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symptoms with gluten


JoBlackburn

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JoBlackburn Rookie

heya, just wondering if anyone else experiences these things after consuming gluten also ?

head fog and heaviness

migraines

collapsing and pretty bad mood changes.this seems to also come from dairy, it really effects my personal life.

smell change when everything smells stronger and awful.

 

im still trying to get diagnosed but im terrified of accidentally eating gluten or dairy again .

any insights would be really helpful !😃😃😃

 


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trents Grand Master

Except for the smelling changes, everything you list is common with Celiac Disease/Gluten Sensitivity. Changes in sense of smell is also a well-documented symptom of COVID--19.

JoBlackburn Rookie
10 minutes ago, trents said:

Except for the smelling changes, everything you list is common with Celiac Disease/Gluten Sensitivity. Changes in sense of smell is also a well-documented symptom of COVID--19.

ah, well im glad its not just me. happened again this morning when my partner decided to blend up some oats in the kitchen😵

knitty kitty Grand Master

Sounds like what I experienced with Histamine Intolerance and Mast Cell Activation Syndrome.  

The body normally releases histamine as part of its defense mechanism to destroy harmful things we've ingested, like gluten if we have Celiac Disease, and dairy in lactose intolerance, or if allergic to casein, shellfish, or other foods.  Ingestion of foods naturally containing high levels of histamine and our bodies' release of additional histamine can cause excessive reactions. 

Histamine release is a part of the "fight or flight response."  Histamine causes an adrenaline rush in order to rev up our mind and body for quick action in order to fight or evade the perceived threat.  Heightened senses such as an increased sense of smell and hearing results.  

Unfortunately, too much histamine is a bad thing, especially for our brains, resulting in  migraines and mood changes, or sometimes shutting down altogether and collapsing.   

Our bodies utilize Vitamin C and Niacin (Vitamin B3) and Vitamin D to break down the histamine and calm down from that adrenaline rush.  Blueberries help, too.  (Weird science-y fact I thought I would throw in.😸)

Try the Low Histamine Diet to avoid foods with high histamine levels.  Keep a food/mood/poo'd journal to keep track of your triggers.  It will be useful to show the doctor.  Also consider supplementing with Vitamin C and Niacin, with your doctor's approval.  

Hope this helps!

 

 

1 hour ago, JoBlackburn said:

heya, just wondering if anyone else experiences these things after consuming gluten also ?

head fog and heaviness

migraines

collapsing and pretty bad mood changes.this seems to also come from dairy, it really effects my personal life.

smell change when everything smells stronger and awful.

 

im still trying to get diagnosed but im terrified of accidentally eating gluten or dairy again .

any insights would be really helpful !😃😃😃

 

 

Kate333 Rising Star

Hi Jo. 

You say you're "still trying to get diagnosed" so it sounds like perhaps you are not yet diagnosed with celiac disease?  If not, a good first step is to request a blood test to assess whether you even have celiac disease so at least you will know whether a strict gluten-free diet is required.  If the blood test is "normal" (no gluten antibodies), then you can breathe a sigh of relief and start considering other non-celiac disease issues, including food allergies, IBS, SIBO, and/or anxiety/depression.

Changes in smell aren't usually attributed to celiac disease.  I have experienced many of the symptoms you note--esp. migraines, brain fog, fatigue, insomnia, heavy body sensations--but many are also classic signs of IBS, anxiety/depression/insomnia which, in my case, seem so much worse since the CV pandemic started.

For me, the simplest, easiest, most stress-free way to steer clear of even minute gluten exposure is by avoiding ALL packaged foods in favor of buying, eating only fresh meats, fruits and veggies.  I also avoid dairy, sugar, and oats (because I don't trust gluten-free labels, esp. on products possibly harvested and packed with wheat crops). 

Some people on this board swear by "gluten-free labels" on packaged food, but I don't trust them and hate reading labels (or doing internet searches) for every single food item (too time-consuming, stressful).  And I've found most labeled gluten-free foods to be too expensive, full of additives, and not very tasty. 

I hope you feel better soon.

  

JoBlackburn Rookie

thank you for the replies. it does seem to be when i consume dairy and or gluten. then its battle stations haha. 

i will defo keep a food journal though thank you.

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