Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Antibody Test


VeronicaTheCeliac

Recommended Posts

VeronicaTheCeliac Rookie

I was diagnosed with celiac disease at the end of February of 2020 with blood test levels of over 250. I have been completely gluten free for about 4 months now and went to redo the blood test and my levels have decreased to 79. Is it possible  that because my levels were so high it is just taking longer for the antibody to go back to normal or could there be a hidden case of gluten. I have only been eating gluten certified foods and whole foods (meat, fruits and veggies) the only thing I'm thinking could be my birth control (i'm on YAZ). Is this normal?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Scott Adams Grand Master

This number typically goes down after a few months, so it does make sense to double check your diet to be sure it is 100% gluten-free. Do you eat out at restaurants? I ask because this is a common source of contamination:

 

 It is also a good idea to double check any medications you take regularly, as well as lipstick, lip gloss, and cosmetic products.

rehh05 Apprentice
2 hours ago, VeronicaTheCeliac said:

I was diagnosed with celiac disease at the end of February of 2020 with blood test levels of over 250. I have been completely gluten free for about 4 months now and went to redo the blood test and my levels have decreased to 79. Is it possible  that because my levels were so high it is just taking longer for the antibody to go back to normal or could there be a hidden case of gluten. I have only been eating gluten certified foods and whole foods (meat, fruits and veggies) the only thing I'm thinking could be my birth control (i'm on YAZ). Is this normal?

Also you might be getting cross contaminated by things in your kitchen. Your cutting board, your pasta drainer, inadvertent crumbs from other people. Believe it or not, affectionate significant others who consume gluten can spread gluten to you. Gluten is very sneaky. 

cyclinglady Grand Master

No!  Antibodies can take over a year to normalize.  You are doing just fine.  Doctors look for a downward trend.  Once normalized, if they become elevated again, it may be cause for concern.  This link for a reputable celiac research center explains it well: 
 

https://celiacdiseasecenter.columbia.edu/celiac-disease/follow-up/

The celiac antibodies tests were designed to help diagnose celiac disease and NOT really meant  to check for dietary compliance.  Why do doctors and major celiac centers recommend them for follow-up testing?  Because they are the only non-evasive tool-in-toolbox.  The best way to determine healing is a repeat endoscopy.   Most GIs will wait 3 to 5 years  to re-scope because they know it takes time for the vast majority of celiacs to master the diet.  

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,808
    • Most Online (within 30 mins)
      7,748

    David Wright
    Newest Member
    David Wright
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.7k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      In people with celiac disease, gluten can trigger migraine headaches, and we have a category of research summaries on this topic: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/ 
    • Scott Adams
      They are made in a dedicated gluten-free facility, but anything is possible. It looks like their product contains Xanthan Gum, is it possible you have issues with Xanthan Gum?  https://www.maninis.com/products/4-cheese-tortelloni/ This article might be helpful:  
    • trents
      ABP2025, there are no definitive diagnostic tests for NCGS. It is arrived at by first ruling out celiac disease despite continuing symptoms from gluten ingestion.
    • Scott Adams
      So keep eating gluten daily, lots of it, until all celiac disease screening is completed. A negative biopsy would not rule out NCGS. Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.  
    • susan connolly
      Hi  I just had the same problem with Maninis Am gluten-free so I am very careful. It was delicious but big tummy ache and swelling.  I was soooo careful.  Nothing different but the tortellini.  Maybe cross contamination of some kind ?.  Best  Susan 
×
×
  • Create New...