Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

An Update


Danijela

Recommended Posts

Danijela Contributor

:D Hey everyone!!!

Its been soo long since ive been on... I've been really busy and my computer had some viruses so I couldn't access the internet for awhile there...

Anyways I had my appointment with an allergist on Jan 11th he ran all the usual enviornmental tests and for pets as well... then he asked me if I wanted anything special... I told him I was questioning Celiac so he decided to test me for wheat, white flour, milk and yeast..

well within seconds I was having a reacion to YEAST! he said this was quite suprising to him...

all he said was not to eat bread baked goods and doughnuts!! I thought that was funny that he specifically mentioned doughnuts lol I felt like saying do I look like i've consumed alot of em' <_<

so I cut out all yeast gluten and dairy. I've found recently that when I eat dairy products I get a stabbing pain in my stomach and the gas is unbearable I't makes me feel like I can't breath properly at times.... I've lost 16.5 pounds since I started the diet....

I've been feeling alot better however my problems with my throat and blood sugar still remain...

I believe I have some sort of insulin problem after I eat anything sweet my hands and feet go really cold I feel really hungry, jittery and aggitated... this also happens if I wait too long between meals...

My throat is killing me as well... its not really my throat it doesn't hurt when I swallow like strep or anything its more my neck below my chin it swells and hurts when I talk... it feels like a pressure is in there and its rubbing together and raw or something... its getting worse in the morning and at night when I drink it feels like its not passing throught almost like its just sitting there... its really botersome to me.

I don't know if there is any connection but i'm always cold as well my skin is actually cold to the touch all the time. I've recently started sleeping with 2 pairs of socks, pants, a shirt and sweater and a hat... because I wake up freezing and shaking in the middle of the night....

anyway if anyone can offer me any advice i'd greatly appreciate it

thank you sooo much for you time

:D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest cassidy

Hypoglycemia is likely the cause of the jittery, hungry, aggitated feeling. I have had it all my life and since going gluten free, it is gone. The symptoms come back only when I'm glutened. You can try only eating carbs that are digeted slowly - check out www.glycemicindex.com. Hopefully, after you have been gluten-free for a while it will get better.

I am also always cold all the time. I've been taking my temperature for baby making reasons and I am always 97. something. I did read a thread that there are many people like this. When I'm watching tv I keep a heating pad on me and it really warms me up. I love in Florida, and it will be 85 today and I will still be cold if I'm not in the sun.

I don't know about the throat thing. My mom gets a rash on the outside of her throat when she eats gluten and she feels like her throat is closing. I get reflux when I eat gluten and I feel it mostly in my throat. I don't know if either of those is your problem, but I would think that eating gluen could affect your throat.

Stick to your diet and hopefully you will feel better.

Danijela Contributor
Hypoglycemia is likely the cause of the jittery, hungry, aggitated feeling. I have had it all my life and since going gluten free, it is gone. The symptoms come back only when I'm glutened. You can try only eating carbs that are digeted slowly - check out www.glycemicindex.com. Hopefully, after you have been gluten-free for a while it will get better.

I am also always cold all the time. I've been taking my temperature for baby making reasons and I am always 97. something. I did read a thread that there are many people like this. When I'm watching tv I keep a heating pad on me and it really warms me up. I love in Florida, and it will be 85 today and I will still be cold if I'm not in the sun.

I don't know about the throat thing. My mom gets a rash on the outside of her throat when she eats gluten and she feels like her throat is closing. I get reflux when I eat gluten and I feel it mostly in my throat. I don't know if either of those is your problem, but I would think that eating gluen could affect your throat.

Stick to your diet and hopefully you will feel better.

It kinda feels like my throat is closing at times, and when I swallow liquids especially it feel like it is stuck in my throat for a few mins....

does anyone know if this could have anything to do with my thyroid???

my gp said my throat is really red inside... he is sending me to a new endocrinologist (sp?) I just hope he can help not like the last one!

thanks for your reply:)

kabowman Explorer

Have you noticed a pattern to the throat thing? There is yeast in vinegar so I would watch that since you have an actual allergy. That means no dressings, sauces, marinades, condiments, etc. unless you make your own and work around the need for vinegar.

Danijela Contributor
Have you noticed a pattern to the throat thing? There is yeast in vinegar so I would watch that since you have an actual allergy. That means no dressings, sauces, marinades, condiments, etc. unless you make your own and work around the need for vinegar.

Ya there is a pattern actually it flares up in the morning and in the evening and if I talk alot it really hurt my voice changes it goes hoarse it becomes hard to talk and things don't really come out right...

The pain is in my neck below my chin... thats why i was wondering if it could be my thyroid.. there is a pressure there all the time.... i don't know if anyone can relate but its kinda like when you cry and you sort of get a feeling like there is a lump in your throat <_< (don't know if anyone knows what i mean)I can actually feel thats its swollen it will be larger on one side once in a while... and it bothers me more when i drink cold or hot drinks.... so i stick to room temp and really small sips.

I had no idea there was yeast in vineger I have vineger on salads on a weekly basis..... it doesn't say anything about it on the bottle....

I'm completly lost with this yeast thing:(

key Contributor

I had something with my throat when I was pregnant with my first son and then 8 months after while breastfeeding. It was I believe my thyroid. I think it was swollen and would be worse sometimes during the day. Usually at the end of the day. IF felt like you said, that you had cried along time. It was VERY annoying. I even quit nursing my baby early to see if it would go away. It actually did. I think hormones did something to my thyroid. It was visibly swollen during pregnancy, but it did go away. That was 5 years ago and it didn't return with the next two pregnancies, thank goodness. No one could find anything wrong with me and it was very frustrating.

You should probably have something checked though. My voice never changed. Not to alarm you and this probably isn't your problem, but my cousin's wife had some rare throat cancer. It did change her voice though and I don't think she ever had relief during the day at any point. It sounds like it might be your thyroid. If you are cold, that is another symptom of thyroid problems.

Hope you figure it all out.

Monica

mommida Enthusiast

You should get your thyroid checked, by an endocronologist. The thyroid could be enlarged or it could have nodules.

Laura


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Danijela Contributor

hey!

I just noticed yesterday that the skin in the centre of my neck has changed texture and colour just in one spot.... does any one know what this is? and should i be alarmed???

I'm still waiting to hear back about my appointment with the new endocronologist

thanks

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,385
    • Most Online (within 30 mins)
      7,748

    Jenal
    Newest Member
    Jenal
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.9k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      If you have been eating the gluten equivalent of 4-6 slices of wheat bread daily for say, 4 weeks, I think a repeat blood test would be valid.
    • englishbunny
      it did include Total Immunoglobin A which was 135, and said to be in normal range. when i did the blood test in January I would say I was on a "light' gluten diet, but def not gluten free.  I didn't have any clue about the celiac thing then.  Since then I have been eating a tonne of gluten for the purpose of the endoscopy....so I'm debating just getting my blood test redone right away to see if it has changed so I'm not waiting another month...
    • trents
      Welcome to the forum, @englishbunny! Did your celiac panel include a test for "Total IGA"? That is a test for IGA deficiency. If you are IGA deficient, other IGA test resultls will likely be falsely low. Were you by any chance already practicing a reduced gluten free diet when the blood draw was done?
    • englishbunny
      I'm upset & confused and really need help finding a new gastro who specializes in celiac in California.  Also will welcome any insights on my results. I tested with an isolated positive for deamidated IGA a few months ago (it was 124.3, all other values on celiac panel <1.0), I also have low ferritin and Hashimotos. Mild gastro symptoms which don't seem to get significantly worse with gluten but I can't really tell... my main issues being extreme fatigue and joint pain. The celiac panel was done by my endocrinologist to try and get to the bottom of my fatigue and I was shocked to have a positive result. Just got negative biposy result from endoscopy. Doctor only took two biopsies from small intestine (from an area that appeared red), and both are normal. Problem is his Physician's Assistant can't give me an answer whether I have celiac or not, or what possible reason I might have for having positive antibodies if I don't have it. She wants me to retest bloods in a month and says in the meantime to either "eat gluten or not, it's up to you, but your bloodwork won't be accurate if you don't" I asked if it could be I have early stage celiac so the damage is patchy and missed by only having two samples taken, and she said doctor would've seen damaged areas when performing endoscopy (?) and that it's a good sign if my whole intestine isn't damaged all over, so even if there is spotty damage I am fine.  This doesn't exactly seem satisfactory, and seems to be contrary to so much of the reading and research I have done. I haven't seen the doctor except at my endoscopy, and he was pretty arrogant and didn't take much time to talk. I can't see him or even talk to him for another month. I'm really confused about what I should do. I don't want to just "wait and see" if I have celiac and do real damage in the meantime. Because I know celiac is more that just 'not eating bread' and if I am going to make such a huge lifestyle adjustment I need an actual diagnosis. So in summary I want to find another doctor in CA, preferably Los Angeles but I don't care at this stage if they can do telehealth! I just need some real answers from someone who doesn't talk in riddles. So recommendations would be highly welcomed. I have Blue Shield CA insurance, loads of gastros in LA don’t take insurance at all 😣
    • trents
      Okay, Lori, we can agree on the term "gluten-like". My concern here is that you and other celiacs who do experience celiac reactions to other grains besides wheat, barley and rye are trying to make this normative for the whole celiac community when it isn't. And using the term "gluten" to refer to these other grain proteins is going to be confusing to new celiacs trying to figure out what grains they actually do need to avoid and which they don't. Your experience is not normative so please don't proselytize as if it were.
×
×
  • Create New...