Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Success!

Lollie

By Lollie
in Coping with Celiac Disease

Recommended Posts

Lollie Enthusiast
Lollie
Posted

Hi all!!!!!! :D I just wanted to share some good news about this past weekend! I had posted that I had concerns about going out of town this past weekend- eating out, feeling bad, ect..... ;)

Well I took everyone's advice. I packed a bunch of Lara bars, my favorite crackers, stocked up on Whole Foods cookies, and had the hotel put a refrigerator in the room. When we were settled in the room, we found the local whole foods and stocked up on yogurt, fruit, and other things that would be helpful.

This is the first time in about 10 years that I actually felt really good on a vacation. B) I did not get sick, not once! I actually ate at a seafood restaraunt, I ate at Chili's and I ordered room service berries to go with my yogurt. You see, I had not really eaten on vacation in all that time. I would always feel sick, I wouldn't have any energy, and by the end I couldn't wait to get home to where it didn't really matter that I was sick-it's always easier at home. But this time, and most importantly......I was able to really relax, and enjoy this mini-vacation! :D:D:D

I wanted to give a positive side to this crumby disease.....I would give up all the bread, restraunts, whatever, to just feel good and enjoy my life again, and now I feel like I finally have that, a LIFE!!!!!!

Thanks to all who gave me advice! And here's some hope to those just starting out- it does get better, just try to focus on the positive when ever you can! :)

Lollie

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest Viola
Guest Viola
Posted

That's great Lollie! Good for you! :D Really glad you had a healthy good time.

jerseyangel Proficient
jerseyangel
Posted

That is wonderful to hear, Lollie! I always have had the same issues with travelling as you--I just find it easier to stay home :( . Stories like yours are just what I need to hear--I am not staying at home all summer this year, I'm determined to go away--at least for a long weekend! Thanks ;)

Lollie Enthusiast
Lollie
Posted
  • Author
That is wonderful to hear, Lollie! I always have had the same issues with travelling as you--I just find it easier to stay home :( . Stories like yours are just what I need to hear--I am not staying at home all summer this year, I'm determined to go away--at least for a long weekend! Thanks ;)

That's wonderful! I hope you have an amazing vacation!!!!! :D If, when the time comes, you need any advice or tips- feel free to PM me! I'll be happy to help!

Lollie

jerseyangel Proficient
jerseyangel
Posted

I will do that! Thanks :D

jenvan Collaborator
jenvan
Posted

Wonderful news Lollie! I'll be heading out of town for a trip in a few days also. It does pay to plan ahead!

Patti--You deserve a good trip!! :D

tiredofdoctors Enthusiast
tiredofdoctors
Posted

Congratulations Lollie! :D That's fantastic! :D:D:D Lynne

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


dlp252 Apprentice
dlp252
Posted

Wow, that's wonderful Lollie!!!

Guest Pixi
Guest Pixi
Posted

Aww, Laura, that's so fantastic! :)

I'm 22 and I've been wondering how I'll manage the rest of my life -- vacations, a wedding (let's hope, lol), parties, events, etc.. -- with this dis-ease. Thanks for sharing that story.. I like knowing there's happy, travelling celiacs out there! Something to aspire to ;)

jackie4 Apprentice
jackie4
Posted
Hi all!!!!!! :D I just wanted to share some good news about this past weekend! I had posted that I had concerns about going out of town this past weekend- eating out, feeling bad, ect..... ;)

Well I took everyone's advice. I packed a bunch of Lara bars, my favorite crackers, stocked up on Whole Foods cookies, and had the hotel put a refrigerator in the room. When we were settled in the room, we found the local whole foods and stocked up on yogurt, fruit, and other things that would be helpful.

This is the first time in about 10 years that I actually felt really good on a vacation. B) I did not get sick, not once! I actually ate at a seafood restaraunt, I ate at Chili's and I ordered room service berries to go with my yogurt. You see, I had not really eaten on vacation in all that time. I would always feel sick, I wouldn't have any energy, and by the end I couldn't wait to get home to where it didn't really matter that I was sick-it's always easier at home. But this time, and most importantly......I was able to really relax, and enjoy this mini-vacation! :D:D:D

I wanted to give a positive side to this crumby disease.....I would give up all the bread, restraunts, whatever, to just feel good and enjoy my life again, and now I feel like I finally have that, a LIFE!!!!!!

Thanks to all who gave me advice! And here's some hope to those just starting out- it does get better, just try to focus on the positive when ever you can! :)

Lollie

That is so reassuring. We booked a vacation to the Dominican Republic before my daughter was diagnosed. She is 14 and I was nervous about what she could eat but putting a refrigerator in the room is a great idea. It is great to hear such positive feedback. It makes me feel so much better to know that it does get better!! Jackie4

Guest BERNESES
Guest BERNESES
Posted

Lollie- That is so great! Now that's progress!

Patti- You take a vaction- you deserve one- it's your turn.

Guest nini
Guest nini
Posted

that is success! I remember my first vacation after dx, Last year for spring break we drove to Florida for a week, Usually in the past road trips always made me ill (go figure lots of gluten!) and I didn't ever want to go... would have to stop at every bathroom along the way, you know the drill... anyway, my Florida vacation was awesome too... I packed a cooler and a bag of snacks for in the car, when we got there we stocked up at Whole Foods and I ate at Outback, Bonefish Grill, Whole Foods salad bar, and my favorite Mexican Restaurant El Adobe with no problems at all! My daughter and I felt so good and so pampered the entire time we were there!

Becky6 Enthusiast
Becky6
Posted

That is so great!! I am so glad you had a wonderful time!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,689
    • Most Online (within 30 mins)
      7,748
    Scott Waterman
    Newest Member
    Scott Waterman
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.3k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Not sure if this is Celiac or just a gluten-free intolerance

      By knitty kitty · Posted

      Yes, some people with Celiac do react to quinoa.  I know i do.  Apparently, two different "breeds" of quinoa can stimulate the immune system. Read here... Variable activation of immune response by quinoa (Chenopodium quinoa Willd.) prolamins in celiac disease https://pubmed.ncbi.nlm.nih.gov/22760575/#:~:text=Cultivars Ayacuchana and Pasankalla stimulated,for patients with celiac disease. And some of us react to corn (maize) as well. Maize prolamins could induce a gluten-like cellular immune response in some celiac disease patients https://pubmed.ncbi.nlm.nih.gov/24152750/   P.S. @Brook G have you thought about getting a genetic test done for known Celiac genes?  
    • Brook G
      Not sure if this is Celiac or just a gluten-free intolerance

      By Brook G · Posted

      People who are Celiac don't have a gluten response to Quinoa, but some people who are gluten intolerant do.  I react to quinoa just like I do to gluten.  Freddies/Kroger came out with their own gluten-free Bread and I didn't think to read the ingredients.  I couldn't figure out where I would have gotten gluten in my diet until I read the ingredients in their bread... QUINOA
    • trents
      Testing positive for antibodies, are there visible changes to the colon that could be seen without a biopsy?

      By trents · Posted

      Thanks for the additional information. I was thinking of asking you if your daughter was taking methylated vitamins since she has the MTHFR gene but you beat me to it. To answer the question you posed in your original post, as I explained, celiac disease does not damage the colon but the lining of the small bowel. If the damage is pronounced enough and the doc doing it is experienced, yes, the damage done to the lining of the small bowel can be spotted with the naked eye.
    • cameo674
      Testing positive for antibodies, are there visible changes to the colon that could be seen without a biopsy?

      By cameo674 · Posted

      I could not locate the correct Gary Brecka video where he explains the methylation process and specifically states things about how people with the MTRR homozygous gene mutation are known to suffer from heartburn due to a weakened valve/sphincter where the esophagus and the stomach connect.  My brother had the youtube video sent to him from 10x health which is probably why I cannot locate it.     I will have read up on mast cell activation.  I do not know anything about it.  Tums is my preferred gerd treatment.  I always figured a little extra calcium could not hurt me.  
    • cameo674
      Testing positive for antibodies, are there visible changes to the colon that could be seen without a biopsy?

      By cameo674 · Posted

      Trents: Due to a genetic mutation, my daughter has inherited from both parents she cannot process the Folic Acid provided in the fortified American grains.   An MD told her to avoid eating fortified grains.   My daughter makes the assumption that unless she makes the food item, that the baker used a fortified grain so she has been limiting her gluten intake since 2020.   Her Psychiatrist was who tested her for MTHFR gene issue because she suffers from depression and severe anxiety. The Psychatrist also instructed my daughter to supplement with a methylated version of folate once she knew my daughter was homozygous, because the methylated version bypasses the mutated gene step so her body can absorb it.  Low folate absorption impacts serotonin and dopamine production.  My husband and I also both have two other homozygous gene mutations that interfere with vitamin absorption: MTRR and VDR taq.  The first interferes with B-12 absorption which requires us to take a methylated B-12 vitamin and the second with Vitamin D absorption so we have to take higher doses to stay within normal levels.   My brother, who has the exact same gene mutations, went through 10x health genetic testing for vitamin supplements (paid by his employer) and received a huge report saying the same things about which types of supplements had to be taken.  Gary Brecka does videos on how these gene mutations impact the vitamin absorption pathways.       If my brother had not gotten his testing through work, he would never would have started his supplement journey.  His testing is what triggered my getting functional health testing that tested similar biomarkers to his.  Again the celiac testing was an add-on test that I did off the cuff.  
×
×
  • Create New...