Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

EZ Gluten testing


JaneWhoLovesRain

Recommended Posts

JaneWhoLovesRain Enthusiast

Hi - I just tested one of my prescription medications with the EZ Gluten test kit and it came out "very high positive" which surprised me.  In looking at the FAQ's on the EZ Gluten site they say they can't guarantee the results for non-food items (such as meds, toiletries, supplements).  I'm wondering if anyone here has tested their meds with a positive result and found that it was wrong (or right).  I don't understand why it wouldn't be accurate for meds.  I would think gluten is gluten whether it's in a medication or in a food.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



raspberryfirecracker Contributor
(edited)

Well that's horrifying... I do think there's no telling how the crazy chemicals in medicine would combine with the assay in the strips, so I'm glad they tell you upfront not to take it to heart.

You can find out the exact inactive ingredients in your medication by looking up its NDC number on the bottle (I think that's what it's called) and searching for it in combination with the pharmaceutical company's name (also on the bottle). You should end up finding links to the company's website and images of the exact ingredients for your pill. You might have to scroll through a list of similar variations like pill color etc to find yours.

Your can also internet search the numbers/letters written on the pill and go to the Drugs.com page it links to, but I would double check the info you find because sometimes the inactive ingredients information might be for an older formulation.

Edited by raspberryfirecracker
Forgot to mention the ndc + company doesn't link directly to the exact pill but to a list, usually
knitty kitty Grand Master

Yes, gluten or wheat based fillers are often used in medications.  Your doctor and your pharmacist need to review your prescriptions and change them to gluten free versions of the same medications.

JaneWhoLovesRain Enthusiast

I did do a search for the ingredients of my prescription and most of them are a bunch of chemical names.  The only one that looked suspect was "talc."  But that's a long shot.  If anything I suspect it would be some kind of cross contamination.  I've thought of going to the pharmacist but most likely the response would be along the line of "the company doesn't add any gluten ingredients but can't guarantee what the makers of the ingredients add," and I would be no further ahead.

I sent an email to ezgluten to ask about the accuracy for medications but received no answer. I also noticed that the red line of the test strip was very faint whereas usually when I test something it is very clear and easy to see so I wanted to know if this was normal or not and if it had something to do with getting a very high positive.

I know generally prescription medication is gluten free so I found this surprising.  Fortunately it's not a life or death prescription so I should be okay without taking it for a few day.  It's clearly written on my record at the pharmacy that all my meds need to be gluten free, I would hope they wouldn't give me something without checking first.

Scott Adams Grand Master

Talc is a naturally occurring mineral I believe, and is used to make talcum power. 

Kate333 Rising Star

You can find many Rx and OTR medication lists online which specifically ID ingredients, esp. gluten and dairy.  But to be on the safe side (because some of these lists are not always up to date and because processing procedures and ingredients often change with time), I recommend calling the manufacturer directly to make sure.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,127
    • Most Online (within 30 mins)
      7,748

    Longlake
    Newest Member
    Longlake
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      69.9k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Thelma Cadieux
      Good idea, but make sure she does not require lactose free cheese,it is common in celiac patients. 
    • pmarklesparkle
    • pmarklesparkle
      I was diagnosed with dermatitis herpetiformis and ultimately celiac disease in September 2024.  I am trying to navigate the world with celiac, unsuccessfully, still having dermatitis herpetiformis outbreaks.  Grocery shopping is difficult, shopping for toiletries is nearly impossible. Dining out is also a challenge. Can anyone recommend iPhone apps that will make these easier?  Thanks so much!
    • trents
      Welcome to the forum, @pmarklesparkle! Thanks for sharing your diagnostic journey as it may be helpful to others who are getting mixed results during the diagnostic phase. Kudos to the gastro NP who dug deeper and ordered the endoscopy/biopsy. You may also wish to investigate a low iodine diet to get a handle on your continued outbreaks of dermatitis herpetiformis.
    • pmarklesparkle
      After seeing 2 doctors for a rash on my elbows and forearms, that did NOT get better with steroids or creams, I was directed to a dermatologist.  She took a biopsy from one of the lesions, September 3, 2024.   A week later, the result was dermatitis herpetiformis, positive for celiac. She prescribed Clobetasol Propionate USP, 0.05% cream.  This is the only thing that helped with the rash. The dermatologist then took a second biopsy from an area that was near the rash that was clearing up.  That biopsy came back negative. Meanwhile, the dermatologist referred me to a gastroenterologist PA.  The battery of bloodwork was mixed, some showing weak positive for celiac, but my IgA was considered normal.  The PA told me I may have mild Celiac and should just monitor my gluten intake.  I knew she was wrong.  There is NO SUCH THING as mild celiac. So, I saw another practice's gastro NP.  The bloodwork actually looked better, but she ordered an endoscopy biopsy. the only way to get a conclusive diagnosis for celiac.  (In order to get an accurate result for this biopsy, one must be consume gluten for a minimum of 14 days before the endoscopy.)  Finally, I had my celiac disease diagnosis. As I continue to navigate a gluten free diet (so far unsuccessfully) now including shampoo, conditioner, toothpaste, lip balm, sunscreen, body lotion, soap, make up etc... my dermatitis herpetiformis pops up.  The Clobetasol Propionate USP, 0.05% cream helps keep things at bay. I hope this helps you!
×
×
  • Create New...