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Ibs

Stubbo46
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Stubbo46 Newbie
Stubbo46
Posted

I've had ibs for 20+ years . When I have a flare up I sweat on a night. Get a cramping pain lower left abdomen and gurgling noise with constipation. I feel really ill for about a week and serious brain fog. I have narrowed down culprits to noodles and pasta and bread in large quantities. Carb free diets make me better. Doctor says it can't be coeliac because I can eat bread in small quantities and I eat shreddies with no symptoms. Does anybody out there manage to eat things they aren't supposed to and are anyone's symptoms like mine. Thanks

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trents Grand Master
trents
Posted

SIBO?

notme Experienced
notme
Posted

no offense, but go see another doctor.  a doctor can not tell you that you don't have it just from what you are able/unable to eat comfortably and without testing.   from experience, i can tell you that most doctors don't know much about celiac.  my (trusted!) doctor treated my 'ibs' for 20 plus years before he even suggested that i could have celiac (i had never even heard of it) - i was super angry that this had never been explored before they were ready to put me on a feeding tube because i was so emaciated.  the night sweats are nothing to fool with - get checked out by a gastroenterologist.  

stay on gluten until your testing is complete, you need to have the antibodies for the test to be accurate.  good luck - i have been in your shoes!  

Stubbo46 Newbie
Stubbo46
Posted
  • Author

Thanks . This is exactly why I went on this site. I've only just started looking up celiac disease . I am going to book to see doctor and ask again. Thing is I've asked about if it could be other things before and doctors say no it's just ibs. Maybe cos I still eat small amounts of bread with no problems. Thanks again. Sorry didn't reply sooner I was expecting email letting know of replies

trents Grand Master
trents
Posted
5 hours ago, Stubbo46 said:

Sorry didn't reply sooner I was expecting email letting know of replies

I think you have to tick that box in your preferences.

Posterboy Mentor
Posterboy
Posted
On 12/18/2020 at 3:14 PM, notme! said:

the night sweats are nothing to fool with - get checked out by a gastroenterologist.  

On 12/18/2020 at 2:58 PM, Stubbo46 said:

I've had ibs for 20+ years . When I have a flare up I sweat on a night. Get a cramping pain lower left abdomen and gurgling noise with constipation. I feel really ill for about a week and serious brain fog. I have narrowed down culprits to noodles and pasta and bread in large quantities. Carb free diets make me better. Doctor says it can't be coeliac because I can eat bread in small quantities and I eat shreddies with no symptoms. Does anybody out there manage to eat things they aren't supposed to and are anyone's symptoms like mine. Thanks

Stubbo,

To follow up on what Not me! said.....Follow up on those Night Sweats!

It could be undiagnosed Diabetes  or worse yet another Auto-Immune disease going undiagnosed.

Here is a nice overview of things that can cause "Night Sweats" and none of them are pleasant.

https://www.self.com/story/night-sweat-causes

I have had this problem lately and it turns out it was my Hereditary Hemachromatosis acting up....

I hope this is helpful but it is not medical advice.

Posterboy,

BestGlutenFreeWoman Newbie
BestGlutenFreeWoman
Posted

I agree with Trents and others - research on the internet and read the symptoms of SIBO (small intestinal bacteria overgrowth) and see a gastroenterologist or an integrative family practice physician who is familiar with diagnosing (breath test) and prescribing this condition.  I suffered with this for many years adapting my diet over and over.  Carbs (especially sugar) feed the bacteria and make you feel worse.  It took three rounds of antibiotics to finally clear the bacteria and now I'm in another "phase" with healing the gut from the damage it made.  I still feel best when eating low or no carbs.  It does a number on your brain (gut-brain relationship) and with your sleep.  You will get over this but you need medical advice and treatment.

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Stubbo46 Newbie
Stubbo46
Posted
  • Author

Thanks . Best gluten free woman. Very helpful and Intetesting. I always go carb free to cure myself and could be the noodles and pasta making me I'll just cos they are carbs and not the gluten. Thanks

Beverage Rising Star
Beverage
Posted

I could eat a little gluten and get absolutely no intestinal symptoms.  So yes, absolutely get a different doctor.

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    • ChrisSeth
      Waiting on Blood test results…

      By ChrisSeth · Posted

      I’m reading that some sites list a high Immunoglobulin A result for my age above 300, another site says above 356, and other sites are saying above 400. I don’t know what to make of this result 🤷‍♂️
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      You got some bum steers my friend. I have little confidence that you can trust your test results as differentiating between NCGS and celiac disease. And I think you would be much more likely to have gotten that note you need if you had been diagnosed with celiac disease. But believe me, I understand the predicament you are in with regard to the risks of repeating the gluten challenge. We have heard this story many times on this forum. People experiment with the gluten free diet before getting an official diagnosis and then cannot tolerate the gluten challenge later on when they seek an official diagnosis.
    • Jason Hi
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      For the upper gastrointestinal endoscopy, they said 7 days of gluten. So I did 8...fast food and Krispy Kreme doughnuts. For the earlier blood test, the younger doctor said I didn't have to. My immune system went down, I was in the bathroom a lot, and as my wife said my brain wasn't braining.
    • ChrisSeth
      Waiting on Blood test results…

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      Thanks guys. I just got my results but I don’t know what they mean…  celiac disease reflex panel Immunoglobulin A  normal range 66-433  my results are a score of 358. Is this normal? I have no idea what to make of it…
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