Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help Me Find The Gluten


Guest BERNESES

Recommended Posts

Guest BERNESES

OK- I felt fine yesterday.

I ate turkey chili with:

Green Mtn. Gringo salsa

Goya red kidney beans

Cabot cheddar cheese

McCormick taco seasoning

a Glutino blueberry bar.

Cape Cod reduced fat potato chips

organic corn tortillas (forget the brand but could look it up if I had to)

Sunmaid dried prunes and apricots

The new stuff on this list really is the Cape Cod chips, the corn tortillas (new brand) and the Sunmaid dried fruit. Everything else I've had before and been fine with. Has anyone ever had a problem with the Cape cod chips or Sun Maid dried fruits? I know there's always a chance it was CC since I am sensitive to anything processed in a wheat facility.

This "glutening" feels kind of strange. It came on a little differently than the others. I felt a little nauseous this morning. Ate some prunes. Felt OK. And then I just fell asleep hard at like 11:30 for two hours. I rarely ever have that happen. Now i'm up, my head hurts and my stomach is gurgling away. something's not adding up. All i know is I feel yucky! :(:unsure:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



francelajoie Explorer

Aren't you trying to get pregnant? I think I remember you talking about that a while ago...just a suggestion :unsure:

jerseyangel Proficient

B--Sorry you feel bad today :( . I don't have any experience with the chips, but I do eat Sun Maid Dates all the time and never have a problem. Do you think it might be CC with the chips? I had that happen to me with Utz. Another thought--are you OK with soy? I know that Glutino uses soy flour in some things. That's all I can think of--feel better! :)

Guest BERNESES

francelajoie- I am but it's definitely not that :( I haave my friend right now and this feels like a virus- my whole body hurts.

Thank you both for your well wishes. patti- I think I am OK with soy. I try not to eat a lot of it but haven't noticed problems in small amounts.

I'm actually wondering if maybe I have a virus coming on too. Ugh!

Just found this on Gluten-free in San Diego:

Cape Cod Potato Chips

11/05

The following is from an email that was sent 11/07/05 by Farrell Souza in Customer Service:

Our Cape Cod No Salt, Salted, Robust Russet, and Reduced Fat Potato Chips are gluten free. The only ingredients are the potatoes, oil and salt (except on the no salt). Our Cape Cod Sea Salt & Vinegar,

Nantucket Spice, Reduced Fat Fresh Garden Herb and Jalapeno & Cheddar Potato Chips are also gluten free. However, we do produce seasoned items, such as Beachside (formerly called Firecracker) Barbecue, that does contain gluten (the gluten is in the seasoning) at the same time (on different machines, in the same room).

Our unseasoned items are produced on the same packaging lines as the seasoned items. However, we do wash and sanitize our equipment between production runs of gluten and gluten free containing products.

We do not use seasoning in the room when we run the russets.

Guest Viola

I've had a problem with Sunmaid Dried raisens, but not sure it was gluten, or an intollerance. I don't eat them anymore anyway, and dry our own fruit now. We have a couple of cherry trees and they make wonderful dehydrated cherry raisens.

jerseyangel Proficient

Maybe it is a virus--you said it feels 'different'. Right now, here in NJ, there are stomach viruses going around and affecting so many people, they actually closed a high school on Friday so they could disinfect!

Guest BERNESES

Wow! They closed a high school? That's crazy! My sister's whole family just had it. But it's weird- when i woke up this a.m. I felt fine, ate some Sunsweet Prunes (I thought it was Sun Maid) and about an hour later thought I was goiong to die. Feeling a little better now. just frustrated because i was having a good run and now I feel like crawling back into my bubble. :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



StrongerToday Enthusiast

Well - prunes will do that to you anyway :rolleyes: Could it be that you're sensitive to sulfites in the dried fruit? Sometimes I think that gets me. And I'm always more sensitive when my "friend" is here too!

Feel better soon!!

mookie03 Contributor

I recently realized i get very sick from certain types of dried fruit-- i havent totally figured it out yet but i can say for sure that dried apricots, mangos and a few others make me woefully ill...feels like a gluten rxn but a little different...debilitating nonetheless. Strangest thing is i eat dried blueberries, cranberries and raisins daily w/ no problem whatsoever. But when i mentioned it to my mom she said she has the same problem, so who knows-- i dont think it is sulfites b/c i drink wine like its my job and never have a rxn!

Anyway, maybe try not eating the dried fruit for a few days and see if that helps. Feel better!!!

Felidae Enthusiast
I've had a problem with Sunmaid Dried raisens, but not sure it was gluten, or an intollerance. I don't eat them anymore anyway, and dry our own fruit now. We have a couple of cherry trees and they make wonderful dehydrated cherry raisens.

That is interesting, I have been wondering if Sunmaid raisins were also giving me grief.

Guest BERNESES

Mookie- That's ghod to know. This was my firsy foray into dried fruits besides dried cranberries. i figured i'd branch out and try prunes, apricots and figs. i think the apricots were OK but I think it was the prunes. I don't think I have a problem with sulfites as I drink wine occasionally with no ill effects. Oh well- the prunes tasted DISGUSTING anyway. I was choking them down. Just chucked them in the trash this morning :P

Thanks everyone for your help!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Leslie Clark's topic in Gluten-Free Foods, Products, Shopping & Medications
      14

      Hidden Gluten in distilled vinegar

    2. - Manaan2 replied to Leslie Clark's topic in Gluten-Free Foods, Products, Shopping & Medications
      14

      Hidden Gluten in distilled vinegar

    3. - BIg Nodge replied to BIg Nodge's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Opinions on my test results/symptoms

    4. - Dawn Meyers replied to Dawn Meyers's topic in Related Issues & Disorders
      16

      Vaccines

    5. - Scott Adams replied to Dawn Meyers's topic in Related Issues & Disorders
      16

      Vaccines


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,856
    • Most Online (within 30 mins)
      7,748

    Dawn McDonald
    Newest Member
    Dawn McDonald
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @Manaan2, I was on Miralax for several months after I crushed three vertebrae and fractured my hip.  The compression fractures of my vertebrae affected the Vagus nerve that stimulates digestion and intestinal movement, peristalsis. Miralax just didn't relieve the constipation I was experiencing at all.  Nothing budged.  I tried Milk of Magnesia (magnesium oxide) which pulls water into the digestive tract, and found that rather harsh and dehydrating.   Bad idea. I was already taking thiamine in various forms, Benfotiamine, TTFD (tetrahydrofurfuryl  disulfude), Lipothiamine and Allithiamine.  Click on my name, then Activities in the pull down menu to get to my blog to learn more about my journey with thiamine.   Since we need more thiamine when we are physically ill and emotionally stressed, I decided to focus on TTFD,  Benfotiamine, and magnesium l-threonate.  Within a week of increasing my doses a bit, my constipation was gone.  It took several more months to heal the compressed nerve damage.  For pain, I take a combination of TTFD, Pyridoxine B 6, and  Cobalamine B12 which together have an analgesic effect.  I can't function with pharmaceutical pain killers, besides they cause constipation.   Mechanisms of action of vitamin B1 (thiamine), B6 (pyridoxine), and B12 (cobalamin) in pain: a narrative review https://pubmed.ncbi.nlm.nih.gov/35156556/ Yes, I did just stop the Miralax, but I wasn't on it as long as your daughter.  Yes, there's a difference between adults and children.  Yes, my circumstances were different than your daughter's, but thiamine deficiency does affect the nerves and the brain.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function (which activates the Vagus nerve and controls digestion).   I recommend you visit Dr. Chandler Marrs' website, hormonesmatter.com.  Dr. Marrs worked with Dr. Derrick Longsdale, a pioneer in thiamine research, specifically with children and autism spectrum disorders.  She has been very helpful to me when I reached out to her.  She would be better able to guide you about your daughter's care. https://hormonesmatter.com/sibo-ibs-constipation-thiamine-deficiency/#google_vignette Do stay in touch, please.  You can start another thread or personal message me any time.  My heart goes out to you, your husband, and especially your daughter.   Namaste
    • Manaan2
      @knitty kitty  The information you've provided is invaluable!  I have a lot more homework to do before we make the official switch but you have significantly increased my hope that we can get her off Miralax (she started at 3 years old and is almost 8!).  This weekend my husband and I plan to solidify all the details for a start point, then adjust as we go along.  I realize that everyone's body is different, then there's also the fact that she's a child but just out of curiosity if you don't mind sharing and if you'd rather not, no problem at all-how long did you take Miralax before switching and when you switched, did you just completely stop the Miralax or was there a period where you did Miralax and the supplements?  I plan to research that piece this weekend but just curious what you did.  
    • BIg Nodge
      Scott, thanks so much for the thoughtful replies. My doctor did actually just re-order thyroid labs to see what is going on with my TPOs. I agree that will be interesting information.  I think I know the answer to this, but as far as the biopsy . . .. that would be quite conclusive as far as celiac goes, but a negative result would not rule out NCGS, correct? Does NCGS also cause damage to the lower intestine/leaky gut?  I appreciate the thought that I should be open-minded to other causes. I did not have dysautonomia on my radar, so I will look into that. From a quick scan at the potential symptoms it seems like almost anyone could convince themselves they have it, very broad! I can see why that is a tricky one to diagnose. I did also show low vitamin D, I'm in New England so that is somewhat common. I have a memory of low iron on some lab result as well but I can't find it, so I'll look into that. My cholesterol is high too, so working on that.  While the initial adjustment was tough, I have actually adapted fairly well to going gluten-free at home. The tough part for me is I love eating out and traveling, so that has been a challenge. I suppose if the answer ends up being NCGS then I could maintain a mostly gluten-free diet but also experiment with the occasional splurges. Snowboarding just doesn't feel right without a beer in the lodge . . ... cider is just not the same!  Thanks again.  
    • Dawn Meyers
      I did some research and found out that vaccines put preservatives, sugar alcohols and metals in them. Which I have a intolerance too.  I was supposed to do testing to find out metal's I was allergic to because I can't  wear jewelry of any kind. Mayo felt I had other allergies also.
    • Scott Adams
      For individuals who have experienced negative reactions to the flu vaccine, there are alternative formulations that may reduce the risk of allergic responses. Traditional flu vaccines are typically produced using egg-based methods, which can pose issues for those with egg allergies. However, there are now several egg-free options available, such as cell-based and recombinant flu vaccines. Recombinant Vaccines (e.g., Flublok Quadrivalent): These are produced without the use of eggs and are grown in insect cells, making them a suitable option for individuals with egg allergies. Cell-Based Vaccines (e.g., Flucelvax Quadrivalent): These vaccines are also egg-free and are produced using mammalian cell cultures, which can be a safer alternative for those with egg allergies. Other Considerations: If you have had a reaction to a specific component of the flu vaccine (e.g., gelatin, preservatives, or antibiotics), discussing your medical history with a healthcare provider is crucial. They can help identify vaccines that exclude these ingredients. It's important to consult with an allergist or healthcare provider to determine the safest option based on your specific allergies and medical history. They can also provide guidance on pre-vaccination testing or desensitization protocols if necessary. Also, at @trents mentioned, could you be getting hidden gluten in your diet? Do you eat in restaurants? If so, this could be why you still have high gluten antibodies.
×
×
  • Create New...