so i got my latest bloodwork for vitamins/minerals etc..

[DJFL77I]

 

https://i.postimg.cc/HWvwNkYb/hello.webp

everything with Vitamins and minerals and blood looks in range besides some of my liver values still being wonky which I thought would've normalized by now after being off gluten for 2 1/2 months ??      strange thing is those values were actually back to normal at one point when i was still eating gluten and undiagnosed back in April..  even in June.. they were better than now...

Had all tests done by my GI Dr back in march related to liver and everything came back negative..  and CT scan saw nothing strange..

anyway, I attached the document..

have a Dr appointment today at 2:30 to go over this stuff....

 

[DJFL77I]

not sure why the attachment is coming out so tiny.. here's a direct link

https://postimg.cc/V5M0r1bN

[cyclinglady]

What did your doctor say?  

[DJFL77I]

said I dont need a multi vitamin based on everything being normal.. 

Wasn't very concerned about enzyme .. as it's not super high and had all important tests done already.  said it could be from multi vitamin overloading liver..  or gastric issue / leaky gut......   

 so I'm off the vitamins and just watch 

[cyclinglady]

Ok!  Great news!  Like me, you were not deficient.  Maybe you were, who knows?   But you could become deficient (anyone could) if you start consuming junk food or have a lot of gluten exposures.    So maintain your healthy diet, which I know you do.  

[DJFL77I]

Not sure how my calcium levels are so high for example since I havent been drinking milk or eating cheese for several months.. and I lost a lot of weight after going gluten free..

I was sure I had to be be deficient in at least something since most newly diagnosed people are.. 

[cyclinglady]

Milk is not the only food source for calcium.  
 

Not all newly diagnosed celiacs are deficient.  Look at studies and not just member comments on this forum.  Most long term members have their own cause or agenda.  For example, I push for the complete celiac panel since I test positive to only the DGP IgA.  I would hate for others to continue to suffer and remain undiagnosed just because they did not test like the vast majority.  I also let people know that you can be asymptomatic or not have GI problems since anemia was really my only symptom when I was diagnosed.  

[DJFL77I]

I've read that like 80% of newly diagnosed are deficient

[cyclinglady]

Celiac.com just published an article last month on this topic.  The percentage of celiac with deficiencies vary depending on the mineral or vitamin.   Read the cited study for details.  Iron deficiency were around 80%, but not all.  
 

read

[zenith12]

On 9/11/2020 at 5:37 AM, DJFL77I said:

 

https://i.postimg.cc/HWvwNkYb/hello.webp

everything with Vitamins and minerals and blood looks in range besides some of my liver values still being wonky which I thought would've normalized by now after being off gluten for 2 1/2 months ??      strange thing is those values were actually back to normal at one point when i was still eating gluten and undiagnosed back in April..  even in June.. they were better than now...

Had all tests done by my GI Dr back in march related to liver and everything came back negative..  and CT scan saw nothing strange..

anyway, I attached the document..

have a Dr appointment today at 2:30 to go over this stuff....

 

Regular docs labs are kinda worthless as i been slightly borderline anemic all my life but when ever i got blood tests from normal docs, it said in range and not anemic.  When i was 27,  a  clinical research doctor at  Quintiles, said MY red blood cell counts are low. So duh she figure it out and so did the  N D doc by looking at my tongue in 2017. Now  I am probably not since I eat meat 3 times per day. And gave up gluten long ago. My tounge is pinker now.  But it  is kinda like what kind of test are the regular docs given compared to another regular doc at a paid research facility where you get paid to take meds etc.  Ummmm must be different tests.  So i cant take viamins since i am alergic to corn,  rice, wheat. But i eat whole foods so I think i am good. I am alergic to all chemicals and  rubbing alchohol so I am gonna cancel that one doc appmnt where i have a blood draw since i dont trust them. But doesn't matter since their tests are worthless. Last blood draw was in 2016 I think an I was normal every where. Got diagnosed with celiacs in 2017.  My only issue  is   MCS and now reacting to smells especially hand sanitizer.  I just have to stay away from all ppl and my pituitary gland will heal.  I just became alergic to all chemicals basically. Tampons, floss.   So now i buy non petroleum floss. etc etc.  And I know there are other ppl like me who have  MCS, adrenal fatigue and celiacs. IT all goes together but mine is pit issue and not my adrenals. (pituitary gland).   (mcs)   Mulitple chemical sensitivity.  My body is just out of wack since just a month ago i reacted hardly to the rubbing alchohol. WHich is  CORN AND RYE DERRIVITIVE.  No wonder it phucked me up so bad. RYE is gluten!!!!  I knew it was a corn derrivive but I didn't know rye.  I am typing all this  so somebody can learn from me. Thanks and good luck to your health and blood work.

[Posterboy]

On 9/12/2020 at 3:24 AM, DJFL77I said:

said I dont need a multi vitamin based on everything being normal.. 

Wasn't very concerned about enzyme .. as it's not super high and had all important tests done already.  said it could be from multi vitamin overloading liver..  or gastric issue / leaky gut......   

 so I'm off the vitamins and just watch 

DJFL,

You might have developed Gastric Beri Beri.

Here is some research about it entitled "Elevated Lactate Secondary to Gastrointestinal Beriberi"

 https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4699997/

Read it all when you get a chance I will quote the part discussing the unexplained elevated liver enzymes

"Meanwhile, the patient’s liver function tests worsened to an AST of 134 and an alanine aminotransferase (ALT) of 187 IU/L by day 10"

quoting again

"The patient was discharged on hospital day 13 with all of his symptoms resolved. His thiamine level that had been drawn prior to treatment returned at 44 nmol/L (normal 78–185 nmol/L). A brief encounter with the patient 7 months later found him taking thiamine supplementation and doing well."

You could also developed have SIBO as part of your Celiac disease diagnosis.

High elevated Folic Acid levels can be a sign of undiagnosed SIBO.

Here is some research about it entitled  (Elevated) "Folate Levels in Patients With Small Intestinal Bacterial Overgrowth (SIBO)"

https://journals.lww.com/ajg/fulltext/2014/10002/folate_levels_in_patients_with_small_intestinal.1790.aspx

I hope this is helpful but it is not medical advise.

Posterboy,

[DJFL77I]

I have an appointment with my new gi doctor next month.. I'll mention to him.

[DJFL77I]

I doubt it would come back low though since all other vit and minerals are normal

[Bebygirl]

On 9/11/2020 at 6:37 AM, DJFL77I said:

 

https://i.postimg.cc/HWvwNkYb/hello.webp

everything with Vitamins and minerals and blood looks in range besides some of my liver values still being wonky which I thought would've normalized by now after being off gluten for 2 1/2 months ??      strange thing is those values were actually back to normal at one point when i was still eating gluten and undiagnosed back in April..  even in June.. they were better than now...

Had all tests done by my GI Dr back in march related to liver and everything came back negative..  and CT scan saw nothing strange..

anyway, I attached the document..

have a Dr appointment today at 2:30 to go over this stuff....

 

I have a similar blood report, I also have fatty liver, I have had to limit my total fat intake, I feel pain In my gallbladder when I eat eggs for instance, I’ve also only been gluten free for a month, I have scalp psoraisis, back pain, Alopecia, Seborrhoeic dermatitis, and very dry hair, I have increased my Vitamin D, Magnesium, Biotin, Folate, and other supplements, my alopecia stopped in this month, and my nails are growing stronger again. I am not sure if this helps, but since having Celiac my body has not been able to get vital nutrients, so I would expect yours is similar in that your body has been starved of them for quite some time. If you notice that you have pain in your upper right quadrant it is the liver and gallbladder areas and they are prone to take quite a beating from our disease. Like celiac, fatty liver is only helped by diet and nothing else. I would suggest either meeting with a dietician or doing some research. Also of interest, please check your toothpaste, shampoo, and other toiletries, nasty gluten and Tocopherol is hiding there and can still cause a boatload of issues. One last thing, I noticed with increased Vitamin D, my back pain is Nill until it wears off which is 24 hours, and my hair is very dry again. Keep us posted as I too am curious.

[DJFL77I]

Don't have fatty liver.... never drank alchy or anything like that in my life.. always exercised and ate pretty healthy... had all tests done on liver and were all normal.. also ct scan...   I have gastritis also though which can cause upper right quadrant discomfort .. 

End of this month will be about 3 months off gluten for me.

[DJFL77I]

Only thing I use is tooth paste and soap.. 😶

[cyclinglady]

2 hours ago, Bebygirl said:

I have a similar blood report, I also have fatty liver, I have had to limit my total fat intake, I feel pain In my gallbladder when I eat eggs for instance, I’ve also only been gluten free for a month, I have scalp psoraisis, back pain, Alopecia, Seborrhoeic dermatitis, and very dry hair, I have increased my Vitamin D, Magnesium, Biotin, Folate, and other supplements, my alopecia stopped in this month, and my nails are growing stronger again. I am not sure if this helps, but since having Celiac my body has not been able to get vital nutrients, so I would expect yours is similar in that your body has been starved of them for quite some time. If you notice that you have pain in your upper right quadrant it is the liver and gallbladder areas and they are prone to take quite a beating from our disease. Like celiac, fatty liver is only helped by diet and nothing else. I would suggest either meeting with a dietician or doing some research. Also of interest, please check your toothpaste, shampoo, and other toiletries, nasty gluten and Tocopherol is hiding there and can still cause a boatload of issues. One last thing, I noticed with increased Vitamin D, my back pain is Nill until it wears off which is 24 hours, and my hair is very dry again. Keep us posted as I too am curious.

Fatty liver has traditionally be associated with alcoholism.  Now, it is very common.  Doctors suspect sugar (lots of carbs) and not fat.  Especially corn syrup found in soft drinks.  Please google this topic or read this:

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4405421/

[cyclinglady]

7 hours ago, DJFL77I said:

I have an appointment with my new gi doctor next month.. I'll mention to him.

Your labs look great for someone who has been on the diet for just a few months and your doctor agreed, right?  Just stay the course and I am confident you will see continue to see improvement.  Celiac disease requires patience.  It took you way while to get sick and it will take time to heal.  

Edited September 15, 2020 by cyclinglady

[DJFL77I]

41 minutes ago, cyclinglady said:

Doctors suspect sugar (lots of carbs) and not fat.  Especially corn syrup found in soft drinks.

Never drank soft drinks much...   I've literally only  been drinking water and milk for last 10 years...     

 

 

[Posterboy]

11 hours ago, DJFL77I said:

I have an appointment with my new gi doctor next month.. I'll mention to him.

 

10 hours ago, DJFL77I said:

I doubt it would come back low though since all other vit and minerals are normal

DJFL,

I was referring to having your new doctor test for SIBO.  Celiac disease and SIBO can often occur together.

Here is some articles about SIBO and how to test for it and its commonality in other GI diseases like IBS.

One entitled "Small intestinal bacterial overgrowth (SIBO): a framework for understanding irritable bowel syndrome"

https://pubmed.ncbi.nlm.nih.gov/15316000/

And this one entitled "Normalization of lactulose breath testing correlates with symptom improvement in irritable bowel syndrome. a double-blind, randomized, placebo-controlled study"

https://pubmed.ncbi.nlm.nih.gov/12591062/

The association of SIBO with IBS doesn't stop there here is an article that shows it's (SIBO's) association in Celiac disease.

https://www.celiac.com/celiac-disease/bacterial-overgrowth-of-small-intestine-common-in-treated-celiac-disease-r791/

If you want to read more about how these are associated/connected conditions I explained this connection further in my Posterboy blog post about why someone should supplement with Thiamine for a "Season in Time"

https://www.celiac.com/blogs/entry/2731-a-case-for-thiamine-supplemenation-in-celiacs-if-only-for-a-season-in-time/

Be sure to read all way to the bottom....I don't mention the SIBO/Celiac association to closer to the end of the blog post.

You should try the Baking Soda test for Low Stomach acid.....SIBO and Low stomach often occur together.

Here is a nice article about it....again read to the bottom where he explains how to use the Baking Soda test to see if are low in stomach acid and is going misdiagnosed or undiagnosed.

https://drjockers.com/5-ways-test-stomach-acid-levels/

I hope this is helpful but it is not medical advise.

Posterboy,

[DJFL77I]

I already had an endoscopy and biopsies..  they would have seen sibo..

My mother had sibo...  you have constant gas like 24/7...  but I'll mention it.

[Posterboy]

DJFL,

I am not an expert on whether you can "see SIBO" or not....but you might be thinking about Chrons....

They have a "Lactulose breath test" they can do for SIBO....

See the links in the previous response..

I hope this is helpful.

Posterboy,

[Posterboy]

7 hours ago, Bebygirl said:

I have scalp psoraisis, back pain, Alopecia, Seborrhoeic dermatitis, and very dry hair, I have increased my Vitamin D, Magnesium, Biotin, Folate, and other supplements, my alopecia stopped in this month, and my nails are growing stronger again. I am not sure if this helps, but since having Celiac my body has not been able to get vital nutrients, so I

Bebygirl,

You might try adding Riboflavin to your regimen.  It is associated with Seborrhoeic Dermatitis....

Here is a couple links about it.....

https://www.pharmacytimes.com/resource-centers/vitamins-supplements/riboflavin-evolving-clinical-indications

https://www.ncbi.nlm.nih.gov/books/NBK525977/

It is associated with Sebo on the face....mine presented with Angular Cheilitis and horrible Dandruff.

After a few days it will turn your urine yellow......after a couple months after your urine "glows" in the dark....is how you can tell you have gotten enough of it...

Drink some milk if you can handle it....it is good source of Riboflavin.....but be sure to take these precautions to ensure your dairy/milk has good Riboflavin content and is not leached out of your milk from improper storage in clear containers quoting from  the StatsPearl article.

"Milk and dairy products have very high riboflavin content; dairy intake is the most significant contributor of the vitamin in Western diets, making riboflavin deficiency uncommon among water-soluble vitamins. However, in developed countries, there is an increased intake of semi-skimmed milk, depleting milk of its riboflavin content. Although relatively stable, it easily degrades by light exposure. Milk kept in a glass bottle may be susceptible to degradation through this route."

I hope this is helpful but it is not medical advise.

Posterboy,

[Bebygirl]

On 9/15/2020 at 6:06 PM, Posterboy said:

Bebygirl,

You might try adding Riboflavin to your regimen.  It is associated with Seborrhoeic Dermatitis....

Here is a couple links about it.....

https://www.pharmacytimes.com/resource-centers/vitamins-supplements/riboflavin-evolving-clinical-indications

https://www.ncbi.nlm.nih.gov/books/NBK525977/

It is associated with Sebo on the face....mine presented with Angular Cheilitis and horrible Dandruff.

After a few days it will turn your urine yellow......after a couple months after your urine "glows" in the dark....is how you can tell you have gotten enough of it...

Drink some milk if you can handle it....it is good source of Riboflavin.....but be sure to take these precautions to ensure your dairy/milk has good Riboflavin content and is not leached out of your milk from improper storage in clear containers quoting from  the StatsPearl article.

"Milk and dairy products have very high riboflavin content; dairy intake is the most significant contributor of the vitamin in Western diets, making riboflavin deficiency uncommon among water-soluble vitamins. However, in developed countries, there is an increased intake of semi-skimmed milk, depleting milk of its riboflavin content. Although relatively stable, it easily degrades by light exposure. Milk kept in a glass bottle may be susceptible to degradation through this route."

I hope this is helpful but it is not medical advise.

Posterboy,

Oh my stars, that is EXACTLY what I am missing, I just know it, thanks for the 411, naturally if we don’t eat wheat and other byproducts, then we will definitely be deficient in it, I just hadn’t been able to put my finger on it until now. Thanks so much!

[Bebygirl]

On 9/15/2020 at 12:37 PM, cyclinglady said:

Fatty liver has traditionally be associated with alcoholism.  Now, it is very common.  Doctors suspect sugar (lots of carbs) and not fat.  Especially corn syrup found in soft drinks.  Please google this topic or read this:

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4405421/

My husband has NASH, but he hates sugar, sweets, doesn’t eat much to begin with, not a soda drinker, so we cannot figure out how he has this. He recently got rid of H Pylori, and has gained about 10 pounds, but he is only 140 and 5’8”, so we are perplexed, except for I think he has Gluten Intolerance.