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Is Quaker Oatmeal Gluten Free


pokey449

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pokey449 Enthusiast

Ive been on a low FODMAP and gluten free diet since I was diagnosed with SIBO this past summer. As part of my diet I have been eating oatmeal for breakfast. Oats dont contain gluten but it has come to my attention oatmeal might possible be contaminated with gluten since it may be processed by the same equipment at Quaker that processes wheat products. I recently had an endoscopy with biopsy and they found "mildly blunted villi" in my duodenum. My GI doc wants me to have a blood test to see if it shows celiac but says I have to be on a gluten diet for some time for the test to be accurate. Such as eating a slice of bread a day for several weeks. I really don't want to have to lose the progress I have made thus far if I don't have to.  I'm wondering if that's even necessary if the oatmeal I have been eating has gluten in it. Maybe I'm not on a gluten free diet as I thought I was?????


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Scott Adams Grand Master

I don't know for sure about Quaker oats, but I do not believe that they are using the same optical sorting technology that General Mills is using, and that they must therefore be sourcing their oats from farmers who don't grow wheat. 

Keep in mind that ~10% of celiac also have an intolerance to the protein (Avenin) in oats, and there are other things that can cause blunted villi (we're doing an article on this which will appear on this site next week).

If I were you I'd eliminate all oats, and since it sounds like you are averse to a gluten challenge and fine with staying on a gluten-free diet for life, see if this change works for you. Unfortunately you may not be able to get insurance to pay for a follow up biopsy without a formal diagnosis, so you may never know for sure if this change works.

pokey449 Enthusiast

I switched to Bobs Red Mills Gluten Free oatmeal to see if that helps. 
Also wondering if I go gluten free and stay that way for a while and then do a gluten challenge how long would it take to exhibit symptoms and then reverse them by going back to gluten free diet. In other words would it be short term pain to determine if I’m truly gluten sensitive. 

Scott Adams Grand Master

Quaker I believe has "gluten-free" on their label, so I do not believe that Bob's would be any different with regard to possible contamination issues. If you have a sensitivity to oats it would also not make a difference what brand you ate. Have you considered Quinoa or other grains?

raspberryfirecracker Contributor
On 2/4/2021 at 12:01 PM, Scott Adams said:

Keep in mind that ~10% of celiac also have an intolerance to the protein (Avenin) in oats

Ahhhhh! So that's it! I'm going to mention this in all my anti-oat replies 😂 Thank you, somehow knowing they've identified "the thing" in oats that makes some of us with celiac disease ill just helps me feel less bonkers. Scott you should do a post on the research that showed some species of quinoa cause reactivity in vitro (cells from celiac patients were put with the proteins) because I unfortunately react to quinoa, too, saponins minimised or not, and I have the feeling they're going to confirm it in vivo too if all the fellow can't-eat-quinoa people on this forum are anything to go by 😬

Scott Adams Grand Master

Do you have a link to this research, as quinoa is considered gluten-free and safe for celiacs. Of course celiacs may have other food intolerances.

raspberryfirecracker Contributor

https://pubmed.ncbi.nlm.nih.gov/22760575/

Variable activation of immune response by quinoa (Chenopodium quinoa Willd.) prolamins in celiac disease

Victor F Zevallos et al. Am J Clin Nutr.2012 Aug.

Quote

Background: Celiac disease is an enteropathy triggered by dietary gluten found in wheat, barley, and rye. The current treatment is a strict gluten-free diet. Quinoa is a highly nutritive plant from the Andes, with low concentrations of prolamins, that has been recommended as part of a gluten-free diet; however, few experimental data support this recommendation.

Objective: We aimed to determine the amount of celiac-toxic prolamin epitopes in quinoa cultivars from different regions of the Andes and the ability of these epitopes to activate immune responses in patients with celiac disease.

Design: The concentration of celiac-toxic epitopes was measured by using murine monoclonal antibodies against gliadin and high-molecular-weight glutenin subunits. Immune response was assessed by proliferation assays of celiac small intestinal T cells/interferon-γ (IFN-γ) and production of IFN-γ/IL-15 after organ culture of celiac duodenal biopsy samples.

Results: Fifteen quinoa cultivars were tested: 4 cultivars had quantifiable concentrations of celiac-toxic epitopes, but they were below the maximum permitted for a gluten-free food. Cultivars Ayacuchana and Pasankalla stimulated T cell lines at levels similar to those for gliadin and caused secretion of cytokines from cultured biopsy samples at levels comparable with those for gliadin.

Conclusions: Most quinoa cultivars do not possess quantifiable amounts of celiac-toxic epitopes. However, 2 cultivars had celiac-toxic epitopes that could activate the adaptive and innate immune responses in some patients with celiac disease. These findings require further investigation in the form of in vivo studies, because quinoa is an important source of nutrients for patients with celiac disease.

 


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Scott Adams Grand Master

This is interesting, but would not be enough to make me exclude quinoa in my diet, as I just don't eat it often enough to be concerned, plus I've never had a negative reaction to it. However, anyone who is eating lots of quinoa should take note. It would be interesting to find out how widespread the 2 toxic strains are in the food supply.

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    • Scott Adams
      Based on those results alone, it’s not possible to say you have celiac disease. The test that is usually most specific for celiac, tTG-IgA, is negative in your results, and the endomysial antibody (EMA) is also negative, which generally argues against active celiac disease. However, your deamidated gliadin IgA is elevated, and your total IgA level is also high, which can sometimes affect how the other antibody tests behave. Another important factor is that you were reducing gluten before the test, which can lower antibody levels and make the results less reliable. Because of that, many doctors recommend a gluten challenge (eating gluten regularly for several weeks) before repeating blood tests or considering an endoscopy if symptoms and labs raise concern. It would be best to review these results with a gastroenterologist, who can interpret them in context and decide whether further testing is needed.
    • trents
      Since you compromised the validity of the antibody testing by experimenting with gluten withdrawal ahead of the testing, you are faced with two options: 1. Reintroduce significant amounts of gluten into your diet for a period of weeks, i.e., undertake a "gluten challenge". The most recent guidelines are the daily consumption of at least 10g of gluten (about the amount found in 4-6 slices of wheat-based bread) for at least two weeks leading up to the day of testing. Note: I would certainly give it more than two weeks to be sure. 2. Be willing to live with the ambiguity of not knowing whether gluten causes you problems because you have celiac disease or NCGS (Non Celiac Gluten Sensitivity). There is no test for NCGS. Celiac disease must first be ruled out and we have tests for it. Celiac disease has an autoimmune base. NCGS does not. GI symptoms overlap. In the early stages of celiac disease, other body systems may not be showing stress or damage so, symptomatically, it would be difficult to distinguish between celiac disease and NCGS. Both conditions require elimination of gluten from the diet for symptom relief. Some experts feel that NCGS can be a precursor to celiac disease.
    • suek54
      Hi Kayla Huge sympathies. I was diagnosed in December, after 8 months of the most awful rash, literally top to toe. Mine is a work in progress. Im on just 50mg dapsone at the moment but probably need an increased dose to properly put the lid on it. As you have been now glutened, I wondered whether it might be worth asking for a skin biopsy to finally get a proper diagnosis? Sue  
    • MicG
      I had been eating reduced gluten until about 3 days before the test. I did realize that wasn’t ideal, but it was experimental to see if gluten was actually bothering me. One slip up with soy sauce and it was quite clear to me that it was, lol. 
    • trents
      Possibly. Your total IGA (Immunoglobulin A, Qn, Serum) is actually high so you are not IGA deficient. In the absence of IGA deficiency, the most reliable celiac antibody test would be the t-Transglutaminase (tTG) IgA for which your score is within normal range. There are other things besides celiac disease that might cause an elevated DGP-IGA (Deamidated Gliadin Abs, lgA) for which you do have a positive score. It might also be of concern that your total IGA is elevated as that can indicate some other health problems, some of which are serious.  Had you been practicing a gluten free or a reduced gluten free diet prior to the blood draw? Talk to your physician about these things. I would also seek an endoscopy/biopsy of the small bowel to check for damage to the villous lining, which is the gold standard diagnostic test for celiac disease.
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