Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

So Yummy!


MallysMama

Recommended Posts

MallysMama Explorer

Well, we went to our anniversary dinner at the Stratosphere Tower here in Vegas! I cannot even describe how good the food was (not to mention the amazing view)!! I was tempted to call them beforehand and get the low-down on the ingredients - but I just didn't want to be different, I guess. So anyway - I ate every last bite of my heavenly dinner. So far - I'm just a little gassy but not hurting at all. Maybe, just maybe, I'm safe?? Does anyone know what a bernaise sauce has in it? I wasn't too fond of that...so I just had a little. Everything else seemed pretty safe. The salad had a vinaigrette (raspberry, I think) on it... so I figured that was probably okay. I tasted my hubby's lobster bisque (though I don't think that was safe to eat)....didn't love it so one bite was plenty for me. The baby potatoes, asparagus and artichoke heart didn't seem covered in anything harmful. And though I'm not sure what kind of seasonings they put on the steak (chateau briand?) ....I didn't figure that would hurt me either. From what I've listed - does anyone know for a fact that anything I ate was a "no-no"? I hope not...it was sure yummy - and we paid a lot for it... I'd rather not pay again in another way! ;) I'm trying my hardest not to cheat - but if I did tonight, maybe it'll mark my last day and I'll make a new start tomorrow! Cheers to healthy eating habits! :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

Any of that could have had gluten in it. You can't put ANYTHING in your mouth unless you KNOW it doesn't have gluten. "probably" can get you intestinal damage just as easily as anything else, and isn't worth the risk. the bernaise sauce could well have had gluten to thicken it, the vinaigrette could have had modified food starch as a thickener, the bisque almost certainly had flour in it, and the seasonings on the vegetables may have been suspect. You can't know for a fact if something is safe or unsafe unless you ask for the ingredients because ingredients vary all the time.

jenvan Collaborator

I agree with Tiffany, chances are that you did get gluten in that meal. Don't worry about being different, everyone is "different" sooner or later! It is the job of the folks in the restaurant to prepare something you can eat. They are there to serve, so don't be embarassed and ask up. I know you talked about having some issues with feeling different in the past, on your other thread. Needing a special meal doesn't make you any less of a person, or make you weird. Everyone has got something that makes them different--it is the spice of life! It may feel like a big deal asking for it in the beginning, but really, needing a meal that's safe really isn't such a big thing. And I usuallly find that we can set the tone with how others respond to our Celiac. Taking a matter-of-a-fact, this-is-just-my-life, not-a-big-deal attitude, will encourage others will follow suit. ...Whether we are in a large or a small group of people. Restaurants get people asking for that all the time. PS, there are also quite a few restaurants that have gluten-free menus, so try those too. Do make this your turning point! For yourself, your daughter and husband... Try and see if you can turn the situation around in your head. Get involved...know that everytime you ask for safe food you may be making it easier for another Celiac to get their meal in the future. Give yourself a chance to live a long and healthy life ;)

Guest nini

another thing to keep in mind is that fancy restaurants with a chef are actually easier to get a safe meal, yes it takes a litte explaining, but even if you don't have a chance to call ahead of time (which I recommend you do) is ask your server if you can speak to the chef, if they ask why tell them you have special dietary restrictions. When the Chef comes out, you should be able to explain it fairly quickly, especially if you carry a dining card with you. There are many sites where you can order them or print them out, or you can make your own. I've heard the Triumph dining cards are the best. Anyway. Your chef should be able to easily prepare you a special meal AND you may find that you get treated even more like royalty! Just be very sweet and humble about your requests (unless they give you a hard time, then leave) and you should be able to dine out at fancy places quite easily.

Also, I know you said on your other thread that you don't have many of the chain restaurants in your town that have gluten-free menus, but you CAN start calling local restaurants and talk to the chef/cook there. Try calling when they are not busy, after lunch rush and before dinner... and just ask if they can accommodate your dietary requirements. The worst they can say is no.

You do though absolutely have to start asking about ingredients in things, you can't just assume that something is safe. And while you may not be noticing visible symptoms, it only takes a molecule of gluten to continue doing damage to your intestines.

Yes this is a turning point. You can be more assertive about your needs. Your mother did it for you for years, now it's your turn. You CAN do it! I know you can!

jenvan Collaborator

Oh, ps--so you live in Vegas? Last time I was there, Olives made me a gluten-free meal (Bellagio). Also ate at PF Changs and know there is an Outback there too--gluten-free menus at both. PS--Have you cked out the LV Celiac support group? If not, I think it might be a good help for you: Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - JoJo0611 replied to JoJo0611's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      CT with contrast.

    2. - Scott Adams replied to Ginger38's topic in Related Issues & Disorders
      2

      Shingles - Could It Be Related to Gluten/ Celiac


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,398
    • Most Online (within 30 mins)
      7,748

    Megannnnn
    Newest Member
    Megannnnn
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • JoJo0611
      I didn’t know there were different types of CT. I’m not sure which I had. It just said CT scan with contrast. 
    • Scott Adams
    • Scott Adams
      I had the same thing happen to me at around your age, and to this day it's the most painful experience I've ever had. For me it was the right side of my head, above my ear, running from my nerves in my neck. For years before my outbreak I felt a tingling sensation shooting along the exact nerves that ended up exactly where the shingles blisters appeared. I highly recommend the two shot shingles vaccine as soon as your turn 50--I did this because I started to get the same tingling sensations in the same area, and after the vaccines I've never felt that again.  As you likely know, shingles is caused by chicken pox, which was once though of as one of those harmless childhood viruses that everyone should catch in the wild--little did they know that it can stay in your nervous system for your entire life, and cause major issues as you age.
    • trents
    • Clear2me
      Thanks for the info. I recently moved to CA from Wyoming and in that western region the Costco and Sam's /Walmart Brands have many nuts and more products that are labeled gluten free. I was told it's because those products are packaged and processed  in different  plants. Some plants can be labeled  gluten free because the plant does not also package gluten products and they know that for example the trucks, containers equipment are not used to handle wheat, barely or Rye. The Walmart butter in the western region says gluten free but not here. Most of The Kirkland and Members Mark brands in CA say they are from Vietnam. That's not the case in Wyoming and Colorado. I've spoken to customer service at the stores here in California. They were not helpful. I check labels every time I go to the store. The stores where I am are a Sh*tshow. The Magalopoly grocery chain Vons/Safeway/Albertsons, etc. are the same. Fishers and Planters brands no longer say gluten free. It could be regional. There are nuts with sugar coatings and fruit and nut mixes at the big chains that are labeled gluten free but I don't want the fruit or sugar.  It's so difficult I am considering moving again. I thought it would be easier to find safe food in a more populated area. It's actually worse.  I was undiagnosed for most of my life but not because I didn't try to figure it out. So I have had all the complications possible. I don't have any spare organs left.  No a little gluten will hurt you. The autoimmune process continues to destroy your organs though you may not feel it. If you are getting a little all the time and as much as we try we probably all are and so the damage is happening. Now the FDA has pretty much abandoned celiacs. There are no requirements for labeling for common allergens on medications. All the generic drugs made outside the US are not regulated for common allergens and the FDA is taking the last gluten free porcine Thyroid med, NP Thyroid, off the market in 2026. I was being glutened by a generic levothyroxin. The insurance wouldn't pay for the gluten free brand any longer because the FDA took them all off their approved formulary. So now I am paying $147 out of pocket for NP Thyroid but shortly I will have no safe choice. Other people with allergies should be aware that these foreign generic pharmaceutical producers are using ground shellfish shell as pill coatings and anti-desicants. The FDA knows this but  now just waits for consumers to complain or die. The take over of Wholefoods by Amazon destroyed a very reliable source of good high quality food for people with allergies and for people who wanted good reliably organic food. Bezos thought  he could make a fortune off people who were paying alot for organic and allergen free food by substituting cheap brands from Thailand. He didn't understand who the customers were who were willing to pay more for that food and why. I went from spending hundreds to nothing because Bezo removed every single trusted brand that I was buying. Now they are closing Whole foods stores across the country. In CA, Mill Valley store (closed July 2025) and the National Blvd. store in West Los Angeles (closed October 2025). The Cupertino store will close.  In recent years I have learned to be careful and trust no one. I have been deleberately glutened in a restaurant that was my favorite (a new employee). The Chef owner was not in the kitchen that night. I've had  a metal scouring pad cut up over my food.The chain offered gluten free dishes but it only takes one crazy who thinks you're a problem as a food fadist. Good thing I always look. Good thing they didn't do that to food going to a child with a busy mom.  I give big tips and apologize for having to ask in restaurants but mental illness seem to be rampant. I've learn the hard way.          I don't buy any processed food that doesn't say gluten free.  I am a life long Catholic. I worked for the Church while at college. I don't go to Church anymore because the men at the top decided Jesus is gluten. The special hosts are gluten less not gluten free. No I can't drink wine after people with gluten in their mouth and a variety of deadly germs. I have been abandoned and excluded by my Church/Family.  Having nearly died several times, safe food is paramount. If your immune system collapses as mine did, you get sepsis. It can kill you very quickly. I spent 5 days unconscious and had to have my appendix and gall bladder removed because they were necrotic. I was 25. They didn't figure out I had celiac till I was 53. No one will take the time to tell you what can happen when your immune system gets overwhelmed from its constant fighting the gluten and just stops. It is miserable that our food is processed so carelessly. Our food in many aspects is not safe. And the merging of all the grocery chains has made it far worse. Its a disaster. Krogers also recently purchased Vitacost where I was getting the products I could no longer get at Whole Foods. Kroger is eliminating those products from Vitacost just a Bezos did from WF. I am looking for reliable and certified sources for nuts. I have lived the worst consequences of the disease and being exposed unknowingly and maliciously. Once I was diagnosed I learned way more than anyone should have to about the food industry.  I don't do gray areas. And now I dont eat out except very rarely.  I have not eaten fast food for 30 years before the celiac diagnosis. Gluten aside..... It's not food and it's not safe.  No one has got our backs. Sharing safe food sources is one thing we can do to try to be safe.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.