Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

EZ Gluten testing


JaneWhoLovesRain

Recommended Posts

JaneWhoLovesRain Enthusiast

Hi - I just tested one of my prescription medications with the EZ Gluten test kit and it came out "very high positive" which surprised me.  In looking at the FAQ's on the EZ Gluten site they say they can't guarantee the results for non-food items (such as meds, toiletries, supplements).  I'm wondering if anyone here has tested their meds with a positive result and found that it was wrong (or right).  I don't understand why it wouldn't be accurate for meds.  I would think gluten is gluten whether it's in a medication or in a food.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



raspberryfirecracker Contributor
(edited)

Well that's horrifying... I do think there's no telling how the crazy chemicals in medicine would combine with the assay in the strips, so I'm glad they tell you upfront not to take it to heart.

You can find out the exact inactive ingredients in your medication by looking up its NDC number on the bottle (I think that's what it's called) and searching for it in combination with the pharmaceutical company's name (also on the bottle). You should end up finding links to the company's website and images of the exact ingredients for your pill. You might have to scroll through a list of similar variations like pill color etc to find yours.

Your can also internet search the numbers/letters written on the pill and go to the Drugs.com page it links to, but I would double check the info you find because sometimes the inactive ingredients information might be for an older formulation.

Edited by raspberryfirecracker
Forgot to mention the ndc + company doesn't link directly to the exact pill but to a list, usually
knitty kitty Grand Master

Yes, gluten or wheat based fillers are often used in medications.  Your doctor and your pharmacist need to review your prescriptions and change them to gluten free versions of the same medications.

JaneWhoLovesRain Enthusiast

I did do a search for the ingredients of my prescription and most of them are a bunch of chemical names.  The only one that looked suspect was "talc."  But that's a long shot.  If anything I suspect it would be some kind of cross contamination.  I've thought of going to the pharmacist but most likely the response would be along the line of "the company doesn't add any gluten ingredients but can't guarantee what the makers of the ingredients add," and I would be no further ahead.

I sent an email to ezgluten to ask about the accuracy for medications but received no answer. I also noticed that the red line of the test strip was very faint whereas usually when I test something it is very clear and easy to see so I wanted to know if this was normal or not and if it had something to do with getting a very high positive.

I know generally prescription medication is gluten free so I found this surprising.  Fortunately it's not a life or death prescription so I should be okay without taking it for a few day.  It's clearly written on my record at the pharmacy that all my meds need to be gluten free, I would hope they wouldn't give me something without checking first.

Scott Adams Grand Master

Talc is a naturally occurring mineral I believe, and is used to make talcum power. 

Kate333 Rising Star

You can find many Rx and OTR medication lists online which specifically ID ingredients, esp. gluten and dairy.  But to be on the safe side (because some of these lists are not always up to date and because processing procedures and ingredients often change with time), I recommend calling the manufacturer directly to make sure.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,144
    • Most Online (within 30 mins)
      7,748

    Nicole zake
    Newest Member
    Nicole zake
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.2k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Brianne03
      My daughter was recently diagnosed with Celiac; my results are questionable and I have an appointment scheduled to see a GI doctor to further discuss. I have so many odd, ongoing symptoms that could possibly be gluten related, although who really knows!! I am considering going gluten-free whether a Celiac diagnosis is confirmed or not, just to see if there are any improvements with my dermatitis, mouth sores, aching and chronically cold hands, tingling in hands and feet, random joint pains, etc.  What are the advantages vs. disadvantages of having an official Celiac diagnosis? For instance, will it affect life insurance policies, medical insurance rates? What have you personally experienced with or without an official diagnosis? I'm almost afraid there will be more hinderances and hardships if an official diagnosis is given, but maybe I am way off base and missing the positives altogether. We are located in the US. Thank you!
    • MHavoc
      Thank you all for the reply posts.  Yes, the constipation has abated.  I am not sure whether its due to having changed to a gluten-free diet or not, but I do think that there is a reasonable correlation.  I know that I will get over this eventually, but I am finding it hard not to lament missing all of my favorite foods that contain gluten.  Certainly, my health comes first... I guess I never realized how many things contain some element of wheat.  My sister has been living with celiac disease for most of her life, so I have someone who will share her favorite recipes. The next step for me will be my appointment with a Gastroenterologist for the Celiac Team... I hope everyone has a safe and wonderful Thanksgiving!
    • sh00148
      Thank you. That’s all really helpful. I think it must have been something she ate as the poo colour has settled now.    Starting to see improvements in her tummy, slowly but surely!
    • Yaya
      I take all vitamins and supplements.  My cardiologist has me taking B12 5,000 once per weeks.  He gives me complete blood work every 6 months.  He's still building my D levels which is now in 60s.  He wants them in low 80s.  I take 5,000 IU's daily.  With this dosage I've gone from 42 to 65 over a period of about 5 years.  It builds very slowly.   As far as iron, I take a double dose of gentle iron with C on an empty stomach on alternate nights.  Yes, iron is a component for many of us with RLS, but mostly "brain iron" that in some people may require iron transfusions.   
    • trents
      The positive DGP-IGA indicates the possibility of celiac disease. It is typical for someone who does have celiac disease to have some antibody tests be negative and others positive. This is not unique to celiac disease diagnosis. It is why doctors typically run many tests when seeking diagnosis of a suspected disease.  The DGP-IgA test is considered to have high sensitivity and specificity. In general, the DGP-IgA test has been reported to have a sensitivity ranging from 75% to 95% and a specificity ranging from 90% to 100%. Overall, the DGP tests, including DGP-IgA and DGP-IgG, exhibit a sensitivity of approximately 85-95% and a specificity of about 95-98%. The above paragraph is taken from this article which gives an overview of the various tests that can be run for celiac disease and their reliability: What symptoms are you experiencing?
×
×
  • Create New...