Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Antibody Test

VeronicaTheCeliac
 Share

Recommended Posts

VeronicaTheCeliac Rookie
VeronicaTheCeliac
Posted

I was diagnosed with celiac disease at the end of February of 2020 with blood test levels of over 250. I have been completely gluten free for about 4 months now and went to redo the blood test and my levels have decreased to 79. Is it possible  that because my levels were so high it is just taking longer for the antibody to go back to normal or could there be a hidden case of gluten. I have only been eating gluten certified foods and whole foods (meat, fruits and veggies) the only thing I'm thinking could be my birth control (i'm on YAZ). Is this normal?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Scott Adams Grand Master
Scott Adams
Posted

This number typically goes down after a few months, so it does make sense to double check your diet to be sure it is 100% gluten-free. Do you eat out at restaurants? I ask because this is a common source of contamination:

 

 It is also a good idea to double check any medications you take regularly, as well as lipstick, lip gloss, and cosmetic products.

rehh05 Apprentice
rehh05
Posted
2 hours ago, VeronicaTheCeliac said:

I was diagnosed with celiac disease at the end of February of 2020 with blood test levels of over 250. I have been completely gluten free for about 4 months now and went to redo the blood test and my levels have decreased to 79. Is it possible  that because my levels were so high it is just taking longer for the antibody to go back to normal or could there be a hidden case of gluten. I have only been eating gluten certified foods and whole foods (meat, fruits and veggies) the only thing I'm thinking could be my birth control (i'm on YAZ). Is this normal?

Also you might be getting cross contaminated by things in your kitchen. Your cutting board, your pasta drainer, inadvertent crumbs from other people. Believe it or not, affectionate significant others who consume gluten can spread gluten to you. Gluten is very sneaky. 

cyclinglady Grand Master
cyclinglady
Posted

No!  Antibodies can take over a year to normalize.  You are doing just fine.  Doctors look for a downward trend.  Once normalized, if they become elevated again, it may be cause for concern.  This link for a reputable celiac research center explains it well: 
 

https://celiacdiseasecenter.columbia.edu/celiac-disease/follow-up/

The celiac antibodies tests were designed to help diagnose celiac disease and NOT really meant  to check for dietary compliance.  Why do doctors and major celiac centers recommend them for follow-up testing?  Because they are the only non-evasive tool-in-toolbox.  The best way to determine healing is a repeat endoscopy.   Most GIs will wait 3 to 5 years  to re-scope because they know it takes time for the vast majority of celiacs to master the diet.  

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,713
    • Most Online (within 30 mins)
      7,748
    Andra
    Newest Member
    Andra
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • RMJ
      High blood test numbers - with scales. Any advice?

      By RMJ · Posted

      I’d say celiac is likely.  Please continue to eat plenty of gluten until your endoscopy to be sure that any gluten-related damage can be seen.  Plus it gives you one last chance to enjoy your favorite gluten-containing foods. I hope the endoscopy/biopsies give you a definitive answer. 
    • TexasCeliacNewbie
      High blood test numbers - with scales. Any advice?

      By TexasCeliacNewbie · Posted

      I do also have the bloating, gas, constipation, hair loss, an auto-splenectomy that no one can see any reason for and some elevated liver enzymes that don't seem to have a cause, I also have joint pain and some spinal compression fractures that have no explanation.  I am only 42 so haven't had a bone density test yet.  My calcium was normal, but my D was a little low.  They haven't checked for any other vitamin deficiencies yet.  My blood test for an autoimmue disorder was quite high but my Thyroid was all normal.
    • TexasCeliacNewbie
      High blood test numbers - with scales. Any advice?

      By TexasCeliacNewbie · Posted

      Hi, I have been having a lot of back pain and gut issues for 8 weeks or so.  I saw the GI on Monday and my results just came in from the lab.  Some of these number are high and off the little chart from the lab.  I am reading this correctly that I most likely have Celiac, right???  It would explain a lot of things for me.  She does have me scheduled for a colonoscopy and endoscopy in  2 weeks to do the biopsy.  I posted this prior, but forgot to put the range assuming they were all the same.  Someone advised me to repost with the ranges for some insight in the meantime. Immunoglobulin A, Qn, Serum 140 (normal) - Normal is 87-352 Deamidated Gliadin Abs, IgA 256 (High) - Moderate to strong positive at or above 30 Deamidated Gliadin Abs, IgG 65 (High) - Moderate to strong positive at or above 30 t-Transglutaminase (tTG) IgA 31 (High) - Moderate to strong positive above 10 t-Transglutaminase (tTG) IgG 10 (High) - Positive is at or above 10
    • trents
      Colonoscopy with large area of inflammation

      By trents · Posted

      Usually, the blood testing is done first and the endoscopy/biopsy follows for confirmation if there are positive antibody test scores. Historically, the endoscopy with biopsy has been considered to be the gold standard for diagnosing celiac disease. If the tTG-IGA scores are very high (5x-10x normal), some doctors will forego the endoscpoy/biopsy and grant a celiac disease diagnosis without it. So, if you are starting with the endoscopy/biopsy that may be all you need to arrive at a diagnosis. Another possibility would be for the GI doc to do a blood draw for antibody testing on the same day you come in for the endoscopy/biopsy.
    • AuntieAutoimmune
      Royal Caribbean Only, Please

      By AuntieAutoimmune · Posted

      Thanks,Scott. Yes, I had already seen those 
×
×
  • Create New...