Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Had No Idea!


MallysMama

Recommended Posts

MallysMama Explorer

Thank you. You're right - it's not worth it. I did slip up today and tasted a toaster strudel thing that I let my daughter have for a snack. It wasn't very tasty - and not worth cheating on! Ugh! I went today and bought $40 worth of gluten-free food - most of which will end up in the garbage because I gagged when tasting some of it. Why can't manufacturers make this stuff taste good!?!? It wouldn't be so bad if it was ONLY gluten-free...but they have to go to the next level and make it all organic and Healthy...and get rid of many other allergens (which I'm sure the people with those allergies appreciate...so I'm sorry for offending). It just makes it not worth spending all that money when it tastes so gross! (Actually - I did succeed in finding one good thing - chocolate cookies that I didn't gag on!!) I bought a kinnikinnick bread mix (I haven't had gluten-free bread since I was about 8 yrs old)....so when I eventually make it - we'll see how that goes! I didn't dare by the frozen loaf....I'm not that brave and didn't wanna waste any more money! (My hubby's gonna choke when he see's the reciept!) :o Any success stories with buying gluten-free stuff from a store?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rachel--24 Collaborator

There are sooo many gluten-free foods that taste good. I believe if I was still eating gluten like I did before I may not like the foods as much as I do now. Gluten is VERY addictive...I went through withdrawl symptoms my first week off gluten. If you continue to keep small amounts of gluten in your diet your body will continue to crave it and its a powerful addiction. Not unlike quitting smoking or a drug addiction. Your mind tells you that nothing is as good as the foods with gluten in them. You will have to overcome that and put your health and family first. I'm one of the people who's on a restricted diet...not just gluten-free so I havent been lucky enough to get to sample all the gluten free processed foods out there but I look forward to it once I'm healed. If you start a thread about which gluten free foods are best you'll get a ton of responses which should help you out with the shopping. Some of the things I have tried and liked are:

Tinkyada pasta

Lara Bars

Amy's frozen dinners

Enjoy Life cookies

I think I've enjoyed everything I've tried but I'm not very picky and my taste buds have probably adapted to the change...I like vegetables now. :o

Lollie Enthusiast
Lollie:

I am getting into a field that I am not sure about. Tiffany is the expert in this field. This is my thoughts after taking to my doctor yesterday.

The brain is a VERY complicated organ. If your brain is starved through lack of food to the brain, some of that will never be regained. That depends on the length of malnourisment to the brain. The brain is very much like the heart. If there is a blockage to the heart, in most cases the arteries to the heart will re-route themselves and find a new track.

I can't remember the amount of brain that is active, but I think it is way less than half. So, with continuous stimuli, the brain can find new places for activity and function.

My left side of my body is less responsive physically and I am right handed and most likely left brained. I have noticed a change in lack of articulation and recall. That does not mean that it is gone forever, it just means that my brain need to re-program where to put it.

I am not a medical person, this is just my theory with discussing this with my doctor.

I don't know how any one else feels about this. I definately have found myself with some mental regression, but I do feel,with proper stimulli that it can return to normal with the proper food to the brain.

This is pretty heavy for me on a Friday night.

Lisa

Thanks, it makes sense. I just hope that I didn't go too long to regain my "normal" brain function! I had been sick for about 10 years, and I was anorexic a large chunk of that time, but maybe now that I am able to eat and eat really healthy, nutrious foods, maybe my brain will get what it needs to "come back"!

I say to my little girls all the time, "where's mommies brain?" They think it's so funny, that at halloween, some one gave them little plastic brains, and when I would say that they would whip one out or point one out on the floor! You have to laugh at yourself when you see yourself through a childs eyes!!!!

Lollie

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    2. - cristiana replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    3. 0

      Celiac Friendly Sports Camps - Academy Camps - Virtual Open House

    4. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Low iron and vitamin d

    5. - Scott Adams replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,211
    • Most Online (within 30 mins)
      7,748

    IvonneT
    Newest Member
    IvonneT
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Cristiana, that sounds like a great approach and I will be looking forward to the results. I am in the same boat as you. I don't experience overt symptoms with minor, cross contamination level exposures so I sometimes will indulge in those "processed on equipment that also processes wheat . . ." or items that don't specifically claim to be gluten free but do not list gluten containing grains in their ingredient list. But I always wonder if I am still experiencing sub acute inflammatory reactions. I haven't had any celiac antibody blood work done since my diagnosis almost 25 years ago so I don't really have any data to go by.   
    • cristiana
      I've been reflecting on this further. The lowest TTG I've ever managed was 4.5 (normal lab reading under 10).  Since then it has gone up to 10.   I am not happy with that.  I can only explain this by the fact that I am eating out more these days and that's where I'm being 'glutened', but such small amounts that I only occasionally react. I know some of it is also to do with eating products labelled 'may contain gluten' by mistake - which in the UK means it probably does! It stands to reason that as I am a coeliac any trace of gluten will cause a response in the gut.  My villi are healed and look healthy, but those lymphocytes are present because of the occasional trace amounts of gluten sneaking into my diet.   I am going to try not to eat out now until my next blood test in the autumn and read labels properly to avoid the may contain gluten products, and will then report back to see if it has helped!
    • lizzie42
      Hi, I posted before about my son's legs shaking after gluten. I did end up starting him on vit b and happily he actually started sleeping better and longer.  Back to my 4 year old. She had gone back to meltdowns, early wakes, and exhaustion. We tested everything again and her ferritin was lowish again (16) and vit d was low. After a couple weeks on supplements she is cheerful, sleeping better and looks better. The red rimmed eyes and dark circles are much better.   AND her Ttg was a 3!!!!!! So, we are crushing the gluten-free diet which is great. But WHY are her iron and vit d low if she's not getting any gluten????  She's on 30mg of iron per day and also a multivitamin and vit d supplement (per her dr). That helped her feel better quickly. But will she need supplements her whole life?? Or is there some other reason she's not absorbing iron? We eat very healthy with minimal processed food. Beef maybe 1x per week but plenty of other protein including eggs daily.  She also says her tummy hurts every single morning. That was before the iron (do not likely a side effect). Is that common with celiac? 
    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.