Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Changes In Appetite In A Toddler

scorpionco

Recommended Posts

scorpionco Newbie
scorpionco
Posted

Just curious if anyone out there had noticed anything like this. My son is 16 months old, and at his last checkup he had fallen off the growth curve for height. He had been more irritable then normal for a while, and has always had a bloated/distended stomach. I was diagnosed 3 years ago, and after reading this forum, we started him on the gluten free diet. One of the more dramatic changes we noticed is this: he used to eat everything in sight - his breakfast was often larger than mine. After going on the diet, he started to eat significantly less - more like we expected a toddler to eat. We took him to the pediatrician, and asked her about blood tests. She ordered the tests (which haven't been done yet), and told us in the meantime, to put him back on a regular diet. Since then, his appetite has skyrocketed again...every five minutes he is in the kitchen pulling his cereal or crackers out of the lazy susan. Has anyone seen anything like this? I wonder if the dramatic changes between being on and off the diet are proof enough, even if they are not textbook.

Chris

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest nini
Guest nini
Posted

I'm gonna say yes... the appetite is a BIG clue...

also, there is NO NEED to put him back on gluten just for testing. IN MY HUMBLE OPINION the dietary response is significant enough for you to have your answer. If he has been off it for a while, any testing can be falsely negative, a Celiac Expert that spoke at our support group meeting said that she NEVER puts someone back on gluten just to do testing. My answer would be to take him off gluten and forego any more testing, you do already have your answer.

There was another mom that posted on here recently about her daughter's appetite while she was eating gluten and how it returns to normal on a gluten-free diet. Whenever she is glutened she can tell by the increase in appetite again. Maybe she will post a response for you.

prinsessa Contributor
prinsessa
Posted

Makes sense to me. My son has a huge appetite and he was under the 5% percentile at his last appointment. I hope he gains some weight when he goes on the gluten-free diet. Good luck!

e&j0304 Enthusiast
e&j0304
Posted

My daughter had the exact thing happen with her. In fact, it was one of our main concerns with her. She had an absolutely insatiable appetite (eating for an hour at a time and HUGE portions) and had like your son, fallen off the growth chart. She also had a large distended tummy. Toward the end she was anemic and started losing much of her hair. We are still struggling with that.

Once gluten free, her appetite was back within a normal range by the 3rd day. If she does get gluten now she gets very hungry again along with some other symptoms.

I don't think that the hunger is one of the more "classic" symptoms because NO doctor would listen to us that it could be gluten. They actually told us that she had behavioral problems, that she was manipulating us to think she was hungry, and to send her to a psychiatrist. Needless to say, we just tried the diet and it worked. She did have a negative bloodtest, but not biopsy and ended up having postive stool tests through enterolab.

Please don't hesitate to e-mail me with any questions. It sounds as though you are going through exactly what we were not too long ago. I would be very happy to try to help you in any way that I can.

I also agree that you don't need to put him back on gluten for a test. You have your answer...

Shannon

scorpionco Newbie
scorpionco
Posted
  • Author

Shannon-

I tried to send you an e-mail through the board, but I am not sure if it worked. I would love to hear more about your daughter and her diagnosis - it sounds very similar to what we are going through with our son. Please let me know if you got the e-mail - if not, I will try to re-send it.

Thanks!

Chris

e&j0304 Enthusiast
e&j0304
Posted

I didn't get anything. You can just e-mail me at skilstrom@hotmail.com if you'd like and I'm sure I'll get that. I hope your little guy is doing well!

Shannon

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. plumbago
      - plumbago replied to plumbago's topic in Related Issues & Disorders
      7

      Anyone else with very high HDL?

      I have taken thiamine on and off (just not at this exact moment), and I’m not sure it's made any difference. Yes, I almost always “fast” (12 hours NPO) for blood tests, as do a great many other Americans, so I tend to think that’s not it. All I can say is that the mystery continues. I could do some speculating here…well, heck, let me go ahead and specu...
    2. trents
      - trents replied to plumbago's topic in Related Issues & Disorders
      7

      Anyone else with very high HDL?

      Well, I have the opposite problem. My LDL has been moderately high for years. I eat healthy and exercise regularly but can't seem to move that meter. I used to be on a statin (and my doctors want me to go back on one) and it brought both HDL and LDL down but the ratios never changed. I think a lot of that cholesterol stuff is just baked into the genes.
    3. knitty kitty
      - knitty kitty replied to plumbago's topic in Related Issues & Disorders
      7

      Anyone else with very high HDL?

      Wow, @plumbago, Curiouser, and curioser... Have you been fasting? Apparently HDL levels increase after fasting... https://ajcn.nutrition.org/article/S0002-9165(23)31185-7/abstract I must say it, try taking some Thiamine. Thiamine helps regulate lipoproteins... Thiamine helped lower HDL in this study whether they had diabetes or...
    4. trents
      - trents replied to Tyoung's topic in Related Issues & Disorders
      1

      Celiac Disease and Mild Chronic Gastritis

      Welcome to the forum, @Tyoung! I would assume for the time being that the mild gastritis and the celiac disease are connected and that once you get a good handle on gluten free eating and experience significant healing in the lining of your duodenum, you will also see improvement in the gastritis as well. Gastritis is more often than not an accompanying...
    5. Tyoung
      - Tyoung posted a topic in Related Issues & Disorders
      1

      Celiac Disease and Mild Chronic Gastritis

      Hello! I was recently diagnosed with celiacs and mild chronic gastritis was noted on my EGD as well. My GI did not even bring up the gastritis and when I asked she brushed it off. I really want to heal my gut completely not just from celiacs but also the gastritis. Did anyone else have this at diagnosis? Were you able to treat it? Was it associated with celiacs...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,905
    • Most Online (within 30 mins)
      7,748
    Bonnie Whildin
    Newest Member
    Bonnie Whildin
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.5k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • plumbago
      Anyone else with very high HDL?

      By plumbago · Posted

      I have taken thiamine on and off (just not at this exact moment), and I’m not sure it's made any difference. Yes, I almost always “fast” (12 hours NPO) for blood tests, as do a great many other Americans, so I tend to think that’s not it. All I can say is that the mystery continues. I could do some speculating here…well, heck, let me go ahead and speculate now: The lab ranges we all see on our reports are more or less the averages of Americans who have had those blood tests. Now, it’s up to you and me whether or not to think of the average American as healthy. I can make arguments both ways, more often than not, on the negative. My point here is that maybe the current range of HDL is somewhat skewed (ie, low), and maybe just maybe my super high (plus 100s) HDL results are not something to worry about; the range just needs updating. Why do I say this? Because pre-celiac disease diagnosis, my HDL values were in the normal range, but post celiac disease diagnosis, my HDL levels are way above average. See where I’m going? My trusty guidebook on celiac disease, Recognizing Celiac Disease by Cleo Libonati, RN, BSN, says that HDL increases after being on the gluten free diet. Or can increase, I guess. Then again, it could be something else. ¯\_(ツ)_/¯ In thinking of going to a cardiologist, I sort of fear that he/she will be dismissive of a link to celiac disease, treated celiac disease, and would not therefore be considering all possibilities. @trents I'm sorry you've been diligently working on your numbers to no effect. That must be frustrating. LDL is a world that is far better understood than HDL, so for you there's maybe less "mystery." Familial hypercholesterolemia is for sure something that can be tested. Outside of that, you're right, genetics can determine a general pattern.
    • trents
      Anyone else with very high HDL?

      By trents · Posted

      Well, I have the opposite problem. My LDL has been moderately high for years. I eat healthy and exercise regularly but can't seem to move that meter. I used to be on a statin (and my doctors want me to go back on one) and it brought both HDL and LDL down but the ratios never changed. I think a lot of that cholesterol stuff is just baked into the genes.
    • knitty kitty
      Anyone else with very high HDL?

      By knitty kitty · Posted

      Wow, @plumbago, Curiouser, and curioser... Have you been fasting?  Apparently HDL levels increase after fasting... https://ajcn.nutrition.org/article/S0002-9165(23)31185-7/abstract   I must say it, try taking some Thiamine.  Thiamine helps regulate lipoproteins... Thiamine helped lower HDL in this study whether they had diabetes or not. https://pmc.ncbi.nlm.nih.gov/articles/PMC3921172/#:~:text=Serum thiamine and its derivatives,supplementation (p %3D 0.009).
    • trents
      Celiac Disease and Mild Chronic Gastritis

      By trents · Posted

      Welcome to the forum, @Tyoung! I would assume for the time being that the mild gastritis and the celiac disease are connected and that once you get a good handle on gluten free eating and experience significant healing in the lining of your duodenum, you will also see improvement in the gastritis as well. Gastritis is more often than not an accompanying finding that is commented on in the post scope/biopsy notes when people are positive for celiac disease. 
    • Tyoung
      Celiac Disease and Mild Chronic Gastritis

      By Tyoung · Posted

      Hello! I was recently diagnosed with celiacs and mild chronic gastritis was noted on my EGD as well. My GI did not even bring up the gastritis and when I asked she brushed it off. I really want to heal my gut completely not just from celiacs but also the gastritis. Did anyone else have this at diagnosis? Were you able to treat it? Was it associated with celiacs or something entirely different? Thank you!!
×
×
  • Create New...