Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dont Know What To Do


minibabe

Recommended Posts

minibabe Contributor

So I email my shampoo company and it is the best product.....I love it. I use the John Frieda brillian burnette and it does amazing things for my hair :) .

But here is what they said............

Dear Amanda:

We appreciate your interest in our John Frieda products.

We cannot guarantee that any of our products are always gluten free. Our vendors can change the source for each ingredient at any time due to market conditions.

Cordially,

Kao Brands Consumer Relations Department

Ban Biore Curel Jergens John Frieda

I am so upset......I dont know what to do. I dont know if I have an allergic raction to shampoo or not. how do I find out?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Moongirl Community Regular

I used to use that too, until they said the same thing to me. I wont use it anymore. I just replaced it with Fructis, i like it a lot more, and its half the price.

KayJay Enthusiast

I stopped using that brand because it said wheat on the ingredients. I use dove and really like it.

tiredofdoctors Enthusiast

I'd just write a note back telling them that, given that they have little regard for keeping abreast of the ingredients in their products, and for the lack of interest in the the health of their consumers, that you will no longer be using their products. In addition, you will be posting their response on the Celiac forum so that other gluten-intolerant patients will know of their apathy, and you will also encourage your friends to discontinue purchasing their products. At least you might get their attention.

casnco Enthusiast
I'd just write a note back telling them that, given that they have little regard for keeping abreast of the ingredients in their products, and for the lack of interest in the the health of their consumers, that you will no longer be using their products. In addition, you will be posting their response on the Celiac forum so that other gluten-intolerant patients will know of their apathy, and you will also encourage your friends to discontinue purchasing their products. At least you might get their attention.

GREAT suggestion.

minibabe Contributor
I'd just write a note back telling them that, given that they have little regard for keeping abreast of the ingredients in their products, and for the lack of interest in the the health of their consumers, that you will no longer be using their products. In addition, you will be posting their response on the Celiac forum so that other gluten-intolerant patients will know of their apathy, and you will also encourage your friends to discontinue purchasing their products. At least you might get their attention.

I def. think that I am going to do that, but how do I find out if I have a problem with having gluten in my shampoo. Are there any symptoms that anyone else experiences?

thank you

TinkerbellSwt Collaborator

I just found out I have the same problem. I just read my shampoo bottle and it has wheat in it. I dont know what to do. I really cant use the stuff you buy in supermarkets.. makes my hair fall out. The stuff I use now is 30.00 a bottle. I have the shampoo and conditioner. If anyone has any suggestions I would love to know. Oh and the brand of shampoo I use is Frederic Fekkai, so if anyone is using it... check your ingredients.

Tinkerbell


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient
I just found out I have the same problem. I just read my shampoo bottle and it has wheat in it. I dont know what to do. I really cant use the stuff you buy in supermarkets.. makes my hair fall out. The stuff I use now is 30.00 a bottle. I have the shampoo and conditioner. If anyone has any suggestions I would love to know. Oh and the brand of shampoo I use is Frederic Fekkai, so if anyone is using it... check your ingredients.

Tinkerbell

I use products from The Gluten Free Savonnerie (www.gfsoap.com). I was getting sick from my hair gel that contained wheat. My hair had gotten very dry and had begun to fall out--(I was getting lots of it between my fingers every day in the shower). I'm sure a lot of that was due to my being sick. I like that the shampoo and conditioner I use now are even made in a gluten-free facility, so I don't have to worry about it. Added bonus--my hair is healthy and shiny, and it has stopped falling out.

mbg98 Contributor
I just found out I have the same problem. I just read my shampoo bottle and it has wheat in it. I dont know what to do. I really cant use the stuff you buy in supermarkets.. makes my hair fall out. The stuff I use now is 30.00 a bottle. I have the shampoo and conditioner. If anyone has any suggestions I would love to know. Oh and the brand of shampoo I use is Frederic Fekkai, so if anyone is using it... check your ingredients.

Tinkerbell

I'm with you, going through my shampoo changes now. I love Pureology products, some do have wheat you will just have to read the ingredients but the products are great. That's what I am switching to.it is about $17.00 a bottle but it's good stuff!

Good luck!

TinkerbellSwt Collaborator

Thanks to both of you. Maybe that is my problem, my sickness is making my hair fall out and such. I have sooo much hair its hard to tell how much is falling out sometimes. I will look for both brands of shampoos and give them a try. Anything if it helps me feel better!

Thanks again!

Tinkerbell

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,509
    • Most Online (within 30 mins)
      7,748

    Mr-Collateral531
    Newest Member
    Mr-Collateral531
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.2k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Your doctor may or may not be well-informed about the issue you raise so I would not agree that he/she would necessarily be the best person to rely on for a good answer. The question actually raises two issues.  The first issue has to do with cross contamination and individual sensitivity as dublin55 alluded to. Oats and wheat are both cereal grains that are typically grown in the same areas, transported in the same trucks, stored in the same silos and processed on the same equipment. So, there is usually significant CC (Cross Contamination). With gluten free oats, there is some effort to separate these processes that would otherwise cause significant CC and "gluten free" oats should meet the FDA requirement of not exceeding 20 ppm of gluten. But this 22 ppm standard is not strict enough for more sensitive celiacs. "Certified gluten free" oats (and other food products are held to a stricter standard, that being not exceeding 10 ppm. But even that is too much gluten for some super sensitive celiacs and will cause a reaction. The second issue with oats has nothing to do with gluten per se but with the protein found in oats called "avenin". Avenin has a structure similar enough to gluten to cause a reaction in some celiacs. This is called "cross reaction" not to be confused with "cross contamination" discussed in the previous paragraph. So, for whatever reason, whether cross contamination or cross reaction, it is estimated that about 10% of celiacs react to oats.
    • dublin555
      Karen, that sounds really tough. You must find both RA management and your new gut problems extremely irritating to handle at once. Together with your pain relief you still experience ongoing bloating complications that drag on without a resolution. Of course visiting a doctor to obtain a proper celiac diagnostic evaluation becomes necessary when no formal diagnosis has been received. Your journey toward recovery has been lengthy yet it brings comfort to notice your progress during this time. This support group offers you valuable help because there are people experiencing the same concerns with you. Working through your issues will be easier.
    • dublin555
      Yeah, it’s tricky. I’ve seen a lot of mixed opinions too. Some folks can tolerate certified gluten-free oats without a problem, but others with celiac still react. Honestly, it really depends on your sensitivity. Your doctor would be the best person to ask about your specific situation.
    • Matt13
      Hi guys! Can we eat them an can they cause villious atrophy? I saw multiple articles about it an they have very different opinions… so what did your doctor told you? Thanks!
    • robingfellow
      I can't edit my posts, but I forgot to note as well: I also had low iron and vitamin d according to my blood tests, despite already taking supplements for each
×
×
  • Create New...