Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Diagnosed Celiac- Test Results ?


Degas24

Recommended Posts

Degas24 Newbie

My daughter was diagnosed with celiac at age 7.  She is now 17.  Her levels were tested a year ago and they were off the charts.  So she met with a nutritionist again and has been doing better. Her primary doctor retested her IgA levels.  A year ago it was 52 mg/dl. Now it is 46 mg/dl. It say normal range is 61-386 mg/dl.  It is a Friday and her doctor is gone for the weekend and I just want to know what this means?  


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



trents Grand Master

It points to the likelyhood that she is doing well with her efforts to eat gluten free.

Do you have any other antibody numbers. IgA is not the only indicator and may not be the best one for evaluating celiac disease.

Scott Adams Grand Master

I agree, they normally do a ttg test as well, is that the only test that was done?

Degas24 Newbie
10 hours ago, Scott Adams said:

I agree, they normally do a ttg test as well, is that the only test that was done?

Her current TTIgA is 241.5 CU (was 545.5 CU in 2019).

12 hours ago, trents said:

It points to the likelyhood that she is doing well with her efforts to eat gluten free.

Do you have any other antibody numbers. IgA is not the only indicator and may not be the best one for evaluating celiac disease.

Her current TTIgA is 241.5 CU (was 545.5 CU in 2019).

Scott Adams Grand Master

On the ttIgA does it show the markers for normal, and the high mark? Each lab seems to have their own scale, so it would be helpful to have this. 

DJFL77I Experienced

Normal ttg is like 0 to 3 isn't it.

DJFL77I Experienced

My ttg was 120ish at diagnosis.. they were tested again at 6 months in December and were at 11.

0 - 3 was marked as normal so it needs to come down a little more but I'm expecting that to take no more than a month or so.. I get it tested again in April...  Eating only fresh foods.. only packaged stuff I was eating is almond butter, Lara bar with 2 ingredients, Greek yogurt, some vanilla icecream, 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Degas24 Newbie
On 1/15/2021 at 1:20 PM, Scott Adams said:

On the ttIgA does it show the markers for normal, and the high mark? Each lab seems to have their own scale, so it would be helpful to have this. 

It says that <20 is normal.

Scott Adams Grand Master

The new protocol is that if someone scores 10x the celiac disease level, then they can be diagnosed with the blood test alone, however, not all doctors are following this. I would just make sure that she's not cheating on her diet, as that can happen with teenagers. My daughter is a perfect example of this!

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,242
    • Most Online (within 30 mins)
      7,748

    Angy
    Newest Member
    Angy
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.3k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      vitamin D levels in obsessive-compulsive disorder "The number of participants with vitamin D insufficient ... and vitamin D deficiency ... in the OCD group was statistically significantly higher than the control group... and also the number of participants whose vitamin D levels were in the normal range ... in the OCD group was statistically significantly lower than the control group." Low vitamin D iscommon in Celiac Disease patients. Also no lithium in drinking water (bottled water) or in areas with low ground water Lithium contributes to anxiety. Association between naturally occurring lithium in drinking water and suicide rates The EPA calculated a provisional oral reference dose (p-RfD) of 2 μg/kg-day using the Provisional Peer-Reviewed Toxicity Value   https://www.epa.gov/system/files/documents/2023-11/ucmr5-technical-fact-sheet-lithium-in-drinking-water.pdf Should we all take a bit of lithium?! Raising my vitamin D to 80 ng/ml and taking 5 mg a day of Lithium Orotate for a few month helped me.
    • Wheatwacked
      After 3 months without gluten he will have healed and his blood tests will be negative. That does not mean "not celiac, ok to eat wheat, rye and barley again.  It does mean the diet is working.  Many of those recently diagnosed with Celiac Disease are often deficient in vitamin D and other vitamins and minerals.  It's a side effect called Malabsorption.  Get his blood checked for 25(OH)D level to be sure.
    • Wheatwacked
      Yeah, but that's probably not where you want to eat, anyway.
    • BoiseNic
      Anyone try this? No matter what the brand, probiotics have ALWAYS made me break out bad. I am hesitant to try this simply for that fact, but I ordered a 3 month supply. Any input would be appreciated. Wish me luck.
    • Wheatwacked
      @llisa, I am curious to know how much vitamin D you are taking and what is your plasma level in nmol/L or ng/ml what the doctor's target 25(OH)D is. Hopefully with the gluten free diet you'll be able to feel better.
×
×
  • Create New...