Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

So Yummy!


MallysMama

Recommended Posts

MallysMama Explorer

Well, we went to our anniversary dinner at the Stratosphere Tower here in Vegas! I cannot even describe how good the food was (not to mention the amazing view)!! I was tempted to call them beforehand and get the low-down on the ingredients - but I just didn't want to be different, I guess. So anyway - I ate every last bite of my heavenly dinner. So far - I'm just a little gassy but not hurting at all. Maybe, just maybe, I'm safe?? Does anyone know what a bernaise sauce has in it? I wasn't too fond of that...so I just had a little. Everything else seemed pretty safe. The salad had a vinaigrette (raspberry, I think) on it... so I figured that was probably okay. I tasted my hubby's lobster bisque (though I don't think that was safe to eat)....didn't love it so one bite was plenty for me. The baby potatoes, asparagus and artichoke heart didn't seem covered in anything harmful. And though I'm not sure what kind of seasonings they put on the steak (chateau briand?) ....I didn't figure that would hurt me either. From what I've listed - does anyone know for a fact that anything I ate was a "no-no"? I hope not...it was sure yummy - and we paid a lot for it... I'd rather not pay again in another way! ;) I'm trying my hardest not to cheat - but if I did tonight, maybe it'll mark my last day and I'll make a new start tomorrow! Cheers to healthy eating habits! :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

Any of that could have had gluten in it. You can't put ANYTHING in your mouth unless you KNOW it doesn't have gluten. "probably" can get you intestinal damage just as easily as anything else, and isn't worth the risk. the bernaise sauce could well have had gluten to thicken it, the vinaigrette could have had modified food starch as a thickener, the bisque almost certainly had flour in it, and the seasonings on the vegetables may have been suspect. You can't know for a fact if something is safe or unsafe unless you ask for the ingredients because ingredients vary all the time.

jenvan Collaborator

I agree with Tiffany, chances are that you did get gluten in that meal. Don't worry about being different, everyone is "different" sooner or later! It is the job of the folks in the restaurant to prepare something you can eat. They are there to serve, so don't be embarassed and ask up. I know you talked about having some issues with feeling different in the past, on your other thread. Needing a special meal doesn't make you any less of a person, or make you weird. Everyone has got something that makes them different--it is the spice of life! It may feel like a big deal asking for it in the beginning, but really, needing a meal that's safe really isn't such a big thing. And I usuallly find that we can set the tone with how others respond to our Celiac. Taking a matter-of-a-fact, this-is-just-my-life, not-a-big-deal attitude, will encourage others will follow suit. ...Whether we are in a large or a small group of people. Restaurants get people asking for that all the time. PS, there are also quite a few restaurants that have gluten-free menus, so try those too. Do make this your turning point! For yourself, your daughter and husband... Try and see if you can turn the situation around in your head. Get involved...know that everytime you ask for safe food you may be making it easier for another Celiac to get their meal in the future. Give yourself a chance to live a long and healthy life ;)

Guest nini

another thing to keep in mind is that fancy restaurants with a chef are actually easier to get a safe meal, yes it takes a litte explaining, but even if you don't have a chance to call ahead of time (which I recommend you do) is ask your server if you can speak to the chef, if they ask why tell them you have special dietary restrictions. When the Chef comes out, you should be able to explain it fairly quickly, especially if you carry a dining card with you. There are many sites where you can order them or print them out, or you can make your own. I've heard the Triumph dining cards are the best. Anyway. Your chef should be able to easily prepare you a special meal AND you may find that you get treated even more like royalty! Just be very sweet and humble about your requests (unless they give you a hard time, then leave) and you should be able to dine out at fancy places quite easily.

Also, I know you said on your other thread that you don't have many of the chain restaurants in your town that have gluten-free menus, but you CAN start calling local restaurants and talk to the chef/cook there. Try calling when they are not busy, after lunch rush and before dinner... and just ask if they can accommodate your dietary requirements. The worst they can say is no.

You do though absolutely have to start asking about ingredients in things, you can't just assume that something is safe. And while you may not be noticing visible symptoms, it only takes a molecule of gluten to continue doing damage to your intestines.

Yes this is a turning point. You can be more assertive about your needs. Your mother did it for you for years, now it's your turn. You CAN do it! I know you can!

jenvan Collaborator

Oh, ps--so you live in Vegas? Last time I was there, Olives made me a gluten-free meal (Bellagio). Also ate at PF Changs and know there is an Outback there too--gluten-free menus at both. PS--Have you cked out the LV Celiac support group? If not, I think it might be a good help for you: Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

    2. - cristiana replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    3. - trents replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    4. - Scott Adams replied to Aretaeus Cappadocia's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

    5. - Scott Adams replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      nothing has changed

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,192
    • Most Online (within 30 mins)
      7,748

    DenisC
    Newest Member
    DenisC
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
    • Scott Adams
      Seven months can still be early in celiac healing, especially if you were mostly asymptomatic to begin with—symptoms like low iron, vitamin D deficiency, nail changes, and hair issues often take much longer to improve because the gut needs time to recover before absorption normalizes. A tTG-IgA of 69 is not “low” in terms of immune activity, and it can take 12–24 months (sometimes longer) for antibodies and the intestinal lining to fully heal, particularly in teens and young adults. Eating gluten again to “test” things isn’t recommended and won’t give you clear answers—it’s far more likely to cause harm than clarity. Weight not changing is also very common in celiac and doesn’t rule anything out. Please know that your frustration and sadness matter; this adjustment is hard, and feeling stuck can really affect mental health. You deserve support, and if you can, reaching out to a GI dietitian or mental health professional familiar with chronic illness could really help you through this phase. This study indicates that a majority of celiacs don't recover until 5 years after diagnosis and starting a gluten-free diet: Mucosal recovery and mortality in adults with celiac disease after treatment with a gluten-free diet However, it's also possible that what the study really shows is the difficulty in maintaining a 100% gluten-free diet. I suspect that if you looked closely at the diets of those who did not recover within 2 years might be that their diets were not 100% gluten-free. Perhaps they ate out more often, or didn't understand all of the hidden ingredients where gluten can hide. Either way, it shows how difficult recovery from celiac disease can be for most people. According to this study: This article explores other causes of flattened villi:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.