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Gluten free for over 12 years. Now celiac panel levels are up. I’m


Sue C

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Sue C Rookie

I have been doing ok for several years so I haven’t been on your site. Today my Drs office called to let me know my levels came back high on the celiac panel (see attached). Because of Covid we haven’t been eating out a lot but I have ordered take out thru Uber from Jersey Mikes and pizza from NY PD. I also have been eating a lot of ice cream. So I’m not sure if it could be from the dairy. Any ideas? 

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Do NOT trust gluten free pizzas. They're gluten free per se, but they're probably baked in the same ovens as the regular pizzas. IMO, fast food places are the worst when it comes to cross contamination. 

Scott Adams Grand Master

Recent studies have shown that most restaurant food contains traces of gluten, even if you order off of the "gluten-free" menu. Do you eat out very often, if so, this is the likely source of contamination. I take AN-PEP enzymes when I eat out (gliadinX which is a sponsor here), but in your case you may want to not eat out at all for a few months to get your diet under control.

If you don't eat out much then perhaps there is something in your diet, like oats, that you can't tolerate, or is not gluten-free?

Sue C Rookie
1 hour ago, Scott Adams said:

Recent studies have shown that most restaurant food contains traces of gluten, even if you order off of the "gluten-free" menu. Do you eat out very often, if so, this is the likely source of contamination. I take AN-PEP enzymes when I eat out (gliadinX which is a sponsor here), but in your case you may want to not eat out at all for a few months to get your diet under control.

If you don't eat out much then perhaps there is something in your diet, like oats, that you can't tolerate, or is not gluten-free?

We’ve always eaten out at certain restaurants. My husband died recently and someone ordered us gluten-free Pizza. It was so good, I’ve been ordering it about once a week. I guess it was too good. Now I’m eating strictly from home and keeping a food diary. Hopefully everything will go back to normal.  

DJFL77I Experienced

you can be almost certain its from your fast food

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    • trents
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    • KRipple
      Thank you so much! And sorry for not responding sooner. I've been scouring the hospital records and can find nothing other than the following results (no lab info provided): Component Transglutaminase IgA   Normal Range: 0 - 15.0 U/mL >250.0 U/mL High   We live in Olympia, WA and I will be calling University of Washington Hospital - Roosevelt in Seattle first thing tomorrow. They seem to be the most knowledgeable about complex endocrine issues like APS 2 (and perhaps the dynamics of how APS 2 and Celiacs can affect each other). His diarrhea has not abated even without eating gluten, but that could be a presentation of either Celiac's or Addison's. So complicated. We don't have a date for endoscopy yet. I will let my husband know about resuming gluten.    Again, thank you so much for sharing your knowledge with me!
    • Jmartes71
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    • aattana
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