Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

sdspain

Recommended Posts

sdspain Newbie

I have had extreme edema in my lower extremities for 20 years. Diagnosed with hyperthyroidism and had a thyroidectomy. Tried fluid pills that only helped a little. All kinds of testing including closing saphenous veins. Nothing has been found and nothing really helps. I even tried acupuncture. My acupuncturist made a comment about gluten allergy. I got curious and cut gluten out for two weeks. In that time, my brain fog started to clear. I had more energy, my edema had diminished. My skin wasn't as itchy. I started researching how auto immune diseases were a factor in gluten intolerance/celiac disease. Every symptom was getting better. I accidently ate a gluten food and swelled like a balloon, and noticed issue of not being able to think of words and forgetting. If your unsure, do your own testing. Go off gluten until you notice improvements then slowly add in oats then rye, barley and wheat. If its just a wheat allergy then you'll know as soon as your body tells you. My symptoms took 24hrs to manifest from time of ingestion. Keep a log of foods you eat and check labels. Doctors can't make money off of you so many will dismiss what you say. My suggestion is to do what makes you better and healthier. Remember, everyone's symptoms and bodies differ.l


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Scott Adams Grand Master

For those not yet diagnosed with celiac disease it might be a better approach to first get a blood test for celiac disease, especially since you can now do this mail order for under $100. If you aren’t able to do this your elimination approach is not a bad alternative, but many people with gluten sensitivity don’t have obvious symptoms.

Awol cast iron stomach Experienced

Also joining the forum here was helpful to know how to correctly maintain gluten-free diet/lifestyle on all levels. As members here know the "landmines" many newbies need to know, even if they go self elimination diet route. 

In the past I read online  reviews for restaurant s how many Celiac's go to local restaurants with gluten-free selection  etc. It can be misleading. I found the forum here saying only entirely gluten-free restaurants are safe. I found this to be true. 

The restaurant, shared manufacturing lines, variations in  labeling,  and personal care products are the  biggest risk landmine risks for those going gluten-free.

Also sticking to a whole foods diet during healing were all helpful tips that the celiac.com members warned newbies about which other articles or websites can muddy the water on these topics which can be risky for those who need to be on a medical gluten-free diet.

 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,764
    • Most Online (within 30 mins)
      7,748

    Larry Hail
    Newest Member
    Larry Hail
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Bebee
      I am new here, I have been diagnosed with Microscopic Colitis (Lymphatic) years ago and have been gluten-free, DF since, but I still can have occasional bouts of diarrhea (still trying to figure that out).  I also have MS, Hypothyroid, Arthritis, Reynaud's and my rosacea has been acting up lately.  What treatment is suggested to help with rosacea?  I would like to know too if there is a test for celiac if you have been gluten-free?   Thank you, Barb    
    • bluebird2032
      Gluten free/ non dairy , low calorie pudding ideas please?
    • K6315
      Well, that's interesting. I am lactose intolerant and have been managing that for years. I'd be interested in seeing if that changes once I feel better from not eating gluten (one thing at a time for now, though). Helpful to hear about the avenin. I will do some digging and pose that to the dietitian. Grateful for your feedback.
    • kate g
      Recently my daughter ate in nandos harlow I rang in advance to speak about the celiac protocals and learned that childs portion chicken nandinos is cooked on the same grill as garlic bread even if they are celiac! Even if you clean it this is not good practise and will be making many children ill. I learnt adults butterfly chicken cooked on a grill purely for chicken.  This is fine and what we ordered however nandos need to take note of your practises for the safety of celiac children. my daughter has been ill from their nandinos chicken before and i emailed head office and they wouldnt accept responsibility 
    • Scott Adams
      I agree with @RMJ, you have multiple positive tests so celiac disease is likely.  This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease.     
×
×
  • Create New...