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Recent Activity
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- herminia replied to Sammy Web's topic in Related Issues & Disorders7Can anyone offer any advice/help please!
Such a confusing disease! I tested positive with both tg tests so I have been taking Omeprazole for years with good results, although for several months now am experiencing increased nausea and pain on a daily basis and have added ondansatron for "those" days. Low-grade pain in left abdominal quadrant is a daily constant, and doctors have not taken interest... -
- Sammy Web replied to Sammy Web's topic in Related Issues & Disorders7Can anyone offer any advice/help please!
@Scott Adams @knitty kitty @cristiana @trents Thank you everyone, I should add, I forgot to mention, I did have an upper endoscopy around the time and that came back all clear/perfectly fine , so with both of those I always ruled out celiac disease , especially considering sometimes I'm absolutely fine with gluten -
- knitty kitty replied to Deborah123's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms1Testing
Hello, @Deborah123, Which blood tests for Celiac did your son have? TTg IgA tests may throw false negatives in children because of immature immune systems. That's why a complete Celiac panel should be done which includes total IgA, tTg IgA, DGP IgA and DGP IgG and tTg IgG. Insufficient gluten consumption in the weeks prior to testing can result... -
- knitty kitty replied to Sammy Web's topic in Related Issues & Disorders7
Can anyone offer any advice/help please!
I agree with @cristianacristiana, @Scott Adams, and @trents. You probably weren't eating sufficient gluten for the test to be accurate. Ten grams of gluten for at least two weeks before testing is needed for accurate blood tests. Three gram of gluten is enough to make you feel unwell. Ten grams of gluten is required for the antibodies to leave... -
- trents replied to Sammy Web's topic in Related Issues & Disorders7Can anyone offer any advice/help please!
Sammy, I have doubts as to whether you were eating enough gluten to render any of the celiac testing you had done valid. Recently revised guidelines for pretest celiac blood antibody analysis is the daily consumption of at least 10 g of gluten (about the amount found in 4-6 slices of wheat bread) for at least 2 weeks before the blood draw.- 1
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Such a confusing disease! I tested positive with both tg tests so I have been taking Omeprazole for years with good results, although for several months now am experiencing increased nausea and pain on a daily basis and have added ondansatron for "those" days. Low-grade pain in left abdominal quadrant is a daily constant, and doctors have not taken interest in that aspect. I do my best to stay away from gluten but it's difficult to enjoy simple meals like a refreshing sandwich with the gluten-free breads available. ( I was trying to eat a hot dog, but the Scharr bread was crumbling as I held it and gummy as I chewed.) Q: which bread has anyone found to be best for sandwiches and toast?
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@Scott Adams @knitty kitty @cristiana @trents Thank you everyone, I should add, I forgot to mention, I did have an upper endoscopy around the time and that came back all clear/perfectly fine , so with both of those I always ruled out celiac disease , especially considering sometimes I'm absolutely fine with gluten
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By knitty kitty · Posted
Hello, @Deborah123, Which blood tests for Celiac did your son have? TTg IgA tests may throw false negatives in children because of immature immune systems. That's why a complete Celiac panel should be done which includes total IgA, tTg IgA, DGP IgA and DGP IgG and tTg IgG. Insufficient gluten consumption in the weeks prior to testing can result in false negatives as well. Updated gluten challenge guidelines call for TEN grams of gluten per day (equivalent to five or six slices of bread or equivalent) for a minimum of two weeks prior to testing. Also, low iron levels and anemia can result in false negatives. Has your son's iron levels been checked? Vitamin D and thiamine levels should be checked as well. You may want to consider genetic testing for both you and your son, as celiac disease is genetic. Yes, your mother's instincts are correct. Keep pushing for more testing! Keep us posted on your progress! -
By knitty kitty · Posted
I agree with @cristianacristiana, @Scott Adams, and @trents. You probably weren't eating sufficient gluten for the test to be accurate. Ten grams of gluten for at least two weeks before testing is needed for accurate blood tests. Three gram of gluten is enough to make you feel unwell. Ten grams of gluten is required for the antibodies to leave the intestine where they are made and get into the blood stream where they can be properly measured. A genetic test can determine if you have any of the known genes for Celiac disease. -
Sammy, I have doubts as to whether you were eating enough gluten to render any of the celiac testing you had done valid. Recently revised guidelines for pretest celiac blood antibody analysis is the daily consumption of at least 10 g of gluten (about the amount found in 4-6 slices of wheat bread) for at least 2 weeks before the blood draw.
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