Will my villi ever heal?

[Pat B]

I was diagnosed with DH in 2015 - had a positive punch biopsy of lesion on knee.  I have been gluten-free (and have not cheated) since then but a recent endoscopy showed that I still have mild villous blunting/atrophy and increased intraepithelial lymphocytes.  Everything I've read says that the villi should return to normal 6 mo- 2 years after starting gluten-free diet.  Has anyone else had this issue and what does it mean? Thank you! 

[Jpate]

  On 11/11/2020 at 8:03 PM, Pat B said:

I was diagnosed with DH in 2015 - had a positive punch biopsy of lesion on knee.  I have been gluten-free (and have not cheated) since then but a recent endoscopy showed that I still have mild villous blunting/atrophy and increased intraepithelial lymphocytes.  Everything I've read says that the villi should return to normal 6 mo- 2 years after starting gluten-free diet.  Has anyone else had this issue and what does it mean? Thank you! 

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Hi I have RCD2 and villous atrophy have been like it for about 5 years now. I don't worry about it anymore just accepted that I have got it. 

The main issue in life is be positive, and get on with your life and be safe

 

[Misslee]

  On 11/12/2020 at 12:46 PM, Jpate said:

Hi I have RCD2 and villous atrophy have been like it for about 5 years now. I don't worry about it anymore just accepted that I have got it. 

The main issue in life is be positive, and get on with your life and be safe

 

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Don't you have malabsorbation of food tho? isn't that dangerous?

[Jpate]

At the moment I have lost about 3 kilo in the past 9 months and the amount of food I eat which is a lot. I weigh under 9st however I have been very thin all of my life. I am not absorbing a lot of nutrients from my food. It seems what ever I eat comes out the other end. 

I have been seeing a Professor for the last 7years every 3 months and I have had enough. So I don't think I will be going back anymore and I'm going to finish seeing him.