Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can all this be caused by celiac disease?


Pow10

Recommended Posts

Pow10 Newbie

I have suffered over a decade as a result of numerous failed surgeries & a severe infection caused by it! Since then, I have neuropathy down my leg & foot, severe lower back pain, constant constipation, severe abdominal bloating and gas after eating, thyroid disease, vision deterioration, dry eyes, dry mouth, low vitamin  D levels, anemia, abnormal blood work indicating some type of autoimmune disorder, joint pain, easily bruising, slow healing of cuts, scrapes or burns- usual appear infected quickly, blister like bumps on scalp which multiply with increased stress, hair loss, weak nails, ringing in the ears...and it goes on. Finally, some of the symptoms have been linked to celiac disease. As a result, I am now on a gluten free diet and some symptoms are beginning to improve. Is it actually possible that most if not all my symptoms are inter-related to my celiac disease? I new to all this and hoping for more insight.

  • Scott Adams changed the title to Can all this be caused by celiac disease?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Scott Adams Grand Master

Welcome to the forum!

The short answer is YES! All, or nearly all, of your symptoms could be due to untreated celiac disease:

 Since you've already gone gluten-free, unfortunately, you won't be able to get tested for celiac disease to verify that you have it, as you need to be eating gluten daily in the weeks leading up to any tests for it.

If your symptoms are resolving, and continue to do so, it's likely that they were caused by gluten sensitivity, and possibly celiac disease.

Pow10 Newbie

Thank you Scott so much for getting back to me and confirming what I thought based on my body’s response to going gluten-free. I have seen so many doctors over the last decade but each one seemed to look at my symptoms in isolation and deemed the others as unrelated. Following my colonoscopy, (actually 2 in a month and a half- due a positive biopsy requiring removal of the area), my doctor told me to try a gluten free diet and see if it helped my numerous Gastrointestinal issues. I did sort of half-heartedly at the time, since I really knew nothing about it and thought it was just another half-baked idea. It wasn’t until my husband and I were out town and I had severe flair up that my husband went on-line and started doing some research.  When he started plugging in symptoms and asking about gluten, results from thing led to another. Finally, we started to understand what gluten was and could be doing to me. After which, I spoke with my doctor who confirmed I should switch to a completely gluten free diet and give it couple months.the results of which have been amazing. I’m really surprised by problems, which had been previously dismissed as unrelated, that have slowly been improving. The change is quite remarkable! I still don’t feel I found a doctor that truly looks at the whole picture. I am truly appreciative of this site and the guidance and support it offers. 
I do have a question regarding getting vaccinated for Covid 19- since the vaccination alters the RNA could it also negatively impact my condition? I can’t decide if getting it is safe considering how new they are or not. Any advice or insight would be very helpful! Thanks a ton!

Scott Adams Grand Master

There are no known issues with the covid-19 vaccine in those with celiac disease, so definitely get vaccinated. 

It's great to hear that you are recovering, and keep in mind that eating out is a common source of contamination (I take GliadinX AN-PEP enzymes before eating out--they are a sponsor of this site), and there are many details you should learn about the diet:

 

Pow10 Newbie

Thank you so very much- I wish I’d read this response before last night’s dinner out. The restaurant assured me my dinner would be gluten-free, unfortunately it was not. As a result, my abdomen swelled up with 30 mins. of eating and then it went downhill from  there. Any other suggestions on what to do if I am accidentally exposed to gluten? Is there anything else I can have on hand to take at the signs of symptoms beginning? Thank you so very much for your support.

RMJ Mentor

I’m so glad that you are getting good results by going gluten free!

The COVID-19 vaccines do not alter your RNA.  The Pfizer and Moderna vaccines contain messenger RNA. It remains in your arm muscle for a short time (hours) while it is “read” and the spike protein from the virus produced.  Messenger RNA does not last in the body for very long - it is broken down. The Johnson and Johnson vaccine contains DNA that codes for the spike protein from the virus.  Again, it does not alter your DNA and does not enter the nucleus of your cells,  but your body uses it as an instruction to make messenger RNA and then the virus spike protein.

Doctors are recommending that people with autoimmune disorders still get the vaccine.

GodsGal Community Regular
On 4/2/2021 at 12:07 PM, Pow10 said:

Thank you Scott so much for getting back to me and confirming what I thought based on my body’s response to going gluten-free. I have seen so many doctors over the last decade but each one seemed to look at my symptoms in isolation and deemed the others as unrelated. Following my colonoscopy, (actually 2 in a month and a half- due a positive biopsy requiring removal of the area), my doctor told me to try a gluten free diet and see if it helped my numerous Gastrointestinal issues. I did sort of half-heartedly at the time, since I really knew nothing about it and thought it was just another half-baked idea. It wasn’t until my husband and I were out town and I had severe flair up that my husband went on-line and started doing some research.  When he started plugging in symptoms and asking about gluten, results from thing led to another. Finally, we started to understand what gluten was and could be doing to me. After which, I spoke with my doctor who confirmed I should switch to a completely gluten free diet and give it couple months.the results of which have been amazing. I’m really surprised by problems, which had been previously dismissed as unrelated, that have slowly been improving. The change is quite remarkable! I still don’t feel I found a doctor that truly looks at the whole picture. I am truly appreciative of this site and the guidance and support it offers. 
I do have a question regarding getting vaccinated for Covid 19- since the vaccination alters the RNA could it also negatively impact my condition? I can’t decide if getting it is safe considering how new they are or not. Any advice or insight would be very helpful! Thanks a ton!

Hi!

I'm definitely not a medical professional, researcher, or scientist. So, this is not intended as advice. Ultimately I believe that each person has to make these choices for themselves.

I thought‪ pretty long and hard about getting vaccinated. For myself, I chose to get the vaccine. My thinking behind that decision was:

1) Most of the symptoms of Covid are the same symptoms that I have or may have on a daily basis. That is especially true if I accidentally get "glutened" or "dairy-ed". I work hard to avoid that, but unfortunately it does happen from time to time.  So, there is a good chance that I could get and/or spread Covid without even knowing that I had it.

2) My job is not one that allows for social distancing. So, I could unintentionally spread Covid to alot of people.

3) While the vaccine itself is new, my understanding is that mRNA research has been going on for awhile now. The process of making the vaccine has gone faster because the developers have been able to use knowledge gained from previous mRNA research. 

I hope this is helpful!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,340
    • Most Online (within 30 mins)
      7,748

    Michelle.a97
    Newest Member
    Michelle.a97
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.1k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Morgan Tiernan! I find it outrageous that your physicians refused to test you for celiac disease despite what were obviously outbreaks of dermatitis herpetiformis. Every physician should know that dermatitis herpetiformis is a classic symptom of celiac disease! In fact, celiac disease is the only known cause for dermatitis herpetiformis and because dermatitis herpetiformis has such a distinctive appearance with the pustules in the bumps they should recognize what it was. There is just no excuse for this! You do not mention having any GI distress so I'm sure they were discounting the possibility of celiac disease because of that. Anyway, one thing that might be helpful to you is to look into a low iodine diet. Iodine exacerbates dermatitis herpetiformis. There is also a med called Dapsone which is effective for dermatitis herpetiformis but it needs to be used with caution as it puts stress on the liver. So, if you were taking Dapsone you would need to have your liver enzymes checked regularly. Not every dermatologist is familiar with the correct way to biopsy dermatitis herpetiformis so I hope it was done correctly in your case. My understanding is that the samples need to be taken next to the bumps and not on the bumps. At any rate, if your biopsy is positive for dermatitis herpetiformis you have your official celiac diagnosis. By the way you spell "coeliac" I'm assuming you live in the U.K. If so, there may be some extra benefits available to you if you have an official diagnosis. Keep us posted.
    • Richardo
      I've never had problems with quinoa but I always rinse it well before cooking in case it's processed with other grains. I think quinoa is classified as a seed. I can't eat grains at all but I can eat all seeds. Ain't the human body a pandora's box of surprises??? 
    • Morgan Tiernan
      Hi there! I’m new here and very grateful to any information that can be provided on the topic of Dermatitis Herpetiformis. I’m 22 years of age and have been struggling with this rash since the age of 19. We’re pretty sure it was brought on after having Covid (which resulted in shingles on my backside and strep a year or so later ) I struggle with intense itching and burning which often cannot be reached by a scratch. A find myself applying pressure on the skin in the early stages of it developing. Once it surfaces, small fluid filled blisters can be seen, most often on my chest, back, forearms and forehead (but has sometimes been in more places). We have only recently discovered its link to eating gluten, however getting doctors to listen to me has been a real struggle. They refused to test me for coeliac and offered me no follow up information or care plan, leaving me with no choice but to follow a gluten free diet off my own whim. The rash instantly improved in a couple of days, but of course I now struggle to be tested appropriately without having to go back to eating the dreaded stuff. Anytime I reintroduce it I become so unwell with dermatitis herpetiformis and tiredness. I am also struggling with outbreaks in between taking oral steroids to treat a flare up after being glutened (steroids provided by my private dermatologist thank goodness for him!) We’re now in the process of waiting for a skin biopsy, but I’m finding the outbreaks in between difficult to manage. I enjoy going to the gym but also dance competitively. Sweat seems just to irritate like nothing else. dermatitis herpetiformis has got in the way of so many aspects of my life already and I’m struggling now to navigate it affecting me doing the things I enjoy.  I’m after some advice from anyone who can relate or has experience of similar issues. I struggle to get this information from health care professionals so would love any advice or support from anyone if possible.  Thank you so much for your time  
    • Matt13
      Hi knitty kitty, Scott and all, Thanks for kind words and asking!I will def. talk about histamine intolerance  on my next visit to gastro doc. My doc.gastro says that lactose or casein is very unlikely to create marsh 3b histology like gluten in adults in intestines. (that was previous question for Scott) Regarding my last EGD the villy was OK so refractory is out of the question based on my talk with dr. If Scott is right and there are so many intolerance in food for celiac what is left to eat?? And now histamine? I mean what should i eat? Maybe gastritis is doing all this trouble? Thanks Kind regard    
    • Rogol72
      @Richardo, I'm in the same boat as you! I can't handle certified gluten free oats at all. Quinoa is the worst, even when I soak it in water and then wash under the tap for 10 minutes ... I have a reaction. It must be an immune system reaction to the proteins in these gluten-free grains. 
×
×
  • Create New...