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Testing for Celiac

Stephanie Burford
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Stephanie Burford Newbie
Stephanie Burford
Posted

I have been told that I could possibly have Celiac Disease.

I had a test but it was negative. However, I was just recently diagnosed with Dermatitis Herpoformis. I have had two doctors tell me to go gluten free in my diet so I am. I also have a malabsorption issue with my vitamin D and B. I am on 50,000 iu’s a week for D. I also have Rheumatoid Arthritis, Sjögrens, Raynauds, Thyroid/Parathyroid issues and Osteoporosis.

I was told that my test came back negative due to trying to not eat gluten. I am so confused and need to know how to proceed. Do I have it or not?

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Corinne D. Contributor
Corinne D.
Posted

Hi Stephanie. Dermatitis herpetiformis is a form of celiac disease. Apparently, celiacs with DH may not have elevated serum antibodies, but if the skin biopsy is positive, there is no room for doubt. You should most certainly go gluten free as soon as possible. And very strictly too, avoiding all cross-contamination. Be sure to check the DH section of this forum for tips on a strict gluten-free diet.

GFinDC Veteran
GFinDC
Posted

Right, DH is a condition only celiacs get.  The antibodies get deposited in the skin and cause irritation.   Also people with DH sometimes don't show positive on the blood work. Maybe because the antibodies are in the skin rather than circulating in the blood.

DH can be very sensitive to gluten and also iodine.

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