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Can Celiac Disease cause Nausea?

Bouchra
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Bouchra Rookie
Bouchra
Posted
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11 hours ago, Neytiri said:

You're welcome ! 😍😊 hope for the better 🙏

Hi Dear, You got love this. I am officially 100% gluten-free for the rest of my life. But I have something else cooking inside my stomach. It is not cancer but it “s related to Celiac Family :) I have no idea what it is. Dr couldn’t tell me. But I have to wait for the result of biopsy. I guess Celiac has family that I am not a wear of. My number were high on gluten 82%. Dr reffed me to see nutrition which I expected.  Then the hospital has wrong information in my chart about my illness. You couldn’t believe what they wrote there. I don’t understand why this people put wrong information and diagnose on my chart. My heart rates was high. I told them my anxiety level is higher. Plus I got mad after they read to me the reason why I am having endoscopy done and biopsy plus someone wrote on my chart I had surgery on 2016. Now I have to wait for the result:( I was watching my stomach on TV :) it funny how things happen. I have so many questions about gluten free food to buy. But I don’t know from where to start. God bless you for your help and support 🌺❤️😔

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Bouchra Rookie
Bouchra
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On 9/28/2020 at 6:23 PM, GFinDC said:

Hi Bouchra,

I hope you get a clear diagnosis from your tests.  But it sounds like you already know you have celiac disease and just haven't been following the gluten-free diet.  Since celiac disease has no cure it doesn't go away.  So new testing can confirm celiac or if you haven't been eating gluten long enough it may give a false negative.  They used to say 12 weeks of eating gluten before blood testing and 2 weeks eating gluten before the endoscopy and I think that is still the University of Chicago celiac center recommendation.

People with celiac who go gluten-free sometimes expect they will be quickly healed and feel much better.  But the reality is it can takes months or years to heal the damage celiac causes.  And the amount of gluten it takes to make a person sick is vey small.  So going 95% gluten-free is about like not going gluten-free at all.  We have to be careful of cross contamination and shared utensils and pots, toasters etc.

But being 100% gluten-free is the way to go to get healed and healthy.  We don't absorb nutrients well with a damaged gut so many body systems can do poorly because of that issue.

I can tell you I went gluten-free and felt better but did not feel a lot better for 5 years.  It doesn't take that long for everyone but for some it does.

Hi, This is the third time I got diagnosed with celiac disease but Dr told me my stomach is getting sensitive plus there is something in my stomach is causing inflammation and he told it”s part of Celiac Family I am 100% gluten-free. Which I know. But I have to wait for the result of the biopsy. I am mentally exhausted and I don’t know from where to start. Now I am getting more depressed because Dr confused me more when he said celiac family. I never heard about it. Thank you so much for your help and your support, Bouchra 

Neytiri Explorer
Neytiri
Posted
10 hours ago, Bouchra said:

Hi Dear, You got love this. I am officially 100% gluten-free for the rest of my life. But I have something else cooking inside my stomach. It is not cancer but it “s related to Celiac Family :) I have no idea what it is. Dr couldn’t tell me. But I have to wait for the result of biopsy. I guess Celiac has family that I am not a wear of. My number were high on gluten 82%. Dr reffed me to see nutrition which I expected.  Then the hospital has wrong information in my chart about my illness. You couldn’t believe what they wrote there. I don’t understand why this people put wrong information and diagnose on my chart. My heart rates was high. I told them my anxiety level is higher. Plus I got mad after they read to me the reason why I am having endoscopy done and biopsy plus someone wrote on my chart I had surgery on 2016. Now I have to wait for the result:( I was watching my stomach on TV :) it funny how things happen. I have so many questions about gluten free food to buy. But I don’t know from where to start. God bless you for your help and support 🌺❤️😔

Bouchra, I'm so sorry to hear these news :( these doctors are truly shallow and clumsy ! You cannot write something wrong on such important papers ! 😠

As regards this "celiac family", unfortunately I've never heard about this :( however, it's good news that it's not cancer : that would have been worse ;)

As concerns instead the gluten-free products, I suggest you to buy ONLY certified gluten-free products (here in Italy they use a specific symbol on the packages) and be careful not to contamine your kitchen utensils and pots with gluten

Let us know the definitive result :)

God bless you too for you being good company 😊🙏❤

Scott Adams Grand Master
Scott Adams
Posted

@Bouchra hopefully the 3rd time is the charm! Actually it's pretty awful that this is still happening given the vast amount of information that anyone can find with a simple search about celiac disease. You should only need to be diagnosed once, and then should go gluten-free for life right after, no if's, and's, or but's! There is no such thing as "celiac family", but your direct family members need to also now be screened for celiac disease, as there is a much higher chance that some of them also have it...hopefully that's what your doctor meant! 😉

Bouchra Rookie
Bouchra
Posted
  • Author
5 minutes ago, Scott Adams said:

@Bouchra hopefully the 3rd time is the charm! Actually it's pretty awful that this is still happening given the vast amount of information that anyone can find with a simple search about celiac disease. You should only need to be diagnosed once, and then should go gluten-free for life right after, no if's, and's, or but's! There is no such thing as "celiac family", but your direct family members need to also now be screened for celiac disease, as there is a much higher chance that some of them also have it...hopefully that's what your doctor meant! 😉

Hi Scott, Non of my family got it except me. When the Dr told me. “ Part of celiac disease”s family” I asked him if it”s gallbladder” Because my dad had it removed. He told me “ No!! could be lupus? Or something from celiac disease. And he told me I will see in month. I can’t wait for the result of the biopsy. I already start my diet today. But I am felling depressed I have no energy to do anything. I was surprised about the mistakes they had on my chart. The nurse thought I am having test done because of the diarrhea. I told her “ No the nausea!!” Plus other mistake they had. I am glad I correct the mistake. I feel so hopeless 😩. Thank you so much for your support. Bouchra 

Scott Adams Grand Master
Scott Adams
Posted

If I were you I would call your doctor and get the OK to go gluten-free now, if you aren't currently. You only need to eat gluten until the tests are done.

Bouchra Rookie
Bouchra
Posted
  • Author
48 minutes ago, Scott Adams said:

If I were you I would call your doctor and get the OK to go gluten-free now, if you aren't currently. You only need to eat gluten until the tests are done.

He told me I have celiac disease and I have to eat gluten-free for the rest of my life. He put it in my chart and he told me he will refer me to see nutrition which I did on 1998 in Boston. He told me about it when I was in recovery room. 

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    • Scott Adams
      How many grams is there in one slice of wheat bread?

      By Scott Adams · Posted

      The first set of results show two positive results for celiac disease, so at the very least it looks like you could have it, or at the least NCGS.   Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.      
    • Scott Adams
      Confused with test results

      By Scott Adams · Posted

      Elevated tissue transglutaminase IgA (tTG-IgA) levels are highly specific for celiac disease, and they are a key biomarker used in its diagnosis. However, there are some rare instances where elevated tTG-IgA levels have been reported in conditions other than celiac disease. While these cases are not common, they have been documented in the literature. Below are some examples and references to studies or reviews that discuss these scenarios:  1. Non-Celiac Gluten Sensitivity (NCGS)    - NCGS typically does not cause elevated tTG-IgA levels, as it is not an autoimmune condition. However, some individuals with NCGS may have mild elevations in tTG-IgA due to intestinal inflammation or other factors, though this is not well-documented in large studies.    - Reference: Catassi, C., et al. (2013). *Non-Celiac Gluten Sensitivity: The New Frontier of Gluten-Related Disorders*. Nutrients, 5(10), 3839–3853. [DOI:10.3390/nu5103839](https://doi.org/10.3390/nu5103839)  2. Autoimmune Diseases    - Elevated tTG-IgA levels have been reported in other autoimmune conditions, such as type 1 diabetes, autoimmune hepatitis, and systemic lupus erythematosus (SLE). This is thought to be due to cross-reactivity or polyautoimmunity.    - Reference: Sblattero, D., et al. (2000). *The Role of Anti-Tissue Transglutaminase in the Diagnosis and Management of Celiac Disease*. Autoimmunity Reviews, 1(3), 129–135. [DOI:10.1016/S1568-9972(01)00022-3](https://doi.org/10.1016/S1568-9972(01)00022-3)  3. Chronic Liver Disease    - Conditions like chronic hepatitis or cirrhosis can sometimes lead to elevated tTG-IgA levels, possibly due to increased intestinal permeability or immune dysregulation.    - Reference: Vecchi, M., et al. (2003). *High Prevalence of Celiac Disease in Patients with Chronic Liver Disease: A Role for Gluten-Free Diet?* Gastroenterology, 125(5), 1522–1523. [DOI:10.1016/j.gastro.2003.08.031](https://doi.org/10.1016/j.gastro.2003.08.031)  4. Inflammatory Bowel Disease (IBD)    - Some patients with Crohn’s disease or ulcerative colitis may have elevated tTG-IgA levels due to intestinal inflammation and damage, though this is not common.    - Reference: Walker-Smith, J. A., et al. (1990). *Celiac Disease and Inflammatory Bowel Disease*. Journal of Pediatric Gastroenterology and Nutrition, 10(3), 389–391. [DOI:10.1097/00005176-199004000-00020](https://doi.org/10.1097/00005176-199004000-00020)  5. Infections and Parasites    - While infections (e.g., giardiasis) are more commonly associated with false-positive tTG-IgA results, chronic infections or parasitic infestations can sometimes lead to elevated levels due to mucosal damage.    - Reference: Rostami, K., et al. (1999). *The Role of Infections in Celiac Disease*. European Journal of Gastroenterology & Hepatology, 11(11), 1255–1258. [DOI:10.1097/00042737-199911000-00010](https://doi.org/10.1097/00042737-199911000-00010)  6. Cardiac Conditions    - Rarely, heart failure or severe cardiovascular disease has been associated with elevated tTG-IgA levels, possibly due to gut ischemia and increased intestinal permeability.    - Reference: Ludvigsson, J. F., et al. (2007). *Celiac Disease and Risk of Cardiovascular Disease: A Population-Based Cohort Study*. American Heart Journal, 153(6), 972–976. [DOI:10.1016/j.ahj.2007.03.019](https://doi.org/10.1016/j.ahj.2007.03.019)  Key Points: - Elevated tTG-IgA levels are highly specific for celiac disease, and in most cases, a positive result strongly suggests celiac disease. - Other conditions causing elevated tTG-IgA are rare and often accompanied by additional clinical findings. - If celiac disease is suspected, further testing (e.g., endoscopy with biopsy) is typically required for confirmation. If you’re looking for more specific studies, I recommend searching PubMed or other medical databases using terms like "elevated tTG-IgA non-celiac" or "tTG-IgA in non-celiac conditions." Let me know if you’d like help with that!
    • MaryMJ
      Water filters and gluten

      By MaryMJ · Posted

      I called zero water and they state their filters do not contain gluten or gluten containing ingredients. 
    • trents
      What should I do with these test results?

      By trents · Posted

      I agree. Doesn't look like you have celiac disease. Your elevated DGP-IGG must be due to something else. And it was within normal at that after your gluten challenge so it is erratic and doesn't seem to be tied to gluten consumption.
    • Jack Common
      How many grams is there in one slice of wheat bread?

      By Jack Common · Posted

      Hello! I want to share my situation. I had symptoms like some food intolerance, diarrhea, bloating, belching one year ago. I thought I could have celiac disease so I did the blood tests. The results were ambiguous for me so I saw the doctor and he said I needed to do tests to check whether I had any parasites as well. It turned out I had giardiasis. After treating it my symptoms didn't disappear immediately. And I decided to start a gluten free diet despite my doctor said I didn't have it. After some time symptoms disappeared but that time it wasn't unclear whether I'd had them because of eliminating gluten or that parasite. The symptoms for both are very similar. Giardiasis also damages the small intestine. The only way to check this was to start eating bread again as I thought. Now about my results.   These are my first test results (almost a year ago) when I had symptoms: The Tissue Transglutaminase IgA antibody - 0.5 U/ml (for the lab I did the tests 0.0 - 3.0 is normal) The Tissue Transglutaminase IgG antibody - 6.6 U/ml (for the lab I did the tests 0.0 - 3.0 is normal) Immunoglobulin A - 1.91 g/l (for the lab I did the tests 0.7 to 4 g/l is normal) IgA Endomysial antibody (EMA) - < 1:10 titer (for the lab I did the tests < 1:10 titer is normal) IgG Endomysial antibody (EMA) - < 1:10 titer (for the lab I did the tests < 1:10 titer is normal) Deamidated gliadin peptide IgA - 0.3 U/ml (for the lab I did the tests 0.0 - 6.0 is normal) Deamidated gliadin peptide IgG - 46.1 U/ml (for the lab I did the tests 0.0 - 6.0 is normal)   Then I didn't eat gluten for six months. Symptoms disappeared. And I started a gluten challenge. Before the challenge I did some tests. My results: The Tissue Transglutaminase IgG antibody - 0.5 U/ml (for the lab I did the tests < 20 U/ml is normal)) Deamidated gliadin peptide IgG - 28 U/ml (for the lab I did the tests < 20 U/ml is normal)   During the challenge I ate 6 slices of wheat bread. After the challenge my results are: The Tissue Transglutaminase IgA antibody - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) The Tissue Transglutaminase IgG antibody - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) Immunoglobulin A - 1.31 g/l (for the lab I did the tests 0.7 to 4 g/l is normal) Deamidated gliadin peptide IgA - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) Deamidated gliadin peptide IgG - 2.13 U/ml (for the lab I did the tests < 20 U/ml is normal)   To be sure I continued consuming gluten. I ate a lot each day. Two months after I did the tests again. My results I got today are: The Tissue Transglutaminase IgA antibody - 0.7 U/ml (for the lab I did the tests < 20 U/ml is normal) Immunoglobulin A - 1.62 g/l (for the lab I did the tests 0.7 to 4 g/l is normal) Deamidated gliadin peptide IgG - 25.6 U/ml (for the lab I did the tests < 20 U/ml is normal)   Nowadays I didn't have any symptoms except tiredness but I think it's just work. I think it was this parasite because two years ago, for example, and before I didn't have these symptoms and I always ate gluten food. But I'm still not sure especially because the Deamidated gliadin peptide IgG results are sometimes high. What do you think? @Scott Adams
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