Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Pre diagnosis


Meggannn

Recommended Posts

Meggannn Rookie

I’ve been having symptoms of boating, abdominal pain, acid reflux, anxiety and nausea for about two years. I’ve recently had a gastroscopy about a week and a half ago. How long does it take to get the results and will I receive them in the post? I’m hoping to get a diagnosis soon as feeling nauseous everyday is literally ruining my life :/


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



trents Grand Master
(edited)

"Receive them in the post"? What post do you refer to? Do you mean in the follow up visit with the doctor? Did you have an endoscopy (aka, upper GI)? About a week I think.

Edited by trents
Meggannn Rookie
6 hours ago, trents said:

"Receive them in the post"? What post do you refer to? Do you mean in the follow up visit with the doctor? Did you have an endoscopy (aka, upper GI)? About a week I think.

Yes when I had a barium meal I received the results in the mail/post. Yes had upper gi (endoscopy) over a week ago, with biopsies taken.

thanks

trents Grand Master

Mail/post? Do you mean the postal service via snail mail? What country are you in? They don't do that here in the USA. For me and many others in the USA, we can check test results via our medical provider's online tool. Each patient has an account that can be accessed online where we receive messages and test results and can even schedule appointments.

Meggannn Rookie

Oh right I live in the UK so it’s abit different. We can get the results wrote to us in a letter. However wasn’t sure how long it would take as last time I waited nearly a month.

Scott Adams Grand Master

If it has been that long I would contact them, as they should have the results by now. Did you get blood tests done for celiac disease? If so, please share your results. It would be unusual for a doctor to do only the biopsy for celiac disease, but not the blood tests. Also, in the UK it is my understanding that many cases of celiac disease are currently being diagnosed with only blood tests:

 

Meggannn Rookie

Yes I had one blood test I think it was ttg and it was negative, but they said because my symptoms were strongly suggesting celiac they wanted to double check and also check for anything else aswell.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Meggannn Rookie
33 minutes ago, Scott Adams said:

If it has been that long I would contact them, as they should have the results by now. Did you get blood tests done for celiac disease? If so, please share your results. It would be unusual for a doctor to do only the biopsy for celiac disease, but not the blood tests. Also, in the UK it is my understanding that many cases of celiac disease are currently being diagnosed with only blood tests:

 

 

10 minutes ago, Meggannn said:

Yes I had one blood test I think it was ttg and it was negative, but they said because my symptoms were strongly suggesting celiac they wanted to double check and also check for anything else aswell.

also I have other autoimmune diseases and my gp has said this increases the chances. I will contact them Tomorrow and ask about the results.

thanks

Scott Adams Grand Master

If possible, please get the actual blood test results and share them here. This is because your results might be just under the cut off for celiac disease, but that certainly would not rule out gluten sensitivity, for which they currently cannot screen. Many with gluten sensitivity have elevated antibody tests, yet doctors tell them "good news, you're not a celiac and can keep eating gluten." But often it turns out they should not be eating gluten.

Meggannn Rookie
10 minutes ago, Scott Adams said:

If possible, please get the actual blood test results and share them here. This is because your results might be just under the cut off for celiac disease, but that certainly would not rule out gluten sensitivity, for which they currently cannot screen. Many with gluten sensitivity have elevated antibody tests, yet doctors tell them "good news, you're not a celiac and can keep eating gluten." But often it turns out they should not be eating gluten.

Oh right thanks I didn’t know that. On letter they only put negative so no actual results visible. I will ask them and find out results of biopsy tomorrow

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,101
    • Most Online (within 30 mins)
      7,748

    JenGnyc
    Newest Member
    JenGnyc
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.6k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • TerryinCO
      Thank you for the information. I did order/receive GliadinX to have on hand in the event of suspected exposure.
    • Dc91
      Just had a letter through from the Celiac team, they’ve diagnosed me through my bloods, no endoscopy/biopsy needed. I guess I’ll be sticking around on this forum and I’m sure I’ll be back soon. thanks for all your help 
    • trents
      I have no specific recommendations but I would suggest looking for products that are advertised as produced in a dedicated gluten-free facility. That should eliminate one possible route of cross contamination. It doesn't guarantee that none of the ingredients going into the product are totally gluten free but is should eliminate adding more CC to the mix via processing machinery.  One of the issues you may be experiencing is that testing has shown that a significant percentage of "Certified Gluten Free" products can test far in excess of 10ppm. There was an article appearing in this forum back last summer outlining the results of testing that showed this to be true. So, it may be somewhat of a pig in a poke when you buy this stuff, regardless of how it is billed. It may be safe for you if it actually fits within the stated requirements of it's billing.
    • Hauama
      I can still have a reaction from “certified gluten free” products I don’t like having to use the eat and see what my body does approach are there really any purely gluten free products or do I just have to make all of my own food? 
    • Kiwifruit
×
×
  • Create New...