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Got Glutened and now anxiety


Chris-B

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Chris-B Apprentice

So after my initial diagnosis I have been pretty proactive about maintaining a Gluten free diet and it's been roughly 4 months now. I try to eat healthy most of the time. I have suffered from occasional stomach pain during my healing process, but it has gotten better over time. Not a daily issue like it once was, but still lingering and waiting to strike. I don't eat take-out too often. Occasionally my SO will order Pho and that never causes any issue. Had Chipotle a few times and don't trust it's free from cross contamination, but no massive flare ups there. Probably going to cut it out though. So over the weekend we had an empty refrigerator, that or we didn't feel like cooking. After filtering through door dash options decided on a place that served Gluten free pizza as an option. Not keeping in mind that they also serve regular pizza. Should have. We also ordered some chicken wings because who doesn't love some good wings? This was Saturday night. Of course leftovers on Sunday. Last night woke up about midnight with stomach pain and had to use the restroom. I rarely have to do that in the middle of the night unless it's #1. It wasn't diarrhea or anything that seemed inflammatory, but just out of the ordinary because of timing. This morning I'm dealing with some stomach pain. Not severe, but moderate and it's annoying. I now believe my careless decision has definitely glutened me. I assume that very likely the pizza was cut on the same board as regular pizza and probably with the same slicer. Eating the wings was pure stupidity on my part. They were 100% guaranteed to be fried in the same oil as all sorts of breaded goodness I envy that others can eat. 😟 So anyways I am now wondering if anyone else has advice after being glutened or is this just a wait it out period? How long have your symptoms persisted after being glutened? I thought about fasting, but not sure what to do. Since my diagnoses I'm not sure I've ever felt 100% normal. Always something going with me. And my health anxiety on top of depression make it worse. I just want to feel good again. Thanks for listening.

 

Chris


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Scott Adams Grand Master

Hi Chris, Welcome to the forum, and I'm sorry to hear that you got glutened. Your story sounds a lot like issues many people with celiac disease face regularly--I too like to eat out sometimes, and usually pick restaurants that have gluten-free menu options, but like you, I've also had issues. For the past couple of years I've been using the GliadinX supplement (full disclosure--they are an advertiser here, however their ad does not include me touting their product in this forum). It is an AN-PEP based supplement that has been shown in multiple studies to break down gluten in the stomach, before it reaches your intestines. I now take 2 of them before I eat out, no matter how safe the restaurant claims they are. This may be a future approach for you, should you continue to eat outside your home.

As for now, this article might be helpful:

 

Chris-B Apprentice

Thank you Scott. I appreciate the reply. This has been so challenging and has been extremely stressful. Seems like after I hit 40 I’ve had a slew of issues. I’m honestly wondering how long I’ve had this disease and if my other issues are likely related. Seems like they may be. 

Scott Adams Grand Master

I believe you are correct, and that you have many related issues. On the positive side, you should see a lot of improvement with these other issues, should you maintain a strict gluten-free diet.

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    • trents
      Take it easy! I was just prompting you for some clarification.  In the distillation process, the liquid is boiled and the vapor descends up a tube and condenses into another container as it cools. What people are saying is that the gluten molecules are too large and heavy to travel up with the vapor and so get left behind in the original liquid solution. Therefore, the condensate should be free of gluten, no matter if there was gluten in the original solution. The explanation contained in the second sentence I quoted from your post would not seem to square with the physics of the distillation process. Unless, that is, I misunderstood what you were trying to explain.
    • Mynx
      No they do not contradict each other. Just like frying oil can be cross contaminated even though the oil doesn't contain the luten protein. The same is the same for a distilled vinegar or spirit which originally came from a gluten source. Just because you don't understand, doesn't mean you can tell me that my sentences contradict each other. Do you have a PhD in biochemistry or friends that do and access to a lab?  If not, saying you don't understand is one thing anything else can be dangerous to others. 
    • Mynx
      The reason that it triggers your dermatitis herpetiformis but not your celiac disease is because you aren't completely intolerant to gluten. The celiac and dermatitis herpetiformis genes are both on the same chronometer. Dermatitis herpetoformus reacts to gluten even if there's a small amount of cross contamination while celiac gene may be able to tolerate a some gluten or cross contamination. It just depends on the sensitivity of the gene. 
    • trents
      @Mynx, you say, "The reason this is believed is because the gluten protein molecule is too big to pass through the distillation process. Unfortunately, the liquid ie vinegar is cross contaminated because the gluten protein had been in the liquid prior to distillation process." I guess I misunderstand what you are trying to say but the statements in those two sentences seem to contradict one another.
    • Mynx
      It isn't a conjecture. I have gotten glitened from having some distilled white vinegar as a test. When I talked to some of my scientists friends, they confirmed that for a mall percentage of people, distilled white vinegar is a problem. The cross contamination isn't from wheat glue in a cask. While yhe gluten protein is too large to pass through the distillation process, after the distillation process, the vinegar is still cross contaminated. Please don't dismiss or disregard the small group of people who are 100^ gluten intolerant by saying things are conjecture. Just because you haven't done thr research or aren't as sensitive to gluten doesn't mean that everyone is like you. 
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