Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

intermittent bleeding / reflux or ????????????


DJFL77I

Recommended Posts

DJFL77I Experienced

So since FEB I've been experiencing some blood in the back of my throat on and off....  I first noticed it about 5 days after my upset stomach began back in FEB......

Had a CT Scan done in early April with oral and IV contrast from rectum up to mid chest...  nothing was seen...

Had a Endoscopy done in early May..  Dr said he was going to look for any signs of bleeding anywhere..  afterwards he said no blood was seen anywhere and it looked like a normal GI tract.....     he was adamant that its not coming from my GI tract..  and mentioned seeing an ear/nose/throat doc....  fecal occult blood test came back negative....

 

My bloodwork all looks normal beyond Liver enzymes being a bit off but that's common with newly diagnosed Celiac.....  had every test in the book done on my liver..  everything negative...

Recently got a new GI Dr.. highly rated...  mentioned it to him again...  he asked if I had nasal drip...  so he was going in the same direction as the other Dr I guess....

I have an appointment on Wednesday with an ear/nose/throat Dr.....   If he finds nothing there...  I think I'm going to have another Endoscopy done....   

I still think its coming from my stomach.

???????????????

 

 

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



DJFL77I Experienced

I was also diagnosed with superficial gastritis after endoscopy..  I always thought it was from a gastritis flare up...  but based on the Dr's description it seemed like a minimal amount of gastritis...

notme Experienced
(edited)

do you have white patches on the inside of your mouth?  my daughter used to get thrush originating in her g.i. tract and it would work it's way up into her throat.  (she is also celiac and that was happening before she started the gluten-free diet)

edited to add:  i think the doc that asked you about nasal drip was alluding to maybe you have allergies?  post nasal drip will make you nauseas (especially in the morning after snot runs down your throat while you're sleeping) and may make your throat sore/raw.  

Edited by notme!
add info
DJFL77I Experienced
50 minutes ago, notme! said:

do you have white patches on the inside of your mouth?  my daughter used to get thrush originating in her g.i. tract and it would work it's way up into her throat.  (she is also celiac and that was happening before she started the gluten-free diet)

edited to add:  i think the doc that asked you about nasal drip was alluding to maybe you have allergies?  post nasal drip will make you nauseas (especially in the morning after snot runs down your throat while you're sleeping) and may make your throat sore/raw.  

Never have a sore throat or cough or any problem with my throat..  nose doesn't seem to bother me..

I do have a bit of a pressure or tension across my forehead temples area though..  maybe sinuses?

notme Experienced

maybe.  is it blood with mucous?  i have no medical degree but i am a mom lolz

DJFL77I Experienced

its usually a little yellowish saliva also

DJFL77I Experienced

so I just got back from the ENT dr...

He looked in my nose...  said i have some inflammation up there..  allergies...  said it can cause some bleeding...   so I got some nasal sprays to use for 3 weeks...

so we'll see....   throat looked normal...   he said if its still noticed after about a month then he'll send me for a scan...  could be a mild sinus infection

blood pressure was   100 / 80.. pulse 76......

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



notme Experienced

before i was diagnosed, i used to catch every germ/illness that came around.  after being on gluten-free diet, the only thing that i had to take antibiotics for in the last 10 years was a sinus infection.  i do have allergies and i take daily doses of zyrtec and flonase.  the sinus infection was already 4 years or so ago.  once your immune system starts running like it's supposed to, i guess it fights off stuff like it's supposed to.  

i have hot water radiators that heat my hundred year old house.  i can not do forced air heat (too dry) and even with the heat system we have, i try to add humidity to the house in the winter by keeping some water simmering, maybe with cinnamon or orange peels to make it smell nice.  helps to keep my sinuses from getting too dried out.  

if you are in florida, you can just walk outside for humidity, lolz  :D 

Beverage Rising Star

I had major issues with acid reflux even after going gluten free. Acid reflux is NOT USUALLY CAUSED BY TOO MUCH ACID, IT'S TOO LITTLE!!!  As we age or have digestive issues from Celiac's the hiatal spincter can get damaged. Also as we age, or from Celiac's, our stomach acid gets REDUCED.  Yes, REDUCED.  All this adds to not digesting your food (and reduced absorption of vitamins), and the food ends up fermenting and rotting instead of digesting, CAUSING REFLUX.  The fumes can come up the esophagus to the lungs.  In my case, it was so bad, the fumes that get inhaled into the lungs, were also severely irritating my asthma and a severe dry cough when laying down (some people get that every time they eat).

A ENT doc finally guessed I had acid reflux, but prescribed antacids for me, but I refused to take them because I know we need acid to digest and get value out of our vitamins and food.  Several important vitamins like D especially needs acid, and that is one that people low in D have been found to have more fatalities from Coronovirus. I did not want to risk my ability to absorb D.

I researched and found several things helped me.  Here's the article I started with:  https://drjockers.com/hiatal-hernia/

Also search for and read articles by Dr. Jonathan Wright. He also has youtube's and an archive for his radio show.

1.  I take a little sip of apple cider vinegar before every meal with protein (at first, it burned my throat soooo bad, but thin with a little dash of water until throat heals and you can tolerate it straight).

2.  The exercise "The Warm Water Fix" worked great and I did that a few times a day, now only when needed.

3.  DGL tablets https://www.amazon.com/gp/product/B001IAJW0K/ref=ppx_yo_dt_b_search_asin_title?ie=UTF8&psc=1  help TREMENDOUSLY. At first, after every meal (but have a laxative effect if too much), but now I just take 2 before bed.

4.  I was Vitamin B1 thamine deficient, and that was the final thing that really helped my asthma.

So, sometimes it's one thing that fixes your problems, and sometimes it's multiple.  Keep reading and trying to find what will work. I highly recommend a GOOD (not all are good) naturopath to work with identifying any deficiencies and so you don't get in the trap of prescriptions to treat symptoms and never identify the underlying / root cause .

 

 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jacki Espo replied to Itsabit's topic in Dermatitis Herpetiformis
      3

      SkinSafe

    2. - Russ H replied to Itsabit's topic in Dermatitis Herpetiformis
      3

      SkinSafe

    3. - trents replied to Itsabit's topic in Dermatitis Herpetiformis
      3

      SkinSafe

    4. - Itsabit posted a topic in Dermatitis Herpetiformis
      3

      SkinSafe

    5. - trents replied to Cathijean90's topic in Introduce Yourself / Share Stuff
      1

      I’m terrified it’s too late for me😭


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,314
    • Most Online (within 30 mins)
      7,748

    stephla
    Newest Member
    stephla
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.8k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jacki Espo
      For me I gave up oat products and it finally cleared. I had a whole body reaction for months. Two additional culprits for me: shared grill at a restaurant or a shared toaster.  Hope you have relief soon. 
    • Russ H
      It can take between 6 months and 2 years for the dermatitis herpetiformis rash to resolve. The symptoms of dermatitis herpetiformis arise from deposits of certain antibodies building up in the skin. These deposits attract immune cells leading to inflammation and blistering. It can take 10 years for the deposits to be reabsorbed although symptoms resolve long before this.
    • trents
      Welcome to the forum, Linda! Many on this forum can sympathize with you. It can be extremely difficult to get reliable information about gluten when it comes to meds, supplements and oral hygiene products. This is especially true since so much of this stuff is generic and comes from over seas. I will deflect with regard to your question about meds and oral products but take you in another direction. Have you tried a low iodine diet. Iodine is known to exacerbate dermatitis herpetiformis and some find that a low iodine diet helps reduce the number of outbreaks. By the way, have you had your celiac antibodies retested recently? If they are elevated that might be a clue that you are getting gluten in your oral hygiene products or meds.
    • Itsabit
      Hi. I’m 70 years old, and a 22 year survivor of head and neck cancer treated with chemo-radiation, which resulted in non-existent submandibular salivary glands and extreme dry mouth and altered oral mucosa. I have been using dry mouth toothpaste, Rx oral dentrifices and moisturizers for years.  I’ve recently been diagnosed with severe celiac dermatitis herpetiformis. I was being treated with oral Dapsone, but it was not effective and I developed some serious side effects. So, the medication was stopped and I was started on Doxycycline (another antibiotic) for inflammation. I’ve been using Rx Betamethasone steroid ointment with little to no effect. I have tried every oral and topical antihistamine treatment available OTC. None have touched this horrible relentless itching. That is my history.  Now to my question. Does anybody know about gluten free toothpastes and mouth moisturizers? I ask because a very common dry mouth brand stated to me that they were indeed gluten free. But as I am not getting any better with my dermatitis herpetiformis, I was wondering if I was getting glutenized some way other than diet as  I have been following a strict clean gluten free diet, but I am not seeing any improvement at all. So, I started looking up the toothpastes and moisturizer ingredients individually and nine (9) of the eleven (11) or so listed showed up as   containing gluten or that may have gluten! Am I getting glutenized orally by these products?  As an aside, I checked on my favorite lavender scented baby lotion which is supposed to be gluten free, but many of those ingredients when investigated separately, show they  do contain or may contain gluten as well. I stopped using the lotion. But I cannot forgo my dental care. I was unable to get any information from the manufacturer of my current brand of chewable multivitamins either. They told me to check with my doctor. If THEY don’t know what’s in their product, how do they think a PCP will?  In light of all this, I am confused and angry that I might keep getting contaminated with gluten through products I am using that are supposedly gluten safe. *I should also state that I have a nickel allergy since I was about 12-13 years old. And I developed a contact allergy to latex (gloves) when I was a student nurse at 19 years old.  I know and I’m sorry that this is so lengthy. I’m trying to do everything I can to combat this condition, and I’m feeling very confused, anxious and angry about not getting adequate information as I try to educate and advocate for myself. I’m hoping someone here is more knowledgeable than me of how to navigate through all of this. Can anyone offer any advice?  Thank you for your time.  Respectfully,  Linda
    • trents
      Welcome to the forum, @Cathijean90! I went 13 years from the first laboratory evidence of celiac disease onset before I was diagnosed. But there were symptoms of celiac disease many years before that like a lot of gas. The first laboratory evidence was a rejected Red Cross blood donation because of elevated liver enzymes. They assume you have hepatitis if your liver enzymes are elevated. But I was checked for all varieties of hepatitis and that wasn't it. Liver enzymes continued to slowly creep up for another 13 years and my PCP tested me for a lot of stuff and it was all negative. He ran out of ideas. By that time, iron stores were dropping as was albumin and total protein. Finally, I took it upon myself to schedule an appointment with a GI doc and the first thing he did was test me for celiac disease. I was positive of course. After three months of gluten free eating the liver enzymes were back in normal range. That was back in about 1992. Your story and mine are more typical than not. I think the average time to diagnosis from the onset of symptoms and initial investigation into causes for symptom is about 10 years. Things are improving as there is more general awareness in the medical community about celiac disease than there used to be years ago. The risk of small bowel lymphoma in the celiac population is 4x that of the general population. That's the bad news is.  The good news is, it's still pretty rare as a whole. Yes, absolutely! You can expect substantial healing even after all these years if you begin to observe a strict gluten free diet. Take heart! But I have one question. What exactly did the paperwork from 15 years ago say about your having celiac disease? Was it a test result? Was it an official diagnosis? Can you share the specifics please? If you have any celiac blood antibody test results could you post them, along with the reference ranges for each test? Did you have an endoscopy/biopsy to confirm the blood test results?
×
×
  • Create New...