Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Folate Deficiency? b12 deficiency? Hypothyroid? looking for some answers


LJR1989

Recommended Posts

LJR1989 Apprentice

Hi Guys,

I'm just looking for some insight. I was diagnosed celiac in August. I also had B12 deficiency which was treated with injections. I was symptomatic B12 deficient with tingling and pins/needs and the occasional numbness, tired, foggy. Things improved on that front after the injections and fast forward to about 2 weeks ago and the tingling started again and I started to have bouts of fatigue. I had some blood work done yesterday thinking by B12 was low again, but the results have come back in the normal range (though they have fallen significantly since I was last tested 9 months ago, despite oral supplementation, and at the rate they fell I will probably be deficient again in 6 or so months). At the same time of my original B12 test I was tested for Hypothyroid and the TSH level was 4.2 (by our standard in BC 5.03 is considered high) and then yesterday it was 4.7. BC labs wont test T3 and T4 even if its ordered unless its indicated by an out of range TSH, though they store the sample for 7 days... Basically I'm just looking for an answer as to what may be causing these nerve issues/tiredness... I'm wondering if it could still be a b12 deficiency despite normal levels, another b vitamin deficiency (the only one they test for here is B12, I can't get a folate of vitamin E test) or perhaps if maybe I do have Hypothyroidism despite the TSH being "normal" although 4.7 seems pretty high to me... any thoughts or experience sharing would be great! I should also add that my TTG IGA was negative on my blood work this time so I know I am managing my gluten free diet well. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



trents Grand Master

I believe folate supplementation can mask B12 deficiency.

Have you had your hemoglobin and ferritin levels checked?

LJR1989 Apprentice
1 minute ago, trents said:

I believe folate supplementation can mask B12 deficiency.

Have you had your hemoglobin and ferritin levels checked?

Yes, these were checked yesterday and both are within normal range. I haven't been supplementing with folate, I have just been taking sublingual B12 (1000mg daily), but I've just picked up a B Complex vitamin and started taking that today. 

Scott Adams Grand Master

I also take a B complex with vitamin C, as well as vitamins D and E. I also had issues with tingling and numbness in my feet, and it wasn't until I began taking Benfotiamine (a lab-made version of vitamin B1, also called thiamine), as wells as Magnesium Citrate, that my neuropathy issues have improved (over 25 years after going gluten-free, and taking multiple vitamins/mineral supplements).

These articles are older, but still helpful:

 

 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,516
    • Most Online (within 30 mins)
      7,748

    Hamid
    Newest Member
    Hamid
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      71k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • englishbunny
      They did a lot of stool samples so I know they ruled out parasites and bacterial infections. It sounds like the next step is trying to find a doctor I trust for a second opinion and to try and figure out if it’s celiac or NCGS. Thanks again so much. Honestly it’s been so hard to find any support until I found this forum 🙏🏻
    • Scott Adams
      Great questions! Elevated DGP-IgA is most commonly linked to celiac disease or non-celiac gluten sensitivity (NCGS), but other factors could play a role. Other autoimmune conditions, intestinal permeability (leaky gut), or even food sensitivities (e.g., dairy or FODMAPs) could also contribute to similar symptoms or test results. Fluctuating iron levels are common in celiac and NCGS due to malabsorption, but other causes like menstrual blood loss, dietary deficiencies, or gut infections (e.g., H. pylori) should also be considered. If celiac is ruled out, trying a strict gluten-free diet for several weeks can help determine if NCGS is the issue. Working with a healthcare provider to investigate further is key—let us know how it goes!
    • trents
      Gliadin (Deamidated)Ab (IgA) is DGP-IGA. You really need to have a total IGA done. This might be helpful. As you can see, terminology varies from place to place but this article pretty much lays out all the options in that regard.  
    • Mettedkny
      So far the numbers, and references that I have are: Gliadin (Deamidated)Ab (IgA) <15.0 Antibody not detected > or = 15.0 Antibody detected Gliadin (Deamidated)Ab (IgG) <15.0 Antibody not detected > or = 15.0 Antibody detected now waiting on the Tissue Transglutaminaseab, IgA  
    • trents
      No, if you are IGA deficient, your IGA celiac antibody test numbers will be lower than they ought to be so they should not be relied upon if they are in the normal range.
×
×
  • Create New...