Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What are the biggest reasons for not healing?

mikemcm22
 Share

Recommended Posts

mikemcm22 Explorer
mikemcm22
Posted

Hey all, 

What are the biggest reasons for not healing? I am 110% sure of my diet/cross contamination, eat very clean foods, workout, and I have all the same symptoms as I did two years ago. I've put so much effort in for little change. 

My latest GI says she has no idea what wrong with me - and is not even 100% sure that I have celiac now. I had negative blood tests but positive endoscopy, a year later the villi were all back with a gluten-free diet being the only big change. I was told it is fairly likely though. 

Thanks.   

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Scott Adams Grand Master
Scott Adams
Posted

The number one reason is not being 100% gluten-free, perhaps because you eat at restaurants, or you've got something you eat regularly that is contaminated.

Other reasons include the following, and we happen to have an article that will be live in a couple of days just this topic:

  • Lactose Intolerance
  • Helicobacter Pylori
  • Small Bowel Bacterial Overgrowth
  • Yeast Overgrowth
  • Other Food Sensitivities

There are a small percentage of celiacs who have refractory, or non-responsive celiac disease, and here are articles on this:

https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/refractory-celiac-disease-collagenous-sprue/

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,890
    • Most Online (within 30 mins)
      7,748
    Ivette M
    Newest Member
    Ivette M
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      71.3k
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • thejayland10
      Suggestion for meats with no chance of cross contact?

      By thejayland10 · Posted

      I am taking my celiac a lot more seriously now and want to avoid chances of cross contact, does anyone have any good ground turkey brands or chicken brands they can recommend ? 
    • trents
      R there any organizations that help with financial costs of food?

      By trents · Posted

      Moms Across America for one. Here's the article that kicked off long thread and more than one thread on Celiac.com this past summer:  Our community feels the testing needs to be tightened up. As of now, GFCO allows food companies to do self-testing and self-reporting. Testing is also done We strongly believe testing needs to be done more frequently and there needs to be drop in, unannounced testing by the FDA and certification groups.
    • CiCi1021
      R there any organizations that help with financial costs of food?

      By CiCi1021 · Posted

      What celiac watchdog groups have looked into what you mentioned? Thanks.
    • trents
      R there any organizations that help with financial costs of food?

      By trents · Posted

      Welcome to the forum, @CiCi1021! Well, to begin with, most of us have found it isn't necessary to buy a lot of specifically labeled "gluten free" or "Certified Gluten Free" prepackaged food items as long as you are willing and able to cook from scratch. This is especially true since testing by celiac watchdog groups has cast some serious doubt on how consistently food companies are actually meeting gluten free and certified gluten free standards. It's probably just as effective and certainly less expensive to buy naturally gluten free mainline food products such as fresh meat, vegetables and fruit and prepare your own meals. The only major exception to that in my experience is loaf bread. It's very difficult to make your own gluten free bread products and have them come out decent with regard to texture. The major food companies have invested a lot into that component and have come up with some pretty good stuff that's hard to duplicate for yourself.
    • CiCi1021
      R there any organizations that help with financial costs of food?

      By CiCi1021 · Posted

      Struggling with costs of all the special food.  Are there any organizations out there that will assist with costs? 
×
×
  • Create New...