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Symptoms & False negative result

sarab
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sarab Newbie
sarab
Posted

Hi all, I'm new here

Heres a background story: So for years now, I have been having fatigue and uncomfortable bloating after I eat which I had thought was normal.

I then found out about gluten intolerance through a friend who had similar symptoms. I had spoken with my dr. who booked a blood test in for me for celiac disease. 

Just my 'luck' one of the three (i think) test tube blood samples had clotted before going into the lab machine meaning they couldn't only get accurate results and I have to get a repeat blood test. The result on the first tubes came back 'normal' except they found out I was anaemic (I assume this to be true but the blood test to be a false negative as the sample clotted)

The symptoms i've been having are: Bloating constantly and feeling uncomfortably full after a small amount of food, smelly gas, weak hair, weak nails, fluctuating weight, heavy periods, fatigue, short breath, brain fog, struggle to concentrate(ADHD), dry mouth, poop 1x a day and sometimes constipated and ofc anemia.

Currently waiting for next round of blood results, can anyone guide me on what to do if they come back normal and what steps I could take

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trents Grand Master
trents
Posted
(edited)

You have classic symptoms of Celiac Disease but it could also be gluten intolerance. If the blood tests come back negative, pursue an endoscopy/biopsy of the small bowel lining which is the gold standard for diagnosing Celiac Disease. We do have some forum members who have had negative blood tests but positive endoscopy/biopsy. If all tests/endoscopy/biopsy come back negative, plan to switch to a gluten free diet and see if your symptoms improve. But it may take a few months for dramatic improvement.

Edited by trents
Scott Adams Grand Master
Scott Adams
Posted

Be sure that you've been eating gluten daily for at least 4-6 weeks before your blood tests.

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