Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Time from eating gluten until symptoms come?

Ladybird
 Share

Recommended Posts

Ladybird Newbie
Ladybird
Posted

Hi,

I just wondered when your symptoms appear after you have eaten gluten? Mine seem to be about 7-8 hours, does this sound like coeliac to you? Waiting on blood tests 

 

thank you 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


trents Grand Master
trents
Posted

What symptoms are you experiencing?

For me, if I get a good dose of gluten I get violent emesis for 2-3 hours followed by diarrhea for several more hours. These symptoms have their onset with 2-3 hours of eating the gluten, which is about the time it takes for food to be released from the stomach into the small bowel.

paisleydaisy Apprentice
paisleydaisy
Posted

About 24 hrs. 
With my grandmother it's 7 days, like clockwork. It must vary a lot. 

trents Grand Master
trents
Posted

Of course, it may depend on what particular symptoms you are referencing. Unlike me, some people do not experience emesis and diarrhea from gluten so some symptoms may be more delayed.

  • 1 month later...
CarouselLady Newbie
CarouselLady
Posted
On 10/15/2020 at 5:03 PM, trents said:

What symptoms are you experiencing?

For me, if I get a good dose of gluten I get violent emesis for 2-3 hours followed by diarrhea for several more hours. These symptoms have their onset with 2-3 hours of eating the gluten, which is about the time it takes for food to be released from the stomach into the small bowel.

Trents, is there anything you've found that helps with the violent emesis and diahrrea? I have the same severe reaction, within an hour usually after being glutened.  Some attacks have lasted for hours, causing dehydration and weakness.  Thankfully, it rarely happens, as I am very careful, but when it does....horrible.

trents Grand Master
trents
Posted

No I haven't. And the gut spasms are so painful I almost want to die. I don't feel like I could keep anything down even if there was something that would indeed help. It would have to be an injectable. I just lay on the floor in a ball of pain and get up to hang over the toilet and puke some more. It is obvious my body is pulling out all the stops to purge me of the toxin and I wouldn't want to interfere with that.

CarouselLady Newbie
CarouselLady
Posted
6 hours ago, trents said:

No I haven't. And the gut spasms are so painful I almost want to die. I don't feel like I could keep anything down even if there was something that would indeed help. It would have to be an injectable. I just lay on the floor in a ball of pain and get up to hang over the toilet and puke some more. It is obvious my body is pulling out all the stops to purge me of the toxin and I wouldn't want to interfere with that.

 

6 hours ago, trents said:

No I haven't. And the gut spasms are so painful I almost want to die. I don't feel like I could keep anything down even if there was something that would indeed help. It would have to be an injectable. I just lay on the floor in a ball of pain and get up to hang over the toilet and puke some more. It is obvious my body is pulling out all the stops to purge me of the toxin and I wouldn't want to interfere with that.

 

6 hours ago, trents said:

No I haven't. And the gut spasms are so painful I almost want to die. I don't feel like I could keep anything down even if there was something that would indeed help. It would have to be an injectable. I just lay on the floor in a ball of pain and get up to hang over the toilet and puke some more. It is obvious my body is pulling out all the stops to purge me of the toxin and I wouldn't want to interfere with that.

Ah, then I'm not alone in my reaction.  Much more severe than the typical celiac, from what I've researched, and harder to handle once it hits.  Wish there was something that helped, because it's debilitating when it occurs.

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


trents Grand Master
trents
Posted

The good news is that for me I think it takes a significant exposure to gluten to make me sick like that. My sense is that trace amounts don't make me acutely ill. Last year my wife made some wheat biscuits for herself and some gluten-free biscuits for me and it turned out they looked exactly the same. I accidently ate a couple three of hers one night and it made me very ill as I have described.

The bad news is I react violently like that to other things that do not have gluten. Chia seeds, hemp groats and unwashed quinoa for example. I think it must be the saponins in the seed coats. Avocados seem to make me ill as well. Some of these are things, even after Celiac diagnosis, I used to be able to eat with out issue but more recently they make me ill. I suspect I suffer from histamine intolerance.

Scott Adams Grand Master
Scott Adams
Posted
12 hours ago, CarouselLady said:

Trents, is there anything you've found that helps with the violent emesis and diahrrea? I have the same severe reaction, within an hour usually after being glutened.  Some attacks have lasted for hours, causing dehydration and weakness.  Thankfully, it rarely happens, as I am very careful, but when it does....horrible.

This article may be helpful, be sure to also look at the comments to the article:

 

Posterboy Mentor
Posterboy
Posted
On 11/22/2020 at 11:03 PM, CarouselLady said:

Trents, is there anything you've found that helps with the violent emesis and diahrrea? I have the same severe reaction, within an hour usually after being glutened.  Some attacks have lasted for hours, causing dehydration and weakness.  Thankfully, it rarely happens, as I am very careful, but when it does....horrible.

Carousel Lady,

Here is a thread that might help you.

https://www.celiac.com/celiac-disease/cytokines-trigger-gut-reaction-in-people-with-celiac-disease-r4892/

You might try taking Riboflavin....it has been used in Cycling Vomiting....

https://pubmed.ncbi.nlm.nih.gov/26226892/

It could also be a Thiamine deficiency. Here is a study about it.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4175961/

I would tell you to take a B-complex but the Thiamine in most B-complexs are not highly absorbed.

Find some Benfotiamine and take with a B-complex with your meals and it might help your Emesis.

I hope this is helpful but it is not medical advise.

Posterboy,

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      126,157
    • Most Online (within 30 mins)
      7,748
    Bronco76
    Newest Member
    Bronco76
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.2k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Muscle Twitching

      By trents · Posted

      Can you link the 2019 JAMA study? When you say "massive doses of D" how large are you talking about? 
    • Yaya
      Muscle Twitching

      By Yaya · Posted

      Thank you.  I'll run it by him on my next visit.  
    • trents
      Muscle Twitching

      By trents · Posted

      Yes, Yaya, it is possible to develop vitamin D toxicity with overdosing since it is a fat soluble vitamin but the dosage needed to get to that point is much larger than was thought years ago. Years ago, doctors were very cautious about D supplementation but more recently the medical community has relaxed their caution as it proved to be overdone. Individual practitioners are not always up to date on everything and sometimes are operating on dated information.
    • Yaya
      Muscle Twitching

      By Yaya · Posted

      Kitty, Be careful with massive transfusions of D, it's dangerous per my cardiologist.  Your note made me confirm and he's right.  I found this article called:  Too much vitamin D may harm bones, not help - Harvard Health The study was released on Dec 1, 2019 · and appeared in the Aug. 27 issue of JAMA which found that, compared with people who took moderate amounts of vitamin D, adults who took large amounts daily not only didn't see additional gains in bone density, but in some cases ended up worse off.  I especially must be careful because, like many Celiacs, I have low bone density.  I have been taking Prolia shots for about 5 years.   Also there is such a thing as vitamin D toxicity per my cardiologist.  That's why he carefully monitors my #s and wants me to raise levels slowly.   Take care.  
    • knitty kitty
      Muscle Twitching

      By knitty kitty · Posted

      Oh, @Yaya! Five years???  How awful for you to suffer so long! My Vitamin D came up in a matter of months.  High dose Vitamin D has been used in the past to correct rickets and is a safe method to correct Vitamin D deficiency.   I took 1000 IU several times a day, every day for several weeks.  I ate them like m&m's when I was severely deficient.  My brain craved them.  I felt so much better afterwards.  On maintenance dose now.  Yes, the craving went away as my level reached 80-95.   Ask your cardiologist about supplementing with.Benfotiamine.
×
×
  • Create New...