Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

should i even take a multi vitamin?


DJFL77I

Recommended Posts

DJFL77I Experienced

https://www.glutenfreeliving.com/blog/multivitamin-necessary-celiac-disease/

After speaking with Welstead, I asked Dr. Guandalini whether taking a supplement is necessary and, if so, which brand he would recommend. “Once in full remission on a strict gluten-free diet, celiac patients can be considered just as healthy as individuals who do not have celiac, with no additional needs for vitamins or other types of supplements,” he said. “If the patient chooses to supplement, a general multivitamin preparation would be more than adequate.”

Many people need to supplement because they consume a great deal of packaged gluten-free food, which is highly processed and stripped of most minerals and vitamins. If you do choose to take a multivitamin, a one-a-day like Rainbow Light is fine and no different from vitamins marketed toward celiac patients, such as CeliAct and Alorex.

Overall, following a strict gluten-free diet and eating nutrient-dense foods like those mentioned above are the most important steps you can take. After the gut has healed, patients who follow a healthful gluten-free diet don’t need any supplementation. As it turns out, at the end of the day, food truly is the best medicine.

 

 

most recently, about 2 weeks ago , I had B12 and Iron checked...  both seemed normal..    does that mean i'm absorbing ok?

I want to get a full vitamin + mineral panel done...  if that would come back normal , do I even need to take a multivitamin?      I've been taking one for about 3 days... 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

See my other response to you.  
 

Take the multi.  You bought them.  They will not hurt and they may make you feel better.  
 

You are under a doctor’s care and seeing a dietician.  Lucky you.  If they were really worried about your health, they would have done more.  Maybe you are pretty healthy and you do not need additional care.  You are young, right? 
 

If you are not deficient in iron or B-12, you are able to absorb your other vitamins and minerals.  Whether you are consuming good foods that contain vitamins and minerals is a different story.  If you live on junk food and never go out into the sunshine, you could be deficient in vitamins.  That will happen to non-celiacs too.  
 

Please  consider talking to your doctor about your mental health.  You are really struggling.  A new celiac disease diagnosis and a pandemic.  Hard to deal with so many new things.  Do you live with family?  

knitty kitty Grand Master

B12 can be stored in the liver for two to five years.  Most of the eight B vitamins are water soluble and must be replenished every day, but B12 is the exception. 

Other B vitamins, such as thiamine, can become depleted in as little as nine days.  (Ever watch television show "Naked and Afraid"?  The people on that show develop vitamin and mineral deficiencies.  It's not just about calories.)

The liver also stores iron.  Iron stores can last from six months (if you're a menstruating female) to three years (if you're a male).  

There are four stages of anemia before changes in red blood cells occurs.  By the time you get changes in the size and color of red blood cells, you've been deficient for a while.  

 

Here's some informative articles that might help you decide for yourself.  

https://www.merckmanuals.com/home/disorders-of-nutrition/vitamins/vitamin-b12-deficiency

https://www.nhs.uk/conditions/vitamin-b12-or-folate-deficiency-anaemia/causes/

https://www.uspharmacist.com/article/iron-deficiency-anemia-a-closer-look

 

DJFL77I Experienced
18 minutes ago, cyclinglady said:

You are under a doctor’s care and seeing a dietician.  Lucky you.  If they were really worried about your health, they would have done more.  Maybe you are pretty healthy and you do not need additional care.  You are young, right? 
 

If you are not deficient in iron or B-12, you are able to absorb your other vitamins and minerals.  Whether you are consuming good foods that contain vitamins and minerals is a different story.  If you live on junk food and never go out into the sunshine, you could be deficient in vitamins.  That will happen to non-celiacs too.  
 

Please  consider talking to your doctor about your mental health.  You are really struggling.  A new celiac disease diagnosis and a pandemic.  Hard to deal with so many new things.  Do you live with family?

Young.. I dunno. I'm 42..     i'm just not used to being sick in any way.. I literally went for 15 straight years before this without even having a common cold.

I haven't been eating any junk foods.. I'm only eating meats and potatoes and some veggies and fruits ..  Bryers vanilla Ice cream is the only thing I've been having as a snack..  I do have walnuts but haven't been eating them..

 

Awol cast iron stomach Experienced
6 hours ago, DJFL77I said:

most recently, about 2 weeks ago , I had B12 and Iron checked...  both seemed normal..    does that mean i'm absorbing ok?

I want to get a full vitamin + mineral panel done...  if that would come back normal , do I even need to take a multivitamin?      I've been taking one for about 3 days... 

It sounds like they did the blood draw and looked for the big concerns iron and b-12. Since they didn't specifically point one out. I would consider as a patient that to mean I was not deficient and within the normal range value. 

I'm in the Midwest so before proper  diagnosis I was tested and found to be vitamin D deficient. Not unusual K suppose for my undiagnosed state and geographic location. The times western med Dr wanted me on a specific supplement or vitamin they gave me a prescription. The times I was prescribed specific supplements by a western med Dr was when I was vitamin D deficient and during my pregnancies. One Ob had me on extra folic acid in addition to my prenatal multi. The other OB wanted me on a specific prenatal multi. In the past I had a beloved chiropractic/naprapathy Dr who monitored my calcium/ magnesium. 10 years ago I had the Dr who discovered I was D deficient.It depends on the Dr. and where I was stage/ health wise. They were upfront about it and prescribed it like they would a prescription. 

Do you have access to your online reports of lab blood test? You can request them . The medical system my current Dr's are in post my results in my online portal within a few days of my blood draw. She reviews them and leaves me a note at the bottom. My last report showed my value in one column and the normal range off to the side. 

 

DJFL77I Experienced
3 hours ago, Awol cast iron stomach said:

Do you have access to your online reports of lab blood test?

 

 

here is what my bloodwork looked like early March when I first went in about 3 weeks after symptoms started

 

 

 

 

l1.gif

l2.gif

Kate333 Rising Star

Your tests are all normal and your diet is great, so you probably are getting enough V/Ms from healthy, natural food.   

I also recently had complete vitamin/mineral blood tests and my results were also normal (although my vitamins D and magnesium were on the low end of normal).  But my PCP doc recommended I take supplements, including a high dose vitamin B (all the Bs), to boost those vitamin levels but primarily because of my chronic fatigue/sleep/anxiety issues to see if they help me feel any better.

CL's advice about considering the effect of stress on overall health is spot on!  Speaking for myself as a "newbie"  (on gluten-free diet for only 6 months), 2020 has been the hardest year of my life, trying to cope with the twin, sudden gut-punches of both celiac disease diagnosis and pandemic has been overwhelming to say the least.  


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



DJFL77I Experienced
9 hours ago, Kate333 said:

Your tests are all normal and your diet is great, so you probably are getting enough V/Ms from healthy, natural food.   

not sure how if they found my villi are blunted...

DJFL77I Experienced
9 hours ago, Kate333 said:

I also recently had complete vitamin/mineral blood tests and my results were also normal (although my vitamins D and magnesium were on the low end of normal).  But my PCP doc recommended I take supplements, including a high dose vitamin B (all the Bs), to boost those vitamin levels but primarily because of my chronic fatigue/sleep/anxiety issues to see if they help me feel any better.

I wanted to have vitamin and mineral panel just to see but the Dr said I don think we need too.  I'm still going to get it though...

there's a complex B multivitamin:

https://www.amazon.com/Now-Supplements-Vitamin-B-50-Capsules/dp/B0013OSL5S/ref=mp_s_a_1_3?dchild=1&keywords=now+b-50&qid=1594130906&sr=8-3

and just B1:  https://www.amazon.com/NOW-Vitamin-B-1-Thiamine-Tablets/dp/B0009P3DRS/ref=mp_s_a_1_3?dchild=1&keywords=now+thiamine+100mg&qid=1594130844&sprefix=now+thiamine&sr=8-3

docaz Collaborator
10 hours ago, DJFL77I said:

not sure how if they found my villi are blunted...

Blunted villi can range from mildly blunted to almost flat. If your villi have only lost the tip and are rounded (blunted) instead of greatly reduced in size, the absorption is mostly unaffected. If you want to go into more depth you could ask the pathologist to reviewed the slides to send you an image of a typical section that shows the damage and you can see for yourself because that is actually easily evaluated even by a lay person. What is more difficult to evaluate is the white cell infiltrate because not all of them are diagnostic for celiac disease and also not all blunting is caused by celiac disease. Here is a diagram of the extremes but most celiac patients have something inbetween 

https://www.alamy.com/stock-photo-coeliac-disease-or-celiac-disease-small-bowel-showing-coeliac-disease-176992313.html

This is what it looks like under a microscope

https://celiac.org/about-the-foundation/featured-news/2015/03/biopsy-samples-diagnosis-celiac-disease/

The many dark dots in the flattened celiac sample are the white cell infiltrate. 

ravenwoodglass Mentor

You have gotten some great advice on this and other posts. I do have one thing to add. You mention in another thread that you are eating lactose free ice cream and cottage cheese. You may want to drop all dairy until you are doing a bit better. There are some good dairy free ice creams (although personally I would avoid soy based for now) as well as sherbets and other non-dairy frozen treats. It is not uncommon for celiacs to have an issue with dairy until they have fully healed and when you reintroduce dairy start with hard cheeses like cheddar which have much less lactose. Some folks will have an intolerance to casien the protein in dairy not lactose which is the sugar. Once you have healed well go ahead and add back in dairy and see how it goes. I hope you heal quickly but have patience as it can take some time.

DJFL77I Experienced
On 7/25/2020 at 8:00 PM, Kate333 said:

Your tests are all normal and your diet is great, so you probably are getting enough V/Ms from healthy, natural food.     

did you ever ask your DR what your dizziness might be coming from

 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Matt13 replied to Matt13's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      29

      Can food allergies like milk and soy flatten villi?

    2. - Rogol72 replied to Richardo's topic in Dermatitis Herpetiformis
      4

      dermatitis herpetiformis with all grains

    3. - trents replied to Richardo's topic in Dermatitis Herpetiformis
      4

      dermatitis herpetiformis with all grains

    4. - Richardo replied to Richardo's topic in Dermatitis Herpetiformis
      4

      dermatitis herpetiformis with all grains

    5. - trents replied to Richardo's topic in Dermatitis Herpetiformis
      4

      dermatitis herpetiformis with all grains


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,337
    • Most Online (within 30 mins)
      7,748

    Marleyj23
    Newest Member
    Marleyj23
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.1k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Matt13
      Hi knitty kitty, Scott and all, Thanks for kind words and asking!I will def. talk about histamine intolerance  on my next visit to gastro doc. My doc.gastro says that lactose or casein is very unlikely to create marsh 3b histology like gluten in adults in intestines. (that was previous question for Scott) Regarding my last EGD the villy was OK so refractory is out of the question based on my talk with dr. If Scott is right and there are so many intolerance in food for celiac what is left to eat?? And now histamine? I mean what should i eat? Maybe gastritis is doing all this trouble? Thanks Kind regard    
    • Rogol72
      @Richardo, I'm in the same boat as you! I can't handle certified gluten free oats at all. Quinoa is the worst, even when I soak it in water and then wash under the tap for 10 minutes ... I have a reaction. It must be an immune system reaction to the proteins in these gluten-free grains. 
    • trents
      We are all different and our immune systems are unique. I will say, however, that I have not gotten the impression as a moderator and reading hundreds and hundreds of posts on this forum over the years that a dermatitis herpetiformis outbreak caused by grains other than wheat, barley and rye is common. But perhaps it is more common than we have realized and it could be why it it is seems to be common that those who suffer from dermatitis herpetiformis struggle to keep it under control. Perhaps there are qualities found in all cereal grains besides gluten that are contributing factors. Also, have you tried a low iodine diet to see if it helps with your dermatitis herpetiformis? Reportedly, reducing iodine helps some folks afflicted with dermatitis herpetiformis.
    • Richardo
      Ok thanks Trents. I had the lesions biopsied and confirmed dermatitis herpetiformis, so I guess dermatitis herpetiformis can be associated with other grains not typically gluten. I appreciate your comment and I'll give Dr Osborne the benefit of the doubt because without him I would never have known of my grain intolerance and would still be suffering today. I simply never read anyone explain how grains could worsen dermatitis herpetiformis and I feel that information should be made much more readily available. Hey if someone tries going grain free and there's no improvement, no loss, however it drastically changed my life for the better and could at least be offered as a suggestion to sufferers from dermatitis herpetiformis. The other option is Dapsome and I wouldn't want anyone taking that chemical if there was a more natural solution. thanks again 
    • trents
      Welcome to the forum, @Richardo! We sometimes run across terms like "rice gluten", "corn gluten", and "oat gluten" but they are used informally and, technically, it is incorrect to speak of grains other than wheat, barley and rye as having gluten. Gluten is a protein with a specific structure found only in wheat, barley and rye. Other cereal grains contain proteins that are more or less similar in structure to gluten in some ways but are not actually gluten. Having said that, the proteins found in these other cereal grains are similar enough to gluten to possibly cause cross reactivity in some celiacs. Cross reactivity also happens with non cereal grain foods as well that have a protein structure similar to gluten. A prime example is dairy (the protein "casein"). Another example may be soy. Other foods can also cause cross reactivity for different reasons, such as microbial transglutaminase (aka, "meat glue") used commonly in pressed meat products. Just so you'll know, Dr. Osborne's claims have not received wide acceptance in the celiac community and are looked upon with skepticism by the medical and scientific community. Although he is a board certified nutritionist, his doctorates are actually in chiropractic medicine and pastoral science: https://www.drpeterosborne.com/about/dr-peter-osborne/ I am not sure Osborne has the training and background to address the chemical structure that defines gluten. I would encourage you to do some research on what gluten actually is. I have done this for myself and came away convinced that only wheat, barely and rye actually contain the protein gluten. I do not doubt your claims that you have breakouts of dermatitis herpetiformis from consuming these other grains. I am just contending it is not actually from gluten.
×
×
  • Create New...