Enterolab report, does this indicate celiac?

[Scott Adams]

3 hours ago, dolson said:

I agree with everything you said, White Ridges. Yes, doctors think they are "little gods" and many I no longer respect their ability to help me. If they don't know something, they blame it on other stuff or say it could be this, could be that. They will never say they "don't know" but I found my Type 1 diabetic doctor say "I know nothing about that disease". He has my utmost respect.

Many are rude, condescending, can't wait to get you out of the office and don't be late because they will charge you. If they are late, they are probably buying a Porsche or fancy auto. I've heard that all my life. Many have lied to me. Once they get into medical school they always graduate. They're in like flint. If you find one that has not graduated, it's because they have decided to not be a medical doctor. Most doctors are super jealous of each other. One dermatologist cut down another dermatologist because he was making more money. Doctors and hospitals are BIG BUSINESS! Dorothy  

I happen to know some very nice, down to earth doctors who really do put their patients first (and have almost no home lives because of their approach). Of course, like anything, there can be good ones and bad ones, but it would not be fair to assume that they are all the same, and have the same motivations for becoming a doctor. 

[white ridges]

On 3/30/2021 at 2:41 PM, jen99 said:

Thank you all, I'm so glad to find this community. I have been gluten-free for about 2 months after latently discovering the link between autoimmune thyroid problems + gluten. Recently I did an enterolab comprehensive lab for me & daughter (not yet 4 yrs old.) I specifically wanted to test her because from 10months-30 months she was chronically constipated. I removed dairy, white flour and most rice during this time. It resolved a bit miraculously. Constipation is not a regular problem anymore, but ever since perhaps 2 years old she routinely has headaches and occasionally complains of tummy aches too. She also has had random bouts of eczema, usually on her back or bottom. 

So, enterolabs (fecal study) comes back and MINE shows somewhat mild result of anti-gliadan IgA (14) when 10 is normal. Also slightly elevated with oats. But virtually everything else checked was either null or very minor. <No problem; I can manage my diet.>

My daughter's shows:

• Anti-gliadin IgA: 130 (10 or less is normal)
• anti-oat IgA 34 (10 or less normal)
• Anti-Tissue Transglutaminase IgA 17 (normal less than 10)
• Yeast 4 (normal less than 10)
• antigenic foods: 26 (normal less than 10)... corn, almond, milk, egg, garbanzo and sesame seed all tested high/significant. Rice and soy moderate, walnut, cashew and white potato low. 
• ... literally there was nothing that they tested to which apparently there was no reaction! 

My head is spinning... questions:

 

1. Does the TTG score of 17 mean she has celiac? (or likely?) 2. Others have experience with a report like this? 3. Should I get different testing done? 4. How to address the apparent laundry list of offending foods? 

My partner doesn't want to put her through blood tests or invasive tests, he believes we should just eliminate gluten & oats, and watch the other "problem" foods and try to limit their frequency.  I will add that our general network of nearby primary care drs are not helpful; they have routinely chalked up eczema to being normal and acceptable, headaches as a ? (her eyes are fine) and they wanted to prescribe miralax for constipation. 

TIA

Hello,

Back in 2008, when Enterolab did my test, my Anti-Gliadin IgA was 1345 -Yikes!

I was never diagnosed as celiac but genetically predisposed to gluten sensitivity.  After following their dietary advice for 2 years, I tested again and the score was normal.  I continue to be gluten free and my GI system has never been happier.   Soy was also a big 'no no' for me and I continue to avoid that as well.

I remember that before being tested, the more whole grains I ate, the more constipated I became.

White Ridges

[dolson]

Hi White Ridges, I've forgotten to look at my Enterolab report, but mine was not bad, per Wayne Persky. I was told to eat everything soft and eat lots of meat for healing. There comes a time when you get sick of being sick and want to try and live a normal life, but with three autoimmune diseases, that's impossible. Seems I can only eat rice. I am eating a rice cake now and semi-soft pecans. I cheat ever so often. I am basically on a caveman's diet. My problem is extreme brain fog and fatigue. I found a medication used for cholesterol usage and they found it stops diarrhea if you're experiencing that. Double happiness. I never had diarrhea with Celiac only with Microscopic Colitis which is a devil. You live in the bathroom and have no life. If you have diarrhea I will give you the name of the drug to get your life back.

Soy will send me into the bathroom in a heartbeat. I will live on the toilet, even with this drug. Soy is one of the worst and I leave it alone like a demon.

I think you are smart to continue to be gluten free. More and more restaurants are serving gluten free foods. It must be on the rise and many people are suffering from Celiac.

I pray to God to give me a miracle healing. I can't take it any longer. Good luck, Dorothy

[CMCM]

2 hours ago, dolson said:

Hi White Ridges, I've forgotten to look at my Enterolab report, but mine was not bad, per Wayne Persky. I was told to eat everything soft and eat lots of meat for healing. There comes a time when you get sick of being sick and want to try and live a normal life, but with three autoimmune diseases, that's impossible. Seems I can only eat rice. I am eating a rice cake now and semi-soft pecans. I cheat ever so often. I am basically on a caveman's diet. My problem is extreme brain fog and fatigue. I found a medication used for cholesterol usage and they found it stops diarrhea if you're experiencing that. Double happiness. I never had diarrhea with Celiac only with Microscopic Colitis which is a devil. You live in the bathroom and have no life. If you have diarrhea I will give you the name of the drug to get your life back.

Soy will send me into the bathroom in a heartbeat. I will live on the toilet, even with this drug. Soy is one of the worst and I leave it alone like a demon.

I think you are smart to continue to be gluten free. More and more restaurants are serving gluten free foods. It must be on the rise and many people are suffering from Celiac.

I pray to God to give me a miracle healing. I can't take it any longer. Good luck, Dorothy

I'm sad to hear of all your problems and I feel for you.  I will just say that perhaps you have a LOT of sensitivities all interacting together, and perhaps a very limited and bland diet free of typically problematic foods could help you heal eventually.  I have a lot of food issues....gluten, dairy, corn, soy, certain vegetables and fruits, and more.  I don't take any medications at all other than a simple BP medication, but many I've had in the past upset my system. Many vitamins are a problem.  It goes on and on.   I was at a point where I began to think that NO FOOD would agree with me.  I've been on a limited diet for 3 months now and I'm finally feeling human again....my digestion is normal and very quiet for the first time.  No bathroom issues any more.  I feel good.  It takes time and patience, but I keep reading that if you have one identified sensitivity, you quite likely have more that you haven't considered.  A simple, limited diet is incredibly helpful to identify what bothers you.  After a time, add those foods back one at a time and see what happens.  I also found with myself that after a long period of a simple diet, I could actually tolerate things again that I couldn't tolerate before.  The main exception for me  has been gluten of course, and also dairy and corn.  Those will be forever no-nos for me.

Edited April 12, 2021 by CMCM

[dolson]

Wish I could help, but lost. Dorothy