Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What I've Learned So Far About Myself...

Linda352

By Linda352
in Coping with Celiac Disease

Recommended Posts

Linda352 Rookie
Linda352
Posted

Hello All! Well, I've been gluten free for about 2 months now and have really been feeling so much better but not complete. I haven't been tested by any doctors but just doing my own elimination diet to see what might be causing me to be in so much pain. Drs told me it's arthritus and I will have to learn to live with it...They don't know me very well :rolleyes: Anyway, through my own research and learning about food intolerances so far I've discovered so much about how my body has changed since entering the Menopausal phase of my life. This week I decided to stop all alcohol consumption, including wine (this is such a bummer) to see if I wouldn't notice any more positive changes and after only 3 days I am practically pain free which I thought I would never feel again :D I just wanted to share in case anyone else has been suffering in a similar way. I know each individual seems to suffer differently than another and it totally amazes me how foods that we are made to believe are "healthy" for us aren't necessarily so. I hope each and everyone of you are able to figure out your food culprits as I have as it's well worth it even though some may be your favs :) Have a beautiful day!

Linda/NJ

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Nevadan Contributor
Nevadan
Posted

Linda,

Thanks for the post with your experience. Loss of wine would be a real bummer :) What else did you eliminate? If you add any of these back without consequences, please post. I also have what appears to be "arthritis" which comes and goes and so far doesn't correlate with any food elimination I've tried, including wine.

George

Linda352 Rookie
Linda352
Posted
  • Author
Linda,

Thanks for the post with your experience. Loss of wine would be a real bummer :) What else did you eliminate? If you add any of these back without consequences, please post. I also have what appears to be "arthritis" which comes and goes and so far doesn't correlate with any food elimination I've tried, including wine.

George

Hi George....I have also cut back on my sugar consumption. I rarely eat any baked goodies anymore, however since today is my b'day one of my DD's brought over a flourless chocolate cake yesterday which did have lots of sugar in it and it did not affect me at all. Aside from this I really hadn't had any sugar since last summer. I do think that this has also been a plus in how I've been feeling. I eat a lot of salads and veggies and try my best to not eat any junk food. My arthritus (upper spine area) is my only reason for going gluten-free. I don't have any of the other symptoms that others here are struggling with. It's pretty easy for me to be strict with my food intake as long as I don't go anywhere :P Also in regards to my arthritus I've been taking Glucosamine with MSM for a few years now and just recently also added a supplement called Celadrin which I had read that it works well together with the Gluc/MSM. So I don't know if it's the diet or the Celadrin which are making me feel better....or both. As long as I notice an improvement I'm for anything that works so I will continue to do as I am doing and hopefully will continue to feel better each day. Have you tried any glucosamine supplements or do you take any presc. meds for your arthritus?

Linda

jerseyangel Proficient
jerseyangel
Posted

Happy birthday, Linda :) Glad to hear you're figuring things out and feeling better. It takes time--I'm 9 months into it, and have finally figured out what I should and should not be eating--unless, of course, something changes! I know there's always that possibility during this long healing process, but when I look back at where I was a year ago, I have to say I'm so much better. Your cake sounds yummy :D

Linda352 Rookie
Linda352
Posted
  • Author
Happy birthday, Linda :) Glad to hear you're figuring things out and feeling better. It takes time--I'm 9 months into it, and have finally figured out what I should and should not be eating--unless, of course, something changes! I know there's always that possibility during this long healing process, but when I look back at where I was a year ago, I have to say I'm so much better. Your cake sounds yummy :D

Thanks Patti for your kind wishes :) Yes my cake was quite deliceous! Glad you are feeling much better after being gluten-free for as long as you have. I hope I can keep it going as well as you have. I still have yet to venture out to a restaurant or anywhere else to eat. As long as I'm home I'm good B)

Linda

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,565
    • Most Online (within 30 mins)
      7,748
    Gary moody
    Newest Member
    Gary moody
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.3k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      New Guy Here...

      By trents · Posted

      So, is their reasoning for doing another biopsy after you've been gluten free for awhile to get a comparison of before and after? In other words, there should be healing of the SB lining if you go gluten free for awhile if you have celiac disease?
    • trents
      Pathology results - coeliac positive?

      By trents · Posted

      Welcome to the forum, @Tazzy11! Yes, your DGP-IGG test is positive. It means you could have celiac disease. But there are other possible causes for an elevated DGP-IGG count. I note that your TTG-IGA was not positive. The TTG-IGA is considered the chief celiac antibody test and a bit more reliable than the DGP-IGG. But let me ask you an important question. Prior to the blood draw, had you already begun to limit your intake of gluten? Also, were these the only two tests ordered to check for celiac disease? A physician should always order what we call the "total IGA" test (it goes by other names as well) to check for IGA deficiency. If you are IGA deficient, the scores for individual IGA celiac antibody tests, such as the TTG-IGA will be falsely low. By the way you spelled "coeliac" I judge you must be in the UK. There are several other antibody tests that can ordered when checking for celiac disease in order to get a more complete picture. Here is an article outlining the various tests:  
    • Scott Adams
      Pathology results - coeliac positive?

      By Scott Adams · Posted

      This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    Per this article: They will likely schedule an endoscopy to see if you have celiac disease, and for this they would want you to continue eating gluten daily until that test is completed.
    • Scott Adams
      Just got Celiac blood test results back and they seem crazy high!

      By Scott Adams · Posted

      This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease.     
    • Scott Adams
      Augmentin (amoxicillin) syrup

      By Scott Adams · Posted

      You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...