Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Had No Idea!


MallysMama

Recommended Posts

MallysMama Explorer

Thank you. You're right - it's not worth it. I did slip up today and tasted a toaster strudel thing that I let my daughter have for a snack. It wasn't very tasty - and not worth cheating on! Ugh! I went today and bought $40 worth of gluten-free food - most of which will end up in the garbage because I gagged when tasting some of it. Why can't manufacturers make this stuff taste good!?!? It wouldn't be so bad if it was ONLY gluten-free...but they have to go to the next level and make it all organic and Healthy...and get rid of many other allergens (which I'm sure the people with those allergies appreciate...so I'm sorry for offending). It just makes it not worth spending all that money when it tastes so gross! (Actually - I did succeed in finding one good thing - chocolate cookies that I didn't gag on!!) I bought a kinnikinnick bread mix (I haven't had gluten-free bread since I was about 8 yrs old)....so when I eventually make it - we'll see how that goes! I didn't dare by the frozen loaf....I'm not that brave and didn't wanna waste any more money! (My hubby's gonna choke when he see's the reciept!) :o Any success stories with buying gluten-free stuff from a store?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rachel--24 Collaborator

There are sooo many gluten-free foods that taste good. I believe if I was still eating gluten like I did before I may not like the foods as much as I do now. Gluten is VERY addictive...I went through withdrawl symptoms my first week off gluten. If you continue to keep small amounts of gluten in your diet your body will continue to crave it and its a powerful addiction. Not unlike quitting smoking or a drug addiction. Your mind tells you that nothing is as good as the foods with gluten in them. You will have to overcome that and put your health and family first. I'm one of the people who's on a restricted diet...not just gluten-free so I havent been lucky enough to get to sample all the gluten free processed foods out there but I look forward to it once I'm healed. If you start a thread about which gluten free foods are best you'll get a ton of responses which should help you out with the shopping. Some of the things I have tried and liked are:

Tinkyada pasta

Lara Bars

Amy's frozen dinners

Enjoy Life cookies

I think I've enjoyed everything I've tried but I'm not very picky and my taste buds have probably adapted to the change...I like vegetables now. :o

Lollie Enthusiast
Lollie:

I am getting into a field that I am not sure about. Tiffany is the expert in this field. This is my thoughts after taking to my doctor yesterday.

The brain is a VERY complicated organ. If your brain is starved through lack of food to the brain, some of that will never be regained. That depends on the length of malnourisment to the brain. The brain is very much like the heart. If there is a blockage to the heart, in most cases the arteries to the heart will re-route themselves and find a new track.

I can't remember the amount of brain that is active, but I think it is way less than half. So, with continuous stimuli, the brain can find new places for activity and function.

My left side of my body is less responsive physically and I am right handed and most likely left brained. I have noticed a change in lack of articulation and recall. That does not mean that it is gone forever, it just means that my brain need to re-program where to put it.

I am not a medical person, this is just my theory with discussing this with my doctor.

I don't know how any one else feels about this. I definately have found myself with some mental regression, but I do feel,with proper stimulli that it can return to normal with the proper food to the brain.

This is pretty heavy for me on a Friday night.

Lisa

Thanks, it makes sense. I just hope that I didn't go too long to regain my "normal" brain function! I had been sick for about 10 years, and I was anorexic a large chunk of that time, but maybe now that I am able to eat and eat really healthy, nutrious foods, maybe my brain will get what it needs to "come back"!

I say to my little girls all the time, "where's mommies brain?" They think it's so funny, that at halloween, some one gave them little plastic brains, and when I would say that they would whip one out or point one out on the floor! You have to laugh at yourself when you see yourself through a childs eyes!!!!

Lollie

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      Is this celiac?

    2. - trents replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      ttg iga high (646 mg/dl) other results are normal

    3. - trents replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Fiber Supplement

    4. - Trish G replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Fiber Supplement

    5. - Hmart replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      Is this celiac?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,346
    • Most Online (within 30 mins)
      7,748

    rolland mcclay
    Newest Member
    rolland mcclay
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Other diseases, medical conditions, medications and even (for some people) some non-gluten foods can cause villous atrophy. There is also something called refractory celiac disease but it is pretty uncommon.
    • trents
      knitty kitty asks a very relevant question. So many people make the mistake of experimenting with the gluten free diet or even a reduced gluten diet soon before getting formally tested.
    • trents
      Another great fiber option is dried apricots. Four of them give you 3g of fiber and I find they don't produce all the gas that some other high fiber options do. They taste good too. Costco sells a large bag of them that are labeled gluten-free so you don't have to worry about cross contamination issues like you might in bulk grocery settings.
    • Trish G
      Wow, that's alot of info, Thanks!!!! I had my intake with Nutrionist where we went over basics and then will have follow up where we will talk about all the questions I've come up with (including the fiber question and so many more). I'll talk to her about the info you provided as well.  Thanks again (newbie here 😀)
    • Hmart
      Hello again. Thank you for the responses to date. I have had several follow-ups and wanted to share what I’ve learned. About a month after my initial blood test and going gluten free, my TtG went from 8.1 to 1.8. I have learned that my copper is low and my B6 is high. My other vitamins and nutrients are more or less in range. After I glutened myself on 10/24, I have been strict about being gluten free - so about a month. I have been eating dairy free and low FODMAP as well because it’s what my stomach allows. Baked fish, potatoes, rice, etc. Whole foods and limited Whole foods. I have continued to lose weight but it has slowed down, but a total of about 15 pounds since I went gluten free. Along with stomach pain, my symptoms included nausea, body and joint pain, a burning sensation throughout my body and heart rate spikes. I still have them but I have them less now. These are the symptoms that led to my doctor appointments and subsequent diagnosis. I also did the DNA screening and was positive. So, at this point, the answer is yes, I have celiac. I have two questions for this group. Any ideas on why my enteropathy was so severe (marsh 3B) and my TtG was so minimal? Is that common? Or are there other things to consider with that combo? And this recovery, still having pain and other symptoms a month later (7 weeks gluten free and 4 weeks after the glutening) normal? I’m going to continue down this path of bland foods and trying to heal but would love to understand the reasons for the long journey. I read so much about people who stop eating gluten and feel amazing. I wish that was my experience but it certainly hasn’t been. Thank you again!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.