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Newly developed lactose intolerance


Cassied0174

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Cassied0174 Newbie

I have had celiac disease for 18 years, diagnosed at the age of 15. There are many other medical issues that Ii deal with too. I have type one diabetes, diagnosed at 14 yrs old, epilepsy (complex partial seizures) diagnosed at 16 years old, and an allergy to polyester at 17 yrs old. I have been following the gluten diet very well and taking care of blood sugar levels 👌. But just this past 6 months I have started to react to lactose. I am not sure if it is due to celiac or to my second brain surgery that was this past October (2019). I show all signs of lactose intolerance. It is not celiac reactions, which was last seen about two months ago and that causes a seizure for me.  


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cyclinglady Grand Master
(edited)
  • I am sorry that you are unwell.  
     

I would suspect that your celiac disease was activated two months ago or even earlier causing your lactose intolerance.  When was the last time you have celiac antibodies checked?  Have you had a repeat endoscopy? 

Symptoms for celiac disease can ebb and flow.  They can change too like a chameleon making it hard to determine active disease based on how you feel.  

It is possible that as you age, you can develop a lactose intolerance like any other non-celiac who is genetically predisposed to lactose intolerance.  My best guess would be that your celiac disease is active.  Get retested.  It will at least rule in or help rule out active celiac disease.  

Edited by cyclinglady

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    • trents
      Sounds like a good plan, Jack. Correct about the genes. About 40% of the general population possess the genetic potential to develop celiac disease but only about 1% of the general population actually develops celiac disease. So, genetic testing is used as a rule out measure.
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      @ABP2025, Have you thought about having a DNA test to check for known Celiac genes?    I do hope you will make sure that you are getting sufficient gluten to provoke an autoimmune response strong enough that the antibodies can be measured in the blood.  See article below. Celiac disease affects the absorption of nutrients,  including vitamins and minerals.  Your symptoms may be associated with thiamine deficiency.   Migraines and peripheral neuropathy, phimosis (yes, even this), and white spots on the brain are seen in thiamine deficiency.  Celiac disease disrupts the absorption of all the essential nutrients, but thiamine can be quickly depleted, in as little as three days.  Thiamine deficiency can occur even if blood tests show normal levels.  Thiamine deficiency can affect antibody production.      
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