Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Pre diagnosis


Meggannn

Recommended Posts

Meggannn Rookie

I’ve been having symptoms of boating, abdominal pain, acid reflux, anxiety and nausea for about two years. I’ve recently had a gastroscopy about a week and a half ago. How long does it take to get the results and will I receive them in the post? I’m hoping to get a diagnosis soon as feeling nauseous everyday is literally ruining my life :/


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



trents Grand Master
(edited)

"Receive them in the post"? What post do you refer to? Do you mean in the follow up visit with the doctor? Did you have an endoscopy (aka, upper GI)? About a week I think.

Edited by trents
Meggannn Rookie
6 hours ago, trents said:

"Receive them in the post"? What post do you refer to? Do you mean in the follow up visit with the doctor? Did you have an endoscopy (aka, upper GI)? About a week I think.

Yes when I had a barium meal I received the results in the mail/post. Yes had upper gi (endoscopy) over a week ago, with biopsies taken.

thanks

trents Grand Master

Mail/post? Do you mean the postal service via snail mail? What country are you in? They don't do that here in the USA. For me and many others in the USA, we can check test results via our medical provider's online tool. Each patient has an account that can be accessed online where we receive messages and test results and can even schedule appointments.

Meggannn Rookie

Oh right I live in the UK so it’s abit different. We can get the results wrote to us in a letter. However wasn’t sure how long it would take as last time I waited nearly a month.

Scott Adams Grand Master

If it has been that long I would contact them, as they should have the results by now. Did you get blood tests done for celiac disease? If so, please share your results. It would be unusual for a doctor to do only the biopsy for celiac disease, but not the blood tests. Also, in the UK it is my understanding that many cases of celiac disease are currently being diagnosed with only blood tests:

 

Meggannn Rookie

Yes I had one blood test I think it was ttg and it was negative, but they said because my symptoms were strongly suggesting celiac they wanted to double check and also check for anything else aswell.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Meggannn Rookie
33 minutes ago, Scott Adams said:

If it has been that long I would contact them, as they should have the results by now. Did you get blood tests done for celiac disease? If so, please share your results. It would be unusual for a doctor to do only the biopsy for celiac disease, but not the blood tests. Also, in the UK it is my understanding that many cases of celiac disease are currently being diagnosed with only blood tests:

 

 

10 minutes ago, Meggannn said:

Yes I had one blood test I think it was ttg and it was negative, but they said because my symptoms were strongly suggesting celiac they wanted to double check and also check for anything else aswell.

also I have other autoimmune diseases and my gp has said this increases the chances. I will contact them Tomorrow and ask about the results.

thanks

Scott Adams Grand Master

If possible, please get the actual blood test results and share them here. This is because your results might be just under the cut off for celiac disease, but that certainly would not rule out gluten sensitivity, for which they currently cannot screen. Many with gluten sensitivity have elevated antibody tests, yet doctors tell them "good news, you're not a celiac and can keep eating gluten." But often it turns out they should not be eating gluten.

Meggannn Rookie
10 minutes ago, Scott Adams said:

If possible, please get the actual blood test results and share them here. This is because your results might be just under the cut off for celiac disease, but that certainly would not rule out gluten sensitivity, for which they currently cannot screen. Many with gluten sensitivity have elevated antibody tests, yet doctors tell them "good news, you're not a celiac and can keep eating gluten." But often it turns out they should not be eating gluten.

Oh right thanks I didn’t know that. On letter they only put negative so no actual results visible. I will ask them and find out results of biopsy tomorrow

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,414
    • Most Online (within 30 mins)
      7,748

    Linda Herman
    Newest Member
    Linda Herman
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.2k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Lburnett! Have you been officially diagnosed with celiac disease? I'm just trying to get a handle on the health context from which your question comes.
    • Lburnett
      Hi there. I was wondering if anyone has experience elevated phosphorus levels? mine are moderately elevated with an elevated BUN also. My total urine protein is flagged as low which I thought was odd. (usually flags if there's high levels). Anyone have any idea what causes this or has had these levels? Thanks!
    • Scott Adams
      It looks like they will now order the Tissue Transglutaminase IgA Antibody test, but verify this with your doctor.
    • trents
      I think you know enough to conclude that your son either has celiac disease or NCGS (Non Celiac Gluten Sensitivity). As soon as you removed gluten from his diet his stools firmed up. It is also very common for celiacs to be intolerant of dairy and soy, so that is another piece of corroborating evidence. If I were you, I would consider getting your sone genetically tested for the genes we know are associated with celiac disease. There are two main genes looked for, HLADQ2 and HLADQ8. Having either or both provides the potential for developing celiac disease. But since about 40% of the general population have one or both of the genes it cannot be used to diagnose celiac disease. But it can be used as a rule out measure if both are absent, thus pointing one in the direction of NCGS. If one or both are present, there is the possibility of either celiac or NCGS. NCGS is 10x more common than celiac disease by the way. The two conditions share many common symptoms. The difference being that NCGS does not damage the lining of the small bowel as does celiac disease. Celiac disease is actually an autoimmune disorder. At any rate, both conditions require a gluten free diet so, at the end of the day, that is the antidote for both. Some experts feel that NCGS can be a precursor to the development of celiac disease.  I would also make mention of the fact that once gluten is removed from the diet and then added back in for the gluten challenge, reactions are often more violent as all tolerance has been lost.
    • cristiana
      Hello @Beck1430 and welcome to the Forum. I am sorry your little boy is going through this. Your question is an interesting one.  I would say the majority of posts I have read since joining this forum speak of a fairly quick reaction, and that has been my own experience.  The only major gluten hit I've had in more recent times resulted in chills, dizziness and vomiting about 2-3 hours after eating gluten.  It was truly horrible.  The fact that I vomited was new for me - I didn't get diarrhea which had been my classic reaction in the past.  It was as if in going totally gluten free my body has decided to react more violently to gluten, and quite differently.  Reactions can change over time - the fact that your son is reacting differently doesn't necessarily mean that gluten isn't the culprit. Anyway,  this study is interesting in that it states that it is possible to react 12 hours later. https://www.schaer.com/en-us/a/how-long-after-eating-gluten-do-symptoms-start#:~:text=A survey published in Alimentary,by 12 hours or more. I am afraid the only way you will probably know for sure is to repeat the challenge again, but I can completely understand your reluctance to do that.  I wonder if I can ask a couple of questions: Regarding the rash - has that also subsided since giving up gluten?   There are quite a lot of photos of dermatitis herpetiformis to see online, I wonder if you think what your son had/has was similar? Also, do you have coeliac disease in the family?  It is inherited and if you have others in the family, that could point more strongly to your son having coeliac disease. Cristiana
×
×
  • Create New...