Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Had No Idea!


MallysMama

Recommended Posts

MallysMama Explorer

Thank you. You're right - it's not worth it. I did slip up today and tasted a toaster strudel thing that I let my daughter have for a snack. It wasn't very tasty - and not worth cheating on! Ugh! I went today and bought $40 worth of gluten-free food - most of which will end up in the garbage because I gagged when tasting some of it. Why can't manufacturers make this stuff taste good!?!? It wouldn't be so bad if it was ONLY gluten-free...but they have to go to the next level and make it all organic and Healthy...and get rid of many other allergens (which I'm sure the people with those allergies appreciate...so I'm sorry for offending). It just makes it not worth spending all that money when it tastes so gross! (Actually - I did succeed in finding one good thing - chocolate cookies that I didn't gag on!!) I bought a kinnikinnick bread mix (I haven't had gluten-free bread since I was about 8 yrs old)....so when I eventually make it - we'll see how that goes! I didn't dare by the frozen loaf....I'm not that brave and didn't wanna waste any more money! (My hubby's gonna choke when he see's the reciept!) :o Any success stories with buying gluten-free stuff from a store?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rachel--24 Collaborator

There are sooo many gluten-free foods that taste good. I believe if I was still eating gluten like I did before I may not like the foods as much as I do now. Gluten is VERY addictive...I went through withdrawl symptoms my first week off gluten. If you continue to keep small amounts of gluten in your diet your body will continue to crave it and its a powerful addiction. Not unlike quitting smoking or a drug addiction. Your mind tells you that nothing is as good as the foods with gluten in them. You will have to overcome that and put your health and family first. I'm one of the people who's on a restricted diet...not just gluten-free so I havent been lucky enough to get to sample all the gluten free processed foods out there but I look forward to it once I'm healed. If you start a thread about which gluten free foods are best you'll get a ton of responses which should help you out with the shopping. Some of the things I have tried and liked are:

Tinkyada pasta

Lara Bars

Amy's frozen dinners

Enjoy Life cookies

I think I've enjoyed everything I've tried but I'm not very picky and my taste buds have probably adapted to the change...I like vegetables now. :o

Lollie Enthusiast
Lollie:

I am getting into a field that I am not sure about. Tiffany is the expert in this field. This is my thoughts after taking to my doctor yesterday.

The brain is a VERY complicated organ. If your brain is starved through lack of food to the brain, some of that will never be regained. That depends on the length of malnourisment to the brain. The brain is very much like the heart. If there is a blockage to the heart, in most cases the arteries to the heart will re-route themselves and find a new track.

I can't remember the amount of brain that is active, but I think it is way less than half. So, with continuous stimuli, the brain can find new places for activity and function.

My left side of my body is less responsive physically and I am right handed and most likely left brained. I have noticed a change in lack of articulation and recall. That does not mean that it is gone forever, it just means that my brain need to re-program where to put it.

I am not a medical person, this is just my theory with discussing this with my doctor.

I don't know how any one else feels about this. I definately have found myself with some mental regression, but I do feel,with proper stimulli that it can return to normal with the proper food to the brain.

This is pretty heavy for me on a Friday night.

Lisa

Thanks, it makes sense. I just hope that I didn't go too long to regain my "normal" brain function! I had been sick for about 10 years, and I was anorexic a large chunk of that time, but maybe now that I am able to eat and eat really healthy, nutrious foods, maybe my brain will get what it needs to "come back"!

I say to my little girls all the time, "where's mommies brain?" They think it's so funny, that at halloween, some one gave them little plastic brains, and when I would say that they would whip one out or point one out on the floor! You have to laugh at yourself when you see yourself through a childs eyes!!!!

Lollie

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      Seeking advice on potential gluten challenge

    2. - Wheatwacked replied to Mark Conway's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Have I got coeliac disease

    3. - Jmartes71 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Gluten tester

    4. - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      Seeking advice on potential gluten challenge

    5. - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      Seeking advice on potential gluten challenge

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,152
    • Most Online (within 30 mins)
      7,748

    SinnamonToasty
    Newest Member
    SinnamonToasty
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      Welcome, @JudyLou, Your rash sounds very similar to the one I experienced.  Mine was due to a deficiency in Niacin B3, although I had deficiencies in other nutrients as well.  Celiac disease causes malabsorption of all the essential nutrients, but eating a poor diet, taking certain medications, or drinking alcohol can result in deficiency diseases outside of Celiac, too.  Symptoms can wax and wane depending on dietary intake.  I knew an alcoholic who had the "boots" of Pellagra, which would get worse when he was drinking more heavily, and improve when he was drinking less.   Niacin deficiency is called Pellagra.  Symptoms consist of dermatitis, diarrhea, dementia, and death (the four D's).  A scaly rash on the feet and hands and arms are called the "boots" and "gloves" of Pellagra.  Darkened skin around the neck exposed to the sun is Casal's necklace.  Poor farmers with niacin deficient diets were called "red necks" because of this.    Does your rash get worse if you're in the sun?  Mine did.  Any skin exposed to the sun got blistered and scaly.  Arms, legs, neck, head.  Do you have dry, ashy skin on your feet?  The itchiness was not only from the rash, but neuropathy.   My doctors were clueless.  They didn't put all my symptoms together into the three D's.  But I did.  I'd learned about Pellagra at university.  But there weren't supposed to be deficiency diseases anymore in the developed world.  Doubtful it could be that simple, I started supplementing with Niacin and other essential nutrients.  I got better.   One of Niacinamide functions is to help stop mast cells from releasing histamine.  Your allergist gave you doxepin, an antihistamine which stops mast cells from releasing histamine.   Since you do have a Celiac gene, staying on the gluten free diet can prevent Celiac disease from being triggered again.   Interesting Reading: These case studies have pictures... Pellgra revisited.  https://pmc.ncbi.nlm.nih.gov/articles/PMC4228662/ Steroid-Resistant Rash With Neuropsychiatric Deterioration and Weight Loss: A Modern-Day Case of Pellagra https://pmc.ncbi.nlm.nih.gov/articles/PMC12532421/#:~:text=Figure 2.,(right panel) upper limbs.&text=The distribution of the rash,patient's substantial response to treatment.   Cutaneous signs of nutritional disorders https://pmc.ncbi.nlm.nih.gov/articles/PMC8721081/#:~:text=Additional causes of yellow skin,the clinical features of Kwashiorkor.   Hello, @Staticgypsy, I would not recommend cutting so many nutritious foods out of ones diet.  Oxalates can cause problems like kidney stones, but our bodies can process oxalates out of our systems with certain vitamins like Vitamins A and D and Pyridoxine B 6.   People with Celiac disease are often low in fat soluble vitamins A and D, as well as the water soluble B vitamins like Pyridoxine B 6.  Focus on serving your granddaughter nutrient dense meals to ensure she gets essential vitamins and minerals that will help her grow. Micronutrient inadequacy and urinary stone disease: an analysis of the National Health and Nutrition Examination Survey 2007-2018 https://pubmed.ncbi.nlm.nih.gov/36976348/ Multivitamins co-intake can reduce the prevalence of kidney stones: a large-scale cross-sectional study https://pubmed.ncbi.nlm.nih.gov/38564076/
    • Wheatwacked
      This doctor is obviously under educated about Celiac Disease. Deficiencies that can cause oral thrush (Candidiasis) mouth ulcers: Thiamine B1 B12 Folate Zinc Vitamin C B2 B6 Iron Malabsorption Syndrome is often co-morbid with Celiac Disease causing multiple deficiencies of the essential vitamins and minerals.  Low or deficient  Vitamin D is almost always found in undiagnosed Celiac Disease. "Over 900 genes have been reported as regulated by vitamin D"  Possible Role of Vitamin D in Celiac Disease Onset  "The overall prevalence rate of vitamin D deficiency was 41.6%, with the highest rate seen in blacks (82.1%), followed by Hispanics (69.2%)."    Prevalence and correlates of vitamin D deficiency in US adults
    • Jmartes71
      I saw the thing for testing for gluten when at public places.I absolutely love but I wonder if they would come up with a bracelet or necklace that can detect gluten in the air.I would LOVE that, i know i get debilitating migraine from smelling gluten wheat what have you, all I know is when I go into places like Chevron- gluten Subway, migraine, Costco that food smell of nasty gluten- migraine and same with Walmart subway.I absolutely HATE im that sensitive, my body reacts.Sadly medical hasn't taken core issue of celiac being an issue considering glutenfree ever since 1994 and in their eyes not because they didn't diagnose me. I am and wish I wasn't. If there was a detector of gluten in the air it would make a world of difference. 
    • JudyLou
      Oops! @Staticgypsy, I’ll get the book! Thank you! 
    • JudyLou
      Thank you so much for your help, @trents and @Staticgypsy! I so appreciate your thoughts. My diet is high in foods with oxalates and I don’t notice any issues there. If eliminating gluten from my diet had changed anything I’d be happy to just keep on the gluten-free diet, but with eating gluten several times with no rash, and having a rash when I was many years into gluten-free eating (and was much more careful at that point), I’m just baffled. Many, many thanks to you both. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.