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Is Quaker Oatmeal Gluten Free


pokey449

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pokey449 Enthusiast

Ive been on a low FODMAP and gluten free diet since I was diagnosed with SIBO this past summer. As part of my diet I have been eating oatmeal for breakfast. Oats dont contain gluten but it has come to my attention oatmeal might possible be contaminated with gluten since it may be processed by the same equipment at Quaker that processes wheat products. I recently had an endoscopy with biopsy and they found "mildly blunted villi" in my duodenum. My GI doc wants me to have a blood test to see if it shows celiac but says I have to be on a gluten diet for some time for the test to be accurate. Such as eating a slice of bread a day for several weeks. I really don't want to have to lose the progress I have made thus far if I don't have to.  I'm wondering if that's even necessary if the oatmeal I have been eating has gluten in it. Maybe I'm not on a gluten free diet as I thought I was?????


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Scott Adams Grand Master

I don't know for sure about Quaker oats, but I do not believe that they are using the same optical sorting technology that General Mills is using, and that they must therefore be sourcing their oats from farmers who don't grow wheat. 

Keep in mind that ~10% of celiac also have an intolerance to the protein (Avenin) in oats, and there are other things that can cause blunted villi (we're doing an article on this which will appear on this site next week).

If I were you I'd eliminate all oats, and since it sounds like you are averse to a gluten challenge and fine with staying on a gluten-free diet for life, see if this change works for you. Unfortunately you may not be able to get insurance to pay for a follow up biopsy without a formal diagnosis, so you may never know for sure if this change works.

pokey449 Enthusiast

I switched to Bobs Red Mills Gluten Free oatmeal to see if that helps. 
Also wondering if I go gluten free and stay that way for a while and then do a gluten challenge how long would it take to exhibit symptoms and then reverse them by going back to gluten free diet. In other words would it be short term pain to determine if I’m truly gluten sensitive. 

Scott Adams Grand Master

Quaker I believe has "gluten-free" on their label, so I do not believe that Bob's would be any different with regard to possible contamination issues. If you have a sensitivity to oats it would also not make a difference what brand you ate. Have you considered Quinoa or other grains?

raspberryfirecracker Contributor
On 2/4/2021 at 12:01 PM, Scott Adams said:

Keep in mind that ~10% of celiac also have an intolerance to the protein (Avenin) in oats

Ahhhhh! So that's it! I'm going to mention this in all my anti-oat replies 😂 Thank you, somehow knowing they've identified "the thing" in oats that makes some of us with celiac disease ill just helps me feel less bonkers. Scott you should do a post on the research that showed some species of quinoa cause reactivity in vitro (cells from celiac patients were put with the proteins) because I unfortunately react to quinoa, too, saponins minimised or not, and I have the feeling they're going to confirm it in vivo too if all the fellow can't-eat-quinoa people on this forum are anything to go by 😬

Scott Adams Grand Master

Do you have a link to this research, as quinoa is considered gluten-free and safe for celiacs. Of course celiacs may have other food intolerances.

raspberryfirecracker Contributor

https://pubmed.ncbi.nlm.nih.gov/22760575/

Variable activation of immune response by quinoa (Chenopodium quinoa Willd.) prolamins in celiac disease

Victor F Zevallos et al. Am J Clin Nutr.2012 Aug.

Quote

Background: Celiac disease is an enteropathy triggered by dietary gluten found in wheat, barley, and rye. The current treatment is a strict gluten-free diet. Quinoa is a highly nutritive plant from the Andes, with low concentrations of prolamins, that has been recommended as part of a gluten-free diet; however, few experimental data support this recommendation.

Objective: We aimed to determine the amount of celiac-toxic prolamin epitopes in quinoa cultivars from different regions of the Andes and the ability of these epitopes to activate immune responses in patients with celiac disease.

Design: The concentration of celiac-toxic epitopes was measured by using murine monoclonal antibodies against gliadin and high-molecular-weight glutenin subunits. Immune response was assessed by proliferation assays of celiac small intestinal T cells/interferon-γ (IFN-γ) and production of IFN-γ/IL-15 after organ culture of celiac duodenal biopsy samples.

Results: Fifteen quinoa cultivars were tested: 4 cultivars had quantifiable concentrations of celiac-toxic epitopes, but they were below the maximum permitted for a gluten-free food. Cultivars Ayacuchana and Pasankalla stimulated T cell lines at levels similar to those for gliadin and caused secretion of cytokines from cultured biopsy samples at levels comparable with those for gliadin.

Conclusions: Most quinoa cultivars do not possess quantifiable amounts of celiac-toxic epitopes. However, 2 cultivars had celiac-toxic epitopes that could activate the adaptive and innate immune responses in some patients with celiac disease. These findings require further investigation in the form of in vivo studies, because quinoa is an important source of nutrients for patients with celiac disease.

 


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Scott Adams Grand Master

This is interesting, but would not be enough to make me exclude quinoa in my diet, as I just don't eat it often enough to be concerned, plus I've never had a negative reaction to it. However, anyone who is eating lots of quinoa should take note. It would be interesting to find out how widespread the 2 toxic strains are in the food supply.

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      Good evening @EssexMum You are quite right to be concerned about this situation.  Once diagnosed as coeliac, always a coeliac, and the way to heal  is through adopting and sticking to a strict gluten diet. That said... I have travelled twice to France since my diagnosis, firstly in May 2013 and again in August 2019.   My spoken French isn't bad, and whilst there I tried my best to explain my needs to chefs and catering staff, and I read labels very carefully when shopping in supermarkets, but both times I came away with worsening gastric symptoms and pain. Interestingly,  after the second holiday, my annual coeliac review took place the following month and although I'd been very careful to avoid gluten all year, thanks to that August holiday my coeliac antibodies were elevated,  Clearly I hadn't been imagining these symptoms and they must have been caused by gluten sneaking in somehow. When I spoke to my gastroenterologist on my return, who is an excellent doctor, he told me with a smile that this was a very common experience in France among his patients, and not to worry too much about it! In fact, before we went away in May 2013, which was just after I had been formally diagnosed, he told me not to even bother trying to adopt a gluten free diet until I returned, knowing what France was like, but I was feeling so awful at that time I ignored his advice and at least tried to make a start with it. (I ought to say - both these visits were some time ago, so perhaps things are a lot better there now.) So what to do?  I would say at least try to explain to catering staff the situation - they should be able to rustle up a plate of cheese, boiled eggs, tuna, salad and fruit, and if things like crackers and gluten-free pot noodle or oats can be packed in the UK, those can be produced at mealtimes.    Of course, most larger supermarkets in France do now cater for coeliacs, but when I was last there the the choice wasn't as wide a range as we have in the UK but I think that is partly because the French like to cook from scratch, whereas our gluten-free aisles have quite a lot of dried or pre-baked goods in them/convenience foods, because I think we as a nation tend to use them more. I would be worth doing a bit of research on the internet before the trip, - the words you want are 'sans gluten'.  I've just googled 'sans gluten Disney Paris" and this came up.  I do hope at least some of this is of help. https://www.tripadvisor.co.uk/Restaurants-g2079053-zfz10992-Disneyland_Paris_Ile_de_France.html  Whatever befalls in France, at least your stepdaughter can resume her usual diet on her return. On a related tack, would you be happy to post any positive findings/tips upon her return - it might be of use to others travelling to Disneyland Paris with children in future? Cristiana
    • EssexMum
      Hi, I am after some advice re my step daughter and her Coeliac Disease. She is 9 years old and had a very limited diet before being diagnosed (very fussy and very lenient parents), since being diagnosed it has become hard to find places out that will cater for her, but we manage.  History: She had been having severe tummy pains on and off every few months so had a bunch of tests and eventually was diagnosed with celiac disease a number of months ago. We was told that she is at a very high level and should avoid gluten for the rest of her lift, we was told that the gluten she has been eating has damaged the 'fingers' inside her and they will not replenish. We was informed that her body absorbs the gluten rather then rejecting it and that is why she doesnt react to the gluten straight away, it will be a build up and then the pains start. We was advised that by her not reacting straight away, it did not mean it wasnt harming her inside. We was given literature about buying a separate toaster and cutting board etc to avoid cross contamination and have been checking all food labels etc.  Problem: the issue is the novelty seems to have worn off with her Mum and we are now posed with a situation. They are going on holiday to Disneyland Paris for 3 nights and she phoned the hotel who said they cannot cater for gluten free. She phoned the GP and had a conversation and then told my partner that the GP had said it was fine for her to have gluten for the 3-4 days. He questioned it and she said no its fine, she hasnt had it for months so a few days wont hurt and she exposed to it anyway without knowing so it will be fine and shes not ruining her holiday etc.   My partner could see from the online notes that his ex wife had told the doctor that the child does not follow a strict gluten-free diet anyway - not true. At least not with us! My partner requested a call with the same doctor who told him that it is the mums discretion and that the child should be monitored for reactions - he explained that the issue is she doesnt react straight away. The GP said no its all mums discretion and she knows best. We are going to try to speak to the consultant at the hospital, but I just wanted to gauge some thoughts. It just seems bizarre to me that we can go from being told to avoid gluten for the rest of her life and how harmful it is to her body, to now it being ok for her to have it for a few days. Thanks in advance  
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