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Confused on diagnosis method


Ram

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Ram Rookie

I've had a rash and stomach problems since I was a child and never properly diagnosed. I recently saw an allergist who confirmed that this is dermatitis herpetiformis and referred me to a gastroenterologist and a dermatologist. My blood work came out negative. The gastroenterologist is positive that is is Celiac disease and wants to do an endoscopy. The dermatologist agrees but wants to to a skin biopsy. Is it necessary to do both since I read that the skin biopsy should be enough? My gastro says the endoscopy is important because by blood work is negative and it has to be positive to confirm celiac along with a skin biopsy. I am honestly worried with covid19 and the invasive nature of the endoscopy. "Image of my heavily scratched rash attached." Thanks!

WhatsApp Image 2020-11-02 at 6.53.41 AM.webp


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trents Grand Master
(edited)

I've had several endoscopies performed over the years and they are a quick and easy procedure. Doesn't require bowel prep, just no food after midnight the day before. Out patient procedure, conscious or light sedation and very minimal risk. Not painful or unpleasant at all. I understand your concern about COVID but personally, I think the peace of mind from the information it would provide would be worth the risk. And with the sanitation the procedure room staff take, you are probably more protected from COVID in the medical setting than on the outside. And the And if you go gluten-free before having an endoscopy you would have to start eating gluten again if you ever did decide to have it done.

Edited by trents
Scott Adams Grand Master

Perhaps get the skin biopsy first and see what the results are, then consider doing the endoscope if there are still questions? Both tests are not a big deal.

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    • Sarah Marie
      Is it worth it to remove gluten before they potentially do an endoscopy & biopsy? I thought I read it’s best to be eating gluten for 3 months prior to it. So hoping they have a cancellation and call us in sooner. 
    • LCO
      Thank you very much!
    • Aleda D
      Thank you for the warning. I get blood tests twice a year to check where I stand with the vitamins I regularly take, so I appreciate the extra reminder. I know some vitamins don’t build up but now I will watch the B6 for sure. 
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    • Scott Adams
      Around 5 years ago I visited Tokyo, and luckily had my sister in law with me who is from there, otherwise it would have been more difficult. The bottom line is that there are tons of naturally gluten-free food options there, but you need to be able to communicate your needs to restaurant staff. Here is a gluten-free restaurant card for American visitors in Tokyo. It includes a request for a gluten-free meal and mentions common gluten-containing ingredients to avoid, like soy sauce and miso. English: Thank you. Japanese:   You can also download the Google Translate app, and besides being able to help you speak with people there about this, it has a camera app that translates Japanese text to English in your camera, so you can use it when shopping in a supermarket.
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