying dairy. I had a CT scan and it showed alot of impacted stool. Yesterday I had a colonoscopy which looked good after I got cleaned out. I was pretty out of it but my mom told me the GI said I have a very slow digestive system and shouldnt eat too much and chew my food slowly. I think its mainly to do with damaged intestinal tract and lack of enzymes. I'm now taking a high quality digestive enzyme so hopefully that will help. I have to train myself to eat smaller meals.

I think its awesome how well you're doing now...I'm soo glad for you and also proud of how you're sticking to this and have done alot of research. Way to go!

I dont see how meds are the answer and I think you should trust your instincts. I hate taking any kind of drug. I'm messed up right now from the prep for the colonoscopy. I'm sensitive to salicylates and of course the fleet stuff had sodium benzoate in it (preservative) so I knew it was gonna suck and it did. My head hurt so much from taking that stuff. I'm totally with you on the "no meds" thing. Eating smaller meals will definately help you in a healthier way.

I have a follow up in 3 weeks so I'll see what the GI says then. He's a new guy I'm seeing and first time I saw him he's all talking about how he believes I have Celiac even though I tell him I dont have the gene and I'm not getting better just from gluten-free diet. He said he wanted to run the Celiac panel and I told him it was pointless because I've been on the diet a year already. WOAH...I just realized it was one year on Tuesday! Anyways he wants to run the panel despite the fact I've been off gluten so long and yesterday before I got sedated he's all telling me I dont have Celiac cuz all the tests came back negative. :blink: Ummm...HELLO...I've been off gluten for one year now. After my first visit I had thought he was halfway decent....now I have to retract my initial opnion of him. Maybe he will redeem himself at my follow-up....we'll see. ;)

danikali Enthusiast

Thanks for your support Rachel! Yes, I'm sticking to this diet and keeping my head on straight (at least trying) when things look like I'm not getting anywhere. But these little things that I am learning just make so much sense, like the eating only cooked foods thing, and the smaller meals. I just believe in the SCDiet so much to throw it away when I feel bad. So I figured, okay, I can't be intolerant to everything! I looked at my journal a million times and realized that the days I felt good, my portions were smaller. The days that I felt bad, I was eating the SAME foods, but my portions were ENORMOUS! Also, I've talked to a few people on the SCD mailing lists and have some permenant ones on my contact list who either live in NYC with me, or have Celiac. They helped A LOT. I now know that I can tolerate almond butter, peanut butter is too harsh because they are really in the same family as beans (! :o !-which I didn't know until I talked to someone from the mailing list) and the cashew butter wasn't smooth enough even though it said 'smooth.' So, eating a little bit of almond butter throughout the day helps me keep up with these little meals. It's also helping me not think about food so much which is HEAVEN to me. .............

Oh my gosh!..........I just realized that the welches white grape juice I bought and drank half of has corn syrup in it!!! I wonder why? Usually it doesn't! Well thank God I checked before I bought some more!

Anyway Rachel, I'm sorry you had to go through another colonoscopy. Those preps. are THE WORST!!!!!!!! I remember when I got mine and felt like crap for a whole WEEK after. I thought there was gluten in it or something, but no, it's just a BAD BAD BAD stressor for someone with digestive issues. Hopefully everything comes out okay. And I'm sorry you have a dit-z doctor........at least have enough knowledge to not believe every word he says.

And CONGRATS on the year mark. You're still on the SCD right? How is it going for you?

Green12 Enthusiast
Julie, you can read the intro diet instructions at the SCD web site:

Open Original Shared Link

That way you can get started before your book arrives. It's very important to do the intro diet for at least 2 days. I didn't think it was because I didn't have D, so I just looked at the legal food list. But the legal food list was basically what I was eating anyway. So I couldn't figure out why the diet worked, and presumed it wouldn't work for me. When I went back and carefully read the whole book (on my 4th time through right now), it started to make sense and I saw that the intro diet was important to the whole thing working, even if you don't have D. The intro diet basically 'preps' your body for the whole thing. Gets your GI system back to basics. That way, when you steadily start adding new foods, you can properly gauge which ones your system is ready for. All the while you are consuming a good nutricious diet that is feeding YOU whilst STARVING your gut bugs! It's genius in it's simplicity! :D

PM me if you want any info - I just started the diet on Friday so I'm All About SCD right now. :lol:

BTW, if you have C rather than D, here is Elaine's advice: Open Original Shared Link

I got by without the stewed prunes, thankfully!

Thanks cornbread for the information and the support. I intend to do the intro, but since I want to fully commit to it and do it right for an entire year I need to find the right time to start. So for me, choosing from the safe foods list and looking over the book and websites will be helpful prep work.

I've tried a similar diet with the same intentions, healing the gut and normalizing homeostasis- it was called the Body Ecology Diet. I did pretty well on it, but it was hard to stick to because it was really restricted on what you could eat. And a lot of what you could eat were strange things. This plan is so more appealing, real foods, and I think will be a breeze to stick with because there is so much to choose from. I'm excited!

Rachel--24 Collaborator
And CONGRATS on the year mark. You're still on the SCD right? How is it going for you?

I decided yesterday to go off the SCD because my worst problems are from dairy and salicylates. Most of the food on SCD I cant have like yogurt, almonds, most fruits, some veggies, fruit juice, eggs, etc. Theres just not enough for me to choose from. I do better on rice then most fruits. Grape juice would kill me. I've nevr eliminated my biggest offenders all at once. When I tried doing w/out salicylates I was on dairy and vice versa. Now I'm going to see how I do in the next few weeks w/out any of the things that are triggers for me. I'll see how I do in comparison to how well I did on SCD. I'll keep you guys informed.

Nancym Enthusiast

Someone posted a link to a article on a Crohn's web site about SCD. But now I can't find it. Anyone have that handy still?

Thanks!

Nancy

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    • Kiwifruit
    • trents
      Thanks for following up with us on the results. This might be helpful to you now:  
    • Kiwifruit
      Hi I just wanted to update you all and let you know that I finally have my diagnosis. 2 weeks ago I had my third gastroscopy and the biopsy confirmed the damage. Thank you for giving me the information I needed to advocate for myself when I a was a feeling so lost!
    • Scott Adams
      I agree that the gastritis may go away after you've been on a gluten-free diet for a while. If you are concerned, it might make sense for you to do a follow up biopsy after  a year or so on a gluten-free diet. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • Scott Adams
      Getting tested for celiac disease is a valid concern, especially given your history of microscopic colitis and the potential risks associated with undiagnosed celiac disease, such as cross-contamination, nutrient malabsorption, and increased cancer risk. Since you’ve been gluten-free for years, reintroducing gluten for the standard celiac blood tests or endoscopy would be challenging, as it requires consuming gluten for several weeks to months, which could worsen your symptoms and disrupt your daily life. Gene testing (HLA-DQ2 and HLA-DQ8) through a lab like EnteroLab could be a helpful first step. While these genes are present in nearly all celiac patients, having them doesn’t confirm celiac disease—it only indicates genetic susceptibility. If you don’t have these genes, celiac disease is highly unlikely, which could provide some peace of mind. However, if you do have the genes, it doesn’t confirm celiac disease but suggests further testing might be warranted if you’re willing to undergo a gluten challenge. Another option is to discuss with your doctor whether a follow-up endoscopy or other non-invasive tests (like stool tests for gluten antibodies) could provide insights without requiring a gluten challenge. While a formal celiac diagnosis can be important for ensuring strict dietary adherence, access to gluten-free options in hospitals, and monitoring for complications, it’s also worth weighing the risks and benefits of reintroducing gluten. If you’re already strictly gluten-free and managing your symptoms well, the urgency of a formal diagnosis may depend on your personal health goals and concerns. Consulting a gastroenterologist familiar with celiac disease and Microscopic Colitis can help guide your decision.
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