Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

MET-RX RTD51


Matt McFaul

Recommended Posts

Matt McFaul Rookie

  Hello, I am new to Gluten free thing, but have definitely had a problem with it all of my life.  I am having trouble getting in enough calories.  I like all the gluten free food that I have tried, however most are soups and only around 130 calories.  With that in mind, I ordered several crates of a supplement that I used to use when I was racing superbikes, and climbing.  It's called Met-RX RTD51, and I have posted the label below.  Can anyone see anything wrong with being Celiac and using this supplement?  I definitely have gluten coming in from something that I am eating/drinking, but I can't figure out what.

Thanks for your replies!

metrxungredience.webp


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ennis-TX Grand Master

Says right on the label contains wheat........

Matt McFaul Rookie
Just now, Ennis_TX said:

Says right on the label contains wheat........

omg 😛 Great, I'm an idiot.  That would explain a lot, and over 25 years too 😕  

Ennis-TX Grand Master
(edited)

I have used meal replacement shakes in the past for years, I recently just started adding pure beef protein isolate and egg white powders in shakes or mixing with gelatin and hot water to set into a pudding with added plain cocoa powder or cinnamon and sweeten with stevia/monk fruit extract, and this is just for a protein supplement after working out.
It is best to get you calories from real foods, I tend to eat mostly eggs, lean meats like turkey/chicken, bacon, with a some beef and salmon at times. I also add in nuts/seeds often when bulking. I have other restrictions in addition to just gluten free. I average 800-1500cal a meal and eat twice a day then fast, and I tend to work out and walk/run more then most humans.

Edited by Ennis_TX
Matt McFaul Rookie

I climbed the Pinnacles National Monument daily for many years, jogged the 12 miles around it, cycled 32 miles a day, all while destroying my joints with gluten.  It took a medication damn near killing me in order for me to wake up and see what is going on.  Now I can look back over my life and everything makes sense.  I can't believe I didn't see"Wheat" on the label, I looked last month before I spent $600 on the stuff too, but the med interaction really messed up my eyes, and head.

cyclinglady Grand Master

I agree with Ennis.  Real food.  I fuel my bike rides with things like juicy homemade burger, steak, fish, poultry, bacon, and lots of fat!  But take it easy until you feel better.  Hard to do, but worth it.  

Matt McFaul Rookie
1 minute ago, cyclinglady said:

I agree with Ennis.  Real food.  I fuel my bike rides with things like juicy homemade burger, steak, fish, poultry, bacon, and lots of fat!  But take it easy until you feel better.  Hard to do, but worth it.  

That's exactly what works for me.  My ideal diet, which puts me in the best health, is literally the Blood Type O diet, in every way.  The problem is that I am now disabled and since disability denied me until I was outside of having worked 5 or the last 10 years, they won't give me any more then they give someone who has never worked a day in their life.  It's ironic, considering I my injuries are mostly from work.  Now I have just discovered the wheat problem, which shines a new light on all of my problems.  I don't know how doctors haven't put 2 and 2 together, but then they also had me on 7 medications that shouldn't have any two combined, and 3 had a severe interaction warning.  Incompetent all the way around.  I even told them that I am having a problem with wheat, sugar, and lactose...and they didn't even refer me to a test.  I have every symptom, already documented, and for 22 years 😕

I have no idea how I am going to be able to afford this.  I have been able to eliminate almost all inflammation by using 2 of these supplements and a bunch of gluten free soups, over the past month.  However, when you have suffered that much inflammation for so long, and remove it, then you have loose joints, and a loose spine.  Everything is popping when I go for walks lol.  I won't be able to afford to maintain this for more then a month longer though.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFinDC Veteran
(edited)

Hi Matt,

You can avoid buying $$$ gluten-free foods by sticking to meats, fish, nuts, veggies and fruit.  Those are whole foods and are naturally gluten-free.  Until you learn the gluten-free diet it's best to avoid processed foods.  Learning the gluten-free diet can take 6 months or more IMHO.

And missing wheat in small print on a long ingredients list in small print is one of the reasons to avoid processed foods.  You save time at the grocery and don't have to worry about your foods making you sick.  It's a good idea to simplify your diet for a few months until you heal up.  The fewer ingredients on a package label the better for us.  Three ingredients or less is ideal.  Gluten is in wheat, rye and barley, but some of us react to oats also.

You might feel better if you avoid all dairy for a few months also.  Celiac can impair the ability to digest dairy sugar (lactose).  Many weight building supplements contain dairy in one form or another.

Edited by GFinDC
Matt McFaul Rookie

good grief...you just hit today's problem spot on.  I had a reaction to oatmeal.  Slightly breaking out, burned the roof of my mouth, basically wheat makes my mouth raw.  I had googled "instant oatmeal gluten free", and came upon a website that said that all instant oatmeal was gluten free.  So I chowed, even though it has 12 grams of sugar per pack, and instantly felt my head go to poo, along with my mouth.  It gave me stomach issues too, but I'm used to high levels of pain, so I can deal with that.  Then you mention sugar, I ended up in the hospital ;last month after 3 cups of coffee and sugar.  So I quit everything.  I always had lactose problems.  I need full on allergy workup really.  I've been unknowingly doing this to myself for at least 25 years.

 

cyclinglady Grand Master

But really, real food does not have to cost more.  Purchasing processed gluten-free soups can be expensive.  Any processed food can be expensive.  You do not need lots of protein if you are not trying extreme sports.  
 

You will need to learn to cook.  Start with rice and beans.  Eat eggs, fresh veggies or frozen ones.  Look for fatty meat on sale.  I just bought a name- brand chicken for $3.50 and chopped it up myself.  Grilled the chicken and saved the cooked bones and uncooked back (tossed a bag into the freezer) to be made later into bone broth (crockpot or pot).  At that price, I bought several and loaded my freezer.  I can cook a whole chicken.  Make  soup (rice, celery, dill and carrots) with the dark and broth, save the white for chicken a la king or chicken enchiladas.  So many choices and two or three meals for my family.  You just need a crockpot.  
 

If nightshades are not a problem eat potatoes.  Or eat sweet potatoes or squash.   Try watching a few YouTube videos with homesteaders, those with huge families, etc. and learn to cook cheaply while still maintaining good nutrition.  
 

Think Little House on the Praire.  
 

Another helpful tip is to do small 12 hour fasts.  This gives your GI tract a break.  I think Ennis does this too.  
 

keep a food journal.  It can help you indentify mild allergies and intolerances to foods.  Allergy testing  is 50-50 at best, so save your cash.  

Matt McFaul Rookie

Thanks, I'm learning a lot, just today alone.  My main problem with cooking, is that I live in a place where I don't really have access to the sink.  Slobs in the house always have the sink full, and because of extreme sports, my back and hips can't handle standing at a counter, or that slight lean forward that you have to make in order to clean.  Everything for me is a catch 22.  I will probably just buy a Forman grill and go back to meat, but I'm an animal communicator or sorts, and I really don't like the idea of eating animals, at all.  I know that when I was eating meat though, I was at my healthiest and had the least inflammation.

https://www.directactioneverywhere.com/

GFinDC Veteran

Hi Matt,

Oats are a problem for me too.  Sugar is good to avoid at first until your gut flora stabilizes in a healthy mix.  When our guts are irritated, damaged, and inflamed they tend to not have the best bacteria thriving.  So sugar may not get digested and instead feed swarms of bacteria that explode in numbers and cause IBS like symptoms.  Think gas, pain and stink along with diarrhea.  By the way, IMHO it is not uncommon to make mistakes at the beginning of the gluten-free diet.  Or at least it wasn't uncommon for me! :(  It's all a learning process and such loads of fun! :)

You might want to try some fiber like psyllium, husks once in awhile.  Other things to stock up on are Pepto Bismol for pain and soothing the gut, plus milk of magnesia for constipation.  Peppermint tea is good for getting gas out of the stomach.  Which can be very good at times when it causes pain.

Often enuff we are low on vitamin D, some B vitamins and some minerals when diagnosed.  So check with your doc on vitamin and mineral levels.  I can tell you low vitamin D can make you feel like unpleasant stuff for sure.  Selenium,, copper, boron and iodine should not be overlooked also.

I hope you can return some of the powder for credit or sell it to some unsuspecting, low-life gluten eater. :)  Kidding, they aren't all bad! :)

Gratuitous extra smiley just to be extra irritating here. :).

Welcome to the forum!

  • 3 weeks later...
Matt McFaul Rookie
On 7/16/2020 at 10:01 PM, GFinDC said:

Thanks, sorry it took so long for me to see your response, I am not getting the notifications for some reason 😕  I too am having problems with sugar, tea, lactose, alcohol, and caffeine as well.  In June i drank two cups of starbucks black coffee with sugar, and ended up int he hospital.  My glucose levels are perfect though.  I do suffer all of the typical deficiencies that everyone else here suffers from.  I just had my first IGA test a few days ago, and it came back negative, but they didn't have me eating wheat prior to the test.  I had already gone at least 2 months without intentionally eating wheat, though I do believe that there was cross  contamination in a few of the things that I ate.  maybe not enough to set the test off?  I am going to make a whole new post about that.  I just drank some bolthouse green food, not knowing that they had put wheat in it...why the heck do they put wheat in things that are supposed to be good for you?

 

GFinDC Veteran
On 8/6/2020 at 3:39 PM, Matt McFaul said:

 

Hi Matt,

They do put wheat and barley in many, many foods.  Oats are not as common in foods but getting a little more so these days.  Oat milk is getting popular for instance.

Reading labels for a celiac is very important, and can be time consuming and difficult with older eyes. Don't ask how I know! :)  That's why it can be helpful to avoid buying processed foods.  Things like apples, oranges, nanners, a head of lettuce or a slab of beef seldom have gluten added.  Taking a conservative / simple approach to what you eat for 6 months can help get your healing processing rolling.  Being sick and not knowing what food caused it is a bummer.  With a whole foods diet the problems are much easier to identify.

Meats are good IMHO as our bodies do need protein to heal.  Veggies and fruits and nuts are helpful and eggs, avocados and peas have a good amount of protein too.  A simple diet is a key tool to use for healing.

If you click the red circle at the top right side of the thread you can check your notification settings and change them.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to Nicbent35's topic in Related Issues & Disorders
      12

      3 year old gluten intolerance?

    2. - Beverage commented on Scott Adams's article in Gluten-Free Foods & Beverages
      1

      Safe Gluten-Free Spices and Brands: A Celiac Disease Guide

    3. - Beverage replied to Dawn Meyers's topic in Related Issues & Disorders
      18

      Vaccines

    4. - trents replied to CeliacMom502's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      23

      Facial pain

    5. - Mnofsinger replied to CeliacMom502's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      23

      Facial pain


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,959
    • Most Online (within 30 mins)
      7,748

    Kate L
    Newest Member
    Kate L
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.5k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      My mom said when he was born "you got what you gave".  Until 5 years of he was gluten free, was well liked by his friends, although did get them into mischief at times, a leader of his group of friends, physically active and paid attention, as much as any preschooler.      At 5 years old we moved to my hometown and had to rely on our friends, my pediatrition (still the best doctor I ever had), my wife was a nurse so her aquaintences and doctor friends.  They all still believed back in 1980's that Celiac was a growing phase, and he wanted to be like everyone else.  So everyone's opinion was that if he tolerates gluten with no symptoms he had outgrown it.  He passed the summer at the beach (lots of vitamin D) was a prodegy swimmer and the whole team liked him and he fit in well.     Fall came, he started kindergarden school, less sun ( low vitamin D, Seasonal Affective Disorder is real), new people and a morning schedule that did not end up in a fun, active day at the beach.  Getting him going got more difficult.  By the first teacher-parent meeting in December, they brought up the subject.  He was disruptive in class.  By then we had forgotten what his doctor said 5 years earlier.  So he was diagnosed as ADHD.      Competitive swimming was his saving grace.  All though High School he continued to swim with his competetive team most days after or before school and with the beach club team in addition in the summer.  Some records he set lasted years.  After high school he became a professional ocean guard. Now getting close to retirement.  But always had difficulty concentrating on schoolwork.      He, and his wife, incidentally, is now having the health problems that I just have just gotten rid of.  I had forgotten what the doctor said to us 60 years earlier, bout Celiac Disease being hereditory.  He is starting to listen, but still in denial.  Loves his pizza.  At 63 I had arthritis, fibromyalgia, sleep apnea, enlarged prostate, alcoholism and I got dumber as the years passed.  They all are gone with gluten free and vitamin replenishment. My wife had allergies, endometriosis, fertility problems and miscarriages.  She passed 18 years ago. Sorry for the long story.  Reminds me of a Joni Mitchell song.  "L've looked at life from both sides now. From win and lose, but still somehow, it's life's illusions I recall. I really don't know life, at all"  
    • Beverage
      I feel for you. I've had an interesting history with some vaccine, especially t-DAP. One time after just getting it, I remember walking from the pharmacy to my car, reaching for the door handle of my car as my last memory, then waking up slumped into my car with the door wide open hours later. Nobody even knew I was there. I did get a bad cut from rotting rusty wood and probably animal droppings, and it had been 10 years, so I got a booster recently, but took someone with me. My doc back then did say he was concerned about my reactions to vaccines, but we never talked about what alternatives there might be. What is your risk when you do get sick? For me, I almost always end up needing prednisone and antibiotics and have to crawl back to life for months after those are done, prednisone really messes me up, raises my blood pressure to stroke levels, and the antibiotics mess up my intestines really bad. I have to take mega doses of C and D and B's, especially flush niacin, and probiotics.  So preventing flu is critical for me since I always get a long term negative effect from the treatment. I did a lot of research, traditional and alternative medicine, and they all say high vitamin D levels are crucial to so many kinds of illnesses, including flu, cancer, etc.  People with high D during covid had much better outcomes.  I always tested low in D even with high oral supplementation of D3 and K2.  So last year I saved up and bought a real vitamin D lamp, not one of those cheapie ones that you can get on Amazon that don't work, seriously, those are junk. Wow what a difference with a real D Lamp. We haven't been sick all year, which is rare for me, even after being around several sick people or people that came down sick just after visiting. I use the lamp about every other day or if I've been in a group of people or around anyone sick.  I have not yet had my D levels retested since starting with it (will do that at annual check up later this year), but I have not gotten a cold or flu (knock on wood), feel better than usual for a cold wet winter in the NorthWest, and my hair is growing in like crazy, all signs of improved vitamin D levels. It doesn't take long to use, just a few seconds and first and gradually build up. I now do it for a count of 200, which is about 3 minutes. I don't remember all the details on how the body creates its own vitamin D, but I do remember that the body makes a reaction on the skin and you don't want to wash that off for a few hours.  So I do the D Lamp right after my shower, not before.  There are 2 reputable ones that I found in my research: Sperti Vitamin D Lamp uses florescent tubes, you stand and turn in front of it, be sure to get the VITAMIN D LAMP, not the tanning lamp:  https://www.sperti.com/product/sperti-vitamin-d-light-box/ Chroma Vitamin D Lamp is LED's, you can stand and turn in front of it or hold it in your hand and wave it over your body, always keeping it moving so you don't burn:  https://getchroma.co/products/d-light-vitamin-d-light-device-uvb-red-nir AND YOU MUST WEAR SPECIFIC EYE PROTECTION WHEN USING, KEEP ALL PETS AND OTHERS AWAY, THE GLASSES ARE PROVIDED WITH THE D LAMP. I got the Chroma D Lamp when they had a huge sale last year, it's a small start-up company in Seattle.  Sperti is a larger longer term well known, and you can sign up for a 10% discount on their web site.  If Chroma had not had the sale when I was going to buy one, the Sperti would have been fine. They both often have back orders on them, but they do deliver as promised. I have read various articles on the effectiveness of the flu vaccine for example, not always highly effective every year.  Since your risk with vaccines is high, or if your risk of bad illness if you get sick is high, maybe consider how to mitigate both in another way, perhaps a D Lamp. 
    • trents
      That's what came immediately to my mind as well, Bell's palsy. And don't assume every medical problem is connected to her celiac disease as there is still something known as coincidence. Get this checked out by medical professionals and push for some serious testing. Don't let them brush you off. Be appropriately assertive.
    • Mnofsinger
      Hi @CeliacMom502, As always, consult a medical professional on any advice you receive.  I experience have experienced this exact symptoms you're referring to and will receive them, typically after being accidentally glutened. I've recently been researching this (that's how I came across this posting), because I've been trying to nail down how long I've actually had the celiac genes "activated" or if I was just born with it. Now I wasn't diagnosed until 2023 with Celiac Disease, but not all these other health issues I've had previously point to it all connecting. In 2013 I ended up with Bell's Palsy that I had facial paralysis on one side of my face, where I couldn't even get a twitch for six months, but it took almost a year for "full recovery". I have now came to the conclusion that, because of the B12 vitamin deficiency caused by celiac disease (when not following a strict gluten free diet), caused me to have prolonged recovery from this, because the nerves were healing at a much lower rate> I'm not sure if your daughter has ever had Bell's Palsy, but ever since I have, some of my symptoms when I accidentally get glutened (including right now as I type this message 😄) include a migraine that goes across my eyes, and a shooting pain as you have described that will go across my left cheek and upper jaw, in addition to pain behind my left ear, and painful to the touch. Now, I did immediately go on a gluten free diet, and almost all these symptoms vanished after 3-4 months, but that time frame depends upon the "damage" already done previously.  Hope my situation helps even now this is now almost three years later from your message!  
    • Scott Adams
      It's nice to see celiac-safe options out there for guest homes.
×
×
  • Create New...